Any Texas Hill Country BC Warriors?
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Hi ladies -
So sorry I've been "away". Work...and sinus infection....have been kicking my fanny! I continue to gain weight...have reached a weight I haven't seen in 3 years. I would like to blame it on my whacked out thyroid. Although my whacked out thyroid plays a roll, I'm sure the last five pounds can be attributed to yeast rolls, chocolate candy, and ice cream. Sigh! As a cancer patient, I should be eating healthier anyway. So....I am on a mission to lose the extra tonnage and get back to my inner "hot mamma". My primary doc, who I went to see about the sinuses, recommended a protein diet that many of his patients are having success with. In short, lean meat, fruits, and veggies. No sugar or bread. Missing my yeast rolls, chocolate, and ice cream already!! On a positive note, I sold my first stock picture. Of a knot hole....I sold a knot hole. And I am an Alternate for Casting for Recovery. Fingers crossed I get to go.
Now on to the really important stuff.....
Cindy - my heart is breaking for you. You are always one of the strongest ladies in the group, cheering everyone on, caring about each and every one of us. Always thinking of us, praying for us, hoping good things for us, even when dealing with difficult things in your own life. You are an amazing woman. I hope someday I can measure up. Know that we are all in your pocket, sending prayers and healing thoughts to your hubby. We are here for you, whenever, where ever you need us, in whatever capacity. Love you! Massive hugs!!
I am so sorry I missed the last get together. I was so looking forward to meeting Linda, Holli, and Bonney.
Holli - congrats on being selected for the trip. It couldn't have happened to a more deserving person. Can we fit in your luggage?
Jen and T erri - always a treat to see you, so I am very sad that I couldn't make it. You ladies "fill me up" and keep me going. Missing you both!
Candy - sorry you missed the get together but so happy you are close to ending or just ending chemo. You go girl!! Can't wait to see you again! Maybe in a couple of months?
Linda - seems you and Candy are almost on the same schedule. I see a dual party in our future as we celebrate the end of chemo for both you and Candy! Hope to meet you soon!
Bonney - If you're riding with Terri, then you are close to RR/Hutto/Georgetown area. Sorry I missed meeting you. Hope to meet you soon.
Chaos - How are things? Think you're be up for a weekend get together in September?
Ladies - I would still love to find a B & B or a lake house that we can take over for a weekend. I see canoeing or kayaking, hiking, chilling, wine, chic flicks, and a great slumber party! I want to find a place in Bastrop, New Braunfels or Burnett (Burnett mainly because I know of at least two great places we can go...but it isn't the most convenient for the group as a whole). Is mid to late September okay?
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Yall are so sweet...thanks for the (((HUGS))) and your cheer squad!
Made arrangements for pup boarding, my dad,son, and their wives had a lunch to discuss what I should do...humm who will call with my new directions. Hubbys BFF came over we had a long talk...he encouraged me to stick with my plan to transfer team to across the street rather than downtown LA. He&his wife were such a blessing 3 yrs ago when hubby was in hospital for 3 months...ugh the nightmare. His wife stayed with me many nights in LA. Right now just got him to eat.
Holli - Luv the song:) I luv YouTube worship time!
Vic - congrats...both alternative got to GO last year...so be Ready! One got called the night before...exciting fish kisses
Happy Valentines Day...xo
Luv yall
Cindy
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Hi Vicki, Good to hear from you. I hope you get to go to CFR! Congrats on getting The HOLE sold!:).
I am game for a week-end getaway. I would rather go later than earlier, just because of the heat!
Cindy, so glad you have the support to help with these important decisions, etc. I wish I could take Hunter for you! I have a huge backyard and a crazy boxer girl that would love him and wear him out.
Going to celebrate my kiddos and their spouses' b-days at my house on Sunday. All four of them have February birthdays, so it's easier to just have them all over at once!
One year ago today, I had my LAST chemo TX. I was pretty excited; or at least, however excited a bald-headed, tired old, cancer patient can be!:) Sure don't feel that way now!
Candy, Linda, you'll be there soon!
((HUGS))
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Hey everyone! I got deported on Monday! Checked my email yesterday and I'm an alternate for Casting for Recovery! (So msybe we can meet up before September Vicki)
Cindy, so sorry to hear about dh, y'all will be in our thoughts
I'm in the process of moving back to my hometown... just want to be near family and friends - have no idea what I will do for employment yet, but figure things will slowly work themselves out... the good thing is I have a house here full of the discards of a previous life as well as whatever my children decided to throw in the mix so once my port site has healed I can start decluttering and repairing and redecorating ugh! All this after we pack and move all our things from Sealy! Will be busy for awhile!!
I'd thought of applying to model for austin art bra but I think you have to be a member of BCRC?
Geez I'm taking on too many projects at once!
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Chaos -
Maybe we can fly fish together. How fun!! Did you see Cindy's comments about alternates? All of them went last year. Waiting for my doctor to fill out the medical release so I can send that in.
My friend is planning on modeling for art bra. You don't have to be a member...just a breast cancer patient/survivor. She is trying to convince me to try as well. But carrying around the extra tonnage right now is not conducive to modeling. Call me vain, but I want to be a hot mamma when I walk the aisle!!
Congrats on moving back home....that's Round Rock area, right?
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Home- Big Ol, La Grange! (but way closer to most of you now )
Haha vanity will get us every time... besides what I had read saying that you had to be a member of BCRC (must have read it wrong?) the other thing holding me back is ... HAIR... granted it is growing - I think it is about an inch long now, curly (but I had curly hair when I was little) and wants to do nothing except stick up in all directions no matter how much product I put on it LOL this is probably because I have no idea how to short hair at all but I'm going to get it down I'm sure!
Happy Valentines Day Ladies!!
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Chaos, congrats on being deported! YAY! And, on the possibility of going to CFR! Fun, fun:). Good luck with your move. I know what you mean about the hair. It is frustrating, but be patient. I have actually trimmed mine a couple of times and am enjoying the short length. You have to experiment with it a little as you go. Hope to meet you soon!
Candy, Linda, how are you doing? I hope your SE's are subsiding.
Cindy, I hope you and Hubby are faring well. Such a difficult thing to be going through for both of you. Praying for you.
Anybody buying tickets for the Art Bra show? I'm thinking of going, but don't want to go by myself.
Have a wonderful week-end ladies!!!
((HUGS))
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sorry I haven't posted in awhile - been dealing with alot since finishing chemo on the 4th of feb. Could use some input and thoughts..... I met with Gen. Surgeon on the 4th (Scott & White lost their breast surgeon) and he recommended MX and full axillary node dissection (ALND) based on my having several positive nodes prior to chemo and size of original tumor (ILC - 2 spots). Wanted 2nd option - so I met with Dr Jane Nelson at the Austin Breast Cancer Center (affiliated with St Davids) and she wanted me to have mamo, ultrasound and MRI to see how my cancer responded to the chemo before making her recommendation. MRI showed no "positive nodes" and mammo showed shrinkage of tumors. This past Monday I met with her again and she said tumors shrunk to 4cm apart and she would feel comfortable doing a Lumpectomy and would also not do the full axillary dissection but rather take out 3 sentinel nodes and if all were negative she would stop - if any were positive she would do the ALND. I was a bit surprised and shocked to hear I now had options - which of course always muddys the waters especially in light of the general surgeons recommendations. I also know that the LX may not yield clean margins and I may still end up have the MX - but having a choice seemed like a good thing at the time. I went ahead and scheduled the surgery for Friday -March 6th. I originally liked the option of possibly only having the SLND because of the liklihood of having lymphadema following the ALND procedure (especially since I will also be getting radiation). I relayed the info to my oncologits's office nurse and the next day my oncologist called me and said she was fine with the LX option but she wasn;'t fine with just removing a few sentinel nodes because I was node psotive before chemo and the national "guidelines" states that with node positive patients - ALND is the prescribed treatment even if an MRI after chemo showed o sign of active cancer. Needless to say I have been a wreck ever since. i sent an email to Dr Nelson and my oncologist also was going to get in touch with her and even check in with the former Scott & White breast surgeon who is now in Australia for a 2nd opinion. Dr Nelson sent me some surgical oncology research that "supports the use of the SND instead of ALND after chemo. I stopped by my oncologists office today (without an appt) and she spent 1 hr with me discussing the 2 options. She admists that mine is currently a "gray area". The guidelines have been updated in January and do allow for some flexibility - but there is still limited trials and evidence to support only doing the SLND. Study still shows between a 9-12% that cancer may still be active in the axillary nodes even if 3 sentinel nodes test positive - which is why she expressed concerns. It is now left up to me to decide which procedure to do......neither choice is a good one. I think I am okay with trying the LX first - as it may still mean a MX later - but the node dissection is what has got me worried and frozen. Do I take out less and rick leaving something in there - and yes radiation may get it - but maybe not. If I remove all the lymph nodes I will likely develop lymphadema - whcih from what I read can really affect quality of life HELP!!!! Your experiences with node dissection or LX versus MX - is so very welcomed. Sorry for the "book" - but I cannot stop thinking about all of this. Pete and I are planning a getaway next week and I doubt I will enjoy my time away. Thanks ladies!!!!! Candy
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Candy,
First of all, Congratulations on finishing your chemo! Whoo-hoo!
You are in a very hard place right now.
Did you get another opinion from an oncologist also?
I had LX, SNB chemo and rads, in that order. Dr Nelson met with her "tumor review board" before making her recommendation to me. I had IDC, not ILC. ILC can be sneaky, as in, hard to find. If you go with LX, I would ask about follow up care and what is the most effective follow up care for you. MRI, US and/or 3D mammos?
Do you have dense breasts? Have you been tested for the BRCA genes?
I have read that LE can occur with only a few lymph nodes removed, but I'm sure the chances increase the more that are removed.
I'm sorry I can't give you any more advice other than, get as much reliable information as you can, get another MO opinion if you need to, and after that, go with your gut. This is your life, your decision. Do what you think is best and what will give you peace.
I know there are a few here that have LE and also ILC, so hopefully, they will weigh in.
Sending you HUGS!
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terry - thank you for your response. I do have dense breasts which is one of the reason I am a bit hesitent about just doing the LX - but I know if I get the clean margins - I could always go back after radiation and get a BMX. So for now I think I will at least try for the LX. I may not get the clean margins - which I am prepared for. My gene testing came back negative (despite my mother and her sister both having breast cancer). I made an appt with another breast surgeon up in Dallas - very experienced and will see if she concurs with Dr Nelson - if so - then I will go with the lesser aggressive node dissection. I am hpoping meeting with her will give me more peace of mind with my decision. And I have considered the fact that I might still develop LE with only a few nodes removed especially after I have radiation - but as you said the odds increase to about 60% with a full ALND. It is a crap shoot - I just want to know I at least got as much info to make the most infomed decison and the one that will increase my chances of it never coming back. I wish someone would find a cure!!! Thank you so much for your inout - it is always welcomed and valuable!
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Candy, I just found this on BCO posted by mods...thought you might want to check it out.
Terri
https://www.breastcancer.org/research-news/many-do...
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Candy, I'm sure you have thought about this also, but if you do go with BMX and have rads, that will have an effect on reconstruction time-frame and decision-making... if you would be going with recon. Sorry you are having to deal with this. My Mom and half-sister had BC also. There must be other genes than the ones they test for, that we are carrying.
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Hi yall
Chaos - Congrats on being deported and moving home. Yippee:))). CFR happy dance.
Candy - yeah, the chemo has given you choices. If there's a support group go and ask questions, visit your oncology social worker, here at EMC preferred plan is to shrink, LX&SND. I went with the least invasive and least surgeries...didn't have energy for more so less for me. Ask lots of questions especially what will the girl look like. Thinking of you as you move forward:)
Terri - Hunter would love be running with boxer...bow wow
Vic - are you strutting the art bra...go girl!
Kelsey - how are you doing
Holli - playing my worship songs loud...looking fir God sightings
Tough week...hubby has been through it...stage 4, metastasized bladder cancer rectum, kidney, liver, lungs, bones, and tests soon for brain. Today, port and drains due to renal function compromised. Palliative Care Dr keeps coming up, but MO has been too rushed to give time...chemo soon, but I want that discussion so he can process risks benifits QOL. Tomorrow we said we would write our list...:((( dad just left and son arrives tomorrow for a few days. Oh, now add stoma nurse, infusion pumps,caths, irrigation...huby tears up...what is a girl to do.
We are here for a bit...shout outs to all...playing catch up
(((Hugs)))
Cindy
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Oh Cindy. I am so, so sorry to hear this. Hoping that you have as much time as possible together. If there is anything that you need, please do not hesitate to ask. So much love to you and your fella.
Chaos- congrats! and welcome back home! cant wait to meet you in person.
Candy- yay for last chemo! so proud of you! and yes- choices make things so much harder sometimes. I made up my mind at the start that is one had to go- both would. There was talk of a lumpie, but that got thrown out due to the grade of tumors, and having 2 different pathologies. My reaction is to always go full throttle at everything, so, my choice would still be BMX, even though it sucks. You can get LE with as little as one node removed, and some people never get it with all of them removed. I was always a sweller, so even with the few I had taken- I got it big time. It is a pain, but not severely life-altering. Whatever you decide- we are here to support you.
Vicki- hehehe- a knot hole. Love it- and congrats!
Terri- hope you are doing well.
Holli- how's things?
Everyone- hope you are all well.
Dealing with a cold myself after wearing myself out clearing out DBFs mom's house, and still trying to deal with the emotional side of things. Just glad to be home and in my own bed. Still very surreal.
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candy- Gina at Austin Cancer Center is the nurse navigator I love her and she has always given me great advice. But she always gives me the tools to make the best informed decision. Maybe give her a call?
I don't remember how old you are. I was 37 at DX. I didn't have an option to do Lumpectomy because of the IDC and DCIS being so far apart in the same breast. However, they recommended only a single MX. My thoughts were to just take them both. I didn't want to have to worry about mammograms or every lump and Bump. Plus it made for better recon according to my plastics guy. Of course everyone was so certain that I didn't have positive nodes. However, the SLNB showed otherwise. Plus they found more tumors, LVI, and I had pre-cancer (LCIS) on the side that wasn't showing anything. So for ME - the BMX ended up being the best choice. I had DIEP and my DIEP side that was radiated has shrunk. But according to my plastics guy he can fix it. We had to put off the rest of my recon due to my radiation pneumonitis. I'm hoping to finish it all by the end of this year.
It's a hard decision. Sometimes it's easier not to have choices!!
Holli
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Please visit my site and share on your social media or with anyone you think might be interested in contributing. Thank you!!
Holli
Hi everyone! My name is Holli Barrett. I wanted to let you all know that I applied for a Camp Koru trip through athletes for cancer and I GOT ACCEPTED!! So excited! I will be attending their survivor-ship program in Hawaii in April. It is for all types of cancer survivors ages 18-40. And it is for the survivor only. I will be bunking in a cabin with other survivors and learning to surf and stand up paddle board. While the trip is covered, I have to raise money to get myself there. If you know of anyone who might be interested in donating to help me raise funds to get there please pass this along. Thank you!
Holli :0)
https://donate.athletes4cancer.org/fundraise?fcid=...
38 year old Breast Cancer Survivor X1 year. Wife, mother of 3, daughter, sister, friend. Help me get to camp Koru!!
donate.athletes4cancer.org
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hey Jwoo!! Nothing like sleeping in your own bed :0)
I'm doing ok. Me and all 3 kiddos either have pnuemonia, acute bronchotis, ear infections, or any combination of the 3!!
FUN TIMES...
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Candy -
Weighing in here....
My main question would be what is best to prevent recurrence of ILC? Many docs lump it in with IDC but they ARE different. ILC is a sneaky sucker, very hard to detect, and is not as picky as to where it metastasizes (stomach, colon, uterus, bone, lungs, brain, lymph...just to name a few). Quite frankly, that's the part that scares me the most about our type of cancer. So I would choose the route that gives you the best chance of avoiding a recurrence.
My docs didn't give me an option. BMX for me...and I was always okay with that. Like Jen and Holli, I didn't want to constantly worry about finding cancer in the other breast. And I was told that it isn't a matter of if but a matter of when, as if found in one breast, odds are it will show up in the other breast eventually. Not sure why I wasn't given other options. Maybe the multiple tumors. Regardless, after the pathology reports came in, it was clear it was truly the only choice.
Sorry you are having to make this decision! Go with your gut.....
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V-bishop- you are correct. ILC likes to be bilateral. My ILC was the one they found at surgery. The sucker was hiding. That was on the right. The left was full of LCIS. Neither showed on my scans.
Candy - I second Vbishop. Have enough information to make an informed decision and then go with your gut on what you fell is best for you. We will all be in your pocket regardless.
Holli
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Stopping in to say "hi"!
All my paperwork is in for an alternate slot for Casting for Recovery. Already requested time off, just in case. Hoping Chaos and I both get to go. Then we can grab Cindy and all go fly fishing!
Cindy - lots of prayers and hugs sent to Cali for you and hubby! You know we're here for you! No art bra for me this year. My artist had too many personal conflicts...and I got fat. Not a good combination to go for art bra this year. Still on my to-do list. Maybe next year.
Candy - Tough decisions. Regardless, you have our prayers and support. Let us know how we can help! Happy you're done with chemo! It seems like yesterday that we all met in Saledo!
Terri - Sorry you missed CFR this year. I'm still hoping. Zelda submitted bras for art bra and is signed up to model, so you should still see someone you know. Finances are a bit tight for us right now - Hubby was out of work for three months and we're playing catch up on our savings. If things improve (like I get the huge raise I was promised), then I'll buy a $100 ticket and go with you. I hear it's a lot of fun! Hope all is going well!
Holli - sorry your family is ill. Half the group at my house has strep. The rest of us are steering clear! Hoping for healthier days ahead!
Jen - I agree with the knot hole. It makes me chuckle. Of all my pictures....the knot hole.
Kelsy, Linda, and anyone else I may have missed.....hope to see everyone soon!!
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Hi, Cindy, your post caught my eye. I was born and raised in San Antonio, and lived there 'til my mid-30's. Still have family there. Did some work in Kerrville. Anyway, hope you find some Hill Country sisters.
xoxooxoxo
Calico
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I loved this and thought id share
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good read on chemo brain
http://www.curetoday.com/articles/ChemobrainIts-Real-Its-Complex-and-the-Science-Is-Still-Evolving
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Jen', glad you made it home okay!
Vicki, good to hear from you...here's to CFR for both of you! Let me know if something changes with Art Bra. I really don't need to spend the money either, but since my BC DX, I have let some of that slide...
Cindy, so sorry you and your hubby are going through this. I pray that his medical team can keep him comfortable and pain-free. Please keep us posted.
Candy, I hope you are getting good information to help with your tough decision...
Linda, haven't heard from you lately. How are you doing? Are you almost done with chemo?
calicocat, you are welcome to join in anytime!
Chaos, Kelsey, how are you doing?
Holli, I hope you're all set to go, soon! Love your post. I need to make that my mantra for tomorrow:)
I am going to have my 18 month 3-D mammo and U/S done on BC breast tomorrow. UGH! I hate this. I have never had a 3D mammo, but it supposed to be a good tool and wasn't aware BS also ordered US, but glad she did. Why is it so nerve-wracking when you know you are doing the right things to take care of yourself??? My BS follow up isn't until the 9th...I guess if something is wrong, they will contact me before then, though. I feel good about it, but....is 9:30 am too early for a glass of wine?? LOL. Just kidding.
((HUGS to all))
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YAY! Mammo clear! I am hoping my 6 month follow ups will be over soon. Radiologist noted hetergenously (sp?) dense breasts...."2".
I hope y'all have a great week-end and are SE free!
((HUGS)) stay warm!
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congrsts!! My 18 month checkup I'd in march. Fingers crossed!
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Hi Yall!
Terri - yippee! Congrats...clear mammo:)))
Vic - fingers&toes crossed yours will be great too!
Jen - Ah, there's no place like home...you are a sweetie:)
Candy - hope you are able to get all your questions answered so you can proceed with confidence. Time for you and hubby to sneak away:)
Chaos - how's home....thinking of you and hoping you are smiling...you did it!
Calico Cat - welcome, hope to meet you at one of our meet ups...this is an amazing group of women. Love the Hill Country...blue bonnets soon!
Linda - ok, book worm...how are you doing! Got a good read? Sending good thoughts&prayers
Holli - so excited for you....Ooo who Hawaii:))) know the Lord will continue tits provide for all you needs...paradise soon...aloha:) Overcomer:)))
Kelsey - how is life in San Antonio...hope you are doing well...take some new pics with kids and your sweet dad!
Thank You for keeping us in your prayers. MO gave hubby 3-6 months, but chemo might add 2...so he did chemo Wed and will do again this Wed...2 weeks on and 1 week off is the plan. He sleeps most of the time, stoma, foley, nephrostomy. He has ripped each one out due to pain...last night was the nephrostomy out of his back. We are waiting for a skilled nursing home bed...not sure how this will all play out...hard...sad...:) Hunter is a all licks and snuggles...he's not use to being left behind...so doggy camp 2X a week bow wow
May miss the blue bonnets so take pics...going to miss TX Springtime
(((Hugs)))
Cindy
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Cindy -
There but for the grace of God go I. Prayers for you and hubby every day. Let us know how we can help.
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Hi, everyone! I finally gave up on my tablet (it gave up on me, first) and am back on the old desktop in my kitchen for BC.org. Losing text, being frozen out, kicking me off - the hell with it!
I finished chemo 2/17, but chemo isnt done with me. Numb fingertips and toes, painful nails, body aches like I've been working out (ha, ha, ha), etc. My hemoglobin counts are moving up, so I do have more energy. Swept porch without having to sit down to catch my breath! I am grateful to have minimal side effects and grateful to be done. I feel humbled by the strength, humor and kindness I felt from most everyone who crossed my path in chemoland.
Simulation on Tuesday, then radiation 24 days starting 3/9. Looking forward to doing something fun every day of my break next week - THEN I got voice mail from MO office scheduling me for another iron infusion on day I have fun plans with a friend. Grrrrr. Said I can't have iron infusion while having radiation. I'll find out about this tomorrow. I want to postpone radiation another week if it means I can get in another iron infusion and get my counts back up. I really wanted to start radiation in a strong place! And can I just have a couple of days off? Stay tuned...
It is great to hear good news from y'all:
- Terri - yay your scan was good! Talk to you sometime about dense breasts and the 3D and US tools. I have the same issue. Say hi to Bonney. I hope you are ready to get those photos of your grandbabies out in the bluebonnets.
- Holli - I'm relieved for you that your tests came back with good news. Hawaii will be a great reward and experience for you. Hope you and kids are over winter illness. Yuck.
- Jen - glad you are home, but I imagine you are still reeling with all that has happened. Be good to yourself.
- Calicocat - where are you living now? Welcome to this thread
- Chaos - how is it being back in LaGrange?
- Kelsey - hope all is well
- Candy - looks like you have had an anxious time of it. Sending you good thoughts.
- Vickie - 18 month checkup? Keep us posted.
- Cindy - I wish we were close by to help you with this. So hard, cruel and sad. Prayers and blue bonnet photos I can do.
Okay, my sad news. My precious girl, Abby Airedale, died. She never entered remission from the lymphoma. The chemo was keeping things in check, but we knew it was a matter of time. She did not suffer. Sunday night we went for a walk, had a good night, then in the morning she couldnt get up. DH, DS, DD and I were all holding her as her beloved vet helped her run free. She died the day before I finished chemo. I believe she knew I would be okay, and that she could go. Since I was home, we were together 24/7. The loss is hard, but the memories are great. Its just sad.
Thanks for listening! xoxoxo Linda
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Linda, so sorry for your loss,our fur babies do become like members of the family. I'm still having SE's from chemo and mine ended in October! Neuropathy is my biggest complaint- I've burned my hand cooking more times than I can count because I just don't feel it! I'm loving living back in my home town
feel more supported- knowing almost everyone in town will do that I guess! Good luck on with your rads!Terri- Yay! Good scans are awesome!
Holli - Do you think you can fit me in your suitcase to go to Hawaii?!
Jen, Kelsey, Candy how are you guys?
Vickie - hope your 18mo check up goes smoothly! Got in all my paperwork for CFR so hopefully we both get to go!
Cindy - I am so sorry to hear your news, you will be in our thoughts and prayers and if there is anything we can do to help please let us know
I ended up at the ER on Friday, all of a sudden I just couldn't breathe and it felt like an elephant sat on my chest... a couple of hours later (on pain meds thank god) I was released from the hospital with pleurisy. Definitely not much fun
then I received a certified letter from the radiaition oncologist basically saying that they were telling on me (lol) and that they sent a letter to my MO that I refused radiation and they recommend a mastectomy since I'm not doing radiation, etc that we are a part of a team and I'm not doing my part ... grrr I spoke at length over the course of several weeks and multiple appointments with my MO before I decided not to do radiation therapy... it wasn't a decision made lightly or without full knowledge of what if any fallout could occur...
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