new and future flat sister, with questions
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Thanks gB! I have been texting with Bec over the weekend, and she's looking forward to getting home! I can't believe she's 36, where does that time go?
I'll be back later, hoping everyone has a good weekend....M x
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I know, it just flies by! My baby, er DD turned 40 last year (DS turned 42). How the heck did that happen??!!
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Happy Birthday to Bec! oh to be 36 again. Ariom, your visit with your friends sounded just wonderful to me.. best of times.
Sg.. thinking of you and the surgery coming up,, I know just exactly how your feel... everyone here does, if that is any comfort, soon surgery will be on the far side and you will be here encouraging someone else! hugs to you!
Zills, you are so much younger than me, but I still want to be sexy and beautiful, well at times anyway. I love to dress up and look so much better than some days of lounging during the winter. This bc thing can drain us every way.. emotionally, physically, financially, but we fight back with everything we have, but we all have some times when things hit us. Dont feel like you are the only one. No one could give better advice to you for looking good than Ariom...the makeup I like is Bare Essential Minerals, isnt heavy and covers so well. Sometimes even wearing a t-shirt I will put on a small necklace or just a chain and that seems to dress it up just a bit to make me feel better. You have done so amazingly well... going thru all this and being a great mom all the way through! I can not even begin to know how you did it... but you did! And you will come out looking wonderful in no time.
I feel alot better today, last night I did the "old time trick" and plugged in the hot steamer, rubbed some Vicks Vapor rub on my throat and shut the door to bedroom and it seemed to work! Beautiful day here today but Grammab, think the wind you have is to hit us tomorrow!!
Hi to all.
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That's the truth gB! It just gets past you doesn't it!
When I think about what I was doing at that age. I already had a 12 year old and was on to about my 3rd house reno! Working and volunteering, helping care for my Dad. Our generation really packed in lots of stuff didn't it!
ndgirl, I am so pleased you are feeling a bit better today! Good old Vicks, where would be be without it? I was a sick kid, with bronchitis and throat issues. Our house just reeked of Vicks all Winter. My Mother would put it in a bowl of boiling water, throw a towel over my head and make me breathe it in, sometimes it was so strong it would take my breath away. I thought she'd kill me with that stuff!
I always remember my Mother with her Vicks stick, she always had sinus issues and she swore this little plastic sniff tube helped her headaches.
I like the mineral makeup too, I use Pur Minerals occasionally, but mostly use a cream or liquid since my skin dried out after the anesthetic. It always has, and the only thing that helps, is exfoliation and slathering good moisturizer on. I used to use masks regularly, but have gotten a bit slack, don't know why.
I just bought a big jar of Organic Coconut Oil at the Market. I have read so much about the benefits that I have to try it. I have a fridge full of Organic vegetables for juicing and to add to my home grown salad and I found a lovely, big, blue green glass bottle to add to my ever growing collection for $2.00 yay! I am on the hunt for a huge old glass wine jug for a decor piece. This sea glass aqua is just my favorite color at the moment. I am looking for bedding in the right shade, with a coverlet in a deeper shade of the same, but haven't had any luck.
I know just what you mean about wanting to look good, and sexy at times. Here I sit drinking hot sweet tea and eating my 3rd piece of fudge since getting home from the Market! I don't know where my willpower has gone. I hate carrying extra weight around, but I am a sucker for anything sweet. It isn't anything new, the sweet stuff, but I could always eat what I wanted and never went above a size US 6. I hit 50 and all that changed. Cortisone has been a big contributor, but I guess I just don't move like I used to. sigh........Big hugs to everyone, and sg, sending you positive thoughts and good wishes for an uneventful surgery, just as nd says, you'll be back here in no time, giving advice to the newbies! M x
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My DD and her DLLP gifted me with a starter set of Bare Minerals makeup for my b-day in June when I was visiting them in CA. (Before all the bc $hit hit the fan) I enjoy making up when I go to town or the dr. I even ordered eye liner and a brush from QVC to complete the look. I haven't worn makeup in a zillion years, but this stuff feels really good on and looks good too!
Since losing a lot of weight through diabetes dx almost 2 years ago and again from the bc, my body has changed drastically. (Two very serious dx's and yet both blessings in disguise.) Lately I've been on a mission to replace my wardrobe, I feel so good lounging around in my Marika outfits or in leggings and tops. I don't think of it as sexy as much as just feeling really good about my body, so much more than I have done for years and years!
ndgirl, glad you are feeling better! Boy does the thought of the smell of Vicks evoke a lot of childhood memories!
Hugs!
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Hello darling girls!
Sorry I haven't been around much and I'm doing this the wrong way round (posting first, reading second) but I just wanted to say hi and hope everyone is okay. I have had the most amazing weekend so far. Staying in Bournemouth on a Groupon deal, don't know if you get it where you are but its like a voucher deal, heaps cheaper than normal. Sooooo, best room in the hotel, panoramic sea views. Pics below!
Our room was the one in the turrett!!!!!!!
Our view of Bournemouth pier!
So that was the view we woke up to!!!!! It's winter here but it was really warm in the sun. We sat outside and had afternoon tea! Perfect!
I will post more later, been a heck of a week. I am in agony today with my period so will get the drugs down me and be in a better frame of mind to read and reply to stuff. Hope you are all well and hope you like the pics!
Lots of love!
xxx
PS, Me boobless!!!!!!
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ooooh Viv! That's gorgeous! So glad you're having a great time. What a damn shame you have a painful period, not fair!
We have Groupon here too. I haven't done any of their travel or Hotel deals, but I have bought plenty of stuff. Some of their deals are fantastic. I bought all our lights, for in the trees from Deals.
Your picture reminds me of Bec. Colin just saw it and asked me "where did Bec take that picture?"LOL
I have had a quiet one, stayed in after the Market this morning. Colin spent the day racing Model yachts down off the beach.
I accidentally left my freezer door open and had to throw everything out, except for a few things that we had for dinner. I can't believe I did that.
Off to bed now...catch up with the news in the morning..take care..M x
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Happy birthday Bec. Hope it was a good one and worth the trouble.
Since Colin can't feel water temp can he feel the air temp? Does the heat bother him?
Good fudge is hard to beat.
Viv. That looks awesome. So jealous and so sorry about your period. Yes we have groupon. Bought a laser pkg but neither myself or my sister feel like it worked.
SCG. The wait is almost over. We're in the bag for you tomorrow.
Thanks for all the advice and support. I feel so much better when I walk. Need to make myself a priority. Have sent an email for the feel good class. I also went out last night and had dinner with my aunt. Kid free!
I wore bare minerals when I got married. Loved it but too drying now. Wore BB cream before bc. Yes my eyelashes have grown. Not sure if a supplement will help my hair grow faster.
See the hairdresser on Wed. Not sure how much help she can give for this stage. My hair is just long enough to look like it's this short on purpose.
We had that wind yesterday. It's very fierce and cold. Felt like Mary Poppins trying to walk.
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viv, gorgeous area! What a great hotel!! You look lovely and so happy! Sux about the period though!
Ariom, That really sux! With the temps you have been having no surprise everything thawed. Were it here, probably would have been able to rescue some things. I do know how it feels though. I have a second refrigerator in my garage that I use for extra freezer space. Several years ago the power went out and didn't come back on in the garage. I hadn't gone anywhere for a couple of days and when I finally did, discovered it.
( I had just done a big shopping a few days before the power out and all of the stuff in the freezer was bad and I had to toss it all!! Now I always check it when I have a power outage.scg, in the bag for you tomorrow! (Tomorrow is my 5 month anniversary since sx, hard to believe.)
Zills, glad you were able to walk and get out kid free to have dinner with your Aunt. Sounds like just what you needed. I hope the hairdresser will come up with something for you.
Still windy here, Wind Advisory in effect until 3PM Monday. Did I ever mention I hate the wind?? Very lightly snowing too, temp 34°F (11°C).
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Viv, beautiful pictures, thanks and you look fabulous!
Zills, I know a friend that used coconut oil on her eyebrows and they grew back, she was getting to the age where estrogen slows and lost most of her eyebrows, her dd suggested the use of coconut oil and sure enough.. it worked! I love the stuff! I get mine from Swanson's in Fargo, the organic extra virgin coconut oil and shipping is reasonable. When I am there I usually pick it up too, also did find a good buy at Costco too.
SCG.. in your pocket for tomorrow. ((hugs)) we are all here for you.
Another beautiful day, wind was predicted and thank goodness it didnt show! I hear you GB about wind, but what the he$$ am I doing living on the prairies?? 5 months for you already.. and you are doing great!! keep it up.
How is Bobo?? missing her! and Gramwe
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Morning from Sunny Downunder! Okay, okay, stop throwing things at me! Just remember you'll all be telling me how lovely the weather is when I'm freezing cold, with the frigid winds off Bass Straight is taking my breath away! LOL
Hello Zills, my lovely! Colin is a very weird one. He has no temp regulator so when it is very hot, his body can overheat to the point that I have to pour cold water over his head to bring the temp down. In the cold, if his legs get cold, he can't warm them up and I have to use a hairdryer or a portable fan heater to get the temp back to normal for him.
He also has hyper feeling in his body above the nipple line, so anything on his upper chest, back, head or shoulders, hurts more than it should because the rest of him from the nipple line down is completely paralyzed. I can't kick him under the table if he says something wrong, but I can just push a fingernail anywhere around his back to make my point! LOL
Bec got home safe and loved her Birthday Yum Cha. Most of the family made it, so it was a big loud lunch with lots of laughs! Several of the cousins are working musos, so she doesn't see them too often.
What is a laser pkg?
I have heard good reports about Biotin for hair, but haven't tried it. I mentioned the BB cream because I thought you may be dry from the treatment, and the cold. Even a tinted moisturizer is good. Perhaps try a volumizing shampoo, with a bit of product to give you some control. I love that messy short pixie look.
You're right about making yourself the priority, at least till you get into a bit of a routine. As much as I know that the exercise is the best thing, it is so hard to make things into a habit. I love how the Rites make me feel, and a big walk leaves me feeling great, but give me the opportunity and I will avoid if I can.
So glad you've sent the email to LGFB, if nothing else, you'll have a good laugh with others who have been through the same stuff, and come out with a great makeup kit at the end. It is a win, win!
I have been approached to get involved in it again in this region. I feel like I am about ready to start doing some volunteer work again, so this could be the way to go.
sgc, I am with you tomorrow too! Good Luck, and I'll be looking forward to hearing fro you when you are on the other side of the surgery, tucked up at home.
gB! I was lucky that there wasn't a huge amount of stuff in the freezer. I hadn't replenished after the visitors over the Holidays, so it wasn't as bad as it could have been I am just annoyed that I didn't check the door. I think the fridge freezer needs the leveling leg extended a bit so it leans slightly back. I don't think it was installed right from the move here.
Well done! 5 Months since Dx, doesn't time fly!
I'm with you and Zills, don't like the wind, don't want to have to walk like Mary Poppins in it! Hate the roar it makes when it comes in off the ocean.
Eeeek, ndgirl! I put coconut oil all over me last night, almost slid right out of bed! Good thing Colin is used to me smelling of coconut. I use coconut shampoo and soap. Now you tell me it grows eyebrows! I could end up like the werewolf of Paynesville! LOL
I got a quick email from Bobo, she's going to work tomorrow. Still worried for gramwe. I hope everything is ok there. Maybe the tablet stopped working. I hope that is all it is.
Take care everyone....chat later...M x
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Good to hear something of bobo. I hope she will post soon. I miss her voice.
Worried about granwe too. It isn't like her to be silent so long.
((((sgc)))) you'll do fine!
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Hi everyone, lots to read from the weekend posts!
Zills - with the down day you had, I'm relieved to know finally that you are human, not Super-Woman!
Although you actually are in many ways. I'm sorry you were feeling this way and I'm glad the dinner and walk helped. You have been very patient with the chemo SEs, and it's great that you are now on the road to recovery, just needing more patience (BC really tests us this way, doesn't it?) for everything to grow back to a semi-normal state. Happy b'day to the boy! I have not seen how to train your dragon, i should look into it for DS. These days, he's obsessed with Lion King, he just watches portions of this old movie every day!M - happy birthday to Bec! So... in addition to what I know from your career and your expertise with foobs, gardening, etc., you are also an authority on make-up?! You should not write one book, but many books!!
Sorry about your freezer misadventure.sgc - gentle hugs for tomorrow, we will be thinking about you!
gB - sorry about the 2 dx you had last year, and congratulations on the 2 grown children! I hope you have a trip to CA planned in the coming months! Good luck with the windy days.
viv - wow! Beautiful place and view! I'm so glad you had this vacation! And you look amazing and so happy!
ndgirl - thanks for the tip on coconut oil, I had never heard of it and will likely need it this year! You all give so much good advice, thank you.
bobo - if you read this, I hope you will not hesitate to take time off work if your body needs more rest. They can manage without you for a few more days or weeks, your health and well-being are way more important. Glad you're feeling better! Hugs!
I met with the RO on Friday, it's standard procedure at my hospital to meet RO and MO after pathology result that includes lymph node involvement. She said that since I had only 1 lymph node involved and only a micro-invasion, the decision to have radiation or not is not straightforward or absolute, other factors need to be taken into consideration. The fact that I eventually want reconstruction (crazy, I know) makes radiation not very advisable for me, but mainly what made the RO decide at the end of the meeting that I should not have it is the fact that I have LE. So yippee for LE, I guess?! Radiation would double the chances of getting LE or, in my case, would aggravate it.
It was a very informative discussion, but not fun. You think of risks of recurrence, if you should be as aggressive as possible without considering SE or risks, and she did mention that if the cancer came back in the lymph nodes, it would be difficult to detect and difficult to treat... Anyway. I learned that I did not have 4 sentinel nodes on each side like I thought, but 7, so maybe this larger nb of nodes than normal people increased my chance of getting LE. She pointed out all the consequences, whether it's not getting bloodwork or BP on this arm the rest of my life, or the risks of exercising. I miss it, I have not run since the infection and am just packing on the pounds. I need to see either the PT tomorrow or a greater LE authority to know when I can start running again and if I will need to wear a sleeve or whatever. I can't sit on my butt the rest of my life but I don't want to swell up like I did over the holidays!
Anyhow, other than BC, life is great. Wonderful weekend with the family, bunch of activities and small outings, all good. And the days at work have been good, I enjoy working, it's a big part of my normal life. My manager has been very comprehensive, his mother just went through BC 1 year ago, and he has not overloaded my plate yet. All good!
Talk to you later!
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otceb, the diabetes dx was in 2012, I had just gotten that totally under control when I got the bc dx in 2013. Both are bad things, I think I worry more about the diabetes than the bc, at least I can do something to control d, where what ever comes from the bc is out of my control. I pray that there will be no reoccurrence or new bc, but who knows? I feel good, my blood sugar is normal, my BS & MO both say I am cancer free. I just want to stay that way for at least another 30 years!!
I want to see my grand daughters walk down the aisle and dance at their weddings, and then hold my great grand children as well!!0 -
I grew up in Oklahoma, and actually love the wind, unless it's freezing cold and making the wind chill dreadful. We have tall poplar trees in our yard and I love to hear the sound of the wind in the leaves in the summer. There must be some sort of bug area due to the wind because swallows do acrobatics going after them.
Sgc, You'll be in my thoughts tomorrow and I'll send healing vibes.
I'm glad Bobo contacted someone. I was starting to think DLLP was holding her incommunicado or she was in jail for whacking her PS or something. I hope she comes straight home and RESTS after work.
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Hi otceb, That bloody LE is crap isn't it! My Mother had it after full Axillary clearance. I know my chances are small, but I still take care of that arm, when I remember! When I was at the Hospital for my eye, the Doctor was certain I must have high blood pressure. I assured her mine is always on the low side of normal, but she just had to check, and went for my right arm with the cuff. I jumped and said "Oh No, not that arm, I just had a Mx!" she was like, "Oh, I am sorry when was that?" I felt like an idiot when I said "Oh a year ago!" Duh!
I hear you about the pounds packing on. I was thrilled when I lost close to 10kg from the stress and the waiting, and then my 975gm boob! But it slowly returned this past year, the weight, not the boob!
So pleased to hear things are working out well for you, a good boss is gold! Spending time with family and friends, for me, is actually better than ever. Feeling that fear really gave me a rocket that has made me appreciate things so much more.
Anyone else?
I have told this to the others, but I had 3 careers in my life. Beauty Industry, Entertainment, and International Airline.
I worked for a few of the high end Cosmetic Companies as counter Manager in Department stores, and ran their workshops to teach customers how to use makeup. I had my own business for years, doing weddings and events and helped train the new hires at the Melbourne Casino in grooming and presentation. Also did makeup for a late night Rock show on Television. I was running the Christian Dior Duty Free Business when I was approached to work for United Airlines.
I have been so lucky, all my life I was in the right place at the right time to have great career opportunities present themselves.
Take care catch you later....M x
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SGC - Just wanted to say good luck for tomorrow in case you're still up. I'll be scheduling my surgery soon ...and about the only thing that calms my anxiety is thinking about life after the surgery. Having it over and done with and getting on with life (as evidenced by this great group of women) encourages me.
Ariom - You are our own personal rock star, aren't you? It sounds like you've really had a great life and you've managed to keep that energy flowing after breast cancer. I'm so glad you are part of this group. Sometimes it feels like the popular girl at school is sitting at our lunch table! Can you tell I have a 6th grader and am relating to how her life goes at school?
Take care all.
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PRB, you make me smile! Thank you for the kind words, but I was the furthest thing from the popular girl at school. I hated everything about it, and didn't do too well either.
I was a Model in a department store as a kid, so skinny, and given a hard time by the "popular" girls.
I was out the door the second the clock struck my 15th Birthday and the earliest you can leave school in Australia. I was lucky that my parents were forward thinking and willing to let me follow my heart at that age. As I said, I was always lucky, great opportunities just seemed to be there, when I was ready for a change.
I never looked back. Not finishing school was never an issue and has never held me back from doing anything I wanted to do.
I absolutely understand the 6th grader, and what it is like as a Mother when things may not be, as you'd like them, for your child. It is such a tender age, and I take my hat off to you as you navigate through this and the coming high school years!
In reference to the BC, for me, I again feel very lucky for my Dx. It was another right place right time for me. I had just moved here when I went for my routine Mammo. My pictures from 2 years ago were analogue, and it couldn't be seen. This time, in this regional area, it was a brand new Digital machine that did the imaging. Had I returned to my original facility, it is unlikely that the analogue would have picked it up again, so by the time there was a new machine installed there, my Dx could have been a very different one.
Don't you worry, when you are having your surgery, we will all be there for you, in the bag and misbehaving! LOL
I meant to say, the move here was the best thing we ever did, it is Serendipity!
Hugs to everyone...M x
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Thank you all for being with me in spirit! You are the best group of ladies I know! In pre-op waiting for drugs and I look down at my legs and, " oh shil, now my hair comes back!" Guess it is too late to shave and thank goodness they aren't that noticeable! Lol. Will post on the other side!
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Awww sgc! don't you worry about the hairy legs!
It has been 5 hours since that post. I am hoping that you're all done now and back in your room now feeling good!
Wren, I love that sound of wind in the trees too, but that's as far as my love of wind goes!
I have been thinking about Bobo too. I hope going to work for the first time was ok, and not a bad experience for her.
gB, I hope that you get to do all those things too!
Quiet again on here this morning...Hugs to everyone..M x
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Thanks Ariom, me too!!
Just popping in to see if there is any word from bobo on how her day went.
Probably too soon to expect anything from Scg yet. Hope she is resting well.
Still windy here today, supposed to slow down later this afternoon. Wren, I am surrounded with cottonwood trees, really close to the house, and hard wind makes me very nervous about falling limbs.
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Hi gB, I am restless wondering how Bobo went at work too. It was a very big deal for her, walking into the office, I hope it went off OK. I just hope she isn't too exhausted. I don't think I could have gone back to full time work this early, even though I had no real complications. I think they'd have found me asleep somewhere! M x
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Hello all, just stopping by to see if any news on Scg or Bobo, probably expecting too much from Scg, too soon. Dont worry about not shaving legs, but we all do! so worried about how Bobo could handle a full days work physically along with the emotions she will have.
We have a street full of cottonwood trees just south of us, and I dont much like our wind here, or anything more than a breeze but I do love the rustle of the big leaves blowing in the wind. To me that is a comfort sound. But usually the wind gets too fierce for me to enjoy it. Breeze to keep mosquitos away to good tho.
Ariom, I love to read the stories of your interesting life and how things fell into place... just amazing! As I read again today I had to wonder if a young gal could do so well these days without an education. I know in my era, guys and gals could leave high school, graduated or not and still make a very good living, but not so much now it seems. Keep your interesting stories coming! I enjoy them to the max.
PRB, loved the comment about the popular girls sitting with us at the lunch table!! Ariom is a rock star to us!!
will check in later for hopefully some updates. I did not post here until after my surgery, wish I had, but I just read and read before the surgery, lots of great advice here by people that "get it"!
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Popping my head in to see of any news of Sgc or Bobogirl. Been slammed at work.. and we are undergoing a renovation on top of it.. had to work the weekend moving stuff up 3 floors for 3 weeks.
Had a nice long update yesterday that took me so long to type and I lost it. I have to fix this keyboard problem somehow.. I really think its a setting, but this windows 8 is a pain in the ass to navigate through. Add to that, my right hand has been causing me unbelievable pain.. I thought i had sprained it, but its not swollen... carpal tunnel maybe? So, having trouble typing.
Hope all is well, have missed you all.. hugs.
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ldesim, I've missed you! F these tech issues!
I wonder what happened with gramwe? I hope it is just that the new tablet isn't working. I miss her so much... what a great writer she is, she could always raise a laugh with her spin on things. I hope you are still reading, my lovely one! You are so missed here!
I agree wholeheartedly ldesim, I very much doubt that the opportunities would be there for kids without an education these days. That's why I feel so incredibly lucky to have been born when I was, to the parents I had, and for the people I met who guided me along the way, and believed in me enough to employ me without the education. How I loved the 70's! What an era that was.
I had my first trip to the US in the early 70's, LA, San Fransisco, Vegas, it was sensational. I remember walking around San Fransisco and never wanting to come home. I wanted one of those apartments on the city fringe so badly! LOL
Wasn't it ironic that Vi ended up living and dying in San Fransico, even though I don't recall ever really talking about it to him about it.
So sorry to hear of your wrist pain, I hope it passes. May be just a bit of inflammation of a tendon or something transient, I sure hope so. There's nothing worse when you have to write for your job, and to keep up here as well!
It is about 11am her, and I have watered the whole street side garden, which takes ages. The weather station is already at 40c, there isn't a breath of wind and the water, on the other side, is like a mirror, only broken by the ripples of the Black Swans. Nasty buggers, but I know you like them ldesim! There is 1 yacht out, and possibly the last jet skier still here for the Holidays. No walk for Dex today, way too hot, and we are expecting about a week of these temperatures!
I'll check back later...take care..M x
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Hi!
Sgc, I hope your surgery went well and you are resting a lot and enjoying all the help your loved ones have offered. Take care!
Thinking about bobo, I hope she feels ok.
M! Your life! Your wisdom! You! PRB nailed it about the popular girl at the table and the rock star, I truly feel that you are those things. And what keeps amazing me is how truly nice you are, you always have kind words for everyone and never hesitate to help. Thank you!
Sorry about the heat you have to put up with. I hate the heat, I can handle cold - although as I get older, I seem to tolerate it less! I actually like living in my climate, with warm summers and true winters. But maybe by the time I retire, I'll be ready for Wren's mild corner of the continent!
Idesim, sorry to hear about your wrist pain. The moving of stuff at work probably did not help. And sorry to hear about your keyboard and Win 8 issues, that's crap, it's the last thing you need!
gB - glad to hear that your health situation is under control now, that's fantastic! Hopefully you don't have to worry about anything BC related this year and can just focus on keeping the diabetes under control and... enjoying life!
Spookiesmom - I've been thinking about you with this LE! How are you? How are you managing with it?
Nothing new here, saw the PT today, she did a good job again with cording, but it will take many more sessions to resolve it. At least my range in both arms is now almost 100%, although I still feel lots of pulling on the right side. She also talked about sleeping on a small roll (I've been sleeping on my back since the Sx) so that my shoulders stretch and I don't wake up super tight. I'll find out more at our next appointment.
Tomorrow: MO. I think I won't get all my answers. I don't know my oncotype, so if the MO wants to know it before deciding on treatment, then it will be more waiting. Oh well!
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hey, thanks for asking about my LE. I ignore it, it ignores me. LOL. It's not my dominate side, so doesn't get into as much trouble. No sleeves, I don't put my insulin pod on it, watch a bite.
Bobo............., Come back!
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Thanks otceb, for the lovely words. I can't tell you how much I enjoy all of you. It's such a wonderful group, no judgement, on anything, genuine friendship, wonderful support, and above all, great humor! I wish we were closer and could actually catch up for a real sit down, girls get together!
I marvel at how a bunch of like minded women, who have this crap disease in common, find each other in a huge forum like this. We are spread out all over the place in different time zones, and we still meet and enjoy each others company every day. That's pretty special!
I find I am filling Bec in, and my girlfriends, who I speak to regularly, are always asking after the group. It is quite amazing.
Spookiesmom, you just nailed it! I had a wonderful conversation with my Rheumatologist, years ago. He was pushing me to go on a new drug with lots of possible Se's, I had already been on Methotrexate, a chemo drug used for RA for about 7 years and wanted to get off it. He was and is, very open to alternative practices and encouraged me too do Massage, Acupuncture, Reiki, and even Magnetic therapy. I told him I was sick and tired of RA and what it was doing to me. I hated the drugs and Se's, so I wanted to just "ignore" it for a while. I felt that it just got too much attention! He wasn't 100% happy, but made me promise to check in every 3 months. I managed to get off most of the drugs, but had to take a small amount of Cortisone to keep it sort of under control. I opted for surgery to improve the damage already caused by the disease, and my job with an airline. Those 32kg bags were deadly for my hands.
Whether it was coincidence, or really my "ignoring" it, It actually did go into remission.
Although I can have a bad flare up occasionally, always for a reason, it has been the case, just like you and your LE, I ignore it, and it ignores me! I haven't ever met anyone before who had done the same thing and had it work for them too!
Amazing!
Yes, Bobo, come back!
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when I was finally sent to an LEist, I was on the LE thread here, scared pretty bad, and determined to do it right. The guy was useless for me. So I went to a different place on my own, they ordered new sleeves. Insurance refused to pay. And they are HOT. I said the hel$ with it. I know that I could get into serious chit with it, I'm not going to make myself crazy worrying about it.
I don't have a tv in my house. People are amazed, wonder what do I do? Do I read? Well, yes. And talk to people all over the world. Much better than a dumb tv show with canned laughs. These are real!
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I did get a text from Bobo after her classes. She was going to snuggle with the cat before getting kids. I didn't text her later as I figured she crashed.
Good middle of the night. I've been battling a headache. Full moon doesn't help. Must be something in the air. Boy up.
Had a text from my JS to participate in a photo shoot then get a session. Yea! Hope I didn't respond too late.
Yes Ariom is our rock star.
SGC. Walk to the nurses station today and you should get to go home!
Poor Idesim. I had wrist pain. Had to learn to sleep with my arms straight. Does heat or cold help?
PBR. Yep this bunch of ladies being normal is what inspired me too.
OTC in the bag for your MO appt. Ask if there is a Livestrong program. It's an exercise program for cancer survivors by cancer survivors. Ours is at the local Y. I'm just now running short bursts with the kids or Eddie, the horse. We race from one end of the paddock to the gate. He always wins and usually gets a peppermint.
Need to go eat something with those headache tablets. Was hoping to avoid eating in the middle of the night. Oh well.
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