Stage 2 Sisters Club

14142444647149

Comments

  • ruthbru
    ruthbru Member Posts: 47,794
    edited June 2014

    No, you don't want hair to start growing in your throat! Shocked

  • missingmercury
    missingmercury Member Posts: 156
    edited July 2014

    I'll try the biotene.  I have crohn's and have digestive tract problems anyway.  I'm also going to try some german chamomile tea.

    JD, I promise not to gargle with biotin.  lol

    I didn't realize the anti nausea would make me so tired and loopy.  Need an alternative if I am going to work.

  • Xrayalli
    Xrayalli Member Posts: 61
    edited July 2014

    MissingMercury- I hear ya on the anti-nausea meds, I have to work also and Compazine makes me pretty sleepy. But I can't work while nauseated so WTH! Zofran doesn't seem to do that as much, have you tried that?

  • missingmercury
    missingmercury Member Posts: 156
    edited July 2014

    I am glad to say that, though I prefer strong drinks like coffee...the chamomile seemed to keep my nausea bearable.  My daughter is a tea drinker and is giving me some tips on mixing teas for a better taste.  It worked well enough I am going to drink some before bed to see if I sleep better.  Up at 4:30 is for the birds, literally.

  • Xrayalli
    Xrayalli Member Posts: 61
    edited July 2014

    Where are you in your chemo regimen? What are you getting? I don't like the taste of chamomile, but there are probably others I might like.

  • missingmercury
    missingmercury Member Posts: 156
    edited July 2014

    I've had one treatment last week.  I am on a/c every 3 weeks for  rounds.  Nauseous every day.  I read to add honey and lemon.  Ginger tea is supposed to work also.  I know ginger works, but wanted to try the chamomile as I am not sleeping good and it should help with that also.  I wouldn't know, because I put the wrong tea bag in my cup last night and had sweet spicy cinnamon instead.  lol   Tasted too good to dump out.

    I put a tiny bit of creamer in my tea or sugar until I get some honey.  Did you just start a/c also?

  • NisaVilla
    NisaVilla Member Posts: 505
    edited July 2014

    On a much more irnsignificant mater, my hair has come in and is a different texture and color.  What for-cancer-patient brand should I request at the salon if I decide to get some highlights?  

    Thanks for advice.  This will be my first time coloring my hair and therefore I am looking for a really good suction to my new boring color!

    Thanks and Hugs, Nisa

  • NisaVilla
    NisaVilla Member Posts: 505
    edited July 2014

    sorry for all typos above.. Still typing from my phone!

  • NisaVilla
    NisaVilla Member Posts: 505
    edited July 2014

    oh boy, I meant solution - not suction lol

  • placid44
    placid44 Member Posts: 179
    edited July 2014

    Nissa,

    I was just told "gentle" since hair is so fine. I had mine colored once when it first started coming in. I went to Aveda.

    Btw it has been 18 mos. since final chemo and it has reverted to my original color. It is still curlier than before, but much straighter than when it first started coming in. It is straightening over time.

  • specialk
    specialk Member Posts: 9,262
    edited July 2014

    nisa - my stylist used my same old color for base color and highlights and I had no problems, but I know that some have used ammonia free color on newly chemo-ed hair.

    Some with nausea have used candies called Gin-Gins - they ar ehard ginger candies.  They are a bit hard to find but this is what they look like:

    http://www.swansonvitamins.com/ginger-people-gin-gins-hard-candy-3-oz-bags-s?SourceCode=INTL405&CAWELAID=1873726518&mkwid=kxOiy8Qa&pcrid=54347466607&gclid=CjgKEAjw286dBRDmwbLi8KP71GQSJAAOk4sjkPBUpFEMnvxMmBXu26HtV-pDtxTeQwnoVlRaliSFNPD_BwE

  • ruthbru
    ruthbru Member Posts: 47,794
    edited July 2014

    If you can, go to a stylist who has experience working with 'virgin hair'....they will know what to do.

  • NisaVilla
    NisaVilla Member Posts: 505
    edited July 2014

    I will look into those options, thank you for helpful feedback. I am glad (and surprised) no one suggested to avoid chemicals altogether, which was my primary concern.  I will be calling a few places near me and ask for a virgin hair stylist. Who kbew that was a specialty! 

    Those of you dealing with chemo, I am wishing you as few SEs as possible, and tons of support around you.

    Hugs, Nias 

  • ruthbru
    ruthbru Member Posts: 47,794
    edited July 2014

    I don't know if you should ask for a 'virgin hair stylist', you might get some shocked responses......'virgin hair' is my term, not theirs Loopy.

    The first couple times I got mine colored, I did it at the saloon where I got my wig....they were specialists in unusual hair problems. Alopecia, chemo hair, etc. etc. 

  • specialk
    specialk Member Posts: 9,262
    edited July 2014

    ruthbru - I have had to make that same clarification about the diet I follow - it is called the Virgin Diet (the nutritionist is J J Virgin)  but it does not turn you back into a  virgin!

  • ruthbru
    ruthbru Member Posts: 47,794
    edited July 2014

    And not many people would meet the qualifications to follow your diet....maybe just priests, nuns, and a few maiden aunts Loopy

  • specialk
    specialk Member Posts: 9,262
    edited July 2014

    Might be a popular diet if you could re-virginize with food, lol!

  • ruthbru
    ruthbru Member Posts: 47,794
    edited July 2014

    Oh my, the possibilities for double entendre are endless.... Happy


     

  • mommado
    mommado Member Posts: 48
    edited July 2014

    Hi All!!  Mind if I join in?  Was wondering if anyone has had a reoccurance in their "good" breast?  My right one has been leaking for awhile and the doctors can't test it because of course it doesn't leak when I go in for the test, but I feel like I'm having the same exact symptoms I had before the other one became cancerous ---- leaking, sharp pains, painful nipples....

  • Xrayalli
    Xrayalli Member Posts: 61
    edited July 2014

    mommado- weird, I just posted in another thread about nipple discharge! I had slight discharge for a few months before I got diagnosed with DCIS. When they found an invasive tumor directly behind my nipple I was diagnosed with Invasive BC. Surgeon never thought the discharge was relevant but he has since changed his tune, with hindsight being 20/20 he now believes the discharge to be an indicator in my case, I never had the discharge tested, though. I also mentioned in the last thread, trust your intuition! As far as reoccurrence (or new cancer in other breast, reoccurrence is in same breast), my MO told me between all the chemo and then Tamoxifen that I'm protected for 5-10 years from either. If you didn't or are not getting chemo you probably ought to keep tabs on that discharge. 

  • missingmercury
    missingmercury Member Posts: 156
    edited July 2014

    No more head in the sand.  Now it is in a cute scarf, lol. 

    Everyone does what is right for them, but I chose a BMX so I wouldn't have to worry about occurrence in my good breast.  That was me.  I got my hair colored and a few highlights as my hair was thin on top.  With my short haircut they really make my hair seem fuller.

    I will try those candles.  Still not sleeping great.  Up before 5am again this morning.

  • Xrayalli
    Xrayalli Member Posts: 61
    edited July 2014

    Sorry you have trouble sleeping, I am taking Ambien and melatonin for my insomnia, seems to be doing the trick!

  • missingmercury
    missingmercury Member Posts: 156
    edited July 2014

    A friend also suggested a lavender scent to spray on my pillow or in the room.  I think that is a baby thing, right?  lol  I would love to sleep like one.

  • specialk
    specialk Member Posts: 9,262
    edited July 2014

    missing - lavender is estrogenic - you might want to avoid it.

  • Kayce234
    Kayce234 Member Posts: 87
    edited July 2014

    Hi all - thanks so much for the welcome, I unfortunately need to leave - well leave with this name and return with a new one but I won't be able to let you know it's me.  For 3yrs since I was diagnosed my "sister" has been stalking me on this board and using things I say on here against me with our family.  I have lost all of my family members - siblings, cousins, ect - not my Mom though she lives with us and has been wonderful.  I tried for so long to not have to give in and change who I am - my Dad called me KayCe so that's why I use that name - but she has pushed it too far, I spoke here about her shaving her head for cancer when she and her family were so cruel to me with my cancer and how disgusting I thought it was for her to use others illness for attention (she is even on a billboard with her "wonderful bald head") and she blew the entire family apart because of my post.  So I've decided I truly need to remove her crazy completely from my life and keep her from being able to find out anything I say or do or anything about my family.  I love being on this board and the people I have met so I will be back, I have created a new name and the moderators have been kind enough to let me keep my KayCe active for awhile so if anyone wants to know my new name they can private message me and I"ll let you know.  I'm going to stay off for a bit so she can't figure out who I am and start this mess again, but I will be back and in the mean time I will be reading your posts and praying for everyone!

    For my sister Julie and her daughter Maddie who I know are reading this post......F-YOU....find someone else to stalk you crazy friggin' bitches!!!!!  My life is my life and I love it and all the people in it and am thrilled that the crazy ones are gone.  Blood or no blood the people who are my true family are amazing, loving, caring and non-judgmental (and they now everything about me, the good and the bad) -- I now have the best brothers and sisters I could have ever asked for so go find your own new family and leave ours alone!!!!!!

  • NisaVilla
    NisaVilla Member Posts: 505
    edited July 2014

    For your suster Julie and her daughter Maddie: You are not welcome here. This thread is for cancer patients. It is bad karma to torment cancer patients, please leave!

    Nisa 

  • NisaVilla
    NisaVilla Member Posts: 505
    edited July 2014

    Missing -  you look awfully cute in your scarf. How did you upload your pic? I would like to do that too. Never think about it until someone else updates theirs.

    SpecialK - do you happen to have a list of estrogenic things to stay away from?  I've been spraying kavander on my clean sheets!

    Mommado - Welcome!  I don't like the sound of the discharge. Why not having it checkout and sleep at night with less worries?  Be well and keep us posted.

    Happy 4th everyone! 

    Hugs, Nisa

  • Kayce234
    Kayce234 Member Posts: 87
    edited July 2014

    Nisa....I've talked to surgeon and onc about it they ordered a ductogram but it didn't leak for the test so they can't do it.   I'm hoping when I go to the onc in September she'll order some other tests...

  • missingmercury
    missingmercury Member Posts: 156
    edited July 2014

    Nisa- if you go to the top to 'my profile' and choose the settings tab, there is a spot to choose your avatar.  You can browse your PC for a picture.

    Kayce- I feel for you.  So horrible that you are being pushed to this action by selfish people.  We don't get to choose blood family and sometimes that is real unfortunate.  People who are comfortable being selfish and mean are really good at convincing others they are sincere.  My oncologist has told me to try to alleviate other stresses from my life during treatment.  You are right to not need them in your life.  You have another fight to concentrate on right now.


     

  • specialk
    specialk Member Posts: 9,262
    edited July 2014

    nisa - here are some sources for estrogenic things, and chemicals to be avoided - ingesting or applying to your skin would be more concerning than something you use for scent, but I just avoid all of it, if I can.

    http://www.livestrong.com/article/70189-estrogenic-foods-avoid/

    http://www.foodtrients.com/news/could-you-be-eating-too-much-estrogen/

    http://www.breastcancerfund.org/clear-science/environmental-breast-cancer-links/cosmetics/

    http://endojourney.wordpress.com/2009/07/31/a-list-of-xenoestrogens/