Pinktober Revolution
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Wren--good idea! You can really see where the charity dollars go if you compare then on:
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I'm not sure I understand the objective here regarding the copyrighting of the mission statement. Is the objective to start a non-profit? Barbie's mission statement is great. If the intent is to create another organization isn't this basically a duplication of Breast Cancer Action? They have an entire section on "think before you pink."
http://thinkbeforeyoupink.org/?page_id=2
I would think that it would be more effective to agree on an established organization that meets the parameters of Barbie's mission statement and to put the weight of the BC community on these pages behind it.
Just a thought........
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I cant understand on the charity navigator. I went and put in komen, and i couldnt really understand what i was seeing
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Fred--did you get to the Komen page? As you scroll down, they tell you the % of the money that is used for expenses, programs, etc. and at the end they give it a numerical rating and a star rating based on where the money goes, compared to like charities. This puts you right on the Komen page:
http://www.charitynavigator.org/index.cfm?bay=search.summary&orgid=4509
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junif--my original thought on the copyright was to protect it from someone else taking an original idea of mine which has been expanded by everyone here for 27 pages --and taking it and trying to make money off it.
Brain is off, Noow I have to figure out where my e-Logon for the government copyright site is----the general website is open as LInda said, but the registration site has a logon, it was a pain in the arse to do, then I found out that PInkoctober Revolution without a statement behind it fell under trademark law.
Send your full names , Figures it's thursday nite, by the time I come up with answers, it'll be Fri. nite--screwed for the weekend.
MINI--exactly Once we get this done I'm taking a break --may be---did it once before, it was a healthy thing to do. One day at a time.
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Wow, SAS is back!!
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Today i posted on fb....and the winner is PINK REVOLUTION...STOP PIMPING THE PINKWASHING.
Do you know where your$$$$$ are going?
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Wren- I like that idea!
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Shells WOW way to make a smile come.
Linda the website is interesting ,but it's a tough read . The material is so dry. Now try the trademark law and see if The way I interpret is right. AND the fee structure---CP 105$ plus something else , but it isn't much. The tredemark is way more expensive, but I forget $. Crips sometimes I can't remember for seconds, then other stuff sticks like glue.-----In regard to your publishing >>ain't that a kick in the butt. Had that happen once.. I was studying something and sat right up>>>>someone contributing to the ACLS manual lifted my work from an EMS publication verbatim.
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I have a sister who is an IP (Patent &TM, copyright) lawyer. PM me with details if you all are serious. I'll take it to her.
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Audrey, what is your avatar a picture of? It looks like a pill with gorilla arms.....!?!?!
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Sas - I have a few answers to some of your questions. This is all garnered from the web, but I've tried to use reliable sources, including this site for the answer to one question. So here's what I have:
The youngest documented patient I could find was 10-year old Hannah Powell. Previous to that it was a 16 year-old. The article about her can be found at: http://ibnlive.in.com/news/10yearold-youngest-breast-cancer-patient/92965-17.html
Average age of occurance varied. Maybe someone with more analytical skills (or remaining brain cells) can do the math and come up with a mean age. This info was given by the ACS:
The risk of getting breast cancer increases with age. The table below shows the percentage of women (how many out of 100) who will get breast cancer over different time periods. The time periods are based on the woman's current age.
For example, go to current age 60. The table shows 3.45% of women who are now 60 years old will get breast cancer sometime during the next 10 years. That is, 3 or 4 out of every 100 women who are 60 years old today will get breast cancer by the age of 70.
Percent of U.S. Women Who Develop Breast Cancer over 10-, 20-, and 30-Year IntervalsAccording to Their Current Age, 2005-2007†
Current Age 10 Years 20 Years 30 Years
30 0.43 1.86 4.13
40 1.45 3.75 6.87
50 2.38 5.60 8.66
60 3.45 6.71 8.65I did find one article that said that in 2007 203,000 women were diagnosed with BC.
How many die of breast cancer metastasis? According this page, BreastCancer.Org - 34-40%. Although this number includes those persons whose cancer was diagnosed at a stage 3 or 4.Hope this is helpful.
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Damn those numbers are so scary.
As my motto is find a friggin cure/vacine....NOW.
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Agreed! CANCER SUCKS!
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I think you all should get a Netflix account (free for the first month, just cancel in a day or two) and watch the movie "Pink Ribbons, Inc." It will support everything you are thinking, there are some current statistics that you can use, and you will learn a lot about the whole pink-washing crap. Trust me, it's worth the effort to join just so you can watch this movie. I signed up, watched the movie, then cancelled my subscription.
Come back here after you've watched the movie and you'll have some facts to work with.
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I have Netflicks. I'm looking for it tonight!
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Ok, this is a long thread and I haven't read every page. What are good bc-related charities to donate to? As in, give a large percentage of what they take in to research? I want to be prepared to make some suggestions when all the Pinktober crap starts showing up on my Facebook.
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Yes, I think Cottontail has a very valid point. Reiterating our goals, we want to change the allocations of these big organizations so that their funding is steered more toward research than awareness, correct? So we need a list of "good guys".
Lets start a list with the requirements that at least 80% goes to research or direct patient care. This will be hard to find, I think, but that is the point. Please add to the list and cite the link where the statistics can be found, if possible, ok?
Pink Daisy Project - provides groceries, house cleaning and other services to breast cancer patients http://pinkdaisyproject.ning.com/
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I just posted on my FB page about the pink washing of breast cancer and encouraging people to watch Pink Ribbons, Inc. I'm also going to draft a letter and keep multiple copies with me, so when I find nauseating displays of pink crap in the stores I can post it and/or give it to the store managers.
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I was in Target the other day, and came upon the end-cap display of pinkwashed products.
I started searching each one to see exactly how much money of each sale was donated, and to what organization.
Imagine my surprise when I found that all the pink-themed "Blue Sky" brand of calendars and planners donated part of their proceeds to.......breastcancer.org!!!!!
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I went to Staples last week expecting to see a barfage of pink and was pleasantly surprised NOT to even find the pink Post-Its I was going to buy.
3M Pink Postits = $.50 to BCRF
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Good ----this is what the revolution is about----awareness in a different way----research and a cure or vaccine.
Going to bring forward Barbe 's vision statement and insert here below.. No consensus on mission statement so we will by pass that. Unless just by me saying it someomeone wants to raise the question.
Sep 9, 2012 08:52 AM, edited Sep 12, 2012 11:42 AM by barbe1958
Vision Statement:
To bring full awareness of the reality of breast cancer to the general public; the surgeries, the treatments and the horror that there is NO cure. To ensure that proceeds donated to the cause are publically noted and distributed in an appropriate manner for the community in which the funds were raised. To keep corporations accountable for the use of pink products and the medical field driven to move the cure closer to the finish line.
FOCTOBER - never forget, never pink!
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Mini I agree with Granny that those numbers are scarey, but they don't identifiy family genetics. To often someone ID's afamily member,and then doesn't get the connection. Plus premenaupasl and paost menopausuasal. When I went through genetic screening it was a big deal. What was missed was the quanity of women in the family having cancer-------------I'll go and find it and post.
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repost from dumbest thing any one said to you
sas-schatzi... FL Joined: May 2009 Posts: 5,279 Post a reply
Aug 17, 2012 02:03 PM, edited Aug 17, 2012 09:07 PM by sas-schatzi
Camille you have lot's of questions in your post. They are all very good questions. I'm sure it will generate allot of posts. !956, it was highly unusual to have a BMX. You don't say if evidence of disease was in both breast, or only one with the second breast being an elective. Also, in those days a radical mastectomy was done, which was removal of underlying muscle, can't remember how many nodes were taken, but that would be a quick google. The transition to Modified radical mastectomy was the next phase, it left the muscles intact and took the breast. Nodes dissection while mastectomy was being done, varied as to number taken from surgeon to surgeon. In the 70's frozen section done on the nodes closest too the breast, was done while the patient was on the table. If the nodes were clear on frozen section the surgery was complete. If they weren't, more nodes were excised until NED by frozen section report was received from the pathologist. Next phase, started in 1996 when the completion of the multicenter study of sentinel node injection became the Standard of Care. OCD me, now to your Mom, the real answer is who knows? Why did she survive with NED after that, anyone answering that question that says " It was b/c of this" or "IT was b/c of that" Is truly only quessing. Your Aunt if she is the same Aunt that had colin CA, it was likely mets from Breast caught early b/c if it had invaded to the nodes she should have had another distant recurrence, likely the liver. But she didn't. Also, she could of had a new primary colin site that wasn't mets from the breast. Either way she survived without further intervention. Again no one can definitely say why for the same reason I sited for your Mom. Sorry, I want the bold button off now and it wont' work. Then the chemo/ rads era became the Standard of Care with the development of drugs in the 70's. My first year of nursing school, I was giving a drug that was an"Ivestigational"drug, had a hell of time fighting to get the name of the drug and expected s.e.'s. "How can I give a drug that I don't know what it's s.e's are as well as how it acts" that was 1971 and it was 5FU. Today that would be considered a protocol breach of the trial. I was pain in the ass then too. Diverging. Don't remeber when Rads started , but the equipment was available in the hospital I worked at in the 80's. Research had to have started in the 70's perhaps before. LIkely before that, I would quess 50's. The research was ongoing, studies published, treatment protocols developed that became the Standard of Care(SOC). Patients advised as too treatment based on SOC. A member here , I would use her screen name but don't remember, quoted a physician (paraphrase, but close enough) "What does it mean when I am using the same protocols as I did 30 years ago". That's a huge statement regarding ADVANCEMENT in care or put another way no advancement in care. The numbers produced by staticians can play with the numbers, depending how the question related to the stats is asked . What we do know is the number related to how many women/men are getting BC has dramatically increased. That's goes back to why I felt analysis of the cluster in my family, was such a huge loss from a genetic research point of view. National Accepted stat for all women is 1:8. My family was less than 1:2 for BC, but greater than 1:2, if all CANCERs were factored in. Cancers have a predictable origin which also explains why they mets to predictable body areas. There are three original embryonic cells Endoderm, Mesoderm,Ectoderm. All body parts arise from these cells. The breast, liver,bone,brain,uterus/ovaries all originate from the same embryionic cell. Plus, when I said their was a sex linkage based on the difference in cancers between male 1:24 and female 10:19 cousins. Huge research boo-boo. Because if there is an identified linkage, it's easier to find the gene. All 10 of the female cousins had cancer related to the same embryionic cell. So, theoretically, there is something in the females genes XX as opposed to the males XY. Perhaps,way to much information.
hmmm bold went off by itself--who understands this not me Realized my count was off, it was 10/19 female cousins, but don't have energy to correct. Okay OCD kicked in, I'll do it for this post. Sheesh, just to way over the top OCD, corrected other posts.
Last thought about Standard of Care(SOC). Originally, SOC was local, then advanced to regional. In the middle 1980's the government created the "Agency on Health Care Policies and Research" The agencies mission was to establish "National SOC" to assure that everyone was receiving the same SOC throughout the country. Once a SOC has been established, it takes a great amount of "evidence based reseach" to change it. That is a slow process.
Camille, how much of this answered your questions, I don't know. Hope it helped. sheila/sassy
Edited after reading riley's post---Don't know what it means , but I'll just add it. All the women that had BC on the Paternal side that were tested were Er+ Pr- HER- and BRAC neg Age range at diagnosis late 30's to late 60's. Can't verify age of last Aunt dx'd late 60'early 70's, super advanced at time of dx. Doesn't,effectively, change info. Again someone jump in with explanation if you have one.
Also, if you find any info in post misstated. Tell me and I will correct. Don't want incorrect info hanging around in BCO land.
SAS
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Long repost above--key my family genetics suck. Iofferred to be a test guninea pig in the late 90's for whatever they what to do b/c of identical twin with BC. Turned down
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Mini thanks for your work--friends key in on what MIni wrote. To be a revolutionary you must know the facts, and speak them well. If someone has the energy to go back there were post by SpaecialK and Englishmajor that could be brought forward?
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I post everday something about the pinkwashing AND people are asing me all the time what does it mean..
I do answer them on a PM.....
I feel soo good that I am spreading the word......
Today I wrote Focktober is 2 days away.....Do you know what pinkwashing means?
Do you know anything about where the $$$$ goes?
2 different friends sent me pms...i told them from A-Z...
spreading the word everyday is makin people aware!!!!!!!
i am proud to wear my shirt Focktober....just ask me!!!!!!
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Granny-Go girl-Try and use PINKTOBER REVOLUTION in your statements.----------look at Barbe's vision statement above and incopoprate in to your response as a whole----otherwise it diffuses our copyright thingy.
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GOT IT.....GONNA START TOMORROW.
one of my friends asked me about it on fb. and another one wrote...oh no....please dont get her started again....i sent her a pm sayin....bullshit im here to spread the word.....I guess she is tired of reading it everyday...she knows all about the pinktober but she feels like im on overkill.....
tomorrow ill start woth PINKTOBER REVOLUTION....its on the shirt i got my DD and she is wearing it proudly.
One more day and the shit will hit the fan.....watch out phoneys we are gonna get YOU!!!!!!
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Can you really copyright/trademark "pinktober revolution" since Hard Rock has been using the word Pinktober for several years?
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