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ALL THINGS Gloves and sleeves

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  • rwiley4529
    rwiley4529 Member Posts: 35
    edited November 2015

    Class 1 for both sleeve and glove.

  • lago
    lago Member Posts: 11,653
    edited November 2015

    Marijen I only had 10 nodes removed and no radiation. My LE was diagnosed after my 4th chemo tx. It's very minor but I do wear my sleeve every day.

  • hugz4u
    hugz4u Member Posts: 1,818
    edited November 2015

    Sore webs from rubbing? I cut a bandaid to size and it gave padding to relieve the rubbing. You could also try Body glide, anti chaffing rub stick. Get it from a running store. I use this anti chaffing stick on my inner elbow and can't live without it. Even though my custom sleeve shouldn't do this it does because I have such sensitive skin.

    When I wore an OTS glove I actually developed two hard whitehead type pimples in my finger web from a tight glove. They were there for at least a year. My LEist never seen that before and she is very experienced practicing for decades.since I have been in custom glove for a couple years they went away.

    I highly recommend the new jobst glove that has extra room for the webs. It's custom and the best thing since sliced bread. I'm sold on it.

  • tessu
    tessu Member Posts: 1,294
    edited November 2015

    hugz4u: could you please post a photo of the new Jobst glove? I also have webbing problems. My thumb, fingers, and back-of-hand LE is just getting worse and worse, and I am desperate.The Vodder Wrap method I waa taught is too tight at the thumb base I think (NOT me wrapping too tight --- I've put it as loose as I can; design flaw cuts off flow from the thumb). I got some alternative ideas from women here that I want to try, as my LE therapist is booked solid until 24.11. The only glove I have is poorly fitting Lymed, but am currently not able to use anything because of the skin sore spots is caused. I have an appointment next week at the only store in town with "measurers", they only carry Juzo, and I just heard their current measurers are poopy at least for rheumatic foot problems, doesn't bode well, but I'll go anyway..

  • hugz4u
    hugz4u Member Posts: 1,818
    edited November 2015

    I just tried my post and pic got lost. I have the matching sleeve custom of course.

    The glove is stretched for wearing today but you can see the special web fabrication. I will try again.image

  • hugz4u
    hugz4u Member Posts: 1,818
    edited November 2015

    showing the new jobst sleeve silicon threaded band which is wonderful soft compared to those stupid dots that irritate me more. So far so good.

    Look very, very close to see the special web fabrication in glove. It looks as though they drop stitches to create more wiggle room. I will never go back

    Tessa, I insert a 3 inch by one inch foam on the web of my thumb once the guaze is on. I do this while I am putting the foam around the wrist. You might be able to do this with each web when doing Vodder wrap. I vodde wrap toowhen I over work my arm in the garden.

    Ask if your girl will video you when she wraps you next time.





  • tessu
    tessu Member Posts: 1,294
    edited November 2015

    hugz4u: Thank you. Yes, that glove looks great. Could you also please show a photo of how you wrap the foam on your hand/wrist? This is how my LE does it, I fear it constricts the base of the thumb area and causes lymph fluid worsening in my thumb:


    image

  • tessu
    tessu Member Posts: 1,294
    edited November 2015

    Also, see how she just wraps the open gauze loosely on my fingers. I am going to try folding the gauze and wrapping in spiral with 50% overlap, once my sore skin heals

  • tessu
    tessu Member Posts: 1,294
    edited November 2015

    I am trying to obtain a finger measuring tape so I can order a glove like yours. The hospital PT had one, but I'm getting no more help from her :(

  • hugz4u
    hugz4u Member Posts: 1,818
    edited November 2015

    Tes, hopefully the pro wrappers will come on board. It looks similar to mine. When I get my practice wrap on I will post in thrad called Hats off to those that wrap. I am still learning but will to try and take a pic and post .give me a couple days or so.

    Try and not have a open space in your foam. You might be able to sneak that piece of foam I was talking about into your thumb web by just working it with your other hand using your original foam to hold it down. maybe try only wrapping foam once around the hand by thumb if possible then insert that piece I told you about.

    One other thing that might give you trouble. When you wrap at the bass of the fingers don't create a tight ring around the base of the finger with the gauze.you want to have enough compression but even compression. This is tricky not to do as I wrap the gauze four times around and it can get quite tight around the base of web causing blue fingers etc. I use 4 cm gauze.

    I think you should try body glide product which is anti friction on your areas that are not raw yet. Get from a running sports store.

    I think that glove is custom only but not to sure and you need a experienced fitter. Try googling the JOBST products to see if there is one OTS (off the shelf purchase not custom) I think it's called, elvarex plus.

    Yes 50 percent overlap on foam up arm and wraps to.

    Fabulous product out there online called amerigel. Diabetics use this for wound care and it's amazing. I talked to Art at the company a few days ago and Amerigel heals 7 times faster than using antibiotic cream. It's not a antibiotic but acts like one. Lots of natural stuff in it. Art claims it kills 50 more types of bacteria (I think it was bacteria that he said) and MRSA also.

    My podiatrist gave it to me 5'years ago for foot surgery and still kept it in the fridge as you use very sparingly. Expensive but worth every penny. It was only a few days ago that I gave some to my mom for her bad burnt arm. I couldn't believe how nice it healed so fast on a 91 year old. Even she was amazed and asked me to order her some. You can even use it on burns instead of silvedane (not sure of spelling)

    For any one that want to talk to Art about wounds and amerigel he is very customer oriented. Maybe you should put that on the raw areas your allowed to put gauze over as that is how they dress it using amerigel

    Check out the wrap thread I was telling you about.

    It's 1:30 am here on the west coast so I better get to bed

    Tomorrow will be a better day...Scarlette o'hara... I hope she's true!

  • lago
    lago Member Posts: 11,653
    edited November 2015

    Those gloves seem to have very short fingers. I used to wear the Medi when I wore gloves and even they were short for me. Glove fit perfect except for finger length. so glad I don't have swelling in fingers/hand


  • tessu
    tessu Member Posts: 1,294
    edited November 2015

    I found another place in town that offers LE treatment, and got in TODAY. I think this might be a better fit. She had that new Jobst glove with extra space for "webbing" and is letting me borrow the model overnight (to try for a few hours at home --- tips of fingers felt tight; need to make a decision between that OTC or custom.) She also wrapped me using the cotton batting that is usually the layer under plaster casts, and making sure my thumb area is not too tight. She wrapped only to the elbow (so I could drive home). I leave that on for several hours then unwrap to evaluate the thumb, fingers, and back-of-hand swelling. She also told me how to make a pressure pillow out of foam for one difficult spot. No candles, no music. Encouraged the self lymphatic massage (instead of "oh no that takes years to learn!" like my original therapist. No pressure at all to switch over and continue with her. This is what her wrap looks like:

    image

    So far, feels ok


  • binney4
    binney4 Member Posts: 1,466
    edited November 2015

    Tessu, what good news! That looks lots better. Anxious to hear how it looks and feels when you remove the wrap.

    Hugs,
    Binney

  • hugz4u
    hugz4u Member Posts: 1,818
    edited November 2015

    Lago. Yes, Those fingers are short because I have these custom made gloves made to be short. About half way up, just below the first joint. This way I can bend my fingers easier during certain activities.

    I should add that my short gloves may not work for every one.

    I don't get swollen fingers and am a stage one in the hand, stage two in arm. Please everyone don't think you can run out and get short fingered gloves. You have to experiment over the years and I started out with gloves just under the nail beds which is absoutely the correct way to begin with.

    Tes, I like the sound of your new therapist better. It doesn't take years to learn self massage. I asked if I could record my lesson on self mild and my therapist let me. Yes that cotton for casts instead of foam will work and it will soften as you use it. To prevent elbow rawness I use to place a cut square of a product called Artiflex which was medical cotton batting like yours into my inner elbow under my sleeve before I discovered Body glide anti friction stick. You most certainly can use Artiflex instead of foam. Maybe that is what you have on now.

    Tes. So they make a OTS glove with the extra give in the webs.great. Now with the trial glove. Take it off if your fingers are aching or blue or uncomfortable. Could be wrong size. Trying wearing maybe 10- 15 min at a time. It might be that your not use to it. You have to build up to wearing a glove for a whole day.

    If you can afford custom gloves and sleeves do it. And if they don't fit still then then key thought here is not to keep them for more than a couple days or you can't return them .Ask your fitter about returns for customs made. And ask if she took. Fitter courses

  • hugz4u
    hugz4u Member Posts: 1,818
    edited November 2015

    image

  • hugz4u
    hugz4u Member Posts: 1,818
    edited November 2015

    Tes, my vodder wrap shouldn't have a wrinkle at the wrist because this could mean it's too loose. I don't have to wrap but am learning in case of a an emergency. I still can't figure out how not to have the gauze work it's way up my nail beds as I wear it. maybe it's too loose too. experiment more for me! I will have to wear it to the therapist and she will help me figure it out when she sees it

  • glennie19
    glennie19 Member Posts: 4,831
    edited November 2015

    Tessu: I like the sound of this new therapist! It doesn't take "years" to learn MLD!

  • floaton
    floaton Member Posts: 53
    edited November 2015

    I don't know why some therapists insist that mld is too hard for us to learn... seriously?? While there is a learning curve, it's not exactly rocket science. I had one that said that too (my first one) and I now I think it is ridiculous and she (and others like her) did me/us a huge disservice by refusing to teach that tool. Is it just job security?

    So glad you found someone new, Tessu!

  • floaton
    floaton Member Posts: 53
    edited November 2015
    Tessu, For me, to avoid feeling like things are too tight at the base of my thumb it helps to remember to keep my hand splayed out when I'm wrapping my hands/fingers. Otherwise it's easy to get things wrapped too tight. Good luck with learning, it takes a while (and I've just had to learn a new way, because even after 2 years, it's still a moving target!) and a lot of patience, but it is worth it to know how.

    Also, I ended up with one glove - a harmony I think - that cut in between my 3rd and 4th fingers. That was painful :(. The softest / nicest off the shelf one I had (when I was still doing 2 pieces) that did not cut in at all was the farrow microfine glove, so that may be one to consider? Now I'm in the custom club too, though.
  • hugz4u
    hugz4u Member Posts: 1,818
    edited November 2015

    imageYes farrow glove is very soft. I have one also.

    Splaying your hands is what I do. Good thought float on.

    Seeing that we are into pics. Here is my kinesiology tape job. The wrinkles are what you want. The more the better. It's wrapped right around under my arm pit.this is professionally done and works great on truncal LE. This should stay on four or five days. I don't wear comprsession tee with this on.

  • tessu
    tessu Member Posts: 1,294
    edited November 2015

    OK, I wore that wrap for 3 1/2 hrs, then it got wet (yes I am a clumsy cook). The gauze emptied my fingers and most of my thumb nicely, but the very base of the thumb was still swollen (but no longer sore). Also, maybe because there was only a single layer of the very thin cotton batting, the back of the hand didn't really empty. There were skin "wrinkles" all over my forearm, so I think some LE left from there. I like the new way for plcing the SS-bandage wrap around the thumb area (folding so they don't cut into the thumb web) but am not sire what to do to empty the thumb base without cutting off lymphatic drainage (like the first way to wrap does). Am thinking I should try my foam (altered like Binney showed me) plus this new SS style and see what happens.

    After removing the wrap, I put on my Class 2 Jobst sleeve plus a loaner Class 1 Jobst knit glove for about an hour, but had to remove because the fingertips of the glove were way too tight, fingertips turned white and dark red and hurt :( The hand part of that glove if anything felt a bit loose/not tight at all.

    Wore no compression to bed. This morning my hand and fingers feel more swollen than they were yesterday before treatment, after three days of basically just elevating the hand/arm over shoulder level as much as humanly possible. I have heard of "rebound" and of being "compression senstive" and am now a bit comfused about how to proceed...

    On his way to work this morning, my husband is returning the glove with a message asking the LE FT to phone me. I want to order a custom glove, not sure whether to also order a compression class 1 sleeve (mine is class 2) as the glove is Class 1, or a class 2 glove?

    Anyway, thank you eveybody for all your encouragement --- especially support for experimenting on my own to try to get things right. I have always found it difficult to just sit back and let somebody treat me with the "Trust me!" attitude and no explanations of Why. Guess I am a monster of a control freak ;)

  • tessu
    tessu Member Posts: 1,294
    edited November 2015

    hugz4u I'm glad kineisis tape works for you! I had that for shoulder/neck spasm issues, and it helped those fine but gave me one heck of an allergic skin reaction, so that (and almost all tapes) are unfortunately a no-no for me

  • carol57
    carol57 Member Posts: 1,550
    edited November 2015
    I can't remember if anyone posted a post from kira, who has not been in the forum for ages, but she posted a lovely step by step illustration of how to wrap a hand. She's a CLT and shared this quite some time ago. I'm unable to search for kira's post right now, but if tessu has not seen it, if anyone can find it she might benefit. (I'm with family, as my mother has taken a surprisingly fast turn for the worse after liver cancer diagnosis just a few weeks ago, and we're expecting just a few more days. So peeking into BCO during some of the long waiting times, but just short peeks.)
  • rwiley4529
    rwiley4529 Member Posts: 35
    edited November 2015

    Yesterday I got my first LympheDIVAs glove. It is more comfortable than the Juzo glove; I'm not feeling any discomfort at all in between my fingers, even the place where there's a sore from the Juzo glove. I think I will probably have to add a little padding on the back of my hand to ensure even compression, but it won't be as much as I have to do with the Juzo. And best part of all, it matches my sleeve!

  • hugz4u
    hugz4u Member Posts: 1,818
    edited November 2015

    tes, my understanding is that a glove or gauntlet should never have less compression than the sleeve.either it has to be the same or more in the hand otherwise you won't drain proper I don't have time either to look up Kira's demo. Try searching wrapping hand.take care. Your girl should know what type of compression you need unless you are a compression sensitive person which thru trial and error you will find out

  • doxie
    doxie Member Posts: 700
    edited November 2015

    carol57,

    So sorry about your mom. I'll be thinking of you.

  • glennie19
    glennie19 Member Posts: 4,831
    edited November 2015

    Carol,, I'm so sorry about your mom. My thoughts are with you.

    I found one possible picture of wrapping,, and bumped that thread,,, it is from 2013, not sure it is the right one,,, but it has a nice picture.

  • carol57
    carol57 Member Posts: 1,550
    edited November 2015
    I just bumped the thread with Kira's post of a hand wrapping pictorial.

    Thank you for your kind thoughts; my mother is still hanging on, and I am so proud of my kids and nieces and nephews who are providing 24/7 support to my mom, dad, brother and me. Love of family and friends, and caring support here, truly lessen the difficulty.
  • tessu
    tessu Member Posts: 1,294
    edited November 2015

    THANK YOU for bumping Kira's posts about wrapping! I just woke up, have "favorite":ed those threads and will look at all the videos after breakfast.

    I had only gotten 3 hrs sleep the night before, so didn't do any wrapping at all yesterday, just elevation. Am meeting the new LE therapist again Monday to have also my distal fingertips measured, so I can order a custom glove to wear while "doing stuff" (food prep, driving and running errands) that are difficult to do wrapped, also for during the LE exercises (which I understand you need to wear some kind of compression?). LE therapist suggeste sticking with the lighter Class 1 compression for the glove, since I am still actively getting chemo through the middle of January; I am considering ordering a Class 1 sleeve also (the Jobst I have is Class 2) because in addition to my hand, the LE in my upper arm is painful. Odd how the LE so far skips the area between elbow and wrist. Glove and sleeve will of course cost a lot, but I'm viewing this as my Christmas present to myself this year.

    Speaking of Christmas, message me your address if you'd like a Finnish Christmas card :)

  • kicks
    kicks Member Posts: 319
    edited November 2015

    Think I need to explain - when I talk about my 'webbed hand(s)', I am not talking about the usual skin everyone has between fingers but a condition called syndactyly. When fingets and toes should be seperating in utero 'something' keeps them from completely separating as should to varying degrees. It can be very mild or in some cases extreme requiring surgery. In my case, my 3 middle toes are joined by skin to the first joint. Hands are not quit as bad but the webbing goes about 1/2 way past where it should to first joint, tying in on the othersides just below joint.

    hugz4u - Until levels of compression are tried there is no way to know for sure what any individual will need. It is usual to go with/use the same level compression for both sleeves and gloves but for some different levels may work better. My hand has to have low compression or it blows up like a balloon quickly while it does great with low. Currently am using a mid level sleeve with the low level glove and doing good. Some might need a high level for hand but lower level for sleeve. With the last order for new garments, I got a mid level glove and hand puffed up quickly but with the low level glove and mid level leeve is doing good. That's just me and it might be the reverse for someone else. Nothing is 'set in stone' as to what 'works' for any of us - we are each so unique and have to learn.