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new and future flat sister, with questions

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  • Ariom
    Ariom Member Posts: 4,027
    edited January 2014

    Hi ldesim, more great advice from you! I still tell people about you, when you were doing the Rads, going on the subway, walking all that way, and the "Bracelet Reward".

    You're so right about otceb having a great outlook, or attitude. That's a quality that I see in you and the others on this thread too. It is good to be around!

    I remember being there, when my Mother came out of surgery. I was terrified to see her chest. I don't know why. When I did see it, it was fine. I have no idea what that was about.

    I didn't feel the same about seeing my own chest after surgery, in fact, I couldn't wait to see it. Good thing, because my surgeon arrived first thing in the morning and he had that dressing off before I knew it. I am strangely proud of my scar, I rate it along with all the others, as simply the road maps of my life.

    ndgirl! absolutely fried! My lettuce has all gone to seed. The lawn is a dust bowl, but I am happy to say everything else is doing ok.

    otceb, Pas de quoi! (I think) you know what I mean!

    These girls will be there to pass on their knowledge and experience, and we'll all be here if you need us. 

    Take it easy everyone...M x

  • spookiesmom
    spookiesmom Member Posts: 8,178
    edited January 2014

    What Zills said about food is so true!!  I finished chemo 15 months ago, I still can't eat certain things. Activa yogurt is one. So if you have a super favorite thing, DONT eat it now. I'm not sure if that applies to chocolate. 

  • bobogirl
    bobogirl Member Posts: 2,083
    edited January 2014

    Hello my sisters!

    I have really missed you.  I have been taking this terrible antibiotic which gives me funny vision, and I have not been on the computer at all.  Just tried to skim through a little, eyes squinted, but am not caught up.  Want to be in the bag for appts and make myself useful.

    Welcome to all the new people on our thread!  You're actually not new now, I have been away for so long.  You are nice and comfortable now.  I will catch up on your stories and figure things out.

    Thank you so much for your beautiful cards and good wishes, and for the balloons.  Birdie, your painting was so beautiful!  I have all hung up in my room.  And all the balloons are still alive!

    Guess I could have typed to you without looking at the screen much -- I could have done it sooner than this, if I didn't worry about spelling -- but I have not had much positive news to report.  All went as poorly as possible.  I know you must have been getting good updates from our Z and our Idesim.  Idesim, have you lost your phone?  I have had reports that you were looking for a new one in the basement?  And so that is why we are not texting.

    Hmm.  Looking for the right tone here.  Must get children up and ready for school.  I'm back to teaching this week.  It's taking a lot out of me.  I had to swan in there flat and act like nothing happened.  I 'came out' to three colleagues -- not about MX, but about sx, infection, emergency sx, and flu -- and got sub coverage for first week of school, which I have never done.  I 'came out' to my boss in same way.  The secretaries are on to me.  You look thin, they keep saying.  I am not wearing foobs.

    My chest looks like a Frankenstein.  I have not really looked at it.  One TE, which they deflated to lessen the pain of it (since I'm not reconstructing), and the other side a smash-and-grab from the emergency sx.  Much of the fight has gone out of me. And I am not able to clean anything.  This week, when I went back to work, my arms hurt, swelling, etc.  Not lymphadema, though -- swelling at drain site.  Have had drains since 6 December!  Just had the last one removed two days ago.  Incredible.

    So I don't have much fight in me, but I did see the PS again Tuesday, and I did ask him, so, am I the .7%?  He did not answer me directly, of course.  Have found out that because I will not try again, I will be excluded from the statistic.  .7% only applies to those who try twice.  Truly, I almost died, twice I think, and I have no desire to try again.  Have this terrible feeling that I brought it all on myself, I can't shake it, but I keep telling myself I gave the fake boobies a try for the right reasons.  I have to dress in secret, hide from the children, and it's very terrible.  It's all terrible.  

    Togetherness, so sorry about your infection, and Viv?  You too?  I feel for you.  I have never been so sick.  Togetherness, I live sort of close.  Now we can talk about our similar situations.

    Posting.

  • bobogirl
    bobogirl Member Posts: 2,083
    edited January 2014

    I reply to myself.  The whole reason I did not want recon is that I did not want everything to be about me me me, and my next sx, and revisions, and Vinnie's 3-d nips, and blah blah blah, but here I am blah blah blah about the stupid hospital.  I can't fully tell you.  You should see the people at the PS office.  They are crazy when I walk in.  Even the lady in the back office knows about my 'failure.'  She said, when she was scheduling removal of the TE and revision, 'This should be nothing after what you've been through.'

    They are all like, HI!  GOOD TO SEE YOU!  EVERYTHING'S SO GREAT! LET'S ALL LOOK ON THE BRIGHT SIDE! YOUR INFECTION IS BETTER!  NO, YOU DON'T HAVE TO TAKE OFF YOUR CLOTHES AND PUT ON A GOWN (SINCE YOU LOOK SO DISGUSTING).  LET'S JUST HAVE A PEEK!  I have to go back again next week.

    So, from what I have skimmed, Ariom had a devil eye and a bad oppossum, and Bec had a birthday! everyone had new year's together!  That must have been so fun!  No new kitty yet for Birdie.  Z spine soup and excellent MO update (hooray!) and our Ariom giving Z makeup tips.  Idesim shoveling snow?  Wow.  You blow my mind.  Fia acting up as usual.  And I hear we haven't heard from Granwe.  ND, did you go on a trip with your friend?  I still have many pages to go.

    Sorry I have not been on sooner.  I don't want to worry you.  Still really not sure how to move forward.  Can't believe I am getting through days, not crying.  I think I am in shock.  I had never really wanted fake boobies, I am not like some of our other sisters in that way.  But when I was going to get them, I was going to be happy that I wouldn't scare our princess.  Two comments DLLP made caused me to think maybe she'd rather I not be flat.  And then the thought of 24-hour headlights seemed funny and cheered me up.  It's easy to let some of that go, since I never wanted it.  But it's hard with the princess.  And it was hard to be sick in front of them for so long.  

    Sending you all hugs.  XXXXXXXOOOOOOO

  • bobogirl
    bobogirl Member Posts: 2,083
    edited January 2014

    Oh, forgot to tell you: MD really 'stepped up to the plate' when things went bad!  My brother did NOT.  In fact, DLLP and the princess brought me to the ER, where the baby watched me vomiting, and DLLP took the princess to my brother but he did not want to keep her because he was going to go with friends and his boys for dinner!  They had words.  It was awful.  So MD stepped up, drove in, took kids to my brother's house, did some cleaning, everything.  Shocking.  She was really at an all-time high, for her.  Don't know how we would have gotten through it without her.  As it was, though, I spent a lot of time on my own.  On my own at the ER, sitting in a chair, vomiting into a pan, for nearly three hours before DLLP could come back.  On my own for emergency sx -- went in alone -- DLLP had popped out to walk Bobo, we had been told 4:00.  On my own while she worked some.  So having MD there was a godsend.  And she feigned cheer.

    The price?  She told everyone.  She spread the news far and wide.  Texted, phoned all her friends.  The drama of it was appealing.  And then 12 people in my hospital died of my same flu -- the one I caught in the hospital -- and she told everyone that.  I was too sick much of the time to say anything.  If you know me you know I am private.  But I realized it was the cost.

  • SC60
    SC60 Member Posts: 403
    edited January 2014

    Good Morning from the abyss!  Feels like I have been zonked forever, but I have been trying to keep up with all that has been happening.  Hard to believe that only three days have passed.  I have been sleeping on and off in three to four hour cycles.  I haven't taken any pain meds today which is why I am coherent enough to write.  

    Bobo you amaze me!  As a fellow teacher I don't know how you have been able to keep it so quiet!  Much pain and suffering aside, we all know how schools are the biggest gossip grounds there are- especially in the office!  I am so sorry you had to go through so much alone time.  Logistics can be a pain and when others don't help out it makes it so much harder!  So glad MD rose to the occasion!  Yes, you paid the privacy price, but it had to be worth it!  Glad you are on the mend and pray for healing for you!  Your body has been through too much!  

    Sorry about the chemo otc.  I had it before surgery and continue with the Herceptin infusions every three weeks for a year.  My hair has come back very curly and gray.  I expected it since my mom's hair did the same thing.  If you would like a funky blonde wig, just let me know where to send it!  I couldn't get used to it and wore it around three times.  I rocked scarves and the bald head!  Now, I don't know if people were being kind, but I had more compliments about my bald head then anything else in my life!  Hummm....I 'm not sure what that says about the way I look, but I grew to love the bald head- just me.  We all react differently to chemo SE's.  Oh and FYI my grandchildren didn't have a problem with it.  Kids take things in stride so much better than adults! I think GD3 liked the bald head more than my current hair!  She'll be 4 next month.  Since the baby was so little, he didn't seem to notice or care.  Then again, I am talking about GS1, aka the little prince!  He has the 5, as in the fifth, after his name. Anyhow, I agree that favorite foods should be avoided!  I still have a problem with coffee and chocolate and I are just getting reacquainted!  My SIL is a dietician and she said Eat, Eat, Eat!  40 pounds later, I can still thank her as I never had a problem with my blood counts and it did make it much easier.  Let me know if you have any questions or need any tips!  

    I will post now so I don't lose this masterpiece !  I hope things are getting cooler down under!  It sounds so unbearable!  Always, Susan

  • SC60
    SC60 Member Posts: 403
    edited January 2014

    it's flurrying here!  Now, I know most of our northern sisters must be thinking I am on drugs and that must be the reason I am so damn happy about it, but it isn't.  As a former northern girl I miss seeing, feeling, smelling snow.  We don't usually get any so I am thrilled with the flurries!  The dog, however, is not! I just gave her a cookie and she looked at me like I didn't do enough.  I sure hope someone fed her last night!  Everyone is sleeping as they are exhausted.  DB and DSIL went home so DH has been taking care of me which he had let me know is not an easy task.  I tend to be a bit too independent for him!  DD2 returned from CA yesterday morning.  Seems there was too much fog in DC so her plane landed in Philadelphia and her father picked her up there then drove back to southern VA.  I am sure he wasn't thrilled with it, but better him than me!  He still had over an hours drive home after he let her off here. Hehe. 

    PRB so sorry about the lymphedema.  I am so worried about it as my mother had it as well.  I hope the compression sleeve helps and gives you much needed relief! 

    Am posting again as I seem to be unable to keep more than two thoughts in my head! I am also in the bag today for each of you who needs me there!  Always, Susan

  • Zillsnot4me
    Zillsnot4me Member Posts: 2,122
    edited January 2014

    I got my first post chemo hair cut yesterday! I'm so fashionable! She trimmed up the back and sides and took the fuzzies off. It's only 1.25 inches long. DH wants me to spike it. Hairdresser said to use pomade. Found some for pixie style. Want to color it wild. Need to get some funky earrings and lipstick. 

  • prb1956
    prb1956 Member Posts: 401
    edited January 2014

    SCG - great to see you up and around.  I just called my surgeon's office today to schedule a date.  As my 'target window' for radiation closes on Monday, I am left with no other option but mastectomy...but for some reason I can't bring myself to schedule it.  Half tempted to just take my chances and say the lumpectomy was enough.   Yes the LE sucks, but I did get the compression gloves yesterday and they are helping my hand somewhat.  Oh..and keep the snow flurries in Virginia please, we have had enough in Michigan!  Oh, I just looked outside and it's snowing.  ugh

    Bobo - well thank goodness you have shown up!  I had visions of a CNN headline "Woman goes missing after mastectomy... Women from across the globe seek FBI help to find her!!"    Seriously, you obviously have a lot of people who care about you on this forum and were really missed.   I'm kind of new here, but none the less, I am glad to see that there's a possible light at the end of the tunnel for you.  You have been through some serious crap for sure.  I can't imagine some of the thoughts going through your head, but I know that when 'rare' stuff like this happens to me.... (surgeon:  "you won't have lymphedema because I only took out 6 nodes")  it just makes me not trust the whole medical community.   When I pounded my radiologist with possible side-effects of radiation (I had listed them all), he blew me off.  He literally just kept saying "no, we don't see that".  Really?  Never?  Ever?  Made me not trust him from that moment on (and quite possibly why I'm in this bind today of having to get a mastectomy over radiation).   Again, I'm sorry you have had to go through all of this, but it is a real eye opener that complications can and do happen ...  and our lives are on the line.

    Interesting comments about post surgery scars....that first look at my chest after the surgery is something I worry about.   Also, a friend and I were chatting.  She recently had a BMX and when I saw her for the first time, she immediately opened up her coat to show me her flatness.  I thought that was a good way to approach it, instead of people sneeking a peek.  Anyhow, we started laughing because I said.. damn, I find myself looking at woman's boobs all the time.   She laughed and said "So do I...and it doesn't matter how young or old the women are.. .I look at their boobs!".  

    So..how many of you look at other women's boobs now?   hah

  • ndgirl
    ndgirl Member Posts: 950
    edited January 2014

    Hello Bobo! how nice to have you back!! you have been on a real nightmare whirlwind for sure. So glad to hear that MD stepped up and was a help for you, and you are a wise woman to realize that her telling the world of her friends etc, is a small price to pay really. I know you like your privacy as we all do but sometimes it just becomes to difficult to not let others know the situation, and you knew the kids and DLLP needed the help. I am so amazed that you are able to return to work even now. I think my head would be swimming. I understand you think your chest looks bad right now.. but in time it will be better, and as you heal in all ways things begin to look differently. I think Ariom and I, having seen our mothers mx, knew what to expect to a point.. but it is always different looking at your self. I think she had an easier time than me,, I am just now becoming more comfortable about bathroom mirrors. I wish you comfort and peace, hopefully both are coming your way.  I leave for my trip on Jan. 22... cant wait.

    Zills, a haircut!! yay for you.. go wild and crazy.. you sure deserve it! how fun for you.

    PRB, I know what you mean about thinking the lx is enough, when I was talking with bs, she asked me what I wanted and I told her a lumpectomy and no further treatments... she paused for awhile and said if I was older.. maybe, I was 64 at the time, she said if I was 70 she maybe would have given me my wish. As for dr. saying no le with only 6 nodes removed, I was told that even having 1 removed gives a chance, slight by still real. And for se on radiation, I have seen both ways.. my mom and another lady I knew suffered terribly and it never recovered, but on the other hand my hubby's niece had lump and rads and she sailed right through it all, she said she actually felt better when taking the treatments... go figure! There is no one size fits all with bc. I just knew I did not want rads so that made my decision, but it wasnt easy. hugs to you,   btw... I hate to admit it but yes I do find myself looking at other boobs!! never did that much before! Take care.

  • Togetherness
    Togetherness Member Posts: 89
    edited January 2014

    Well had my reveal today and it was not a pretty sight...... Ugh. PS did take some of the gauze and tape off so that feels better. Kept drains in as fluid is still built up in my chestwall and it is swollen.  Just want to be out of pain and feel better.  As soon as I got home I was calling abou  prosthetic boobs.  Not sure when I will be able to wear them, but it won't be soon enough.  After six months of fighting through TE, fills, chemo, surgeries, infections, hospitalization and I am left with this.  It is just cosmetic and trying not for it to get me down but what a huge disappointment!! I have no doubt I will be trying again with reconstruction until I get it right!!!  Just need time to heal mentally, physically and emotionally.Scared Feeling sad!!!

  • grammaB
    grammaB Member Posts: 1,118
    edited January 2014

    bobo!  So good to see you posting again!  I am so sorry you had such a difficult time! It just seemed nothing was going your way for too long a while.  Glad you are finally moving in the right direction healing wise.  Also really glad to hear MD stepped up and really helped.  Yeah, you had to pay for it, but in the end the help was needed and she was there for you.  Unlike DB!!

    I can't imagine how you are getting through work.  You must be totally exhausted by the time you get home.  As hard as it probably is, try to rest as much as possible, it really will aid the healing.  Holding you in my thoughts and prayers, sending healing energy your way. (((bobo)))

    Yay Zills, a spikey haircut!!  Yes, color it, or chalk again?  Maybe not as permanent?

    sgc, wish we had some of those flurries here.  I miss white on the ground this time of year!!  You'll definitely feel better once you get off the powerful pain meds, but do take them if the pain gets too unbearable. 

    Togetherness, I am sorry that things aren't going as you had hoped. But you will eventually heal and then you can proceed from there.  You have a lot of courage to want to try again.  I hope for the best for you.  

    I'm thinking about what bobo said that the % of failures only takes into account those that try a second time.  That can really skew the numbers!!  A much truer picture of failure rate would be told by counting all of them.  That is not right!

    Hugs to all!

  • Ariom
    Ariom Member Posts: 4,027
    edited January 2014

    OMG! OMG!

    I don't believe it! Bobo, you're back! I have missed you so much!

    I don't know where to start. I know you've been to hell and back, but you're back and that's all that matters.

    Don't be beating yourself up about it sweet one, it is so easy to start thinking that we bring things on ourselves. The reality is, we are so hard on ourselves, when things are completely out of our control. You made the choice that was right for you at the time.

    I can't tell you how pleased I am that MD came through for you. I was secretly hoping she would redeem herself. Your brother sounds like a spoiled brat. Don't be wasting any time thinking about him, but you know what the answer should be the next time he has anything for you to do for him. When I think about you up in the middle of the night stripping his bloody knee drain, I 'd strangle him with it! Tout de Suite!

    I know there is going to be more surgery for you, but you've decided to forgo any more recon?

    I have to say I am gobsmacked at the "fudging" of the figures. Give me a F'ing break here. You have to fail twice, for the figures to count?  How on earth do those A'holes sleep straight in bed? 

    Enough of that....all I can say is I am so glad you're back, it will be a while till you are feeling back to that 100% Punk Princess, but you;re on the way. I am Happy Dancing your return Miss Bobo!  Big gentle hugs to you....M x

     

  • otceb
    otceb Member Posts: 129
    edited January 2014

    bobo! Welcome back! We missed you, as you already know! Try to take it easy with work. And don't worry about hiding from princess - if she's prepared for what she will see, I think deep down she will appreciate that her mother is upfront and confident, I think she will remember this positively. If we're stressed or embarrassed, kids pick up on it and get stressed themselves. Don't put more pressure on yourself! So glad to have you back! And yeah, totally crazy how those stats are calculated... Maybe that's why I got LE with the 5% chance I had with only a sentinel node dissection? The fact that my LE was triggered by an infection likely won't count in these stats??

    SGC - wow, you seem to be in great spirits, that's fantastic! I'm glad you're feeling well and resting tons. Funny what you say about DH thinking you're becoming too independent, I can totally relate! After DH mentioned this to me, sometimes I would pretend to need his help reaching something on a "high" shelf just so that he would feel a little bit useful!  Thanks for the info on chemo and for the offer of the blond wig - I'll pass though, since I'm curly brown and conservative... Who knows if I'll have fun with scarves/hats, but I do want my wig to help me look like me... don't know how much success I'll have!  I have an apt at a wig place this weekend, then it's hairdresser for a short cut the following weekend. I found out that we can donate our hair to the cancer society, that will make losing my hair a little less sad.. Ah, I just want to wake up and it's next year! Or 2 years from now!!!

    Zills, congrats on the haircut! Such a milestone! Yes, have fun with it!!

    Togertherness, sorry about the sight... It's the worst time now, as you know, it will only improve with that thing called time...!

    PRB - well, I guess the decision is made? Smile That's great!

    Hugs gB, M, and TB (are you still there, fellow Canuck?), Spookie, wren, nd and all!

    Ok, off to read stories for DS then off to CT scan apt! Good night!

  • Ariom
    Ariom Member Posts: 4,027
    edited January 2014

    sgc, so glad to see you're doing well!

    Just laughing at you saying that you're Husband is having trouble keeping up. This time last year Bec posted here about being exhausted trying to keep up with me! We all want to keep going and every single one of us has been guilty of overdoing it! 

    Just beware of the "Sneaky Nap Time!" I found I could be mid sentence, feel an overwhelming tiredness, and thump, I'd be asleep! Bec still laughs about how we could be in a spirited conversation and she'd blink, and I'd be out to it! I could wake again in 20 minutes and go right back to where I was in the conversation. 

    I am thrilled to see you doing so well. Take care and I'll catch you later!! M x

  • spookiesmom
    spookiesmom Member Posts: 8,178
    edited January 2014

    Bobo, like everyone else, I'm sooo happy you feel well enough to post!!! Missed you, but do take it as easy as you can. Those nap attacks ARE sneaky. But nice!

  • ldesim
    ldesim Member Posts: 1,193
    edited January 2014

    bobogirl have missed you so much!!!! Yes my phone finally died after 5 years or so sorry I have been out of contact you've been on my mind and wonderful Zils has been awesome about keeping us up to speed. I am so happy that MD finally stepped up to the plate and as for your brother I won't even waste my precious time cussing him out. Everything will work itself out one way or the other, it always does. You just worry about building your strength back up.

    sorry about lack of punctuation and the run on sentences, i am using the touchscreen keyboard to type which is frigging annoying but beats erasing whatever I type constantly.

    Zils, loving the sound of your haircut.. I have to go do something... I've been coloring it, but it's grown into somewhat of helmet now lol. The back almost touches my shoulders!!!  Love the sound of spiking it and I think you SHOULD go dye it pink or orange!  And yes, some cool earrings and bright lipstick and I bet you it will totally lift your mood!

    Sgc, so glad to hear you are wearing out the DH :)

    PRB, I look at boobs too, I imagine it's a normal reaction.. never really did it before unless it was somebody with massive ones lol.

    Ndgirl, by this time next week you will have left for your trip!  So excited for you :)

    Togetherness, sorry you are feeling sad.. but this isn't forever.. You might not be able to wear anything weighted for a bit.. but there are plenty of lightweight ones and I swear to you, nobody will know the difference.  Hopefully you'll be able to have your recon soon, did they give you an idea when it may be safe to try again??

    Posting.

  • ldesim
    ldesim Member Posts: 1,193
    edited January 2014

    M, are you still in the heatwave?  I'm so sad that you lost your garden after all the hard work and you were so looking forward to it.

    Sgc, I understand your excitement over the snow.  One of my favorite things is watching the snow fall!!  I would miss seeing snow if ever I were to move to another climate.

    GrammaB, it's odd for you to have no snow, isn't it?  I always thought Montana got tons of snow!

    One more day to this work week and then a long weekend... I am so looking forward to it.  Don't really have concrete plans, but I am going to sit myself down at some point and get all the tax sh!t sorted out... dread that.

    Otceb, smart making DH feel useful.. It must be so hard on them in so many ways.  I too got a wig that was like my normal hair was... in fact, most people didn't even realize I was wearing a wig, which I found strange and thought they were just trying to make me feel better.. but it was true.. it will feel weird at first, but like all things, you get used to it pretty quick.  Good idea getting your hair cut short too, that will make your life so much easier.

    Spookiesmom, can you please send some sunshine my way? I hope you are back to your warmer temps!

  • spookiesmom
    spookiesmom Member Posts: 8,178
    edited January 2014

    Idesim

    Here ya go! Not warm for us, better than Up North!

    image

  • Ariom
    Ariom Member Posts: 4,027
    edited January 2014

    Oh Zills, been a while since I was sitting here clapping my hands! oK ldesim just for you...with glee! For the others, ldesim loves to send me up, or "take the piss!" as we say here in Oz for my silly statements!

    I love the sound of the pixie cut and the spiky pomade! Outrageous color and earrings sound just wonderful too! You go girl and have lots of fun with it. I'd love to see it.  M x

    PRB, I am so sorry you are still feeling conflicted about the Rads or the Mx. I was so freaked by the thought of Rads and what I perceived, to be non negotiable Se's, then the thought of having to live in another town during the week for 6 weeks away from Colin was the absolute deal breaker for me.

    ndgirl and I have so many things in common, even Mothers who had Mx:) I still, to this day, can't believe how my Mother paved the way for me, and made this a much easier process than I ever could have imagined. 

    I wish you all the very best, and the clarity to make the right decision for you. We will be around if you need us.

    I had to laugh out loud at your description of your friend who opens her jacket rather than have people sneak a peek! and how you check out other women's chests. So do I! all the time, that's so funny.

    You'd be amazed how many other women have had mx or bmx. I have discovered so many, in shops, just by asking for a certain neckline in a top because I hate the "Fall Forward". They seem relieved to have someone else looking for the same thing, or having someone else who "Gets It!", in the store.

    You haven't been here long enough to hear about what my little BC group can get up to. We meet once a month, and although BC isn't our main topic, it does come up. A couple of times, we have had people asking about different Prosthesis and a couple of us have just whipped them out! They get passed around and everyone either gets some education on foobs, or a laugh, or both! 

    I think I must have been desensitized, by my Mother's experience. I was blown away by the way she handled her Dx, and her surgery. She had a really rough time, almost died from a massive infection. I never thought this very sophisticated, attractive woman could take all that happened to her that year. My Dad had just passed away, and 4 months later she was Dx with BC. We sat in the surgeon's office, he told her, Lumpectomy and Rads or a Mx were her options, she turned to me and said "You decide!" I thought for a moment and said "I think if it were me, I'd take it off." So she did.

    I recall standing in the bathroom with her some time later, when she was dressing and I asked her if she was ok with losing the breast. She laughed, and said in a broad Scottish accent "Och Aye! (scottish slang) "It was better than the alternative!" 

  • Ariom
    Ariom Member Posts: 4,027
    edited January 2014

    otceb, hugs to you too!

    ldesim, Yes, it is like  a furnace as soon as you step outside. It was close to 40c when I went out to grab a few things for lunch today. I haven't lost the garden, just the lettuce and the lawns. It's fine, the lawn will come good in the winter, and I can always plant more lettuce.

    It is becoming tedious, this heat. There isn't anything that you can do outside, even the beach is quiet. The water is warm, like bath water, but it is too hot to actually stay in the water. It is cool in the house, but you still don't feel like doing much. We have been watching movies. Dex has slept more than his usual 20 hours or so! LOL

    Spookiesmom, those temperatures and all that sunshine looks great.

  • spookiesmom
    spookiesmom Member Posts: 8,178
    edited January 2014

    I don't fuss much about winter here unless it gets COLD. And I have seen snow here. 

    Summer starts in late March, lasts till about Nov. I'm on the coast, so don't get much over 90. It's humid, like a wet blanket, no shower needed. I don't think I could deal with constant over 100 all summer. The A/C stays on all the time in summer. 

    Some on another thread were talking about recent earthquake in Cal. I'll stay here and deal with hot and humid, thanks!

  • wren44
    wren44 Member Posts: 7,928
    edited January 2014

    Ariom, If it makes you feel better, everyone here lets their lawns go brown in the summer. They green up again in the fall and stay green all winter. The news was talking about how hard it is on the tennis players to play in this heat. And the spectators as well. Houston was too hot for me and it was only 97F with humidity.

    Welcome back Bobo! I'm glad MD came through in the pinch. Maybe it will be easier in the long run to have the secret out in the open.

    I went into a Jockey store at the outlet mall today. The clerk asked if I'd tried on their new bras. I told her I'd had a mx and had to wear special bras (theirs sure looked comfy). So I'm looking around at other things. Then another woman came in looking for very tight tops. She said what they had wasn't tight enough; she'd had a mx and had been wrapped tightly and now it's her security blanket. Looking, I would say she'd had recon, but I could relate to feeling insecure at first. I thought it was really funny that 2 women in a row had mx's.

    We had a delayed anniversary this week. DH was drumming on our wedding anniversary and I was po'ed. So we spent the night at a nice hotel, soaked in their salt water soaking pool (102F), had dinner and shopped at the outlet mall after we left. Our temp was in the 40's and foggy so the pool felt really nice.

  • Ariom
    Ariom Member Posts: 4,027
    edited January 2014

    Thank you Wrenn, that does make me feel better! I love to see the lawn looking nice, even though I vowed I would never have a lawn again. That was before we bought this place. When we had the lake side cleared and landscaped I had them put in fake grass. I love it, especially when it has some leaves and a few weeds growing through it,  but the other side was just too big to even contemplate it.

    Isn't that amazing Wren, I would be very interested to find out just how many actually go shopping for similar things every day.

    I was in a thrift store recently, and was looking at the bra inside a swimsuit with a view to cutting it out and using as a prototype for a t shirt with a bra inside, idea I had. The woman who was serving, was very interested and was offering hints, she too is a Uni like me, she told me she had really enjoyed talking with someone else who was a Uni. She had never been to a Bc group. I invited her to mine, but she hasn't made it yet.  

  • grammaB
    grammaB Member Posts: 1,118
    edited January 2014

    ldesim, yes, this is unusual weather. They are talking drought on TV for this part (Western) of MT.

    Hmm, and yes, I too look at women's chests too!! How weird is that?  I was looking at  lingerie listings on zulily and couldn't believe the boobs on some of the models!!  I wondered if some of them were enhanced??? LOL I never would have paid any mind to them before!

    Yup, Wren, I let my lawn go brown in the summer too!  Interesting what the gal said about being wrapped tightly.  I was bound tight in an ace bandage for two weeks and even at this point, I feel most comfortable in tightly fitting camis.

    Ariom, glad you didn't lose the whole garden.  Lettuce grows pretty fast, you should be able to replant and still have some for the rest of summer.

  • Ariom
    Ariom Member Posts: 4,027
    edited January 2014

    Hi gB, drought now? 

    I never bothered with boobs before either, unless, like ldesim said, they were especially huge!

    I never had any tight bandaging but I like to wear a really firm shape wear tank too. It tames the other side, but it feels good when it is firm on my flat side.

    You're right about the garden, luckily my herbs are all fine, the tomatoes are great. I just made some Bruschetta and I can still smell the Sweet Basil.

    The Fig is absolutely covered in fruit, and so is the double grafted Lemon. The birds have made a mess of the apples and the pears. So not a big deal, goodness, there are people losing their homes in the fires. This is nothing.

    Take care  M x

  • Zillsnot4me
    Zillsnot4me Member Posts: 2,122
    edited January 2014

    Thought of you M crunching thru the snow this morning. Had to go see Eddie and then on to the back, the cows. Both horses and cows due within the next month. Two kittens followed all the way and picked up two more on the way back. All the black ones look alike except Firebob and his sister. He has a crooked tip on his tail and she has the tip of her ear clipped. The baby calls all cats Firebob. 

    GrammaB. What lotion/potion did you finally go with on your chest? One of the girls that had severe rad burns recommends goats lotion. 

    SGC. Glad you're home. Good idea to let DH help. He feels helpless right now so anything he can do, he probably will. Enjoy it! 

    PRB. I look at hair and armpits. After a BMX you have like a hotdog between your body and arm. It's so you can still stretch. Not really noticeable to the general population. But it's a dead giveaway to us bc girls even if you have recon. 

    Togetherness I think we all were worried initially but I can tell you that mine have evened out and the scars are fading. When I was first dx, a local lady invited me over to tell her story and she showed me her chest. It was a year out and barely noticeable. Yours and Bobo's will take longer but enjoy feeling good again. 

    Hello Granwe! And everyone else. Better get crackin on the paperwork while I'm childless. 

  • fiaranch1
    fiaranch1 Member Posts: 259
    edited January 2014

    Hi all,  I have been lurking but not posting as to not bring anyone down with my mood.  In addition to sweating and swearing I am now carrying a "bitch bat" . This lymph node cancer is kicking my ass and I have a huge sense of guilt over the financial toll all of  this is taking on my family.     I just posted a new thread  (see below) and wanted to make sure you all had this data point :-(


    All,

    I have been on tamoxifen since December . I am not complaining as there have been few side affect this far. I just came from my dentist and he stated that tamox alters the acid content in your mouth making many women prone to rapid gum line tooth decay.  He stated he has avoided this with his BC patients through the use of nightly fluoride treatments .  I was fitted for fluoride trays and will start the nightly treatments for the duration I am on the tamox.  I am starting this new thread as I want to make sure no one is caught off guard. Please see your dentist to determine your risk and if these treatments are appropriate for you ! 

    I consider my civic duty complete !! Have a great weekend !!!

  • wren44
    wren44 Member Posts: 7,928
    edited January 2014

    Ariom, Where do you find shapewear tanks that cover the boobs? All the ones I see allow you to wear your own bra - which is what I'm trying to avoid.

    Flaranch, I was taking maalox for Gerd. My dentist was amazed that I didn't have cavities from it because it has sugar and sticks to your teeth. I didn't because I hated the taste so much I brushed my teeth after every dose. Thanks for passing the word to those taking Tami.

  • Ariom
    Ariom Member Posts: 4,027
    edited January 2014

    Morning all!

    Zills, you know what? I think I could happily walk in snow right now! As much as I hate that sound, I would love to be cool! The heat must be getting to me...LOL

    I love to hear of your "Pied Piper" stories of your morning walks with the kitties.

    You are so right, Zills, what a difference a year makes to the scar. I have had a number of people ask me if they could see mine. I have no problem with it at all and  have been pleasantly surprised at the reactions. They don't wince, or run a mile, so that's good!Happy

    Fiaranch, I wondered where you'd been. I am really sorry to hear you're having a shitful time of it. As if just one of these things, isn't more than enough, you've got two to contend with. WTF!

    Feel free to come and vent to us, we understand how it can get you down. Don't be feeling alone and crappy!

    Thank you for the info on the Dental work. I too, have the dreaded reflux, but fortunately no acid on the teeth issues, and I was able to dodge the Tamox bullet, but thank you for letting us know. It isn't a se that i had heard of, but there are so many women out there taking it, that I am sure this info will save many from yet another thing to worry about!

    Wrenn, I have lots of these tanks, or camis. I have found they come up quite often on Daily Deals sites.  Try at your local department store, or Target, most have their own brands. It is either a fairly thick stretch fabric with a scoop neckline, and are long enough to cover your tummy, or some are a fine stretch knit that has the boob area knitted into it, somewhat like a Genie Bra, but tighter all over. I just pin a light weight foob into those ones. Spanx make them, but very overpriced. I have a couple of those low front ones you speak of, but they are reversible so the low scoop goes to the back. 

    Off to the smaller Farmers Market this morning before it gets too hot!

    Take it easy...M x