Treating estrogen responsive cancer naturally
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Any info on using IP-6 with ER+ breast cancer?
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Dear Lily
So sorry to hear that. In the UK every woman has the right to have recon. I know in some cases it has to be delayed, but they get it in the end. Glad you've got someone you can trust now. Worth looking at the BRAVA bra technique. It seems to be very different from other forms of fat transfer.
Best wishes.
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Buddy1, what is IP-6?
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Oncowarrior its inositol hexaphosphate
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Lilly55, I am also sorry to hear that reconstruction has been so difficult for you. I hope your new doctor will answer all your questions and help walk you through your options. I went with immediate diep. I am happy with the results so far. Yes, my tummy scar is big, but it doesn't bother me. I am hoping to schedule stage II in the next month. Choosing which type of reconstruction was very difficult, I changed my mind 1000 times before my surgery.
I have been taking tamoxifen for about 3 months now and I am not enjoying it. I can't say for sure if these issues are caused by that, but I never had these problems before and now they are constant, my knees ache all night and my body feels tired. I just want to sit, not sleep, just sit and that is not my norm. I guess it might be my new norm.
Also, I am concerned about the success of tamoxifen for ILC and am considering ovary ablation, any thoughts?
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ladybird - about lymph nodes
When I had the US and MRI, both of them came out clear. So both my BS and I were confident about the lymph nodes. After the MX then they found out I had two positive. One was 7mm...it's macro met.
Sorry if I misread your post....based on what I read you haven't had the surgery yet.
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Ladybird, in many cases, reconstruction fails or can't be attempted. I have had extensive radiation, which means that an implant reconstruction is highly likely to fail. Some PSs won't even attempt it on a patient like me. The flap surgeries do not appeal to me. My stomach has no tissue, but even if it did, it has been operated on a few too many times. I have no lats to speak of and a weak musculature in the upper body that I don't want to jeopardize any further. My BMI is 18.7.
Unlike Lily (and Lily, I am so sorry you are struggling with this), I am not particularly bothered about this, but as you go along talking to people about these issues, do keep in mind that some women had reconstructions that failed, some are unable to have reconstruction for medical reasons and some have simply opted not to have reconstruction. Many of us are living perfectly happy, feminine and fulfilled lives, boobectomy and all.
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LadybirdDancer, I'm so glad you're getting monthly ultrasounds. Measurements, my ENT guy tells me, depend on the person measuring. A change in techs can suggest a change that does not exist. Personally, I watched the radiologist measure my IDC tumor incorrectly. Back to the ENT--a scan a few months ago showed a 20% increase in my benign thyroid nodule. That's my opinion. In his opinion, another scan is required before "we" can agree that the thing has grown. It's scheduled for December, which, for me, feels about the same as ten years out, but that's standard here. I would love a monthly ultrasound--leaves lots of room for individual variances, yet shows a trend (hopefully for indolence).
There is a theory that we all form individual cancer cells that float around our bodies and our immune system zaps them before they can attach to organs or form tumors. That is not what the ladies above are discussing. A tumor can throw off cells which our lymph system normally picks up. It is the job of our lymph nodes to trap these invaders. I had a sentinel node biopsy with my lumpectomy. On my mammo and MRI, my lymph nodes were perfect. In the OR, the sentinel nodes looked perfect. Back in the lab, however, ten individual cells were found in one of my lymph nodes. Technally, my nodes were negative, but it is absolutely clear that some cells (Ten? More?) had escaped. Your consultant can tell you, fairly accurately, whether your original tumor has changed, but absolutely cannot determine whether it has thrown off little colonizers.
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I considered a flap but due to radiation damage chances were not good and would not have given me a good size or shape plus i didnñt fancy the 3 scars you get with it, including the original mastectomy scar......and damage from infection now means i have no options other than fat transfer, i am starting using the Brava after Easter......I hope it works as I did feel better after first fat transfer, more comfortable instead of soooooo tight......
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Thanks to those who have recently written to me re: rogue cells. I hear you. I'll see what my consultant says when I next see him.
LiIly - let me know how you get on with the BRAVA. I am very interested in this technique - sounds the most humane that is on offer at the moment.
Best wishes.
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Hi i just wanted to thank you all for sharing your knowledge, I am going to stop the milk and i will look for the goat butter.
Thanks again
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Just want to chime in on the dairy issue. My family are farmers, we sell at the local farmers market. There are many farmers out there that sell non- pasteurized milk that the cows were not given anti-bionics, steroids or hormones. We sell pork and chicken and eggs born and raised on our farm that are ASH-Free, please check out your local farmers market (not the grocery store) and I'm sure they can put you in contact with someone that's has what you need. Government doesn't allow the sell of non-pasteurized milk but their many farms that sell it.
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Kathie, I just found a source of NP milk around here and I'm very excited to try it. I've read that pasteurized milk is nutritionally dead and I pretty much believe that. I'm going to try kefir first.
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Ladies, it's the casein content, i.e. the protein in cow's milk that is the danger to those of us with Oestrogen+ve cancer. Doesn't matter how fantastic the quality of the milk is, if it's from a cow, it will aid and abet your breast cancer. Milk products and sugar are the two worst things you can possibly consume if you have BC.
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I agree with Ladybird-dancer about consuming dairy. Read the china study good book.
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Akeevia0 -
It's the Hormone Growth Factor found in milk. Red meat is also not good for people with cancer as it is supposed to make the body acidic which is not what we want. There is considerably less HGF in Goat's milk - but even that I wouldn't touch myself.
Oily fish, the smaller the better - no bigger than salmon i.e. not tuna/swordfish etc - are good for you
A little chicken is also OK - needs to be organic. This is important.
Protein from beans and lentils etc is much better for us ladies with BC
You need lots of greens all the time - again need to be organic. This is important.
Goodnight! I'm off to bed now!
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Ladybird thank you so much for taking the time to explain that. I wonder if I should be taking some kind of Omega3 ish supplement for heart protection, I hear its not good to do along with antioxidants. Any suggestions? Also input on the supplements that come from phytoestrogen in plants?Including Flax seed. Thank you
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Lady bird, is honey ok? i can live with honey for everything like coffee or tea. I Milk cut the milk, i already stopped the cheese and the read meat long time ago. ;( i miss it but i can live without. Milk should not be a big deal i only use it for my tea or coffee.
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Buddy
here's an article w/ some references of studies on flaxseed/lignans.
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pasteurized milk is acidic and will take the calcium from your bone to neutralize it. And be aware that cancer cells love acidic body environment. Get raw milk or almond/cocnut milk. One glass a day is a lot.....if consumed daily.
And if you must drink organic milk, make sure it's not ultra pasteurized milk bc it's technically dead. The shelf life is like months. Don't pay ultra high for something dead.
Re honey. I use raw honey. Only couple spoons a day. One for my morning lemon juice and one for my yogurt in the afternoon. If it's not raw it's just sugar syrup.
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Ladybird, I'm not exactly arguing with you b/c I've heard this before as well but I've also read some conflicting things. For one thing, Joanna Budwig had people use organic raw milk cottage cheese to mix with flax oil--had to be that and nothing else. Weston Price believed that butter made from the cream of cows fed on fresh spring pastures made one of the healthiest foods on the planet. Oh, and have read some promising things about whey protein for cancer tx--supposedly it builds glutathione in your liver and that's your master anti-oxidant and it's believed to stimulate immunity. Besides, what with working very hard to keep sugars and starches down, and feeling leery about red meat these days, whey looks to be my best option for protein supplementation. It really is hard to make sense of this sometimes, isn't it? But I do wonder this about high quality milk and red meat--they have a high amount of CLA in them and that in itself may be the protective mechanism. Conventional meat and milk are quite low in CLA. Weston Price's x-factor butter also has a high amount of CLA in it.
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OMG i dont have raw honey
dont even know where to get it. I am so mad that at the whole food store there is not even a big area for honey 0 -
enerva, you could try online. I've seen one or two online store selling raw honey. No heated treatment was performed. I'll find it when I return to ny. Visiting my parents in HK at the moment.
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BB - moderation is the key. And we need to have discipline in our daily lives.
Agreed with piper, raw milk is good for us, there is cancer fighter agent CLA in raw milk. Two books were recommended to me, one is Real food what to eat and why by Nina Planck and another one is The untold story of milk by Ron Schmidt. RS is a MD and ND...very knowledgable. I meant to have him as my ND but I don't drive and it's too far for me to get to his office. His fee seems very reasonable.
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Morning ladies!
I will repeat myself with the following information:
Go to Chris Woollams website: canceractive.com and look for the correct diet for BC patients. All the information you could ever want re: diet is on that website. Also you can buy his book Everything you need to know about cancer and his food book, The rainbow diet.
Yes, honey is sugar. Xylitol is the only sweetener you are safe with.
We are all individuals - your choice ladies.
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I contacted cancer active and they told me they haven't done enough research on raw milk diet. When they referred milk, they meant the conventional milk and beef. Not the grass fed beef and raw milk. We are here to discuss and share....and no one is forcing their opinions down anybody's throat....
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I am so glad I found you Ladies. I am reading all and everything you are posting. Please keep it coming. Thank you
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I am glad to get all this info but still not willing to give up Honey lol I guess I will try but not for now baby step for me first i will stop buying milk lol
Wishing you all the best of luck
Thanks again
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Envera you can have honey just buy raw honey. I used it!
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