Pinktober Revolution
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FOCTOBER!
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I posted this on another thread but I thought I would put it here too. We need a shirt with something like - Stage One breast cancer and then the Clint Eastwood saying - Ask yourself one question. Do I feel lucky? Well do ya...?
For all those poeple that tell us we're "lucky" to be stage one.
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Sorry I just realized I deleted without explaining. I posted on here on accident about a picture of a bco candy bar with a headline that I didn't care for. It didn't pertain to pinktober so I deleted. I'm sorry!
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Mini, that's a great one!
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So some people I was friends with when I was a kid are at the race for a cure thing in Denver right now. I haven't talked to these guys for years. The only reason they know I have cancer is because my mom and their moms are friends and she told them.
Anyway, I log onto facebook and have a message saying one of them posted a picture of me. I'm thinking it's something from when we were kids, but nope. It's a pic of them at the thing in all pink, pink feather boas looking like they are at a party having a blast. They tagged it with my name, along with a few other people I don't know.
I untagged myself, didn't say anything, yet. I don't know if I want to go off about the pink bs, or go off about my having cancer isn't something I want splattered on facebook. I'll probably not say anything at all. Ugh!
Edited to add: Shes also just put up a bunch of pictures of their lil papers that say who they are walking for with my name all over them. What ever happened to respecting peoples privacy?
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Stormy, if it were me, I'd take the high road on that. I'd use it as an opportunity to educate them. I'd post links to websites and organizations that you support; ones that want a CURE. I'd thank them and add that we are all aware of bc, we need to be more effective with our donation dollars and find out more through RESEARCH.
I see it as they are trying to do the right thing. They mean well. I'll use an analogy here. I once read that when NASA sends a spaceship to a place like the moon, they send it up in the general direction, but along the way, they must continually self-correct the flight path as it speeds along so that it actually arrives at the intended destination. So I say your childhood friends are on the right track, yet I would suggest that you play the part of the NASA engineers and steer them correctly into the right path. You educate them, then they educate those around them, and so on and so forth. It's a grass roots effort. That is how this re-education of the pink ribbon is going to happen. We all do our a part so that the word spreads.
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I don't know if this article has been posted here yet, but this is a great piece from XOJane:
http://www.xojane.com/issues/what-next-in-the-name-of-breast-cancer-awareness
It talks a lot about not only the commercialization of bc, but the current "sexification" of it. I've just linked to it on my facebook wall, too.
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I think what pisses me off the most if that they think it's ok to put my name on facebook with that crap. I told a total of 5 people. They just told at least 300 with no reguard to my privacy at all.
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Yeah, there's no privacy when facebook is concerned. None. I think the best you can do is to not approve tags of yourself, but that doesn't really help if they're not tagging.
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Stormy....I so feel for you! There are many complexities to this. Can you bring this up with your mom...but I realized the cat is out of the bag so to speak now. Maybe you could post a private message to the person who leaked your name on Facebook. It's one thing for people to talk in private but to post something so personal without your concent is just wrong!!! If ANY one says anything to you directly because of this stunt I would simply say "it's a personal matter which I choose to stay personal" & if they come back with why it was on FB I would then say " I did not discuss or authorize my personal matter with the person/s who posted any info regarding me! Or something to that fact.
I know it's hard to keep your DX quiet when many are worried for you or five were. I was told once from a mother that her daughter was just DX with BC. I was told under strict confidence to keep it quiet! I was only told about her daughter because I myself was going through testing for BC 4 years ago & was talking to the mother about it. I have never heard a word whispered to me by any one else since about her daughter & I never said anything. It's rare that things like that can be kept quiet.
I really don't know the best way to handle this. I have been very open about my DX so that no wrong rumours got back to my kids!
Gentle Hugs Stormy......everyone has a right to their privacy!0 -
Excellent article Cottontail. Thanks for sharing. I think I will do the same.
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And the stupid pink papers with my name on it says CELEBRATE!! across the top.
Just what the hell are they celebrating? That this shit is going to kill me? 0 -
Stormy I'm so sorry they did that to you. I would want to write to them and tell them to take the photos down or Photoshop them so my name was gone. I'm sure their intentions were good, but definitely misplaced.
I will write to them if you want, just PM the names
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I just posted this on Hungry Howies FB page after seeing their pink pizza boxes on a commercial.
Exactly how much are you donating and to whom? There are a lot of people making money off our horrible disease with scant little of it going to research or patient support. I know I speak for many breast cancer patients/survivors when I say your pink boxes diminish us and make us nothing but nauseated. Please do us all a favor and just give a donation to a reputable program that is not all about "awareness" if you care so much.
STOP PIMPIN' THE PINK!
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How much do you think they spent on the pink cleats, gloves, hats, towels, pom poms, etc. for the Sunday football game? Not to mention the sparkly halter tops for the cheerleaders to bounce around in (I'm sure there are plenty of people aware of those bouncing breasts). I bet it would make a sizable donation to a reputable BC charity.
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Silly Mama----tell your friend about the Leukemia and Lymphoma society. They have a web page. Just google and it will list then click. See my note from above. They are incredible folks to work with, they have great volunteers that can walk her through the application process. I have a friend in Nebraska whose son had a brain tumor. She became extremely knowledgeable about childhood cancers. She and her DH started a foundation. Her son survived, but they had access to very good medical facilities and docs that were up to date on the absolute state of the art treatments. If she wants her phone number PM me and i will send it to you.
Shells my shirts aren't here yet, wish I hadn't waffled so much. DUH. Shells I think the fallout from the planned parent hood fiasco has irreprably hurt Komens gang. Plus, more and more people are asking harder questions.
Thanks again to all who have put up links to articles. Each one has been very educational.
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Makrat--thank you for the condolences re:DH the thought is very appreciated. I didn't make myself as clear as I probably could have. Each here knows how expensive cancer is, my point was how to find organizations to help patients which ultimately help the whole nuclear family unit b/c resourses take off financial stresses and other things as has been stated like transportation, childcare etc. I didn't ask for a Social Worker consult until 2010. What she provided was a list of organizations/foundations with phone numbers. Each organization on the list had there special thing. For example, the money from the foundation set up by the radiation onclologist. His staff explained that it was his way of giving back. I hope someone doesn't says he's making too much. He is a good person. His foundation is run well and has been in existence since 1993. It covers only two counties in Florida. His home counties.
From this list given by the social worker, I contacted many not all. The most worthless was ACS. After many questions, my reaction was basically they don't provide what they lead the public to believe they do.
The LLS has to be managed very well to be able to do the grants that they do. There is nothing comparable for other cancers that I know of. The LLS, also, funds research.
Had I asked for the social worker consult in 2009, I would have been able to make contacts earlier than I did. Anyone that I can tell about this important aspect, I do. Which is get a Social Worker consult early after dx to see what resources are available. My own MO's group has a foundation to assist with many things, but they didn't even tell us that it existed. I found it on the SW list. The SW was sent from my insurance provider, not the MO's in house SW.
Another foundation that would have substantially covered certain medications is Health WellAware(SIC?). Just adding this in case someone reading may want to locate them. Looked for #, but couldn't locate it. Just threw away there most recent request for a donation.
Stormy, I agree with everyone else----that sucked. Divine's advice to take the highroad and try to teach them b/c they obviously are oblivious to privacy.
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Our local paper just did a nice feature section on young breast cancer patients. It was well done, and showcased several local women who told their stories with honesty and grit.
The ads, though, were another story. Some featured companies that listed the amounts they donate annually, to which organizations, and for what purposes. Others simply stated pap like "Our company supports breast cancer awareness."
This month the paper will have another feature publication. You can send in a picture of a loved one and a short statement, along with your $50 fee. It will be published in honor and celebration of breast cancer survivors. Hmmmm....$50 for a tiny pic and a few lines? Where is the rest of the money going? They'll be getting a phone call from me for sure tomorrow morning.
I went through all the Sunday ads. Anything with a pink section was set aside by DH who gets up first. (I've trained him well.
) Any vendor who is pinkwashing will get a polite inquiry from me on behalf of the 120,000+ members of BCO, who want to know HOW MUCH THEY ARE DONATING and TO WHICH ORGANIZATIONS....or are they just using our disease as a marketing opportunity?To those who indicate that they make no donations whatsoever, but "support the cause" then I may just have to make those "our members will never purchase your products again.." noises.
I've reached my happy medium. I am o.k. with the pink soccer balls and the pink T-shirts worn by our firefighters ( LOVE our firefighters) and other "pink" things done by kids because they want to help.
But for those in a position of sending significant $$$$$$ to research organizations to actually FUND research for cures and prevention, I've got my mad on.
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My t-shirt says : Breast Cancer is NOT all Pink Ribbons and Long Walks --- hug a survivor
All proceeds go to ME, to pay for my tattoos to cover my mutilated breasts / post mastectomy scars.
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SheChirple: Love it!
My credit union had a tastful paragraph in their Oct newsletter. It suggested eating right, getting exercise, doing self exams and mammos and donating to research. Aside from the pink ribbon logo, it was good advice with no rah rah. I think I'll send them a letter of thanks.
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I absolutely CRINGE when I see these ... people ... all decked out for the "run" in pink tutus, pink feather boas, pink bras over their clothes. I just find it in extremely bad taste.
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Blessings, you have such great follow-through with the various advertisers. Great to hear. I got a chuckle out of your 'training' your husband.
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Sas-your shirts shipped on 10/3 so they are on their way!
I made my donation to BCO with the shirt $$. Thanks Y'ALL!
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Shells--sorry It"s not your worry about the shirts. They aren't here b/c i ordered so late, b/c I kept changing my mind. No complaints at all. You did everything you could to help i.e ordering them for me and I'm very thanktul for you help. Otherwise, I would have never have gotten it done. Thank you, thank you.
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Okay, so when they send a rocket to the moon they just point straight "up" then???
Can someone tell me WITHOUT links what the hell went on with Komen and Planned Parenthood? I don't want to read a bunch of crap, I just want to know the gist of it.
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I will try and others can correct me if I am wrong. Planned Parenthood has traditionally offered some health care, including screening mammograms, to women who couldn't afford them. Then Komen cut off Planned Parenthood from funding. The issue being that Komen's executives didn't want to support abortion. I think that's it in a nutshell. There was a huge outcry and many said they would withdraw from supporting Komen. So Komen reinstated Planned Parenthood. Some of the executive of Komen resigned. While Komen continues to fund Planned Parenthood, many are upset about the politicalization of Komen. Additionally, through this furor, many have re-examined how Komen does spend money and it turns out their executives make million dollars salaries (or close to it) and much money goes to awareness with only a very small percentage going to finding a cure. So some are deciding to donate elsewhere instead of Komen.
I am not aware of Komen operating in Canada. Our big events, like the weekend walk, are sponsored by one of our big pharmacy chains and all the money goes directly to Princess Margaret Hospital to Dr. Tak Mak and his team. So it doesn't appear that anything goes to awareness nor is any money distributed to other agencies.
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I knew we didn`t use Komen in Canada, that`s why I haven`t bothered reading the posts...thanks hrf, that was just the right amount of info I needed!
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Komen DOES operate in Canada it is affiliated with I believe the CIBC run for the cure - you'll have to look it up on line - they became affiliated approximately two years ago or so - I checked because I couldn't believe it - anyway check out who it is exactly they are affiliated with because I don't want to besmirch CIBC in case it is someone else - I don't believe in the Pinking I believe in research funding pure and simple - my birth mother and my adopted sister are both dead because of this disease and now I've had it for four years so believe me when I say I am AWARE!
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O.K. it isn't CIBC (unless they are also affiliated with these people) - it is Canadian Breast Cancer Foundation - head office in Toronto - announcement made jointly on January 12, 2010 - you can read it by googling Komen in Canada. I don't know if the CIBC run is tied up with Canadian Breast Cancer Foundation or not but as I don't support pinkwashing I don't donate to any charity unless it is research based and the few small charities that indeed give living expense money to our sisters who need it for treatment, groceries, rent, etc.
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hrf, that's pretty much right on for the Komen/Planned Parenthood thing went down. Though to be clear, Komen never guaranteed that PP will get money from them in the future, just that PP would be "eligible" to receive future funding.
There was a huge outcry over the whole debacle, and PP received public donations in excess of one year's grant from Komen. But that won't help them going forward if they don't receive funding in the future. I've heard that there are now some religious organizations that are threatening to withhold donations to Komen over their reversed decision. Although I don't much care if Komen gets those funds or not, it seems like further evidence to me that this country needs a health care system that isn't reliant on public funding and subject to political and religious whims. Every woman should be able to get screenings, regardless of her beliefs, and soon that won't happen if we let the church shut down the places that provide screenings.
Anyway, the whole debacle was good in that it brought Komen's finances under scrutiny.0
