Pinktober Revolution
Comments
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Oh, and I watched the Pink Ribbons, Inc movie last night. It was so infuriating. I'll be mentioning it on my facebook page, for sure.
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We need to also look at lifestyle for the increase in not just BC but others as well. In the days when cancer was relatively rare, our liquids were kept in jars not plastic. Foods were not genetically altered so they can be shipped coast to coast without spoiling. Chickens were not genetically altered to have larger breasts to accomodate the consumers preference for "healthier" white meat. The average chicken once took 4 months to bring to maturity; now it is 4-7 weeks. I also just read that the average woman uses 15 substances on her body, i.e. make-up, hair color, lotions, soaps, etc. As it showed on Pink Ribbons, Inc., Estee Lauder gives millions of dollars to BC causes, yet a box of perfume states "contains known carginogens." I actually think the box they showed was my perfume. In another study I read that they found 15 pesticides on ONE grape. Now think of that exponentially with all the food we eat. We put ourselves at risk becuase we want perfectly red shiny apples, containers we want to use and throw away rather than wash, and the body and skin of our youth. Not bad wishes, but at what price?
Additionally. because these products - makeup, perfume, soap, etc., are not medicinal, they are not regulated. Unless we demand as a society that they stop killing us with convenience and vanity marketing, it will continue. Call botox what it is. Poison; not a "cosmecuetical." Stop inventing diseases, ala osteopenia, so you can sell a pill with a myriad of side effects of its own. Stop the "all you can eat": mentality. All you can eat and all you should eat are vastly different beasts. Why do you think they serve oatmeal and apples at fast food restaurants? Not because they care about our helalth. They did it because they saw a drop in profits. The same with trans fats. Consumer awareness demanded a change and low and behold it has started. It's nowhere near what it needs to be, but it is a beginning and proof that we have the power to make changes IF we decide to utilize it. We need to demand safe products. We need to do it not just with our words but with our wallets. We need to educate our children, and we need to DEMAND that pharmacuetical companies not rule the research of our disease. They only benefit by taking our eyes off a cure and keeping it on the treatment of its effects. We need to get radical.
"Find out just what any people will quietly submit to and you have the exact measure of the injustice and wrong which will be imposed on them." Frederick Douglas
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Mini1, I agree wholeheartedly with what you say except your comment about osteopenia. Personally, I consider it a condition. I have it. It is the start of osteoporosis. I have built up some bone mass by walking more and eating more foods that are a source of calcium. It is one of the reasons I did not like the dismissive attitude of the onc I saw. She only knew I had lost some bone density and was not aware that I had built my number up from previous DEXA scan readings. When I informed her of such, she blew it off.
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I'm watching Pink Ribbons right now. I think that lady has my mustache from anastrazole! I keep mine bleached though!
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Kathindc - I used to think the same thing. Until I found out I had osteo and started researching my options. I have other medical conditions that limit my options so I did quite a bit of it. Osteopenia is a term coined by the pharmacuetical companies for what is a natural thinning of bones. Bones begin to thin naturally after our child-bearing years. Compare the bones of 20-somethings with the bones of 40-50-somethings and there will be a difference. But you don't need a pill for something natural and there is no money to be made. In fact, many men and women live there entire lives with "osteopenia" and do just fine. You do, however, need a pill for a "condition" or "disease." So they created a market for it by inventing osteopenia. But the fact is you have osteoporosis or you don't. I happen to have it now. Studies clearly show that osteoporosis drugs help those with oseteoporosis (though not w/o SE's, of course), but not those trying to prevent it (much like usingTamox preventively). There is scant evidence to show that it does, but we are told there is so we do it. Then a few years in they come out and tell us that we can have broken femurs or get jaw necrosis or a host of other SE's. It is very frustrating when you are trying to do the right thing and then find out that what you thought was a good thing isn't. I got the side effects without the benefits. Now when I really need the meds, I can't take them.
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Mini1, I did not mean to offend you. Please accept my apology. I am truly sorry to hear you got the side effects and now when you need the drug you can't take it. We always hope we are making the right choice at the time we have to make it. Just look at what is thrust upon us when we are given our diagnosis of breast cancer. I just want to convey how I dealt with osteopenia. I started losing bone density just as the drugs were coming out on the market. My doctor gave me a choice to try one of the drugs or try building bone naturally by walking and eating more calcium containing foods. I chose the later. As my doctor said, the drugs are too new and not enough is known regarding all the side effects. The cynic in me agreed with my doctor when it came to the drug for bones. I was relieved I made the choice I did as a few years out we started hearing about jaw necrosis and broken femurs. The cynic in me always makes me question medicine. I always feel it is too easy for drug companies to skew the research. I had a previous encounter with a primary care doctor, no longer in his practice, who wanted to give me a prescription for fen phen. He was indignant when I said no and I told him the only information he gave me was from the pharmeucutical company and there was no independent research. We all deal differently with the hand dealt to us by life.
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You might want to check out this blog post on what the pink means and attempts to achieve (but doesn't)--I thought it was really well stated
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OMG, they are having Warrior in Pink stuff on Price is Right at this very moment!!! ARRRGGHHH!!!!!! Everyone in the audience is in pink, Drew Carey is in a pink shirt, they are giving away tons of pink stuff with pink ribbons on it!!!! Breast cancer survivors are participating, wearing pink t-shirts.
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Kathindc - I'm not offended at all. I'm sorry if I came across that way. That's the problem with typing instead of talking. :-) I'm not thin-skinned all. You have no reason to apologize. I just wanted to share what I've learned along the way.
HAPPY MONDAY!
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In a few min.im gonna go on fb.and put the THINK BEFORE YOU PINK.ORG.
Im getting friends who are asking questions.
now i got the answers.
I cannot check it cause my puter is on its way out but im takin your advice and sending it along.
i post something everyday...this will be my todays post.
Tomorrow im goin to the dr to get my flue shot.Ill be wearing my shirt!!!!!
I get excited just thinkin about it and knowing im helping to get the word out.
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It's been almost 2 years since my (stage iv) diagnosis. While many know about the diagnosis, I've told very few about the stage iv. Up till now, I haven't mentioned anything about bc on my Facebook page. This month, however, I plan to make mention of the 'pinking of breast cancer'. I will post the 4 questions that are listed on the "Think Before You Pink" website. Today my post said, "We are all aware of breast cancer. Please, let's move forward and focus on research, prevention and a cure."
I also found out yesterday my local library is getting a copy of "Pink Ribbons, Inc." any day now, and I'm on the list to get it. I am hoping to view it and then recommend it to others on Facebook.
My purpose is to get others to think about their actions, make them more effective, understand that some corporations use the breast cancer platform for profits and not active solutions. I think people want to make better choices, and will appreciate the information.
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I posted a link to the Pink Ribbons, Inc movie page and suggested that anyone on my FB list who was interested in bc research watch it.
I also let my friends know that anyone posting any kind of pink ribbon shit will be removed from my FB feed for the month of October. I just don't want to see it.0 -
I also posted on facebook about pink washing and asked my friends to watch Pink ribbons, Inc. I also sent the same message to several friends in an email. Several have said they are sending it on. We're getting the word out slow but sure. I think we should write to celebrity BC "survivors." Robin Roberts, Christina Applegate and Giulana Ransic come to mind off the top of my head. I know there are many others. Just a thought.
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Keep it comin...YES....we are on the right track now..
I have friends repost what i posted.
One telling another....keep fighting sistas.
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The above is a link to a a simple form to fill out letting your own elected state officials know we want action. This is Breast Cancer Actions statement: After three decades of “awareness” campaigns and billions of dollars raised, breast cancer remains a public health crisis of epidemic proportions. It is time to demand that our elected officials take bold, meaningful action for breast cancer prevention and better breast cancer treatments through independent research and strong regulation. Take action today and ask your elected officials to publicly endorse the 2012 Breast Cancer Action Mandate for Government Action.
dx 2/9/11~ER+/PR+/Her2- stage iv0 -
I downloaded that kit, too. It's great. This is just what we need.
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It has begun. Normally I only post silly pictures and random meaning less crap on my FB. Today, this is my status.
Ugh, Pinktober has started. I feel compelled to bash the pink splattered all over FB already. We are all aware of breast cancer, it's time to move on to research, better treatments and a cure. About 39,520 people DIE from breast cancer every year.
10 to 20 percent of the 2.5 to 2.7 million breast cancer "survivors" in the United States will develop a recurrence. THERE IS NO CURE. Once it has come back, moved on to Stage IV, only 10% of of those diagnosed will live more than 5 years. Only 2% will be alive 10 years later. There is nothing pink about it. It is a horrible INCURABLE deadly disease that has been turned into a marketing ploy and made people rich with their pink crap. Ok, I guess I'm done now. I'll go back to posting meaningless silly stuff.
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Stormy- I hope you don't mind if I used your facebook status on my facebook. I loved it.
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Have at it Veggy!
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I just got a response from someone (I won't even call her a friend) on my facebbok after I used Stormys words. She bashed me for using it. She told me to "look at the posititve side of things...Not to dwell on the down side of it, but look for the up side of things, then those things turn around & look better for us in the long run" I am like WHAT?!!!What is she trying to mumble? She knows nothing. She should get her foot out of her mouth. What is the positive side of this or should I say the up side? I can't stop laughing. Where's the reject button?????
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One of the replys I got said "I'm pretty sure that most of the pink crap that is bought with the ribbon actually benefits the susan g. koman research. I think that buying/wearing the pink craps allows us without power to feel like we are doing something/anything to show support and help"
I told her don't even get me started on koman. Explained a bit about just becuase it's pink doesn't mean there is money going to something helpfull, but more than likely into someones pockets.
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May I add that I do wear pink and buy pink, but not the ribbon stuff or because it "benefits" BC awareness. Just as I wear other colors because I like the color or style, not because it stands for anything in particular, except for example black for a funeral and out of respect for the "event".
I am one of the ones who makes and posts stickers in stores and on merchandise with the following " Breast cancer is a disease, not a marketing ploy. ". And I have "accidentally" knocked over displays.
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It is so easy to get frustrated at those people who are never going to understand. Consider not spending much energy on them.
Let's keep spreading the word, getting the information out there because there will be those who do get what we are saying. They will start to look at the situation differently and start asking the right kinds of questions, making the right kinds of choices when it comes to supporting those of us fighting this battle.
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If you click the link above, it will give pull up a page from Breast Cancer Action that you can share on your Facebook page.
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Every flippin' time I get on WeTopia on FB it pops up with a Pink JC Penney window. Grrr.
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I understand why people feel the way they do about buying into the ribbon stuff. I have pink gardening gloves. Now granted I was buying a pair anyway, but I did buy them in pink for the same reason as most people buy pink stuff to "help." That was before I was diagnosed. Now I get it. If anything, the awareness we need today is not about BC itself, but about the pink-washing of it. I still say it has gone the way of the car alarm. A nice idea at one time, but now so common place that no one even bothers to pay attention to it even when it's making noise.
I will keep posting on FB. I sign off now with Stop Pimpn' the Pink!
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I post something everday about the pinkwashing and got lots of positive responses.I will post stormys post but im cutting it down....on my wall its getting old but im gonna do it anyway.
Today I wore my focktober shirt....it will also be on fb soon.
We are makin a statement.....lets just keep it going.
Grannydukes is an activist and will do anything to get the word out!!!!!
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Its on my fb....i got 1 instant reply from a dear friend.HE SAID GO GET EM!!!!!
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GrannyD I want to see! Friend me on FB Shelley Beabout Jones!!!
So today I was on Youtube and was waiting for a song to load and I got an ad for ACS Making Strides BC walk. I clicked "Skip Ad" so fast it would have made your head spin!
I have noticed though that in my area the pink is not as prominent as last year. Maybe the whole Komen/Planned Parenthood fiasco had some kind of effect on merchandisers. Maybe the backlash is starting. That would be awesome. I hope people will still give to the right causes.
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Shells--I've noticed that we aren't seeing as much 'pink' yet, but I think it will come a little later in the month. Yesterday as I was cruising arouind the net, I came across the American Cancer Society's Making Strides walk. You really can't find a lot of info on where the money goes, except that 'prevention' and it's not clear that it all goes to breast cancer. ACS has a low rating as a charity in terms of applying money to the cause.
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