For Arimidex (Anastrozole) users, new, past, and ongoing
Comments
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Nancyjac and Paula, I have knee problems and was set to get two replacements when all this started. My PCP prescribed Tramadol, and that helps most of the time. I don't have to take it every day. I can't take anti inflamatories at this time. I have been off those since my original surgery in Dec of last year. But the Tramadol does work for me.
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Moonflwr
I used to take tramadol or the brand name ultram. It works wonderfully. It works thru the nervous system, but I have to be very careful to take it on a full stomach or it sets a fire in my belly. So, I take generic Tylenol, because I can take it on an empty stomach.
I twisted my knee once, and had 2 cortisone injections within 4 days. They didn't phase me, but my doctor gave me a cocktail of tramadol & Celebrex. Worked amazingly!
Blessings
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I take glucosamine/chondroitin supplement for arthritis pain in knees. I think that is what is in Osteo Biflex. The onc knows i take it and never said a word about any contraindications so.... either there aren't any or he doesn't know.
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Still haven't heard back from my oncologist about the osteo biflex and since it is now the weekend, I won't until Monday. I think I'm going to take it anyway over the weekend on the assumptions she will say it is ok to take. If not, then I'll stop taking it Monday.
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I just use half a packet, instead of a whole one, for a little flavor. I have never had any bad reactions to any kind of food (perhaps that is unfortunate
). I'm not worried about the limited amount of Crystal Lite I drink. I think 'moderation' is the key word for most things. 0 -
ruthbru - you're right - MODERATION!!!
I react so badly to so many chemicals, but Spenda (sucralose) isn't one of them, fortunately. I know on some sites, it's got just as bad a rap as aspartame, but it's an integral part of the Optifast program....we sweeten our shakes with sugar-free Torani flavored syrups!
I told DH I may have beaten breast cancer and lost 56 pounds, but my brain is probably mush from all the sugar-free Torani syrups I've consumed since March.
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Splenda is actually sugar to begin with, so it is a bit different from other sweetners. I must say I love the caramel syrup....
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Everyone needs a little flavor in their life!!
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Last summer I used the Cran•Lemonade by OceanSpray. It's really yummy. I too don't like it too sweet so I don't use the entire package but then I broke out with a rash on my legs and figured out it must be from that. At the time I was still on Herceptin. I've tried it several times this summer and so far no issues. I don't drink it too often but other than that I only drink water. Sometimes I too need a little flavor in my life.
I find most flavors Crystal Light stuff gives me a slight sore throat when I drink it so I don't.
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Lago I think it might be the citric acid that is most of crystal lite drinks that is giving you a sore throat..I only like their lemon ice tea and i use a half teaspoon of it in my water glass with lots of ice... that does it for me... if I use it full strength or drink too much my mouth and throat break out...0
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I use citric acid (sour salt) in my sweet & sour cabbage soup and have no problems. Granted not as much as you find in those drinks so you might be right.
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Right now I have 16 bottles of Sugar-Free Torani Syrup on my counter. It looks like a coffee bar.
I already have Almond Roca, Caramel, Chocolate Macadamia Nut, Chocolate, Cinnamon Vanilla, Classic Caramel, Classic Hazelnut, English Toffee, French Vanilla, Irish Cream, Lemon, Mango, Orange, Peach, Peanut Butter, Raspberry, and Strawberry.
I really want to try Brown Sugar Cinnamon, Cookie Dough, Gingerbread, Peppermint, Pumpkin Pie, Vanilla Bean, Watermelon , and White Chocolate.
OOOPS! Sorry, nancyjac....thread hijack.......
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What is torani syrup?
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Msbelle - they are flavored syrups, either with sugar or sugar-free, that are very popular in coffee houses. They are very yummy
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Msbelle: You can sometimes find the Torani syrups down the coffee aisle in the grocery store.
Ruthbru: Thanks for the supplement info. I haven't been on in a few days.
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Do you use them for anything other than coffee?
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Msbelle - you can use them wherever you'd like a little extra flavor or sweetening.
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Ladies - for those of you who are new to Anastrozole, how long did it take for you to notice any side effects?
I'm having more joint pain than usual, and it's only been 11 days. Is it just my imagination?
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Mabelle I use them to flavor my sodas or waters.. I use them as syrup on pancakes or to flavor my pancakes..
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It took 3 months for me to start noticing SE from Anastrozole
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Within days I had side effects. After a week my doctor took me off it they were so severe. By the fifth day I was awake for 36 hours despite taking Xanax. I had multiple symptoms and they hit me hard and fast. I know I am in the minority here, but the SE's were brutal for me.
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Mini1 - you aren't alone.. me too - Onc took me off - I have 3 more weeks before he is going to talk to me and try a different plan of attack...
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I tried Aromasin the second time. I thought that one might be ok because the first couple of weeks I just had bone and muscle pain, but the SE's we cumulative and within 2 months I told him I would take my chances with cancer; I simply refuse to live like that. I had all the old SE's plus a few new ones. He wants me to try Tamox now. I'm very scared to try it given my track record with the others. There is a quality of life factor involved. I was 55 and felt 105. In fact I knew a lady that was 105 and she had more on the ball than I did on those meds. I know everyone always says it's better than the alternative, but for some of us it's just not that simple.0
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I have been on anastrozole for 4 months and can't really complain of any specific SEs. Sleep fine. Have some aches and pains but did before I started. I have heard that effects can be cumulative and I have a friend who has been on it for 4 years and just now is having joint pain that is getting severe. Because of cumulative effect, switching from one AI to another seems to work for some keeping the SEs manageable. I just take each day and figure I will deal with SEs if and when. I agree that QOL trumps all and respect the decision to stop if needed to achieve it.
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I wonder if the tolerance for the SE's is related to the person's ability to metabolize the meds. I know people that have relatively few SE's and some, like me, get them all. There must be a reason.
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It probably has something to do with a person's body chemistry. Why am I allergic to most classes of antibiotics? Or my SIL really allergic to bee stings? Or why does the next person have a life threatening reaction to peanuts?
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So I'm guessing it's the Anastrozole that is making me ache and moan and pop 3 Ibuprofen every night about this time?!?!?! It makes me so sad to feel this way and NO one in my world understands the lasting effects of cancer treatment. They just think..., oh, well you're done now right? And when I ty to explain they just shake their head and say "a-huh" and it's so obvious that they don't have a clue! Aarrrgghhhh!!! So much more education needed for the general public to have an "inkling" of what we've been through! Ugh! I just want to cry! But I need to go get my Ibuprofen now.
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Ruthbru, I have that same loverly allergy. Mycins, cyclines,illins,and some sulfas. I give the infectious disease doctor the shakes whenever I have an infection, they always have double think my meds. Oh well, so far we have been dealing. But I do know the fear when even a sniffle comes up. are we having fun yet!
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Seems the only antibiotics I can take are the really pricey ones...my body must have expensive tastes! We will just have to stay well.
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ruthbru...Like you, I have been eating prunes daily...yesterday I read a report about the effects of them producing estrogen. have you heard about that?
Will see if I can find the article...
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Ruth I too have a few antibiotics I can't take because of allergy or bad SE. Tetracyline gives me an automatic yeast infection, Doxicycline puts ulcers in my throat and I'm just plain allergic to Amicillyn.
C-squared most will never know. I mean I look great but I too get stiff although not enough to switch drugs yet. The nueropathy in my heel at this point will never go away. My feet get very sore at times but I'm hoping its the ESD and not nueropathy. At least I know ESD is not forever. I have friends that really suffer from nueropathy and chemo-brain… and it's been 1-2 years after treatment. I think chemo-brain must be the worst. I can only imagine.
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