Pinktober Revolution
Comments
-
Yes, thank you Ducky. I don't think of it constantly or anything like that, but it is so daily that it's always in the periphery of your mind.And it pops out at such unexpected times.
I tried on a cute shirt at a store a couple of weeks ago that would have been perfect for my trip to FL, bu then I turned and saw that my scar showed and made a very unflattering indention near my under arm, so back on the rack it went. At least most of the scar from lung surgery is on my back and not in my face all the time.
0 -
Still po'd about that stupid hooters shirt. I put this on my FB page. It may not be my most eloquent post, but I don't care.
Word of advice - unless you're an avid Hooters diner and your favorite Hooter's is about to be shut down and you're wearing the shirt to protest the closing, there is no excusable reason for anyone to wear a tacky, offensive shirt with strategically placed owls that says "Save the Hooters." You want to raise awareness? Then wear a shirt that says "Forget the Hooters. Save my (or my mom's/sister's/aunt's, etc) Life!"
0 -
Mini, sounds good to me. I detest those tacky "save the tata's, etc. shirts.
0 -
Have a good story for you all.
I notice a bottle of balsalmic vinegar on my counter. I looked at the label and noticed the pink ribbon and "$.___ of each sale is used for breast cancer research". I didn't realize I bought a pink label item but I didn't want to throw out the vinegar so I crossed out the pink ribbon and wrote on the label with a Sharpie, "no it doesn't."
0 -
Pink Ribbon vinegar. Go figure.
0 -
I was buying carpet pad today and they sell carpet pads for under carpet that have pink ribbons on them. says they contribute to the komen. I didn't buy it
0 -
My favorite is still the pink ribbon pepper spray.
0 -
Oh dear, pink is starting again with the commercials for the Avon Walk for Breast Cancer. Here in DC, it will be at the beginning of May. On top of that, one of my daughters got a flier in the mail trying to get her to do the walk (DH told me to put it in the trash because he knows how I feel about Avon and Komen). I was curious and went to Avon's web site and each walker has to raise $1,800 and you should see the cost to a sponsor for having their name on different items. Then I looked up their IRS form 990. Yes, they help women we diagnosis, treatment, transportation, etc. and do give to research but so much money is wasted because of the overhead involved. It never ends.
0 -
I saw a big display in an empty storefront in the mall. Isn't October bad enough????
0 -
All I can say is BARF! I was on a different web site and some discussion was taking place about all the concern and raising of money is for breast cancer. Some very sore feelings out there, and even though I had breast cancer, I can't blame them.
0 -
We need $$$$ for research.
Enuf with all this pink crap.
Enuf with komen and avon.
find a damn cure/vacine.
0 -
Sas, I'm so dumb, I think you just called me for my cancerversary! I didn't even remember what day it was!
0 -
Shells, I would like to say that was it, but just thought we hadn't talked in so long finally figured out it was when I was ordering tee. It was fun catching up. Timing was good b/c of possible insurance problem. So, will throw in Happy Cancerversary!!!!!!!!! Yeah. :}
0 -
Good Morning-friends, have been working on an issue with a member. Wanted to share with you all the note below b/c of it's importance. Hope you find it useful Sassy
(members name deleted) Glad the link helped. If you get the AARP magazine this months issue (probably dated may 2013) , there is a story about the safest hospitals and what safety procedures that are in place that cause them to be safe. The article cites that 180,000 people die a year due to medical/surgical errors AND 400,000 drug errors are made a year. The articles states that these numbers are likely higher b/c these are the ones that are reported. I agree. I know you've seen where I've said on the threads "Sorry etc for too much info, just want too make you(BCO memebers) safer". Guess I should stop apologizing for writing stuff in this regard. These numbers are higher then the last set of numbers that I had known. The problem is either getting worse OR there is better reporting. I'll go with better reporting.
It cited that one of the safety items was having an ICU Intensivist. It cited that only 35% of hospitals had Intensivist. I was dismayed at this percentage since residencies for Critical Care Medicine have been available since the 1980's. Truly thought by now that the "industry" would have been driven by demand for better care that this statistic would be 70 to 80%. ICU medicine is absolutely in need of a specially trained doc. Just as in all subspecialties of the American Medical Association(AMA), the knowledge and skills of this subspecialty are critical to survival when a patient is at this level of need.
I'm going to post this on the threads, I'll take off identifiers. My hope is those seeing this will locate a copy of the AARP article. Read it throroughly. Then question there local hospitals on each item. Based on what they elicit re:safety of each facility, they can choose the safest hospital near them for care. It can mean the difference between life and death, and or avoidable complications. Spreading the word to others regarding this may save lives.
Your description of where your friends daughter is now is typical. So, the care may have been fine or she recovered in spite of them. I'll go with the care b/c of your description of how she appears now. What was truly lacking here was the communication in lay terms to the family of was what was going on with the patient. All the lay person then can do observing is assume, as in this patients case, there appeared to be fractured care delivery and choas. What can the untrained person concluded observing this. As in all care, communication is the center of it all. Very often even the care givers question what the recovery will be. AND then the patient pulls through. Continuing with evaluating the records will lend a lot to the understanding of this event.
0 -
My mom and 2 good friends should have Death by Hospital and Doctor on their death certificates. Long stories and not ones that lay the blame on the hospital because no one wants to deal with the actual reasons. The hospital has acknowledged the malpractice and has aready paid out millions to one (a young woman with a 3-day old and a 3-year old). Please keep passing around the info. I think my signature says it all.
0 -
Mini, HUGS you never know where a word, or a sentence may save or change a life. Rather than corny, this is regrettfully to true. What's great about this being in AARP, is the membership is so vast and diverse. What was fairly hidden is now OUTED. How about tees that say" is Your Hospital Killing People?" Slogans please?
You know the more I think of what's in the article, I forsee greater change b/c of this article, AARP memebership has more political and consumer power than any other group in the country.Sheila
0 -
Hi folks dropping in with some links that you might find useful. Store away to pass around:) sassy
Someone mentioned CancerandCareers on the financial forum. GREAT web site for all things employment Thanks. I added it to my thread for newbies Just diagnosed -get prepared. Also, found another web site today, that I have included the link for, it is evrything you would like to know about saving money on drugs. The question and answer below the links are in regard on how to make the system work for you re: meds received in a cancer center.
Edit:6/6/13 Found two new web sites that are a must to review. One is on saving money on drugs. Start with 'home" page , then the really helpful page is the "About Us" Pg. Link is to home pge.
This next link is dedicated to most of the need to know info regarding work and cancer. BCO has much information on the main borad, but this link is much more expansive
HAVE A CALL OUT TO MY RESOURCE PERSON:If you bring in the coupon taken from the web site to the cancer center, will/can it be utilized to help pay copay ANSWER to question NO.
Per my resource: This is how to make the website work or other resources work for you while receiving cancer meds in a cancer center, SPEAK UP and let them know you need financial help, best to do when you have initial contact with CC. What they then do, if they are connected like mine, they go through their resources the same we would, but would be contacting as a a provider. Grant money or assistance can be available under all kinds of circumstances. Do not assume you make too much money or b/c you have insurance, money is not available. If say you get turned down initially, recheckin should circumstances change.
0 -
Another reason to hate pink -
0 -
Oh Alyson...I saw that.You posted it on FB....doesn't that just make u sick?
t turns my stomach.
If I had the guts to put on FB what I really wanted to say I swear I would get thrown off FB..WHEN will people get it????????
Exactly how much of all that pink shit goes for research?
Don't even get me started...it's only June.
I dread Focktober.
End of rant.0 -
Right there with you Granny!
0 -
Maybe they should name it "Are you aware there is no cure or prevention?"
Had to go to 2 stores to find non-pink, non-Komen gardening gloves!!!
0 -
To me those pictures don't say anything about Koman. But they are creating a pink and pretty little fantasy world for little girls to live in. A kind of monocromatic world where everything is the same. Where is it stimulation of different colors, the encouragement to be an individual?
0 -
Everything pink???????everyone knows that represents bc.....not even to mention komen who by the way suks its all this pink shit everywhere.That to me is just pushing the bc buttons.
stop pushing the damn buttons....everyone in this entire world is aware...they just have no clue where the $$$$ goes...and the fact that just a tiny portion goes for research makes my blood boil.
0 -
Chabba, You are right. Remember when we were fighting to keep from being "pretty pink girls"? I don't see pink Tonka trucks.
0 -
Chabba -
I agree. That picture isn't about Komen - it's about pink and girls.
Looks like the pic on the left is from England too. I'm on my phone but it appears there are prices in pounds not dollars.0 -
HAHA that started something.
I don't like either types of pink marketing. And yes. the prices are in pounds. I could find something similar from North America as well. Well said chabba, I don't want my grandaughter to live in a pretty pink world I want her to be an individual. None of the toys have pink ribbons on them it is just that they are pink.
0 -
Now these actually are advertised to support BC----
This one supports Komen!And a pink car!
$5 to BC research.I don't like pink being pushed on to little girls nor do I like pink being hijacked by companies to get sales at any time of the year.
0 -
Amen!
0 -
Hello, ladies.
I'll tell you what pisses me off is that the party stores have breast cancer sections where they sell pink feather boas, pink ribbon sunglasses, etc. I guess they figure you have to get decked out for that walk or fundraiser, ya know, because this crap is such a freaking party. Despicable.0 -
The Huffington Post printed this article on Friday. It is written by a woman with breast cancer who was a former Komen supporter. The link will take you to the full article, but I have posted a part of the article here as well.
Jude Callirgos: Strangled By Their Own Pink Ribbon
I quickly discovered a very hard line between people who considered themselves serious advocates in the fight against breast cancer and those who are still foolishly drinking the Komen Kool-Aid. You cannot be both. Here are the key points outlining why I believe that line exists:
1. Last February, Komen's politically motivated decision to deny funding to Planned Parenthood for breast screenings was an unmitigated disaster. Even though CEO/Founder Nancy Brinker tried to dial back that message several days later through her public relations machine, during an ill-fated interview with Andrea Mitchell (a breast cancer survivor), Brinker came off as shrill, unapologetic, defensive and very guilty. She poisoned her charitable organization with an obvious right-wing political agenda having no connection whatsoever to the mission. No amount of damage control short of a full public apology, firing conservative zealots like Karen Handel from her leadership team, and resigning from Komen herself, was going to fix it. None of this happened.
2. Once Brinker was under a white-hot spotlight, so too was her gigantic salary and list of executive perks. To the loyal, individual fundraiser who begged friends and family for donations every year, even in a miserable economy, learning that Komen's CEO was taking home $685K was insulting beyond measure. (It's worth noting that the 3Day event requires a minimum of $2,300.00 in fundraising per person, in addition to hefty registration fees, or you are not allowed to participate. Insult: meet injury.) Supporters exited in droves.
3. Komen was already struggling with a transparency problem at the time. As the anti-pink wave washed on their shores again, they came under fire for over-spending on administrative and executive costs, while all but ignoring the neediest in the breast cancer world: the metastatic or Stage 4 patients (i.e., the people who are dying). Upon further scrutiny, a mere 15 percent of Komen's war chest was going toward research! Fifteen percent. The metastatic community was livid, demanding that more monies go toward research and front-burner visibility for those with advanced disease. Critics believed that by focusing more heavily on "early detection" and "awareness programs" Komen gained stronger statistical wins, which in turn helped boost their brand and fill coffers, but did little to further their stated mission of finding a cure. It also helped keep their marketing images pink, healthful and winning; as opposed to sick, pale and dying.
4. If that weren't enough, back in 2010, Komen earned a reputation as a corporate bully. They trademarked "For the Cure" and "For a Cure" for use in advertising, and then legally went after charities no matter how small, to change their names, slogans and in a few cases, their marketing colors or risk a costly day in court with The Big Girls. The mere fact that their legal counsel was spending time and money chasing down and intimidating other charities who could ill-afford to fight them, was simply unforgivable.
5. Finally, the good work that Komen did by bringing global awareness to this god-awful disease was nothing short of awe-inspiring. The scope and reach of the message to women about breast cancer was ambitious, hugely successful and Komen grew to have a rightful position of prominence and influence in the conversation on women's health. Then somewhere along the line, the concept of "awareness" took on a life of its own until we began choking on pink everything and eventually came to understand our "pink ribbon Komen purchases" were really just corporate co-profiteering off the backs of sick people and the people who loved them. I cite in my book my utter discomfort at seeing the Komen swirl on everything from "my home heating oil truck to a bag of romaine lettuce;" the charitable equivalent of jumping the shark.
Several months ago, Komen sent out a very detailed survey to its "largest supporters" to try to understand how they could rescue their brand. I unloaded an hour's worth of very tough feedback but screamed out loud when one of the questions wanted to know how often I attended religious services. That intrusive survey was obviously the result of Ms Brinker and Company trying to uncoil very uncomfortable pink ribbons from tightening around their necks. In the end, politics, greed, and power-hungry leadership destroyed the mission and took with it our precious cash, hopeful memories and valuable trust.
The topic came to a head for me again this week when Komen cancelled half of its 3Day events across the country. Honestly, I don't care what their talking points say about why they had to do it. It's clear to me now that a large enough percentage of their supporters finally just gave up on them; don't trust them; went elsewhere with their money and sneakers and pink t-shirts. But their inability to turn the ship around feels more like a personal betrayal than a failure of vision to those of us who invested so much time and money and heart. I guess that's where the anger comes in.
With all due respect and apologies to my friends at Komen CT, to my family and to countless, generous supporters over the years, I have no energy or time for Big Komen Hate, but I have the good sense to move on and throw my weight and voice behind organizations and people who still stand a chance of being a force for good in this fight. I hope you'll join me.
The late Susan G. Komen and all of us who will die from this disease, deserved better.
0
