Come join others currently navigating treatment in our weekly Zoom Meetup! Register here: Tuesdays, 1pm ET.

Treating estrogen responsive cancer naturally

1313234363786

Comments

  • momoschki
    momoschki Member Posts: 218
    edited May 2013

    Della,



    I have also been taking DIM+ for a little over 2 years, but have not experienced any of the problems you've mentioned. In my own experience, break outs, weight gain and oily hair/skin have occurred when my estrogen levels have been high (with low progesterone levels.). Have you had your levels tested recently? You don't mention your age.



    Other supplements you may want to consider are D3, curcumin, resveratrol, and mushrooms (I take shiitake andy chaga supplements).

  • DellaHJ
    DellaHJ Member Posts: 46
    edited May 2013

    I guess I was not clear in my other post. My breakouts and oily skin is before using the DIM. I want to know if it helps. Thanks!!!!!

  • DellaHJ
    DellaHJ Member Posts: 46
    edited May 2013

    I am 49 but docs say I am NOT menapausal. Go figure.

  • momoschki
    momoschki Member Posts: 218
    edited May 2013

    Della, if it makes you feel any better, I am almost 56 and last had a period this past January, so haven't quite reached the official menopausal mark yet either. My ovaries just don't seem to want to call it quits.

    Can't say whether it is the DIM, but I have noticed that when I skip periods and have more menopausal symptoms, like hot flashes and night sweats, my skin clears up and hair needs less frequent shampooing.

  • DellaHJ
    DellaHJ Member Posts: 46
    edited May 2013

    Thanks, Momoschki. 

    I can't take Tamoxifen, but since I tried it the first time, it's like my system is hung up in static mode.  I've gained weight around my stomach (can't lose it), tired, achy, just like the Tamoxifen.  I read about the Zinc, Selenium, and DIM.  I have bought all three.  Doc says I need to get back to my "ideal" weight, which is 30 lbs lighter (I'm 5'9", and my ideal weight is emaciated), but she says it will lower the estrogen.  I'm scared to not take the poisons and scared to take the poisons from the doc.  Does that make sense??

  • purple32
    purple32 Member Posts: 1,767
    edited May 2013

    Della

    It makes perfect sense.  I  take neither...which may not be too wise.  I lost 30 lbs recently.  Weight Watchers works.

  • CCFW
    CCFW Member Posts: 570
    edited February 2014

    del

  • Mini1
    Mini1 Member Posts: 1,309
    edited May 2013

    CCFW - I've been reading on what you can use the pulp for and have found some interesting post and videos. Making crackers, using it in smoothies, in soup stock and adding it to muffins; even in pet food. Since so much is created, I know that much of it will end up in my compost pile, but I'm excited to see what uses I can come up with.

  • DellaHJ
    DellaHJ Member Posts: 46
    edited May 2013

    I admire people who do the juicer thing, but it's all I can do to keep fresh fruit stocked.  Plus, how do you get over drinking something so green.  I feel like I am drinking Kermit's plasma.  LOL!

  • smo23915
    smo23915 Member Posts: 71
    edited May 2013

    Oh my gosh I love it, "Kermit's plasma"!!!  So true!

    Today I added red sweet beets to my smoothie it was so good.  My next try is to add mushrooms to it.

    Sharon

  • shayne
    shayne Member Posts: 524
    edited May 2013

    I started drinking green smoothies as soon as I got home from surgery.  we bought a Vitamix - ive been drinking them every day since.  I LOVE them.  They give me so much energy, I dont even drink coffee anymore!  I keep frozen berries and 3or 4 different kinds of greens, rotating them every day.  Ive got my husband drinking them too.  The best book is The Green Smoothie Revolution.  Whats great about the smoothies vs juicing - you get all that fiber with smoothies, so keeps your colon healthy too.  I love my green smoothies!!

  • Mini1
    Mini1 Member Posts: 1,309
    edited May 2013

    They look green but taste like the fruit. If you put spinach in a smoothie with any kind of berries, you won't taste the spinach. I like thowing in frozen cranberries. I do small mushy fruits like kiwi, peaches and strawberries in a blender. A masticating juicer will do greens, apples, carrots, celery, etc., but doesn't do the mushy stuff well. I don't like collard and beet greens, but put them in juice and it's good. One of our vendors created a green drink when she was diagnosed with MS and then breast CA 3 months later. It looks like swamp bilge, but it taste like fresh oranges. :-) She's been CA free for 13 years btw.

  • HLB
    HLB Member Posts: 740
    edited May 2013

    My green smoothies turn out brown, purple or army green. They look awful. They taste ok but I wouldn't say I love them. Maybe I just don't have the fruiit/veggie ratio down yet.

  • dogsandjogs
    dogsandjogs Member Posts: 677
    edited May 2013

    I use whatever veggies I have on hand and then add an apple and half a lemon. I have tried adding a potato (tasted terrible) and an onion (not that great either.

    It looks like swamp water and varies in color from chartreuse to a bright kelly green---

  • HLB
    HLB Member Posts: 740
    edited May 2013

    Mine has one giant kale leaf and one small apple, chia seeds, whey protein, flax lignans, frozen blueberries, raspberries and a few red grapes. I'd like to put more greens in but I don't like the taste. Most of the time its pretty good but if the kale leaf is extra big its not as good. Chartreuse is a good name for the color! And the blueberries make it a yukky gray color sometimes. I tried collard greens but for some reason there are always little fleks of green material like it never quite gets pulverized enough. Sometimes I put parsley in as well.

  • shayne
    shayne Member Posts: 524
    edited May 2013

    After reading the GREEN SMOOTHIE REVOLUTION - i learned so much about green smoothies.  Greens and fruit will be digested at the same rate.  Adding vegetatbles make it harder (for some) to digest and can cause bloating/gass etc.....  So I just use fresh organic greens of all kinds.  My favorites are spinach, bok choy and swiss chard.  The worst is kale - but it is SOOOO great for you nutrionally!  So I rotate that one in.  I usually do 1 cup of organic fresh or frozen berries or whatever I have.....and 2cups of greens. I dont add in powders or extras as it slows down how it metabilizes in the body. I store in a ball jar 1/2 for lunch, 1/2 for breakfast

    ......I love them!  

  • DellaHJ
    DellaHJ Member Posts: 46
    edited May 2013

    To Momoschki,



    Since I have started two capsules of DIM plus, my night sweats are gone! Face is oily still but energy level has kicked up a notch.

  • Dawn7
    Dawn7 Member Posts: 46
    edited May 2013

    What does anyone know about calcium d-glucarate versus DIM?

  • DellaHJ
    DellaHJ Member Posts: 46
    edited May 2013

    I too felt that if I didn't "goose step" to the Tamoxifen cadence that I would be signing my death warrant.  All my doctors, oncologist, md, surgeon, all of them recommended that I need to take it.  I am ER+  98% Estrogen, 90% Prog, found in the tumor.  I understand that it will cut my chances of recurrence, however, the SE were so awful that I couldn't function.  The worst being severe depression, dangerously so. 

    So I felt I had to make a choice for quality of life or choosing something (Tamox) that threatened me in a different way.  So yes, I feel like my butt is swinging in the wind at the moment with nothing to 'protect' me.  I refused to have my ovaries removed on advice of an ob/gyn because he said the results could possibly be the same with the depression and quality of life.   

    I am taking DIM+ enhanced absorption; zinc; Vit C; Selenium; Flaxseed (but I am leery of taking that for some reason).

    ***Tumor: 2.5cm; ER+; No node involvement and clear margins; no genetic markers; 10 on the OncoDx. 

  • Scottiee1
    Scottiee1 Member Posts: 1,790
    edited May 2013

    Quick question.....anyone know anything about taking mint when you are ER PR+....

    have lots of mint around and was going to start making up batches of Moroccan green tea...there are a few non conclusive studies saying maybe not good for us!!!!

  • CCFW
    CCFW Member Posts: 570
    edited February 2014

    del

  • Dawn7
    Dawn7 Member Posts: 46
    edited May 2013

    CCFW- thanks for the info. Lately, I have been overwhelmed regarding what to take...I will get the book you suggested.

  • shayne
    shayne Member Posts: 524
    edited May 2013

    I had pretty bad depression as well on aromasin.  Im off of it, and using exercise and supplements, as well as a better diet - I feel protected.  I dont believe these drugs protect us.  

  • chatsworthgirl
    chatsworthgirl Member Posts: 197
    edited May 2013

    I have been taking Arimidex for almost a year.  I have seen dramatic changes in my skin.  Not good ones.  This past month I have been depressed and my body hurt worse and worse.  Three days ago I could hardly stand to walk around.  I stopped taking the Arimidex and after two days I feel normal again and my body no longer hurts.

    I am 71 and I just don't think taking this drug is worth it.  I am going to get DIM and I already make vegetable smoothies and will do so on a more frequent basis. 

    I also did the cancer math and came up with results that indicate such a small benefit.

    I have been made to feel completely paranoid by the onc that if I didn't take Armidex I would be sure to get a recurrence. 

    I just can't go on with this drug.  It's doing such damage to my body.  

    Kathy 

  • shayne
    shayne Member Posts: 524
    edited May 2013

    So agree - I did the cancermath it and taking the drug only made a 1% difference.....not worth it.  I also noticed a difference in my skin (among so many other things).  I just bought some really nice organic skin care items and my skin is glowing now.  

    I know its done some damage.....now that im 4 months off the drug - starting to feel like myself again and almost all of the SEs are gone.  Im 55.  I have a lot of faith in my body, and what I put in it - to fight recurrence.  

  • chatsworthgirl
    chatsworthgirl Member Posts: 197
    edited May 2013

    Shayne,  what was your stage etc? 

    Kathy

  • shayne
    shayne Member Posts: 524
    edited May 2013

    DCIS - stage 0 - my lesion was the size of 1/2 pea.  Had some calcifications, i think 5, that were removed during the biopsy.  100% ER/PR positive

  • chatsworthgirl
    chatsworthgirl Member Posts: 197
    edited May 2013

    Shayne,  you are so lucky to have had such a tiny issue.  My issue is what gives rise to my own paranoia.  However, I still think taking the Arimidex is just not worth my feeling like I'm 100 years old.  I have always been a very fit and active person and it's horrible to suddenly feel so old for the benefit of a year or two of additional time. 

    Plus there is no way for anyone to know if you will or will not get a recurrence.  Doctors don't know.  There are women who have only had surgery and never had another issue.  It's all a crapshoot anyway.

    Kathy

  • shayne
    shayne Member Posts: 524
    edited May 2013

    I know - Im also very active......and was in so much joint pain which exasperated the depression, then the heart palpitations started......It was horrible, way worse than the surgery and rads.  Its taken me months to recover and leaves me wondering if permanent damage was done.  I am very lucky - I had put off having a mamo for years, even after my sister was dx 5 years previous.  Then a few friends were dx in my community and I got scared.  This was my first mamo.  I had to go to a larger city for care.  My sister had the same dx, but hers was larger and she lost her breast.  Im very grateful - it was definitely a wake up call in all aspects of my life.  But I am not afraid of NOT being on the drug.  

  • purple32
    purple32 Member Posts: 1,767
    edited May 2013

     am 71 and I just don't think taking this drug is worth it

    There have bene some studies at MassGeneral suggesting women over 70 may get little benefit from radiation or aromasin type drugs.  Google, ask your own dr, do your research and then decide.

    Good Luck to you.