The Hermit Club
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Hi all -
I hope you don't me joining you (and being hungry with all of the references to bacon!
). I walk the line between introvert and extrovert, so I'm a part time hermit. I've found that since I've been diagnosed, I'm getting more and more so. I was actually happy when a friend cancelled on me Saturday night so I could cuddle in with my animals and binge on Sense8 on Netflix. I made some incredible Chicken Tikka Masala in the crock pot, and just enjoyed myself. 0 -
Hi CJ- welcome to our thread. We often need to hermit during treatment, even if we are working through it and have to keep other things going. I still spend a lot of time alone, just a result of everything we go through. I enjoy it too, and find I no longer can tolerate other people's drama.
It looks like you may be in the midst of chemo and hope you are doing okay so far.
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Hi Jazzy - Thanks for the welcome! I'm working through and I'm lucky to have a great group of coworkers. I love being with them, but I do love being able to work from home, too. Drama is so overrated and not worth it. I think when you get a diagnosis like this it's a wake up to what is really important. So yeah, I can't deal. I have a friend who cannot handle my diagnosis, but wants to be able to. So she makes plans, then cancels at the last minute. I just shrug. It's her way of dealing with it. I'm usually happier when plans are cancelled anyway.
Yep, I'm smack dab half way through my treatment. Done with AC, moving on to Taxol this Thursday. Fingers crossed that it's easier for me. We'll find out.
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CJ- I had a couple friends who could not deal with it either. As you go through treatment, chances are you may not feel like making plans with people anyways, because you won't know how you will feel. And with working too, I can tell you during my treatment, all I could do is work, do the treatment stuff, and rest a whole lot. You might just tell your friend you need to just hold off on making plans for awhile. Maybe give her something to do like an errand to run or some other favor so she feels like she is helping you. A lot of people just get freaked out by the cancer thing. We really do feel like we need to accommodate other people during all this, but in reality, we have to just put ourselves first for a change.
You sound like you have a great support work group and they will be your helpers!
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Hi everyone!
I don't know about you all, but this rain, rain and more rain here is keeping visitors away and me deep in my crab shell!
Hi Lookforward! I fully agree!
Jazzygirl-LOVE the hermit bingo!!!!!! Awesome!!! 🦀😀 Double-LOL @people make me tired! They really do!
tsoebbin-praying your results are negative for Her2! But if not, Herceptin is awesome and very effective!
Welcome CJ!
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its got hot here, i am waiting on results of various tests, and really feeling quite low.....still no further forward on recon, tho my notes now do say how cheated i feel as it is a right, and always was, I hate liars and people who won't do their job well enough to facilitate your rights at the proper time, in fact if i am not feeling low i feel angry and don't edit my mouth much !
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Teka - that made me laugh.
Jazzy - you're right. I do have to make this about myself. I'm not good at that. On good days I want to do everything. On bad days, I just want to hermit in and cuddle with my various critters.
Started Taxol on Thursday. I feel better - more alert - but my fingers feel like I've been on a lobster boat off the coast of Maine mid-winter. (Dry and chapped). Slept worth crap, but coffee is perking me up.
Happy Memorial Day Weekend to those in the States!
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Teka
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Ready for a visit from the Sandma
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Love the pics Teka and Jazzygirl!
Bummer looks like my post yesterday didn't go through.
Teka-yummy breakfast! We were rushing my daughter off to dance class so I only had Cinnamon Chex yesterday, but this am we had homemade waffles! Mmmm. My husband also made maple bacon and waffle ice cream last night and it was amazing! Like breakfast ice cream!
Praying for you Lily. I've had anger of my own.
I was feeling too bad for us to go to my in-laws' house yesterday but they all came to us! My husband's 2 Aunts and 2 Uncles came just really to see me and encourage me all the way from Indiana-SO sweet. I was anxious about it because seeing more people means this is more real: that I have no hair, and I have no boobs, and I really have had breast cancer and this isn't a nightmare. I cried and had anxiety the night before but enjoyed the company immensely. It exhausted me, though. And, I could feel their pity on me.....
Baby steps.
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Hi ladies, how is everyone doing? I've been off the site for awhile trying to reclaim my life. I stepped outside my hermit cocoon and got a job as a part time nanny, that I start next week. I just wanted to ask if anyone else has developed dental problems after chemo? My nails are very brittle still and my teeth are too. Broke a tooth in January eating popcorn! I have tmj so the repair was painful for my jaw and took 2 1/2 months to feel better. Now I think I cracked a tooth under my crown on the other side and my teeth are super sensitive to hot and cold. Pain radiates under my jaw. I couldn't find any discussions on this topic on bco and I worry I'll lose my teeth! Unfortunately, I don't have very good dental coverage and we are broke after cancer treatment and me not working. Feels like cancer is the gift that keeps on giving. Sorry to complain, no one else to talk to about it who understands. Let me know if you had dental issues too after treatment and what helped. Thanks!
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Sorry this dropped out of my favourites and I don´t know how..........
Beautiful snowshoe kitten.............
My news - no colon cáncer but other problems there but now shadows on lung so off to lung specialist...............there is never a week when i am not in one hospital department or another...............
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Hi maidentired-so sorry you have had these dental problems. I completed chemo on 3/31 and have not had any dental problems. (Knock on wood).
I hope yours get better!
Lily-so glad you don't have colon cancer. Praying the other tests are negative.
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Hi maiden- I did not do chemo, but wondered if you are doing AIs and have had your bone health checked? The AI's can impact bone health and lead to osteopenia and osteoporosis. I happen to know that you can have osteoporosis of the teeth, my mother had it in her later years causing a few of her teeth to fall out. None of this was related to chemo, just to the osteo, but the AIs do cause a problem with that.
Because my other had osteoporosis in her later years and I was just slightly osteopenic going in to the AIs, I have stayed on top of the bone health issues because of the family history and seeing my mother go through a broken hip. I now do a Prolia shot that builds bone health and is keeping everything strong until I finish the 5 years.
Lily- concerned about your news here. Please keep us posted. Sending you prayers for good outcomes sister.
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Having got my hopes up about a possible earlier recon it was all a big fat CON......spent most of my time since then in tears or on verge of tears and waiting list is still over 3 YEARS, when I have already served 4 years sentence...........surgeon I saw today was lovely and I wish he could opérate on me but he has told me to make a big complaint to the system.............back to square one, so tired of fighting for what is a RIGHT
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Oh, Lily55! Though I haven't followed your saga, being a comparative noob to these boards, you have my sympathies nonetheless. To put this behind us, with an approximation of normalcy? And then to have it snatched away?
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That bites Lily!
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So sorry Lily.
Lol Teka-that's perfect!
I had to have an unexpected surgery yesterday because I have an infection. PS took out the TEs, washed me out, and put new TEs in. She said she was glad we did it because she removed a lot of "suspicious fluid". I had my BMX with TE placement on 5/5. It's been a wild ride but I actually feel much better after this surgery
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Georgia sorry to hear about your surgery, but glad you feel better. I found when I was in treatment it was one step ahead and two back, but you get through it. You sound like a strong women with a can do attitude.
Lilly I hope you can get your recon soon, I am waiting as well.
Teka that is so true
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3 years more is the MINIMUM wait now, on top of the four years....I still feel caught in cancer as cannot move on as not finished.....
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Thank you, Lookingforward! Yes I can see that it is like that. Guess I am starting my dance...😊
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Georgia-hugs on the unexpected surgery. Wishing you a quick recovery and better days.
Lilly- I am sorry things are still so difficult for you. Did you hear anything about the lung issues?
Teka- how is the gardening going?
I am busy with work and also have a dead car in my driveway to deal with today.
Wishing everyone better days and a good summer
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Thank you so much Jazzygirl! I actually feel so much better after this second surgery! It's amazing. I didn't know you weren't supposed to feel that crappy after surgery! I feel so good. I'm really glad I trusted the PS.
I wish good days for us all as well!
In one week I go back to work and have to crawl out of my shell. I am excited but I know socially it will be quite overwhelming. 🦀
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Georgia- do your co-workers know what is going on or did you just tell your supervisor? There may be a lot of questions from folks if they know so be prepared for that. I am self employed, and did not tell too many people. I was working for a client after surgery and while doing rads. Never said a world although they knew I had something going on. Although people generally mean well, it can keep you from moving forward to have to rehash things. Sometimes little tidbits like doing okay, still a bit tired, etc. are enough for most folks.
Glad you are doing so well after this last surgery. Some women have had some real challenges with the recon, others more with the lumpectomies or mastectomies. Good that you are not hurting from this one. You are on your way now.
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hi Jazzy, seeing lung doc on june 21st......how are you?
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Lily- doing okay this way and thank you for asking! Busy with work, summer activities, etc.
Fingers crossed for good outcomes with the lung tests.
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Teka- that is beautiful! Adirondacks in the summer, ah......
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Teka I'll grab my coffee and meet you there.
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From the growers market this morning.
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wow Jazzy those veggies look great, mine are just coming up and won't be ready for months.
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