Treating estrogen responsive cancer naturally
Comments
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Mini, if salt is actual sea salt, it has iodine, as far as I know.
Purple, "before consuming anything ...except ' real food ' !" LOL!
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Not to be argumentative Purple, but I used my own judgment in making the decision not to take Tamox, as I'm sure all but a handful of people that were lucky enough to find a holistic oncologist (an oxymoron if I ever heard one) have. I never suggested that people blindly go out and take whatever someone recommends, but you yourself have said on other threads that you would have done some things differently (as have I said as well). Why is that? Likely because like most of us, you did what the doctors recommended. Now, in hindsight, we'd do some things differently even though the doctors would still recommend the standard course of treatment. Is that not using our own judgment?
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Hi ladies.....have a question.....does anyone take "turkeytail mushrooms" would appreciate comments.
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For me some of the research around is like statistics, can be made to fit...............and there is some excellent observational study research (ongoing live) on alternatives.....
I have some very hard decisions to make and its really tough - quality of life and feeling like me again but with a greater fear of a resurgence or rebirth of those horrid c cells versus a better chance of longer life but feeling like an alien and pretty rubbish during that time.....
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Actually, real sea salt does not have iodine but other minerals. Real food has lost much of its nutritional content due to depletion of soil nutrients. Our breads used to have iodine in it, but is now replaced with bromide which is a halogen and displaces iodine in our bodies.
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Is that not using our own judgment?
Yes, I agree completely, mini , in using our own judgment...in the end, I think that we all should (IMO) but what concerns me is people who , at least on the surface, appear to be believing things blindly without evidence - and basing unproven things into their equation of tx choices. I DO think we all should make our own judgments, once we have looked at all the research and applied them to our own situations. I just get concerned when I see ppl. looking at websites with no scientific studies to back them up and THEN making judgments based on things that may be unproven.
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Just because someone posts a website of interest to them doen't mean they haven't researched that subject and cross referenced it. Not everything has a clinical study attached to it either. Some places/treatments cannot afford a clinical study. All conventional clinical studies are funded by the pharmaceutical companies who have billions of dollars...Also, why does this bother you so much? let people make decisions for themselves, you are not responsible for them.
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Interesting about the sea salt. Apparently it does have some iodine, but very little. I guess that explains why people eat seaweed in many places.
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doen't mean they haven't researched that subject and cross referenced it. Not everything has a clinical study attached to it either
It was implied when questions were asked and no one could cite anything in earlier posts. Btw, there have been clinical studies on DIM. They are on PubMed. The iodine issue is concerning for someone who has problems with their thyroid. I guess knowledge is a powerful tool .
I'm not stopping anyone from making any decision! We are here as a support group, and I offered my concern. That is how it was meant...take it as you like.
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Many thyroid issues as well as many other health issues can be directly related to iodine metabolism in the body.
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I am so confused! Had a thyroidectomy April 22, path indicated cancer. Should I take iodine supplements?
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I would definitely join the iodine group on yahoo groups run by Lynn Farrow...she is an expert on hormones, iodine and thyroid...and, the rest of the ladies there have been through everything!
Another excellent resource...read her Bio!
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Michele
Cancer is serious bunsiess . The BEST resource on that would be an endocrinologist.
Good Luck to you!0 -
Cancer IS serious business which is why I wouldn't go with just any endocrinologist, just like i wouldn't go with just any oncologist. Check out the recommended endocrinologists on breastcancerchoices.org
They are recommended by women who have had a high success rate with treatments.
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Forgive me if I am making this too simplistic or too broad-stroked, but iodine affects the thyroid--yes.People used to get huge goiters, which is why iodine was added to table salt (used by most everyone). Iodine affecting cancer...well..one can say that women with thyroid "issues" seem to have a higher rate of breast cancer, but how or if it relates to iodine intake may be inaccurate in that it causes cancer.
As for exercise, I too exercised 6 days/week, ran 15 miles/day or did the nordic track for 45 minutes daily plus took an hour walk with DH and did yoga 5 days/week plus lifted weights. I sometimes wonder if I overexercised.
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yes.People used to get huge goiters, which is why iodine was added to table salt (used by most everyone). Iodine affecting cancer...well..one can say that women with thyroid "issues" seem to have a higher rate of breast cancer, but how or if it relates to iodine intake may be inaccurate in that it causes cancer.
I hope you dont think I was saying that iodine causes cancer (?)
I'm a little confused.In any case, you are right, of course, iodine was added to the salt.
Ironically, I salt loaded for many yrs . under the advice of my PCP and a cardio dr. due to very very low BP, but stilll have a large multinodular goiter (and BC of course ). Go figure. This is why I say - thyroid issues can be complex .
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The link between breast cancer and thyroid cancer is not iodine but something genetic called Cowden syndrome. High uric acid causes goiters. And Purple you are right thyroid and all endocrine issue are extremely complex.
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The breasts compete with the thyroid for iodine - hence the high number of us with thyroid issues as well as BC - not that any study actually says there is a link. In Japan, the incidence of bc is low.
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It can be a nightmare when you begin researching. I got to the point that I had to step away for a while becase I was so confused. For every must there's a mustn't, for every do there's a don't. I ruled out anecdotal posts and those that involved small groups of people. I found studies at hospitals, universities and such. An earlier poster is right, major studies are funded by big pharma. They aren't spending millions out of the goodness of their hearts. Thats why every condition is now a disease. A condition will force you to change your behavior; a disease will let you continue poor behavior as long as you take their drugs. Yes there are diseases that need drugs, but not every one. Much can be done with help of a good nutritionist.
When all is said and done, we do have to use our own judgment and make our own decisions. Do I question mine? Sometimes, yes. But I would also question my decision to take Tamox if that had been my choice. And I think every person with cancer thinks about it coming back somewhere in the back of their mind.
As for mushrooms, I take take a turkey tail mushroom supplement when I haven't eaten enough organic ones. I'm also starting to juice. Green juice; not too much fruit because of the sugar. I also agree about exercise. Except the fact that my mom had cancer in her 60's (surgery only, no rads, chemo or meds, and no recurrence). I had none of the risk factors usually cited. Nor was my tumor found by self-examination. I know people that have them all and have never been sick a day in their lives. Go figure.
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For every must there's a mustn't, for every do there's a don't.
Couldnt agree more !0 -
Agree about the thyroid/endocrine issues being really difficult to sort out. Trying to read the info as a lay person can make your head spin.
All I could find as a certain thing is that iodine deficiency is associated with fibrocystic breast disease. Therefore, some people hypothesize that it may also be related to breast cancer.
At the same time, taking too much iodine is not good either. So what I concluded is that it is probably safer to include a good amount of sea food and sea weed in one's regular diet, rather than ingest large amounts of supplemental iodine.
Also, my uncle had experimental iodine treatment for his bladder cancer in France. I think it saved him one scrape job (they scrape out the cancer cells every 6 months or so), but it was definitely not a cure.
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del
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I had horrible stomach problems from both AI's I tried. I had just gotten it healed up after a year and then I found myself almost back from where I started. My doc told me the first time that I had issues that it takes 6 months to a year for the intestinal tract to heal.
I've ordered the Omega 8006. The same as the 8004 only in black & chrome. The black and chrome will go better with kitchen, and since it's going to be left out all the time I got the 8006; otherwise I would have gotten the 8004. Do you like yours? I've done tons of research and keep coming back to the Omega. There are naysayers for every brand, but for the green stuff, the Omega seemd to be the best and the easiest to clean. In my price range anyway. I found a couple that cost as much as some of the cars I've owned. One was $5k. Wowzer. I'm excited about using it. Especially when I found recipes for using the pulp to make crackers and to use in soup stock. How long does it take your to make your juice and clean up?
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Don't you just love when you start a drug and RIGHT AFTER that you come out with some bizzaro SE and the dr says oh it couldn't be the drug. You must have come down with something. They do it EVERY time! People know their bodies, whan are going to undrrstand that?! I had constantly running eyes from chemo. The nurse coordinator said that never happens with that type of chemo. Maybe its a cold or something. Yeah ok, I'm sure its just a coincidence! Then she ccalled back and said that the onc said its rare but it DOES happen with that chemo (AC).
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I have the Jack LaLanne model. It cost $100 at Sears. It is pretty easy to clean.
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I wrote this long response and it disappeared.
When I went in to my oncs office after my SEs got severe - i wrote them all down - at least 20 SEs. As I went thru each one on the list - the nurse responded to each one - well that could be an underlying health issue that just comes out with age, or - that could be this.....that could be that. EACH friggin SE!!! Not ONE did she attribute to the drug!! And my most serious SE was heart palpitations - she said it was probably anxiety! Anxiety?!?! She didnt even advise me to check it out! I went to my family doctor and he was aghast!! He apologized for talking shit about another doctor, but he was aghast! I had a complete blood work up and EKG - all normal - this was 3 weeks after stopping aromasin. They just dont want to report SEs to the drug company. Well, I reported them myself to the FDA site online. Needless to say, Im not seeing that Onc or any Onc right now. Just my naturopath, my fam doctor, my FNP and will be getting my screenings at a breast care center in the city near me.
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HI,
I'm Della. I was diagnosed with IIa breast cancer. IIa because it was 2.5 cm. Clean nodes and clean margins. No family history of disease, and hormone (wow) positive. 98% est/ 90% pr of tumor.
I cannot take Tamoxifen. I get horrible side effects; the worst one being that it makes me suicidal because it interferes with my anti-depressants. Se recommended removing my ovaries. I am against it for the same reason as the Tamoxifen, ob/gyn agrees with me. My GP recommends removing both breasts "as a precaution". My Onco DX score was 10. The cancer was slow growing.
Am I crazy for turning both the surgeries down?? I feel like the cancer won't return; I could, of course, be wrong. I have started taking DIM Plus from Nature's Way. I have tried to modify my diet and my GP/md is recommending I lost 30 lbs. I am not obese, but 5'9" and can hold the weight but she says it will reduce the estrogen. I'm all for it, but wow, 30 pounds seems like a mountain!
I am trying a "low estrogen diet." Confusing to say the least. And taking DIM, among other supplements. I feel like cutting pieces off myself with an onco score of 10 is kinda extreme. I want to try some natural ways first.
BTW: What's a "met?"
Could someone please talk to me about this? Please. I am scared and don't have a clue if I am making the right decisions. It feels right to me to not have the surgeries and to turn down the meds and try natural supplements.
Thanks, D
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I take Kelp, DIM Plus, and I am trying to lose weight to lower my estrogen. I can't take Tamoxifen. I have just started these, so I am willing to listen and suggest all that I can.
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This is for HLB:
I get every weird SE there is. So I feel for you. I had an infection in my breast due to fluid build up and was prescribed Levoquin. Don't ever take it unless it's a last resort. I am only now, a month later, getting over the tendonitis!! It says that SE is usually for people over 60; I am in my 40's. I totally get what you're saying!
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Well, I reported them myself to the FDA site online.
Good for you., Shayne!
If everyone in the same boat would do that , perhaps we would end up with better/safer drugs!
THX0
