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new and future flat sister, with questions

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  • prb1956
    prb1956 Member Posts: 401
    edited January 2014

    I scheduled my surgery for Feb. 17th today and I am seriously sick to my stomach.  WTF am I doing?  Now I wish I had taken the easy route of rads.   I really don't know what is wrong with me....why can't I just move forward like everyone else?  I'm not really looking for answers...I know they're aren't any, but I just wanted to let you all know that at least I scheduled it.  :(

    I do have one question though, I see you all talking about cami's and such.  Is there a reason you can't wear your regular bras with the foob?  I tend to wear sports bras and I don't see why they wouldn't work?  

  • SC60
    SC60 Member Posts: 403
    edited January 2014

    evening all!  Just when I think I couldn't feel worse, I did!  My butt has been officially kicked!  I have felt like sh!t and haven't really slept for more than a hour at any given time since Tuesday!  Finally fell apart, something I never do, this morning. I do not do well without sleep!  To make another long story short, everyone scurried, stuff was cleaned, I put myself on a pill regime.  Hopefully I will sleep tonight!  At least the headache is gone!  

    Got the path report back today- not what I hoped for.  BS took 23 nodes-no wonder my arm is sore-7 were cancerous so I will be having rads.  I am not a happy camper!  Cancer sucks and left breast cancer really sucks!!  Thanks, I needed to get that off my chest so to speak! Will post again later should my mood improve.  Way too snarky to write now.  Always, Susan

  • kicks
    kicks Member Posts: 319
    edited January 2014

    PRB - Not sure what you mean by "taken the easy route of rads".  For me, it was neoadjuvant chemo, UMX, adjuvant chemo and rads.

    I did wear my old bras with a 'fluff' from late Oct (09) til I got my prosthesis and mastectomy bras in late Jan/early Feb (10) with no problems.  Most store bras are not cut so that a pros fits in them.  They also do not have pockets to hold the pros securely where it needs to be held.  It is possible to sew a pocket in if you sew - I have some I saw that I just thought were so cute had to have.  Recently I have found a few real cheap bras at WalMart that had pads in that could be taken out and your pros can be put in.  Works fine for me for 'just doing nothing' times but aren't good at all for being very active.  I have never liked 'sports bras' but at the urging of my CLET one was ordered for me - we both laughed like crazy.  The pros side was fine but the 'me side' was 'squarshed' as flat as a pancake - so I looked like my MX had been on the left, not the right as it was.  I have always preferred underwire and I still do - they're what I like and prefer so I still wear underwires.  Some will say after a MX, underwire are not possible and probaby aren't for some but there is no "One Size Fits All".  Ask lots of questions and get all the replies you can and take them into account but do what works for you, you're comfortable with -  not what someone else tells you to do/is what you have to do because that's what they do/is right for them.

  • hollyboo
    hollyboo Member Posts: 60
    edited January 2014

    PRB1956,

    Boy, can I relate.  I was caught in obsessive loops about what to do the entire time until surgery: which doc, which hospital, which day, what time of day, is there any other test I need.  I was crazed.  On the other side of all that, and rads too, I cannot imagine the hell I was caught in.  So scared I would not make the "right" decision.  Now, I am pretty calm about it all.  No promises I will stay this way.

    hollyboo

  • hollyboo
    hollyboo Member Posts: 60
    edited January 2014

    SGC,

    I agree. Cancer sucks.

    hollyboo

    ungrateful member of the CCC (Crappy Cancer Club)

  • hollyboo
    hollyboo Member Posts: 60
    edited January 2014

    PRB,

    Maybe sports bras would work ok, depending upon your breast size.  I was first mortified and then became a one woman comedy team about my flat side and my 42DDD side.  The "cloud" material just floated up to my chin while my breast side weighted down to my waist.  Well, ok, just almost.  Then I tried one of my soft older bras and my foam foob gravitated out where cleavage used to be and looked like some strange new necklace.  Then I added dried black beans to the "cloud" stuff and that worked better.  

    I am saving my older bras that I love to see if I can make pockets that work.  My silicone foob arrived (from EBay) and it weighs TWO POUNDS!  It looks gorgeous.  And now my true breast is sad and forlorn, knowing it has lost its perk at 64.

    Figuring this all out is so dang challenging.  If I had known I had ILC (instead of the IDC diagnosed by biopsy), I would have had double mastectomy and at least felt safer and balanced.  Flat is not as obvious as Dolly Parton partnering with Twiggy.  (Ok, does that age me?!)

    hollyboo

  • Ariom
    Ariom Member Posts: 4,027
    edited January 2014

    Hi PRB, gosh I am so sorry it still isn't sitting well with you. I hope you can resolve it before you go in for the surgery.

    There are a number of reasons why you see us talking about camis and tanks etc. Often it is because someone has recently had their surgery, and nothing more than a fluffy can be tolerated, and 6 weeks is really the earliest we can be fitted for a silicone Prosthesis, 6 months for a Contact.

    Not everyone chooses to wear any kind of fake boob, there are  many Flat and Fabulous women here who prefer to wear camis or tanks. Some women have residual pain and can't tolerate a bra or foob of any kind. Then there are the Uni Boobers like me and several other girls here. We like to have many options. A tight tank for the times you don't want to wear any foobs, a crop top sports bra with a light weight micro bead foob, or a weighted foam one. Genie bras with lightweight foobs, even maternity cami's with a little adjustment to sew in a foob and remove the plastic hooks and sew the strap to the front of the cami. I have a large collection of boobs, foobs and Prosthesis because I like to have different options for different clothing, casual, or dressy things.

    Although I have a couple of my all time favorite bras from before all this, that can be worn with my Contact Prosthesis, I am very nervous about wearing any bra with an under wire after reading about another member here who was accidentally stabbed by a protruding wire. She, like me, was very numb and didn't feel the wire, she suffered a terrible injury and infection from it. Not saying it will happen again, but certainly something to think about. 

  • Ariom
    Ariom Member Posts: 4,027
    edited January 2014

    Oh Susan, WTF! I am so sorry to hear you're having a rough time. That's just shitful!

    Ouch!!!! 23 nodes, no wonder that hurts. I don't know what to say other than, please don't worry about venting to us. We'll be here if you need to have a rant.

    Hugs to you, and I hope you get a good rest...M x

  • Ariom
    Ariom Member Posts: 4,027
    edited January 2014

    Hi kicks, there wasn't anything meant by the comment about taking the "easy way out" with the rads. Just that PRB has been having a really tough time trying to decide whether to do the Rads, or to go with the Mx and no Rads, providing Final Path is clear. We have been discussing it here for a while and she has just scheduled a Mx. It was a reference to doing one or the other.

    I see you're a right uni, like me! and you've found a few alternatives too. I had an experience with a sports bra that did the same thing to me:)

    I found a company called Marika that makes low impact sports bras which don't constrict. They have a couple of styles that are more like a crop top with pockets for a little modesty pad thing that hold a breast form. I bought them in every color when they were on 50% their clearance area and got them for$9.00 each instead of $60.00 each. I wear them under active wear jackets zipped up and showing the color of the bra, or with T shirts, or tanks. They are super comfortable and look good.

  • Ariom
    Ariom Member Posts: 4,027
    edited January 2014

    Hollyboo! Thanks for that good laugh, I enjoyed that!

    I told the story here a while ago of me running up and down outside our house trying to take photos of my husband in a yacht race. The neighbors must have thought I was mad, but the funnier thing, was how my fiber filled foob had migrated up and out of my bra till I could feel it under my chin. I stuffed it back in and got the picture I was after. 

    Dried black beans, I'll remember that, I tried small fishing weights in one of mine. I always looked upon my real side as a "rogue puppy" but I am only a "D", you beat me hands down! Happybut I sure fit the age group for Dolly and Twiggy at 60!

    Great to see another Foob Ebayer here...yay! I have bought several from Ebay, and have been happy with them all. One of our ladies here named the place that I keep them all "The FoobMoire" I love that! 

    My real boob weighed 975gms, and my Silicone ones are about the same weight. I found another that I love for casual wear called the Jillianna, and it is a weighted micro bead form, not heavy like a silicone, but enough weight to keep it anchored!

    Take care...M x

  • wren44
    wren44 Member Posts: 7,928
    edited January 2014

    You can wear most bras, but they need a pocket to keep the foob from drifting off on its own. The website 'mastectomysolutions.com' has instructions for sewing a pocket into bras you already own. All mine were underwire and BS said not to wear them. Then I lost weight and the real one shrunk along with the rest of me. I think I could use my old DD bras and tuck my money in along with my shrunken boob. I exchanged my silicone foob for a smaller one (no company guarantee but sure looked better). I'm eligible for a new foob in March and I think I'll need a smaller one yet. I just wish I knew what pattern size to buy now. Clothing is made for B cups, so when I was a DD I couldn't wear blouses that buttoned. I don't know if I'm a C or a B now. I guess perhaps the mastectomy store can give me some idea.

  • tb90
    tb90 Member Posts: 296
    edited January 2014

    Hi gals.  I haven't been around for a bit as I have been busy making another decision.  It sort of relates to what has recently been discussed here so thought I would add my two cents worth.  I was diagnosed with DCIS and was originally told that no lymph nodes were involved and clear margins following my mastectomy.  I had to have a mastectomy due to the size of the DCIS relative to my very small breasts.  Just when I thought I was home free, the written pathology report clearly indicated one positive margin!  I have done an exhaustive research and will meet with a RO as I believe I will go this route to catch any rouge cells.  I am still confused as to how these cells could live in such a small amount of breast tissue remaining as they can only live in the milk ducts.  I guess small pieces of milk ducts can remain after a mastectomy.  My BS stated that the chances of a reccurance are very small, but some studies do recommend RO in my situation.  Deciding to go this route was definitely not easy for me.  I would have a mastectomy any day over RO.  But then again I am not even considering reconstruction.  Everything I read states that a lx with radiation is much less radical that mx.  I am so much more afraid of radiation than any surgery.  We each have our own fears and preferences.  But now that I have made my decision, I am getting myself in the best possible shape to endure radiation.  Having all my girlfriends get their guestrooms in their Winnipeg homes ready for me as I have a 1.5 hour commute for radiation and in Manitoba, the roads can be brutal.  Our adult son will move back in the house during that time to care for our pets should I stay in Wpg as DH works lots out of town.  If need be, he will take off work, but I am trying not to disrupt everyone's lives.  Shit, I just lost a huge portion of what I just wrote.  It's like the award shows when they play people off with music.  My computer is trying to shut me down.  So I have lost my train of thought (happens very easy these days).  Sorry I have been absent, but am back to myself and will enjoy this thread again.  I was reading though.  The best to all of you lovely ladies!         

  • wren44
    wren44 Member Posts: 7,928
    edited January 2014

    Welcome back TB90. I'm so sorry you still need rads after a mx. They warned me that was a possibility before mine. I think setting up guest rooms with friends is a good idea. Winnipeg is rather famous in the weather reports. What are the pets DS will be taking care of? Please do come back often. Let us know if you need pocket parties for rads appointments. ((((HUGS))))

  • otceb
    otceb Member Posts: 129
    edited January 2014

    TB - Glad to hear from you but sorry about needing RO. What a pain. And the fact that you're far from Wpg. It's great that you have friends that you can stay with, it will be a good distraction and a chance to reconnect. And think of how worried you probably were before sx, and how it was not that bad after all - maybe RO will be like that? {{{{Hugs}}}

    Susan, I'm so sorry you're not feeling well. Gentle hugs! So many nodes removed... And sorry about the dx and RO waiting for you.

    Crap! Not good news for our friends. I'm thinking about you, I wish there was more we could do.

  • Ariom
    Ariom Member Posts: 4,027
    edited January 2014

    Wren, when I was fitted for my first Prosthesis the fitter actually fitted me for the bra first, so that the "real" side was taken care of, and then she tried different Prosthesis till we found the one that was right. We tried several different bras, and the Prosthesis worked in all of them. There is a size chart online for Amoena, which is the brand I bought, and it gives the size of form, to suit bra size.

    Hi TB, so glad to see you back again, but sorry to hear your news. I think you're doing the right thing though. I was terrified of doing rads, but if I were in your shoes, I'd do the same. I held my breath till I got my final Path results.

    It sounds like you have everything sorted, I am glad you're back! M x

  • bobogirl
    bobogirl Member Posts: 2,083
    edited January 2014

    Wow.  So many new people on the thread!  Thank you again for your kind words.  My brain is still not working that well -- so sorry to hear of the challenges of the sisters on this thread.

    Idesim, did you find a new phone in the basement?  Love the story of the kitties and horses.  Can't wait to hear what color Z's hair will be.  Wren, what is 'drumming?'

    M, I too have been hearing of your heat wave.  Thinking of you.  It gets very hot here in summers also, but not that hot.  I'm glad you are watching movies with Dex, but sorry for your lettuce!

    Togetherness, so sorry about your reveal.  You have resolved to try again and we will support you through it.  We each have our own path in this. I didn't have a reveal.  Mine is so ugly they let me keep my clothes on -- didn't have to wear a paper gown -- and put a curtain in front of the mirror.

    Waking up this morning to the overwhelming smell of pee.  Our princess has wet straight through.  WB still does it occasionally as well.  A lot of cleaning.  Z, she is miss pee pee pants.

  • Zillsnot4me
    Zillsnot4me Member Posts: 2,122
    edited January 2014

    Naked baby this am but no poopy pants thank goodness. 

    Snowed yesterday and snow again tonight. Single digits next week. Too cold right now to take her out. DH working. Want to go for walk myself plus errands. Have a headache and don't feel like fussing with the pair of them. Will clean house instead. 

    Dr called. Low vitamin D. Calling in script. Also upped my a/d. Got stuff done yesterday and went out with coworkers. We talked for three hours! Too tired to shop or get gas afterwards. Hope line didn't freeze. 

    Supposed to meet my sister's family for dinner. It's my niece's birthday. She wants to try lamb fries. Yuck! Bet baby would eat them. 

    I understand your concerns about rads, especially the left side. I understand you can do gated breathing to make your heart lower. 

    Mine was the right side but the RO took extra care to make sure my lungs were clear as I am thin. I had fatigue and skin peeling afterwards. It's amazing how quickly you heal. 

    Rads are every day M-F. Mine were for 6 weeks. I just told myself it was a job. Everyone was very friendly and upbeat, even those in the waiting room. Less SEs than chemo. 

    I'm stage IV so my perspective is a little different. I'm willing to do anything and everything. I don't think. Just ask for the first available. 

    I understand your fears and hesitation. We are all different but we support whatever you decide. It's your body and life. Don't be afraid to come here. We understand better than most everyone else how scary it is. 

  • Togetherness
    Togetherness Member Posts: 89
    edited January 2014

    Ariom I am learning so much from you in regards to prosthesis foobs. I have masectomy bras with pockets that I got when I had the  implants. I was wondering what the pockets were for now I know.  I have an appointment to be fitted for a prosthesis on Monday.  I wonder if that is too soon.   I hope to get my drains out Monday as well.  If I don't I will have to reschedule the fitting.

    DH wants to take me to dinner tonight to cheer me up and I said no thanks I have no bra to wear, but after reading this board I think I can put something together to make it work.  I hope in a few  months I will be like all of you care free and adjusting to being flat.

    Bobo I can relate about being ugly.  That is the way I feel when I looked down.  PS said do you want a hand mirror  to see,I said, hell no just do what you need to do and cover me up.  He just laughed!  I kept saying are you done....... Whats taking you so long and it had only been about 30 seconds.  My poor PS has been through so much with me.  Definitely will be keeping myself covered up and stepping away from the mirrors.

    Wrenn thanks for the website and info too.  I will check the website out and see if I can use any of my old bras.   I have a small fortune in bras, undies, camisole, pjs and etc.  Some people shop for shoes I shop for undergarments before my BC.  My friends say I am nuts.  Before BC I changed my bra everyday so I have atleast 30 bras....... Lol but like you I was a DD and with the implants I was a b or c.  Now aaa flat with some craters!!!!

    Everyone have a great weekend!!

  • ndgirl
    ndgirl Member Posts: 950
    edited January 2014

    Hello to all:

    Hollyboo, oh can I relate to the rising foob, I just dont have much success with the micro bead boobs, too light, I tried opening one to add some weight and had a he$$ of a mess with those little buggers of beads, need to try again with different approach. I do have an Amoena light weight one that has some weight and it is ok in a mx bra, but still rides a bit, it is not my favorite for sure but is wearable. I really prefer the silicone one that has some weight to it, I was told my breast that was removed weighed 2 pounds so I need a little weight. I use some of my old nicer bras with the contact proth. works good. You gave me a good laugh today!! Thanks

    Sgc... so darn sorry to hear about no sleep and a meltdown, we just do not function well with no sleep do we? wow, 23 nodes, was that all on one side or were some taken on the other side as well? no wonder you are hurting. Keep taking the pain meds as needed and I sure hope you can get some rest.... please come back to us and vent anytime, we all are pulling for you and healing.

    TB, nice to hear from you again but sorry to hear the news about rads. I understand about a long drive for treatments, that was also part of my decision, but if you have friends that have a room  for you maybe that would be ok for some of the time... some friends want to help son much and sometimes there just isnt too  much they can do so maybe this would be good for all. But I also understand about needing your own space too. I remember when I was deciding whether to have them and thought well it is only 6 weeks our of my life, time flies quickly... best of luck to you.. please come here often!

    Hi bobo...good to hear from you, sorry about miss pee pee pants, you didnt need another chore today did you? Try to rest too, a messy house always waits! dont sweat the small stuff as the saying goes!

    Zills, we northerners have a real problem with low vit. D levels, just not enough sunshine here. I take a supplement and also take cod liver oil pills because they are supposed to have extra D, and also help with stiff joints so when started taking arimidex I also started taking them. Hope you feel better soon, love hearing your farm stories and animals.

    Anyone else really concerned about gramwe?

  • wren44
    wren44 Member Posts: 7,928
    edited January 2014

    Togetherness, Scarves are your best friend. They either cover or distract. Both work.

    Bobo, DH plays with a Samba band made up of all percussion instruments. I carry ear plugs everywhere.

    Zills, I love the kittens following you around. We had a black cat who would follow us down the street to the first busy corner. She would wait and pick us up again on our way home.

  • tb90
    tb90 Member Posts: 296
    edited January 2014

    Thank you for all your encouragement!  One minute I think I am acting like a baby for hesitating and then the next minute I am terrified.  Depends what I read actually.  I love the positive stories like Zills and will now stay off the net.  I am hoping to get a three week protocol as that is the "Canadian way".  With my huge commute, it would be so much easier.  I was so excited to move to the beaches, but was always aware of the commute for medical reasons.  Had hoped to not face the challenge so soon though.

    Wren, our pets include a white german sheppard mix that is sleigh dog (we rescued her), a cockatoo that is at least 40 years old and they live in Ariom's country wild and bountiful (we rescued her too) and an English bulldog that makes me laugh every time I look at her.  We actually paid for her :)!! They are my therapy. 

    Togetherness, I go out all the time without a foob, although my real one is so small that most people would not notice anyhow.  I have found that amongst strangers, no one is looking.  It is people we know that give us the glance.  I do not mind.  My family dr gave me the glance the other day.  I am so proud of myself and my 27 year old son loves that I do not give a damn.  Now if I had ever actually had breasts :), I may feel very differently.  I think the point I am trying to make, is please go out for dinner with DH.  Wear something with a frill or something sort of busy as it camouflages everything if you like.  Even front pockets.  And feel beautiful and alive and just enjoy the moment with your husband.  ps  I actually threatened to wear my foob in the outer pocket of my shirt and then see people's reactions! I love to make fun of the obvious.  Hope you have a wonderful evening.  

  • grammaB
    grammaB Member Posts: 1,118
    edited January 2014

    Hi everyone!!  Spent most of yesterday trying to organize my tax stuff!  Yuk!!

    Zills, I've settled on using the Aquaphor most of the time and a couple of times a wee Vit E oil.  No more rashes.

    Fia, good to see you again.  Don't stay away when you feel down, this is just the place to come to get cheered up!

    PRB, I'm so sorry you are still having trouble with your decision. I hope you feel better about it before sx.

    (((Susan))) There is nothing worse than not being able to sleep!  I'm so sorry you are having such a tough time.  23 nodes!! No wonder you are in pain! Yup cancer sucks that is for sure!

    Hi Kicks! You are so right, everyone's situation is different.  I choose to just wear a cami or sleeveless shell under my tops and no foobs or bra at all.  Of course I had a BMX so that makes flat a lot easier.  I have silicon ones but find the band of the bra uncomfortable and the foobs heavy.  (Maybe it is time to give it another try?)  I have another month to wait to try my contact ones, I may like them, not sure.  But have no reservations about going anywhere flat.

    Hi hollyboo!  You do know you can still have the other removed?  Ins has to cover surgery to make you symmetrical, and if you aren't doing recon, sx is what will do it.  My ins didn't bat an eye when I requested it.  I knew I wasn't going to do recon and I knew I didn't want to spend the rest of my life worrying about another cancer in the remaining boob.  LOL, Dolly Parton/Twiggy, you're right, that is more of a challenge.

    TB90, sorry things didn't go quite as planned.  I was terrified of rads too.  And then when my MO sent out my path for a second opinion I was even more scared.  It took almost a month for me to get the final report and fortunately I dodged the bullet on the rads.  Were it different, I wouldn't have liked it, but probably would have gone ahead and done it.

    Posting before I lose this.

  • hollyboo
    hollyboo Member Posts: 60
    edited January 2014

    TB,

    Yup. I had a similar experience. First I had one lump near my nipple. Then two near each other. Oh, well, you might have PCIS on your chest wall. Do you want lumpectomy plus radiation or mastectomy and probably no rads. Yikes. Had mx. Weeks later, after everyone in the radiology dept looked at tissues, it was agreed radiation was needed but chemo not recommended. No lymph node involvement. But positive margins on my chest wall. BS took the sheath off my muscle there but chose to leave the muscle with cancer as I would need rads probably and taking muscle I guess can be a really problem. 

    Radiation was an hour drive each way. Five weeks. I had to work as I am self emotes and already took a bunch of time off for surgery. So I scheduled it mid-day. And on caringbridge.org I set up a daily errand request: someone to go with me to rads and bring finger food lunch. 

    What I had dreaded became a joy!  I caught up with sooo many friends I had been out of touch with. And got to know many acquaintances who stepped in. 

    Because of my work, I could start early and work late. If you work 9-5, that wouldn't work. I was tired in that stretch but the happiest I had been since my diagnosis. And that was with rads burns that looked like raw meat (TMI?) and hurt. 

    Staying with friends sounds wonderful for you. Just get lots of sleep and drink tons of water. And get biotin cream from Amazon if your pharmacy doesn't cover it. 

    Good luck!

    hollyboo

  • grammaB
    grammaB Member Posts: 1,118
    edited January 2014

    Airom, I am thinking that I was not fit properly.  The band on the bras is very uncomfortable and I probably could have gone a bit smaller on the foobs.  Sigh, she was such a ditz and then quit right after my things came in.  She had supposedly ordered me 2 more bras at the end of Oct the day she left, but the place never called me.  Very poor service and it is the only place around me that supposedly does fittings.  I'll have to go to Spokane, WA if I ever decide I want anything else.

    Hi otc! 

    Sorry about the Princess bobo, definitely something you did not need at this point.  Take care.

    Zills wishing I had some of that white stuff!  Sorry about the headache!  Made the beer cheese last night. Yum!  I found a place online to order it too.  Thanks!  Have fun with your sister.  Lamb fries eh?  I've seen them prepared several times on cooking shows but never tried them.  Not sure I could, unless I was given some and not told what is was before I tasted.

    Togetherness, yes scarves!! And bold prints too!  Go out and don't think a whit about it.  People really don't notice.  They really don't!  Have fun!

    ndgirl, that is part of the problem for me too.  I put the bra and silicon foobs on and I swear one side is always higher than the other.  I jiggle it a bit but still it looks off to me. I have never worn them out in public. Vit D supplement taker here also!

    TB90 that is an interesting group of fur/feather kids you have there!!

    hollyboo, you sure did turn a bad thing into something so much better!!  I have to laugh a bit "I am self emotes"  LOL auto correct?? It can be hysterical sometimes.

    Hugs for all!

  • Ariom
    Ariom Member Posts: 4,027
    edited January 2014

    Oh my goodness what a busy place this has been while I was sleeping.

    Dear Bobo, so good to see you here! I am sorry about the smell of pee in the morning.....yuck..not a fun job to get up to. I remember as a kid dreaming that I was sitting on the toilet and my one and only, wetting the bed experience.

    I am still having trouble getting my head around this surgeon of yours, and his bull crap stats. I don't think anything has made me more angry on this F'ing journey than finding out, he has been able to fudge these figures to a fail rate, only after 2 goes at it. Who does that? I actually lay in bed last night, thinking about what I'd say, if given a few minutes with him. I just don't get it, never will. I'd give a big serve to the his group of assistants too! As Bec used to say to me when I was on a mission about something unjust, "Go on Mummy, make him cry!"

    Take it easy Bobo! M x

      

  • Vivtwins
    Vivtwins Member Posts: 53
    edited January 2014

    Hello ladies, sorry for my lack of posting. I’ve had the week from hell but it’s all good
    now and behind me so onward and upward.

    Bobo – So glad to see you back again. You have been through hell and back
    sweetie. You are so brave going back to
    work and not telling people. I know
    exactly what you mean about MD telling everyone. My Dad is just the same, I think you are
    right, they love the drama, it's all about him too, never about me. I hope you
    are feeling more comfortable. I had such
    a horrible time with my infection, I don’t want further surgery. I couldn’t cope with going through any of
    that again I really couldn’t. Flat life
    it is for me! Please try not to stress too much over your daughter. Our children are more resilient than we give
    them credit for. What an amazing Mummy
    she has. I had built up much worse
    scenarios in my head that I thought were in my boys’ heads. I also agree with PRB, I don’t trust the ‘it
    never happens’ line! I only had 3 nodes
    out and ended up with LE! Hmmmmm! Keep on keeping on, I know I’m new to the
    forum, but you have been on my mind a lot!

    Zils – go for a crazy colour. I’ve just dyed mine pink!!!!!! Eeeeek!

    Togetherness – so glad you are on the other side of your
    surgery. Just remember that those scars
    won’t always look so horrific. I can’t
    believe how amazing my scars look 18 months down the line. It’s never going to look great but it’s much
    better than it was. I still have a
    couple of little tweaks I would like to make but not yet. I won’t be trying for recon again, I’m too
    scared. Take your time lovely, there’s
    no rush. Keep getting better and better!

    I went to the LE clinic this week and my arm is as good as
    it’s ever been. Had a pelvic, kidney and
    ovary scan to check all is good for my ablation so fingers crossed!

    Hello to everyone else, I am slowly reading and catching up on all the news!!!! Smile

    Will try to post more often.
    I do find you all so lovely and reassuring and it’s so nice to know I’m
    not alone!

    Viv xxx

  • Ariom
    Ariom Member Posts: 4,027
    edited January 2014

    Hello Zills, I have to wonder when the weather is going to dissuade miss naked lady from disrobing? She loves to get that gear off!

    Sorry about the headache, probably a silly question, but are you drinking enough fluids? I get headaches in the Winter because I don't hydrate enough, and lose too much fluid from the heating.

    I can't understand why we are ll testing low for Vit D, I just had to double my dosage a month or so ago, and I have been on the supplement for years. I spend so much time outdoors too, just not enough skin exposed, for long enough, I guess. 

    Lamb Fries, mmmmmmm, one of my favorite foods! Sorry, I can hear all of you gagging from here! LOL Colin's Mother used to make it for me, with bacon and gravy. It isn't something I have ever cooked for myself, but if I ever see it on a menu, I buy it. There used to be a place near where we lived that had a seniors menu, long before I was considered a senior, Lambs Fry was always on that menu and I would always beg to pay for a full price meal, just to have it! Happy 

    I hope you have a great evening, nice to see you getting out and having fun Zills!

    Big hugs to you...M x

  • Ariom
    Ariom Member Posts: 4,027
    edited January 2014

    Hi Togetherness! Don't want to sound like the bloody prophet of doom, but I would urge you to reschedule your fitting appointment for a bit.

    I turned up at the fitter, just a week after my surgery expecting to be fitted with a Prosthesis, some bras and be on my way. The ladies in the store asked me if I was going to have a Mx, when I said I had it a week ago, they just shooed me out and said "Don't come back for 6 weeks, everything has to be completely healed!"

    I made the "BIG" mistake of trying on a Genie Bra that I bought at a department store, just before everything was completely healed. I got an infection in the little part of the wound that wasn't healed properly.

    I hope you went out for dinner. I just remembered that one of the things I did when it was very new was to put tissues in the breast pocket of a shirt. It worked a treat, looked like I was symmetrical and no irritation.

    I too, was a lingerie lover. I reported here, how I just couldn't part with my beautiful French Lace bras, my favorite style was the balconette, and I am afraid they just don't "do it" with a "Contact" Prosthesis. Alas, they all went to the Opp shop, and were all gone the following day, so someone, or many are enjoying those beautiful things, many, never worn before.  Sigh!

    I learned a lot from the mastectomysolutions.com website too. Mary, the lady who put it together is amazing! One of my favorite tips is to get a salad spinner for the laundry. You hand wash the Mx  bras and place into the spinner, It removes all the excess water without you wringing it out, or putting it in the washing machine. It keeps them like new forever.

    Hi Wren, do you go to all the music shows with your Husband? Is it music you enjoy? I am assuming the ear plugs are for the decibels and not the music:)

    Hi ndgirl. Yes! I too, worry about gramwe, it has been a long time since she posted with the new tablet. I thought she'd be here regularly, but something has happened. I hope it is tablet related and not something else.

    Posting...

  • Ariom
    Ariom Member Posts: 4,027
    edited January 2014

    Ha ha, TB, I never thought of the prosthesis in the front to pocket of a shirt! I have just told Togetherness to stuff her pocket with tissues! LOL

    I don't know what it is that determines how we will feel about the way we look after this surgery. As ndgirl and I mentioned yesterday, we both had our Mother before us, have Mx, which must have been a big part of the reason.

    I had friends who were certain I would have a melt down. One who had the same Dx actually asked me after my surgery, what kind of recon I was having, when I said I wasn't having any recon she recoiled and virtually spat out "Ooooh how could you bear to look at yourself!" I was actually initially wounded by that statement, because I had absolutely no negative feelings about the way I looked. I had Colin take pictures at milestone intervals, home from Hospital, Drain out, Six weeks, completely healed...etc. I had made sure I was touching, and massaging with oils and aromatherapy from day 1, and also looked at it a lot, not just when I was dressing, but throughout the day, whether it was just a peek down my shirt, or a proper look, when I was in front of the bathroom mirror. Strange? maybe! but I think it was my, perhaps unconscious way, of making it my "normal".

    Just remembered something funny, and can't recall if I already mentioned it here, but when Bec was staying at Christmas time we watched old movies. We were watching Jaws and toward the end of the movie the three men are in the boat which Jaws is circling and sizing them up. They start comparing scars, one on the arm, one on the stomach, another on a leg, right at the same moment Bec shouts You Win! just as I shout, I Win! Bec says, Mum, you win the best scar, hands down! 

    TB, don't feel you can't say how you're feeling here, we are all different, but the same!

    We did the same thing as you when we moved here to our paradise. We checked all the Medical services, and have a big Hospital just 15 minutes away, with a brand new Chemo wing, but who'd have thought I would need a surgeon and maybe a Breast Screen call back, or Rads facility just 4 months after arriving. They were over an hour and 2 and a 1/2 hour drive respectively. You just can't plan for everything. I wouldn't change a thing. I absolutely believe that my recovery was aided by the surroundings here. The drive isn't an issue, it could have taken me the same length of time to get across town to an appointment in peak hour, with a whole lot more angst than here. 

    Posting...M x 

  • Ariom
    Ariom Member Posts: 4,027
    edited January 2014

    gB, don't envy you having to do tax stuff. I hate doing that boring stuff. Fortunately, much easier these days and we got a great accountant here too. Colin does most of it.

    I think you're right about your fitter, a good thing she left, I think! :)

    I will be surprised, if you actually like the Contact Prosthesis now gB, I think you may have just transitioned into being flat and fabulous all the time. The Contact still feels heavy to me, so you possibly won't like that feeling, since you don't like the weight of the Silicone Prosthesis in a bra. Maybe going smaller, and therefor lighter may do it for you. 

    You take Vit D too? Hmm, is there anyone getting enough sun? O is it getting depleted some other way? 

    Posting..M x