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new and future flat sister, with questions

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Comments

  • Ariom
    Ariom Member Posts: 4,027
    edited July 2013

    Bobo, I am really pleased you have reduced the Rites, like I said, it isn't to do with fitness. It is the way it acts on your thyroid and the rest of your system. Do whatever other exercise you need to, and just do the minimum of the Rites, gently increasing over time. Ok, 5 of the 5 Rites and an extra 1 each week.

    I love it....Don't bogart this thread, my friend, pass it over to me!!!!! LOL

    I love the stackable rings, love the stones, an't wait to hear more about them.

    OMG, F the tattoo etiquette. I insisted on having a line done first so I knew what to expect, so I wouldn't jump and cause a mistake. I had to wait for mine too. I think that it's Tattoo Ritual, they send you away while they draw it up, just to make sure, you are really sure that you want to go through with it.

    I haven't been to see the boat, but Colin has, and the boatbuilder has already filled the "chunks", so it will be painted soon, it's all good. 

    I have to keep going Bobo, trying to catch up with all the posts.....Take care...M x

  • Ariom
    Ariom Member Posts: 4,027
    edited July 2013

    Gramwe, awww I feel for you at that fitting. I love the fluffy slippers, I didn't notice the footwear of my fitter.

    I am glad it went well, but sorry you got emotional, are you ok now? Just look at it as an option, "To foob, or not, to foob!" That's a good thing, isn't it? Big hug from me, it's another hurdle that's been cleared.....Take care M x

  • bobogirl
    bobogirl Member Posts: 2,083
    edited July 2013

    Oh my good lord!  I can't wait to read all of these!

    Must just reply to urgent news.  Yes, I did slosh beer on Idesim, but I'm not really sorry.  Yes,  I do feel our Ariom is externally unflappable.  And then, I'm back in the purse for Idesim's appts today.  Will you please let us know MRI results stat?  I will worry worry worry until I get them.

    I don't really mind the purse.  Beats vacuuming.  

  • Zillsnot4me
    Zillsnot4me Member Posts: 2,122
    edited July 2013

    You all stayed too long in my purse. I now have all your SEs. Can't sleep, food not appealing, hot flashes, potty mouth, emotional and running around in my nightgown boobless and bald, no dressing gown. Too hot. Actually this is just how it is.



    My sister brought me a bigger purse so maybe you won't be as crowded on 7/23. It's plaid with a pink crocodile bottom and strap. Won't DH look cute carrying it!



    I've managed to choke down 1/2 my breakfast now. Thanks for listening to me bellyache. Going to take lots of meds and see if I can nap. Just waiting on everyone to get up. I was out of it last night. And don't remember seeing my babies.

  • Zillsnot4me
    Zillsnot4me Member Posts: 2,122
    edited July 2013

    Make room for me to nap in her purse or else it will be like on an airplane some stranger drooling on your shoulder. Good luck Idesim!

  • Ariom
    Ariom Member Posts: 4,027
    edited July 2013

    Zills, I hope you are resting, and the SE's are minimal. I have been thinking about you all day.

    I don't know much about elevating WBC, but I believe that Folic Acid, Green Tea, and added Protein are all ways of boosting the immune system and the WBC. I doubt you're interested in food right now. We can do some research and let you know.

    ldesim knows infinitely more than I do on this subject.....Sleep well....chat later...M x   

  • Ariom
    Ariom Member Posts: 4,027
    edited July 2013

    Oh gosh Zills you're up already! You can bellyache to us anytime!

    Take it easy today, can you?

    Bobo, you're up too. Zills is going to nap on our shoulder while we go with ldesim. I can handle the drooling. I did that once to a strange man on a bus to Sydney, drool on his shoulder, I mean!

    I am still trying to catch up on all those posts, they go back pages....M x

  • Ariom
    Ariom Member Posts: 4,027
    edited July 2013

    ldesim, I want to go with you today too! I know you'll do just fine, but it is a pretty big day isn't it. I'll be your "Gopher" "go for this, go for that!"

    Please let us know how you're doing, I'll be up early to check! M x

  • bobogirl
    bobogirl Member Posts: 2,083
    edited July 2013

    Okay, I'm standing by here, in the F-ing Boston hospital (is it Dana Farber?), waiting for Idesim's MRI results.  It is wholly possible I could still smell like beer from yesterday in Z's purse.  I hope the RO at the F R appt has something actionable to execute that will do something positive for your area, at least.  You should at least get something out of it.

    Idesim -- I guessed it!  Box pudding, graham cracker crust -- yikes!  Totes agree about the calorie count -- totes magotes (silly bromance movie reference).  I can find something to eat better than that for the calories.  But... you have to eat the whole thing!  You have to eat it the next night, if it is leftover!  Truly, laughed in the middle of working when you said, Enjoy the lemon bars, Granwe -- and laughed maniacally.

    Granwe, I am in a panic!  So glad you had a relatively positive time at the foob store.  But.. I am making your knockers in DD!  Help!  Now, I know that the knockers IN NO WAY substitute for real actual foobs.  But what if your bras are all now C and you can't even try on the DDs?  Worried.  In the middle of knocker #2 right now!  PS -- they are ginormous-looking.  I have DDDs, so it's not like I have never seen them before.  Well, I have DDD on one side anyway.

    Let me post this before I lose it.

  • bobogirl
    bobogirl Member Posts: 2,083
    edited July 2013

    I reply to myself.  Idesim -- whoops, I almost typed your real name, and then the Feds would be coming -- I was peeing laughing because you LOOKED UP ND'S ICE CREAM PARLOR, REVIEWED THE MENU, AND PLACED AN ORDER!  And now you are mad at her because you did not have any ice cream at that time! Nd, do not be sad -- it will blow over. What is Joe's cell?  I will have a delicate word with them.  There must always be ice cream in the house.  Could not he buy several pints at once.  Honestly, I lay the blame on him.   He needs to get his face out of the pudding pie recipe and get to the store.  Oh, I picture him reading the back of the instant pudding box!  Sweet darling.

    Now, about the punk waxed jeans.  I feel I need to explain.  As you know, I am wearing jeans from hs.  And, truly, sometimes I'll be at work and I'll think, when did I get this --- (whatever it is)?  Hmm.  I was teaching in Seattle.  So it was before September 11th...  And you should note, that whenever I DID buy that item, in the 1990s, it was probably like twenty-five dollars.  I feel I've banked some clothing allowance, haven't I?  But it isn't about that.  I have never bought Lucky jeans, or any designer jeans, or jeans that were in the hundreds -- in fact I don't even like jeans.  I get into my pajamas as soon as is humanly possible.  But it isn't about that either.  

    I am letting my punk flag fly, as you all well know, and I need to 'suit up' when I go outside.  Esp because I now have this tiny university lectureship, which is wholly unimportant, but which represents something of a homecoming for me.  It bears noting that my expression of 'punk' is laughably not very punk-looking.  Anyway, I must have those jeans.  I have not pulled the trigger yet.  They are not even available until July 20th.  I always buy things when they are on the last clearance -- now I'm buying something before it hits the stores?  Ariom, please back me up on this.  Idesim is making me feel so totes guilty!  Magotes.  I am a little silly now because I have just had a giant smoothie.

  • bobogirl
    bobogirl Member Posts: 2,083
    edited July 2013

    I reply to myself.  Z, I so hope you are feeling better.  I am sorry you are having all of our SEs.   Am certainly not a doctor, but I vote for Effexor.  If the SEs aren't too bad, that is.  We all have a lot on our plate. There is a time for wheatgrass, and there is a time for living better through chemicals (and perhaps also wheatgrass).  I used to be proud of the fact that I never took an advil, refused laughing gas, etc.  I self-identified by that.  Now, I have adjusted my identity to include as many drugs as possible, for example, during biopsies.  Now if only the doctors would accomodate my new identity...

    Idesim, standing by.  Email me -- the jeweler sent me a picture of my own wedding ring, you can see it, and the new one is going to be very similar, but smaller, and with a sapphire, I think.  Anyway, guess what?  You are going to be holding the rings at the real wedding, I cannot believe it!  Incidentally I am really leaning toward that October date.  Flights will be better and it won't interfere with anyone's thanksgiving plans.  Hello Wren and Nd!  You guys are probably actually too busy working and doing important things to post!  I can hear you saying Get back to work!

  • gramwe
    gramwe Member Posts: 238
    edited July 2013

    Bobo I didn't dispose of my former, "over the shoulder boulder holders" so the DDs knitted knockers will have accommodations.



    Idesim thinking of you today, what kind of purse are we in?

  • ldesim
    ldesim Member Posts: 1,193
    edited July 2013

    Sorry about dumping you guys all over the place.. what was I thinking being treated from two different hospitals?

    MRI is fine.. woohoo!  Radiation Oncologist is pleased with my skin, my MO says I look fantastic and seems to mean it.  She made me show her my hair... "let me see!"   I love that woman.. she's German.. as in born there.. so she has that demeanor...  and I bet she scares the hell out of most people because she seems very stern and she's very blunt, but her and I just hit it off.. we are making plans to sneak to Maine and surprise the MO I told you all about who I also love and who abandoned me! ... we decided we just miss her too much.

    Besides my Herceptin every 3 weeks until Dec., I am done with appts until October.  Then I'll have yearly physical (sounds so lame now!), another echo and a mammo and I'll continue echo and mammo every 3 months until next July.

    Haven't really read any posts yet.. I'll be back... just want to lie down for a little bit... xxxx

  • bobogirl
    bobogirl Member Posts: 2,083
    edited July 2013

    Oh thank God.  I was really sweating waiting for that post, I.  Whoo-hoo!  Stairway to Heaven!  

    Ice cream for everyone!  {{{idesim}}}

  • Ariom
    Ariom Member Posts: 4,027
    edited July 2013

    Thank goodness you've all taken a rest today!

    I am happy dancing for you ldesim! WooHoo, great MRI news!

    I hope you and the German lady go visit your favourite MO, what a hoot, she'd be so surprised.

    Looks like you may have dozed off! I hope you've had a good rest.

    I have been "flat out like lizard drinking!" today. Gardener came and we got into lots of stuff. I went to the local plant nursery because they had a sign out that their pots were 50% off today, my car almost turned intot their driveway yesterday on its own. It is so used to hunting out sales!

    I bought two big tubs for my Bamboo plants, but had to have them delivered because they were too heavy for me to lift, so the man turned up an hour later and put them one each side of the door of the alfresco area, just near my veggie patch.

    I have the dressing room set up as a bedroom, I have made the bed and found a table and a lamp to finish it off. It's ready for the girls when they arrive on Monday.

    Gramwe, I haven't heard that term for ages, I love that you now have the ultimate choice, Flat and Fab, "C" cup, or VaVaVa Voom! I want to see these "DD" knit thingies, I doubt you'll be hanging them on your rear view mirror, you'll never be able to see past them!

    How is our lovely Zills today? I hope you've been able to sleep and shake off the SE"s you picked up from all of us. I hope the baby is less snotty, and how is your sister getting on?

    Bobo, I want to see the ring too. I love jewellery.

    I looked up the jeans too. I am also a SALE or CLEARANCE girl, but there are times when it just won't do to wait. You're right, you have banked plenty of clothes allowance. Go for it! You so need to get these. They will look exceptional with the Tattoo, when will we know what the Tattoo is? Will we have to wait for an unveiling like I did with my sweet boy, Vi? Please don't tease for too long, I am not good at waiting, and don't do Surprises well!

    I want to see these giant boobies you are creating for Gramwe, I can't picture them, off, but I can imagine them on, in an over the shoulder boulder holder, ha I love that!

    Zills, I am glad we have the time difference because my first follow up is on the 23rd July too, but I'll still be coming with you too! Colin asked me to make a day of it, go to lunch and shopping and then 3.45pm appointment with the Surgeon. I'm all for that!

    I have my Pink Ladies Meeting tomorrow, and have to take all the Foobs for the group to see. I am a tad embarrassed because I need an Airport Suitcase Trolley to get them all there! The "FoobMoire" is bare!

    Dinner time, lovely ones....chat later! M x

  • Zillsnot4me
    Zillsnot4me Member Posts: 2,122
    edited July 2013

    I feel good almost great this morning. Walked, did my exercises, ate, packed lunch and now playing with the baby. My sister that came in to stay with me is taking to kids to my other sister's house for the morning. Will give my husband a chance to sleep in.



    The 4th of July party is delayed to Sat and will be a big celebration. Graduation, birthdays and 4th of July.



    DS is up and excited about going. They have trains and cranes and dump trucks from when their kids were little. But they will be back in time for the baby to nap here. She's very picky about where she sleeps.



    Not sure what I'm going to do with my quiet time. There's always paperwork but may watch chick flicks. It is a holiday after all and I should celebrate feeling good. Hope my SEs didn't transfer to you all.



    Will be cool and rainy here so no grilling out. Someone already dropped dinner by. Happy grilling to everyone else!

  • Ariom
    Ariom Member Posts: 4,027
    edited July 2013

    Zills, Happy 4th July!

    I am so thrilled you're feeling good today. You're a tough cookie! Enjoy yourself!

    If it were me, I'd say F the paperwork, bring on the Chick Flicks and the chocolate!

    Sounds like Saturday is going to be a big day with all that going on.

    Interesting that you say your baby is picky about where she sleeps. My Mother used to tell me about how she would freak out if we were out anywhere and it was getting close to 2.30pm because at 2.30 I took a nap every day, no matter where I was, I'd fall asleep at that time. She said there were times she'd have to carry me from the bus because we'd gone over time, and I'd be out cold for the next hour or so.

    Tired out tonight. I have almost finished getting everything ready for next week, just need to do some food shopping, and wait for the wind to die down so I can rake the leaves that have blown in today.

    BC group meeting in the morning, breast nurse coming to talk on LE, and I'm showing new Foobs. Should be a bit of fun...talk tomorrow...have fun and enjoy your quiet time...M x

  • bobogirl
    bobogirl Member Posts: 2,083
    edited July 2013

    Z!  I am so happy you feel good!  I am with our Ariom.  F paperwork for the moment and bring on the chick flicks!  Which ones?  I want to watch them too.  Love chick flicks and have  a 'Jennifer Aniston film festival' recorded right now on the DVR.  Anyway, do that paperwork in front of/with husband -- he can help!

    Ariom, I am so excited about your friends coming -- I almost feel as if I have friends coming!  Thank you so much for the pep talk about the jeans -- I am going to re-read it now in order to gird my loins.  I have sticker shock too.  But... F sticker shock!  When the baby needs something, I always take a bit of extra work -- tutoring, or editing -- to pay for it.  For example, when she breaks her ($400) glasses, and insurance won't cover a new pair because we have already had a new pair... so I have taken a little bit of work, but this time I am 'covering' myself!

    It's going to be a dragon!  Did you know 'dragon' is a Greek word which pertains to seeing clearly?

  • Zillsnot4me
    Zillsnot4me Member Posts: 2,122
    edited July 2013

    F! Lost my post but found more from you all. Don't understand it.



    Watched Miss Congeniality 1 and 2. Paperwork is my domain for his job. Don't want to be crabby with him today.



    Ariom don't overdue it. You need to be rested to enjoy your friends. And save some energy for Bec. But I know you will draw strength from them.



    Yes Bobo you deserve them. Us mommies always put ourselves last. I see your Greek is paying off. Cool meaning of dragon. DS fascinated with dragons right now.



    I'll post before I lose it again after I get caught up.

  • ldesim
    ldesim Member Posts: 1,193
    edited July 2013

    haha.. sorry for disappearing... I ended up going to bed early.. had a nice 10 hour sleep!! Did the rites this morning.. only 3!!  Lots of sales online today.. can't drag myself away.. only bought one thing so far, so I've been good. Need to have a good read here, probably will catch up tomorrow.  We're heading the the beach in a little while and then we decided to go up on the roof (Up on the roooooof!.. good song) to watch the fireworks.  Just the two of us thus far.. Joe Jr. might join us for fireworks and my BIL & SIL perhaps as well.

    Happy 4th ladies :)  XXXX

  • bobogirl
    bobogirl Member Posts: 2,083
    edited July 2013

    Who wants three angels to come to her house?!  Me, for starters.  The teacher of the princess is sending three angels to our house!  We have to be there to receive them at 10:30 p.m.  And we have a special thing to say when they come in, and we have to have a white flower and a candle ready.  Then they stay until the 9th.  I figured, Why not?  It was so kind of her to ask if I wanted them.  And it is not unlike Passover.

    Who wants them next?  :)  Will catch up later.  Idesim, what did you buy?  

  • Zillsnot4me
    Zillsnot4me Member Posts: 2,122
    edited July 2013

    I don't understand the three angels. Fireworks rained out. Day three blues have started. Glad my sister is here. Not up to coping. Glad kids go back to school tomorrow. Just not up to the noise.

  • Ariom
    Ariom Member Posts: 4,027
    edited July 2013

    Bobo, I totally understand the "children come first!" we've all done it. I guess that's partly where my opp shopping came from. It has just evolved over time to be a hobby for me.

    Just out of interest, our home insurance can cover the broken glasses, depending on the cover you have. It may be worth investigating.

    I love Dragons too, so did Vi. I gave him a Dragon Tattoo on his arm for one of his birthdays. What year and month are you born Bobo, I'd be interested in your Chinese Astrology Sign. I am a Snake, as is Bec, and so was my Mother. It goes in 12 year cycles. The Snake is not anything yucky as the name suggests, nor is the Rat. They all have wonderful positive attributes, and are very interesting compared with the Western Astrology signs. I have lots of books on the subject.

    That brings me to your Angels. Oh, I am so curious about that. I adore everything connected to Angels. Again, I have books stacked up about Angels, I do Angel Meditations, have asked them to watch over all of you, at different times, and am a believer in the presence of Angels. I have never been religious in the formal sense, not that I am not a believer, just that I don't fit with the regular Church thing. Angels have always been my bridge, if you like, to that part of my belief system. It isn't something I talk about much because you never know if people will think you're nuts. Not that I really care much for what people think of me, but I know that you lot are wonderful open minded women. It is a very interesting subject, and can be so rewarding, in the most unusual sense. Never scary, but often surprising.

    I will accept Angels!  M x

  • Ariom
    Ariom Member Posts: 4,027
    edited July 2013

    Hello Zills, oh I am so sorry, the feeling great has been replaced with the blues. F that, will it last for very long?

    I am so pleased your sister is still there to lend a hand. Can you curl up somewhere and try to sleep it off?

    Thank you for thinking of me. I have a tendancy to overdo things, you're right to pull me up. I am just about to get ready for the meeting this morning, but wanted to answer here first.

    I hope your day gets better, and the children will be back at school tomorrow, so a little peace and quiet, respite for you.;

    Take care lovely one. M x

  • Ariom
    Ariom Member Posts: 4,027
    edited July 2013

    HaHa ldesim, I knew you'd dozed off, what a great sleep you had. Ten hours should make you feel better! That was a big day we had, running pillar to post in your handbag. I almost got motion sickness, for the very first time!

    I love that song....up on the roof!  Awww how romantic, just you and Joe watching the fireworks on the roof. I hope you don't get rained out too.

    I am s impressed that you've tried the Rited too, and just 3, phew, I'd hate to get all frumpy again, and wag my finger like I did with our Bobo. I hope you enjoy the Rites and start to notice the subtle changes as I did, and continue to do.

    You've got some reading to do to catch up! I was in a tizz trying to remember everything the other day. Caught up now, so I am happy.

    I must get ready for the meeting now, will report later....M x

  • ldesim
    ldesim Member Posts: 1,193
    edited July 2013

    Happy meeting to you... I don't think I will be able to catch up but I'll give it a try :)

    When I was doing the rites, I told myself.. no more than 3 or you'll get yelled at!!!  See, unlike Bobogirl, I can behave.

    I don't understand the angels either.. and isn't 10:30 a bit late for visits to your door?  Or am I just being an old hag? haha.

    Zils, I hope you are feeling a bit better.. nothing worse than the blues and i'm sure the rain isn't helping matters whatsoever.  I'm glad you got dinner brought to you, one les thing for you to worry about.. just relax.. chemo takes quite a toll on the poor body. Love Miss Congeniality.. love Sandra Bullock.  Love Jennifer Aniston too, but I can't think of any movies with her off hand... I always think of Friends.

    Bobogirl, I totally think you should get the jeans, I didn't mean to make you feel guilty about it... you do not need to justify anything, that was just my honest initial reaction.  I'm not even sure I saw the right ones, because you said they're not avail for a couple of weeks and the ones I saw you were able to purchase. And WTH is totes and Magotes?  

    I am dying laughing over the suitcase needed for the foobs... imagine getting stopped at the airport for that one.  Also got quite a laugh out of "I am making your knockers in DD! Help!" Granwe doing the ol switch up!!

    It's Dana Farber and you did still stink of beer and you can use my real name or is it against rules on the boards?  The freezer is too small for several pints of ice cream, we'd have to have like no other food in there and HELLO I am trying to lose weight and having tons of ice cream in the house is not the best way to go about that. So ice cream is reserved for the hottest of hot days.  

    You had a perfect vision of him carefully reading the pudding box.. and omg... today I found like 6 more boxes of pudding in the cupboard.. so he intends many more of these things... should I hide them???? What is the protocol here?

    The beach was a bust today, it was 40,000 degrees and I tried to keep my area covered but beating sun bothered me regardless and I don't want to put sunblock on the raw skin.. so no more forays into the sun until I am fully healed.  Fireworks was fun, we ended walking down the street instead of getting on the roof.

    Went back a little further... I feel bad.. but I have to admit I had a laugh over Zills.. "running around in my nightgown boobless and bald, no dressing gown" mainly because I've been there done that :)  Regarding Effexor... drugs.com has these as common SE's.  

    Common Effexor side effects may include: drowsiness, dizziness, weakness, feeling nervous; increased sweating; blurred vision; dry mouth; changes in appetite or weight; mild nausea, constipation; or decreased sex drive, impotence, or difficulty having an orgasm. This is not a complete list of side effects and others may occur. Call your doctor for medical advice about side effects. You may report side effects to FDA at 1-800-FDA-1088.

     I am like Bobogirl, I don't like to take anything.. I had to be doubled over in pain from cramps before I'd take an Advil... so I generally lean towards not taking things...  I guess you have to figure out which is easier for you to live with while you're finishing chemo, SE's from taking it or SE's from not taking it.  If you do decide to take it, how bout trying 1/2 the dose and see how you feel.

    I too am excited over Ariom's visitors and do feel like they are mine as well lol!!

    Going to watch a couple episodes Big Brother UK and then hit the hay... nighty night :)

  • Ariom
    Ariom Member Posts: 4,027
    edited July 2013

    Just back from the meeting, and filled Colin in all the goings on. I love the girls, they are such a hoot. All country ladies, and i am the "ring in" city gal!

    They had eyes like saucers when I trundled in my wares. It isn't a suitcase, but a Samsonite trolley, with the boxes stacked on top of each other with a black octopus strap that pulls up over them. I actually went nuts looking for string to tie the boxes together because, although I would find it hysterical, I didn't know how others would react to a trolley "malfunction" with boobies all over the street outside the Community Centre!

    I told the girls all about you, girls. They were so interested that I'd found like minded women so far away, and that we had become firm friends.

    The McGrath Breast Nurse was htere to give a talk on LE, but she was interested in my little presentation, and asked me if I would be interested in talking to other groups in the region.

    I hadn't realised that most people don't actually research this stuff, most of the ladies today hadn't heard of the Microbead Foobs, and had no idea about the shapewear and the AhhBra etc. They all loved the tip I was given my Mary from mastectomysolutions about the salad spinner for caring for your expensive bras, and after today, lymphedema sleeves.

    There are a couple of ladies doing it very tough, with no spare cash, so they loved the maternity camisole idea from Target because it is so cheap, and it works.

    Along came Polly, The breakup, I like Jennifer Anniston too, but Sandra Bullock is one of my faves, what was she thinking with that Jessy fellow? Well, I guess even super smart girls, make those mistakes too.

    I had the perfect picture of you and Joe, on the roof, maybe a little Pudding Pie.......... I was wondering how you were going to get down off the roof when it was over, but you figured out another plan.

    I think it is so sweet that Joe wants to make you your NEW favourite desert,mmmmm, yummy! How are you going to get out of this one? There are boxes in all the cupboards, and maybe he'll be cutting coupons to get more for you...you're such a lucky girl! LOL

    I have an ex husband who did the same thing with gold chains, I know there is a difference here, and the gold chains weren't going straight to my thighs, but by the time I got him to stop buying them for me, I was starting to look like MR T in his heyday. I kept a few, but the rest got melted down and made into a golf bangle, far more practical!

    Gosh, I am sorry that it was too hot for the beach today. I can only imagine how the "area" may react to the hot sun. I learned today that you need to keep the arm where the nodes were removed aws cool as possible. I didn't realise how many things can trigger LE.

    I am another who hates to take medications for anything. I had to inject myself once a week for 7 long years with Methotrexate, a chemo drug, for my Rheumatoid. I hated it with a passion, and fought all the way to stop it. When I finally gave it up, I felt no discernable difference. I was furious.. The anti infammatories burned ulcers in my stomach, and the Cortisone, that I still take every day has thinned my bones.

    Don't you love it when you read the details of possible SE's with drugs. You get to the end, feel defeated before you've even taken one, and then it tells you that this isn't a complete list, that there are more. Holy Crap!

    I am a living breathing SE, if there is a SE for a drug, I will definitely get it. I can't even get a flu shot. They make me so ill. My Doctor finally  threw in the towel after our 4th or fifth attempt, he even tried a half dose, but I still got a raging flu and an arm that looked like it belonged to a Sumo wrestler. Most of the Rheumatiod drugs had to be abandoned, but the good thing in all this is that I need a fraction of what everyone else needs to get relief, when we find something I can tolerate. I have lived with 5mg a day of Cortisone keeping it under control for the past, maybe 10 years, almost unheard of, but I am not complaining.

    I am just getting ready to go for my massage. It has been 3 weeks since the last one. Mary has been at a conference in Fiji, so I'll hear all about the shenanegans that went on after classes today!

    I hope you al had a lovely 4th of July!.....catch you later....M x  

  • Zillsnot4me
    Zillsnot4me Member Posts: 2,122
    edited July 2013

    F SEs. I either already have those or I want to get rid of those. My PCP didn't recommend it because it does two things instead of one. He gets my sensisitivty. I'm going to try a b vitamin on my own. I thought I would get more info from the dr. One nurse is very helpful but the dr overruled her suggestion of Ativan the first couple of days.



    However the Jin Shin seems to have worked miracles. I have some nausea but only on zofran. No piggy backing with others like last time. Now if I can just beat the blues today or tomorrow, I should be in good shape.



    I think 10:30 is late too. Us girls go to sleep early. Not the boys especially if the tv is on. I even slept thru the dish fairy, computer games, fireworks in the rain and my husband fixing a leaf blower in the garage last night. But not the cat asking to come in at 3 am. I did manage to go back to sleep. I was afraid the night monsters would come out.



    My sister leaves tomorrow. Her family is coming in for a delayed 4th, graduation and birthday party. I will send the kids but skip the festivities. Too much noise and too many germs. I'm disappointed my WBC dropped from 5000 to 3500. I'm not sure but I think I need to be careful. I have an extra two days before my next treatment so hopefully it will come up. I thought 4000 was the cut off.



    Anyway today I will take advantage if my sister and get all the bed clothes washed and a small trip to the store.



    Idesim. Can you donate some pudding boxes or check the expiration dates? Or get a box cake mix that has a recipe for pudding to be added. Can you share it at work? Say it was snack day? I'm so sorry.



    Bobo. Can you get insurance on her glasses? Like you do on cell phones? I know glasses are expensive. I've heard they are cheaper online. There's an article in this months Consumer Reports. They also mentioned Costco or Sams.



    We know what Ariom has been up to. Wowing everyone with her collection and sharing her expertise.



    Hope Granwe, Wren, Ndgirl are enjoying their holiday. Most businesses are closed today as well.

  • Ariom
    Ariom Member Posts: 4,027
    edited July 2013

    Hiya Zills!

    I was wondering if I'd catch you before I drag Colin to bed. I am so tired, and relaxed from my massage, I can baely stay awake.

    I am sorry about the F'ing Se's. I am clueless about chemo, but ldesim, and the others are infinitely smarter than I am on the subject.

    Sleeping through all that stuff was great, but the cat at 3am, I'd be pissed off!:)

    I'm happy that you have your sister to help with the chores and give you a bit of a rest, The children will enjoy the festivities, and you can take a break!

    I got my glasses a couple of years ago at Costco! I miss Costco...I was like a kid at Disneyland when I went to Costco when it opened in Melbourne. I got my Roberto Cavelli frames and the tri Focal lenses, with all the coatings and the Transitions for a great price.

    As much as I loved going there to shop, it was false economy for me because with just the 2 of us at home a pack of 700 toilet rolls, or a gallon of BarBQue sauce was overkill! I gave so much stuff away, it really wasn't a saving for me.

    I haven't even repacked the Foobmoire yet. My trolley is still sitting in the middle of the living room with all the boxes stacked neatly, and the Hot Pink drawstring bag with all the Soft Foobs on top! Ahh tomorrow will do.

    Take care Zills, I am visualising your WBC increasing, and scaring those germs away. Have a great day with your sister, and don't overdo it, too much!:)

    I hope everyone else has had a great holiday, and that the weather wasn't too extreme!

    We are expecting some really cold days, but hopefully some sunshine on Monday and Tuesday.....Chat later...M x

  • bobogirl
    bobogirl Member Posts: 2,083
    edited July 2013

    Oooh.  So much to catch up on!

    First off: the glasses of our baby.  We HAVE insurance on the glasses!  And our health insurance covers them as well.  But... she always 'takes it to the wall,' breaking glasses until the insurance people say That's it.  You'll have to pay out of pocket or wait until next year.  Heaving giant sigh... it's been better of late.

    Have a solution to the pudding: clear the boxes out while he is at work and tell him they had bugs in them!  F donating them.  Pudding is not nutritive, anyway.  Regarding SEs: I am just like our Ariom.  Get flu from the flu shot.  I get every SE.  Have sensitive skin -- must have special cream.  I get hives from an Advil, or sometimes even when I am upset!  One of the parents at the Waldorf brought up an uncomfortable topic one morning at drop-off, and I demurred, asking him to drop it, and then I saw his face as hives came out on my neck!  He pointed to them.  So I don't advocate for drugs for myself easily.  In fact, I was incredibly allergic to the pain meds after this last surgery -- got giant weeping hive-like sores on my chest -- and so dropped them and went 'commando.'

    Hmmm.  There are some antidepressants that are better tolerated that Effexor.  With my first diagnosis I lost something like 30 pounds right away.  I am nearly six feet tall, and I don't carry a lot of weight to start with (except giant boobs).  So everyone at the hospital freaked out and I was sent to a breast cancer shrink who administers antidepressants.  I am extremely against them.  But, in terrible situations, the breast cancer shrink who administers antidepressants can help you find one that will not interact with your other treatments.  Some of them make tamox less effective, for example. Had terrible side effects with the first one -- Remeron -- which was an emergency weight-gain thing, it was awful.  Had almost no SEs from Lexapro, which does not interact with our meds.  This was in 2008.

    Chick flicks!  Tonight on television:  Notting Hill, starring miss Julia Roberts.  Love that one.  I'm just a girl, standing in front of a boy, asking him to love her.  I nearly pee with laughter and delight when she says that line -- it is so very not layered.

    The angels!  I agree -- I had to stay up for them!  I was worried I would not make it!  But I made it.  I had to pick three people to send them to next.  I think we should all get them don't you?  So -- Ariom, Idesim, Z -- you're up first.  Nd and Wren and Granwe, haven't heard from you, but are you in?  Will send pm with the 'instructions' -- you have to have a candle and a flower.  Mine are here until 9 July, then they will come to you!

    Idesim, I have a perfect weight-loss solution for you, though I would never wish it on you -- endometrial biopsy.  Truly, I have absolutely no appetite since.  I am like a dog.  In fact, Ariom, I am ... year of the Dog!  And, so is our baby.  OH!  Bought shoes for her for the wedding clothes!  They are neutral 'fall-like' shoes, I believe they will go with your dress whatever it is.  Was the second set of measurements okay?

    Have both children today, plus somehow must work.  Plus shopping for DLLP's big birthday surprise!!!!!!!!  So excited. XXX