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January 2014 Surgery Sisters

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Comments

  • pinktiara
    pinktiara Member Posts: 716
    edited May 2014


    ditto that Michelle

    90 degrees in central fla today

  • levassel
    levassel Member Posts: 254
    edited May 2014

    yahoo!  No bras.  I haven't worn one since my surgery.  Most likely never will again.  Just tank tops!  I love it.  I went thru my bra drawer yesterday with a bit of nostalgia....gave one to my daughter.  The rest I think I'll just put away in a box.  I can't throw them away yet....maybe never.

    Anne...so sorry about your DDs friend.  You must be very proud of your daughter for being such a great friend.  You must have done a good job.

    Michelle...I'm counting down the days with you....we'll have to have a virtual party when you're done.

    Girlstrong....I'm still having boob pains...sometimes right deep in the center....sometimes along the edges of the implants....sometimes at the ports.  I've thought about calling the PS...but I know she'll just say that it's expected.  But for how long?

    Hi Eve!  Hope things are going good.

    Laurie

    XO all

    Night

  • mmtagirl
    mmtagirl Member Posts: 325
    edited December 2017

    Anne, praying for your daughter and her friend.  You have raised a beautiful daughter.

    Diane, have been thinking of you and what you are going through with your former BF family.  Your love is clear for this family and your presence can only help.

    Michelle, you continue to be my hero with your energy and strength. We are all counting down the days until you are rads free.

    Mary, hope your mom is doing ok.  She is so fortunate to have the love of her kids near by to help.  Blessings for every day and moment together.

    Laurie, I think we should start a no bra revelation.  The only bras I am wearing are the shelf bras in cami tanks or the cheapest stretchy I can find at target.  I couldn't wear a nightgown in front of others without some support before BMX.  I am loving it.  Of course, I still have the expanders in.  Btw, I did call the PS yesterday and the nurse confirmed it is not unusual for them to move around.  Not sure how I will get that final fill in another month or so but not on my worry card today.

    And finally, Eve, you did not start this thread but you have become the cheerleader, morale builder, showing us all that what ever we are feeling is important and ok.  You are the thread that brought us all together as friends and made us the tiara girls.

    Hugs to all you girls and wishing strength to all that are hurting this week 

    Ann

  • pinktiara
    pinktiara Member Posts: 716
    edited May 2014


    how do I say this?

    My advocacy gene began when I was in the 3rd grade. My 4th grade neighbor and friend was attacked on the way home from school by another, bigger, neighbor who was also a year older than me. The reason for the fight...my friend had dark skin. (Debbie was actually Portuguese and French Canadian) And quite beautiful. Kathy the brat....WASP well probably Catholic as I remember...but I digress.

    Debbie was a skinny, slight girl, while Kathy was big and tough with long hair :). So there I am seeing my dear friend getting beat up for no reason....sigh....I had to step in I couldn't help myself (probably because I was being abused at home and had no voice because of that)  I also had long hair. HA! but I wore mine in a braid...... I yanked that brat  by her hair and kicked her...off she ran home crying like a bully would.

    Never heard anything about it from any of our parents. But my friend and I knew....sometimes you just have to do what is right.

    There are many instances on here where I think you all may find my stories silly, but you don't.

    Thank you for the kind words about me.

    My neighbor wants me to try blogging. Being an advocate for all the things we have discussed. She has contacts that may help the blog be successful. I may try. I don't know.  We'll see.

    anyhow, my ladies you all are MY inspiration. Through your posts, I forget that I am scared, you help me move on and your strength is the catalyst for me to keep pulling hair and kicking ass.

    Hey we could pull a  60's thing and burn our bras......

    peace

    Eve

  • pinktiara
    pinktiara Member Posts: 716
    edited May 2014


    I forgot to post this...my brother sent it to me. owlcats     lol

    image

     

  • Mommyathome
    Mommyathome Member Posts: 876
    edited May 2014

    Hi ladies... What a day. Well I went to my breast surgeons for my post op follow up. I explained that I'm having a hysyetectomy and ovarirs removed on July 1. I'm ER and PR positive and my gynocologist recommended hormones like estrogen! I'm like no way!!!! So I asked the bs what she thought. She said she spoke to the board and some said its ok some said hell no so she's not sure what to recommend. Ugh! So she's referring me to a medical oncologist to see what he says.... I'm all set for my exchange on June 2, but they called me yesterday to say they had to change hospitals... Again ugh!!!!thoughts?!?

  • bc101
    bc101 Member Posts: 923
    edited May 2014

    Eve - that's awesome that you are considering a blog! I like your honesty, sense of humor and your writing style and I'm sure other readers would, too. 

    I found this photo on Pinterest after you mentioned the retro swimsuit, lol! I LOVE anything retro or vintage and thought this was fun. I've been wondering what I'll end up with as far as a swimsuit this summer and how my TE's are gonna look. I have to wait until the end of July for my exchange.

    image

  • pinktiara
    pinktiara Member Posts: 716
    edited May 2014

    Beverly,
    Who the hell are these people...

    HELL NO to estrogen...that is what feeds the damn er+ pr+ freaking tumors....that is why they want to give us Tamoxifen and aromatase inhibitors.  Holy crap Beverly ........estrogen is exactly what you don't want in any way shape or form. Get new docs ASAP. Your BS should know that too! Changing hospitals may have to do with ACA...

    This stuff about estrogen is elementary.......NO estrogen!  Think of it like this...if your kid is allergic to peanuts are you going to give her a peanut butter sandwich?

    See the MO.!!!

    I mean I am so adamant about this that we are only buying grass feed beef and all the meat we buy is certified grass fed NO HORMONES! The milk that my step son will be drinking from here on out is not going to be from cows that get estrogen shots to keep them milking.

    Hell no! was the right answer.

    those are my thoughts...

    love you girl

    Eve

     

     

  • bc101
    bc101 Member Posts: 923
    edited May 2014

    Beverly - I agree. Good GOD, what are they thinking?!!!

  • levassel
    levassel Member Posts: 254
    edited May 2014

    Exactly what I was thinking.  Estrogen?  Seriously?   Hmmmm!

  • pinktiara
    pinktiara Member Posts: 716
    edited May 2014


    K, in all the hoopla about estrogen...yes Mary, Good God  and Laurie ...seriously? perfect...I am still in shock!

     

    But Mary, that suit, second one to our right with the sweetheart neckline, very similar to the one I purchased. I don't know, there is something really sweet and very sexy at the same time about those women in the pic.  So reminds me of some of the pics of my mom. She was beautiful and super intelligent (masters in psychology) but just the most loving sweet supportive mom ever.   Can you tell I miss her?

    K have to make dinner....

    love, Eve 

     

     

     

  • lighthouselady
    lighthouselady Member Posts: 248
    edited May 2014

    Nothing really to say.... just wanted to check in.  Happy

    My daughter was invited to dinner with her BFF and her family for BFF's birthday, and she was requested to wear her "long dress and high heels".  LOL   She's 7.

  • Dtkd
    Dtkd Member Posts: 422
    edited May 2014

    Beverly - They want you to take ESTROGEN?!  That's crazy talk!  HELL NO is right!  They probably changed hospitals because of scheduling issues.  I wouldn't worry about it as long as they don't change the date on you  You won't be staying there anyway, right?  I'm so excited for you.  Life after expanders is much easier. :)

    Thank you ladies for all your kind words and hugs for my former BF's dad.  It's a sad situation.  I know that the family will be relieved when their dad finally passes and is no longer in constant pain.  I'm very worried about my former BF's mom.  She's exhausted from all of this, but has a good support system in her family.  They are never far from my thoughts.

    Eve - Love the owlcats!  I would read your blog with pleasure!

    Anne - so sorry to hear about your daughter's friend.  I will add them to my prayers.  There is no doubt you raised a lovely daughter.  You are such a strong positive woman. 

    Side note:  So, yes, I'm doing class, but no, my joint pain caused from my AI's hasn't subsided much.  I still feel like an old lady (even older than my 54 years) until I take my Aleve in the a.m. with residual joint pain in my elbows, knees, back and hips.  Oh well, at least it's livable with Aleve, right?  Anyway,  I found out last night that my testing date is August 9, so I have 3 months to get my flabby self back in shape. 

    Hope you all sleep well tonight!

    Diane.

  • pinktiara
    pinktiara Member Posts: 716
    edited May 2014


    oh my Michelle, long dress and heels at seven. I bet she looks very lady like. Keep an eye on her...

    Well I am now in the throes of the NFL DRAFT....Oh please help me. I have already taken an Ativan...so I can ratchet down my level of anxiety based upon the overwhelming level of testosterone whirling around the family room I hope one is enough. lol So hubby is a Dolphins fan....for ever, I have size 2 shirts from when he was a little guy....he now wears a 3xl.  Oh my!

    I am a 49ers fan.....we almost had a problem this year with the Dolphins....college too, I went to Iowa State he is a U of Florida fan....we almost clashed there.  Hopefully my teams kick but this year..... big time...any challenges out there ladies?

    Diane , so sorry you still have the pain...I do too...I am very stiff when I get up, it tends to get better during the day.  Sometimes it seems as if there is a build up of toxins? something isn't getting depleted as it should? I am really trying to drink more water to see if I can flush it out. If and when I see the MO who is into eastern medicine I will ask her what she thinks.

    it is late for me so I will wish you all a restful sleep

    peace

    Eve

  • girlstrong
    girlstrong Member Posts: 299
    edited May 2014

    mommyathome:  just say no to estrogen. Why in the world would any doc suggest otherwise when your Hormone positive?!?!?!?!?  Doctors are confusing. Be your own advocate-ask lots of questions. Just say no to hormones!!!!

    Michelle: love love love the idea of a 7 year old girl getting all gussied up with heels for dinner with BFF. Way too cute! 

    Eve: you must start a blog. Enough said :) 

    Ann: hoping your 2nd chemo cocktail is going better than the 1st...no trip to the ER and hospital this weekend!!! 

    Diane: so sorry about your friend:( hugs to you from michigan ..

    Nothing new on my end girls except for the fact that I am absolutely sick of having butch short hair. I seriously don't think I can take it any longer. Still wearing wig. Today at work a co worker said.." Oh your hair is super  cute"..sigh...what went through my mind when she said that was "thank you Raquel Welch" (I was wearing one of her wigs). Other than that I am feeling pretty good and starting to get done energy back. Yeah!!!! My foobs are still "up there" and I'm liberated to go commando! My sisters are jealous of my new found freedom. 

    Tomorrow I'm meeting a girl who I used to work several years ago. I recently found out she has BC and has already gone through mastectomy and is now in chemo. She has 2 little  girls (3 and 6 I think) . Anyway, I reached out and one thing lead to another and now we're meeting for coffee. I am looking forward to it and feel that I can and want to help her through this BC"thing" . No one deserves this mess; helping her might be good for me too. 

    Blessings to each of you--Marissa

  • lighthouselady
    lighthouselady Member Posts: 248
    edited May 2014

    Oh Marissa - I totally hear you on the short hair.  I sent a picture from today to my mom and she was like "OH you are SO beautiful and you have a hair style now!"  I look in the mirror and see dandelion fluff.  Ugh ugh ugh.  I finally got to the point, though, where I hated wearing hats and wigs more than I hated my short hair.  Most days I just throw a ball cap on.

    Here's my girl (on the left) with her BFF:

    image

  • bc101
    bc101 Member Posts: 923
    edited May 2014

    Oh, for cute! The only thing missing are the tiaras, lol!!

  • Dtkd
    Dtkd Member Posts: 422
    edited May 2014

    Oh Michelle, she's so adorable!  I love that they both have their coordinating shoulder purses. :)

    Marissa - I'm so sorry your friend has to join us, but I'm sure that helping her will be good for both of you.

    Eve - would love to hear what your MO has to say.  It would be good to get rid of this.  I do drink a lot of water and have started taking flax, chlorella and greens daily to try to rid the toxins.  I should probably go back to my acupuncturist, but it's so dang expensive ($200 a visit).  It's hard to keep that up on a paralegal's salary. :(

    On my way into class tonight I got a text...my friend Milt passed away today at 1:30 p.m.  I'm sad for the loss of a wonderful man, but glad he is at peace and no longer in pain.  He said many months ago that he had lived a good life and was ready to go, but he will be missed.  I'm opening one of the good bottles tonight, so I can toast him one last time.  I know he would approve, since he made his own wine, in addition to the best ribs I've ever eaten.  Yes, I'll miss him. :)

    Cheers,

    Diane.

  • bc101
    bc101 Member Posts: 923
    edited May 2014

    Diane,

    May your friend Milt rest in peace.

    Sorry to hear your joint pain isn't going away. I read on this site that Vitamin D in high doses is supposed to help with joint pain from AI's. 

    http://www.breastcancer.org/research-news/20091215...

    Happy Friday everybody!

  • pinktiara
    pinktiara Member Posts: 716
    edited May 2014


    So sorry Diane that Milt has passed. From what you said he was ready and  accepted that it was his time.  I know my husband was ready and after a fight with the hospital to transfer his care back to hospice it was only a few hours and he was at peace.  rest in peace Milt.

    I found out the best detox for me was eating pecans....my brother is allergic to nuts....guess what so am I ...wow a hand full really cleans me out...lol

    I too am drinking lots of water, I quit my supplements for a while to see if they were causing my skin issues. No . So I will start with Dim and add a new one every few days.  Still no call from the MO..Really?

    Ok ladies I received my new retro bathing suit today....loooooove it (snap) I'll have DH take a pic...if its good enough, meaning I look like a hot mamma in it, I'll post..eeeek.

    What a darling picture of your daughter and her BFF Michelle.

    Marissa. best wishes to your friend....this shit needs to end! Just pisses me right off....maybe that's what I call my blog. Glad to hear you are feeling better. Rock on !

    Mary I have read that also. I have also learned that BC patients present with super low levels of D.....I take 3000units a day and get my rear outside. So much for staying out of the sun....we just can't win.

    I have been reading about blogging all day. Checked out some hosts...I forgot I started one many years ago when my husband was dx with Brain cancer. Guess I got too busy to pursue it. Lot more work than I thought...to go pro. We'll see.

    love

    Eve

  • bc101
    bc101 Member Posts: 923
    edited May 2014

    Just wanted to share these. I come across lots of stuff on FB and other sites that seem relevant to what we all are going through, so thought I'd post them here....

    image

    image

    image

  • mmtagirl
    mmtagirl Member Posts: 325
    edited December 2017

    Awesome pick me up for the week, Mary!  

    Diane, hugs to you and Milt.

    Michelle, your daughter has the same light in her eye as you!

    Eve, we can have a contest to feed your names for your blog and be your first "hits".   Twisted tiaras?

    Beverly, I agree that a second opinion is in order.  Having said that, I can only reason that your docs are thinking that since your BC was not invasive, you were DCIS and by definition your BMX got it all that there can't be any pesky er+ cells lurking around ready to strike.  Maybe that is why some are suggesting Estrogen after your hysterectomy? The benefits outweigh the potential risk at your age?  I know I am stretching......I am no expert on DCIS but thought I would just mention it.  We are with you all the way!

    I, too, have read on the Vit D.  I actually started taking it faithfully after my thyroidectomy in July.  My doctor recommended it to keep synthroid levels stable along with calcium.  Take an Os-cal every afternoon and have had no issues.  Maybe it helps?  Who knows.

    Came home from work early to take a nap.  Off to soccer game tonight.  Hit 70 in Michigam two days in a row.  We are on. Roll, Girlstring!

    Happy Friday

  • pinktiara
    pinktiara Member Posts: 716
    edited May 2014


    I love Twisted Tiaras....so rock and roll!

     And as I am sure you all already know I am not willing to lay down for anybody!...You should listen to the conversations I have with my BFF about school curriculums of late....we agree with each other....but wow oh wow.

    Funny, stumbled upon a thread here called "retail therapy" so fun. There is a site called "threadup" gently used clothing.  Kinda neat... I am not really a fashionista....but hey a deal is a deal.

    Love the post mary,

    see Tiaras are awesome.

    K, OMG DH wants to take a pic in my new suit....I think it is a ploy.......it is Friday afterall...lol

    love you ladies

    Eve

     

  • girlstrong
    girlstrong Member Posts: 299
    edited May 2014

    bc101: I LOVE the pics...especially the friend one. So appropriate. 

    Eve: you go...rock on in the suit; show off the girls :)

    Have a wonderful night girls! Partly Sunny and low 70's here tomorrow..FINALLY!!!!!!! Just in time for Mother's Day . Off to relax and read Silver Linings. Hugs:) Marissa 

  • levassel
    levassel Member Posts: 254
    edited May 2014

    Happy Mothers Day everyone!  Hope you all have a wonderful day.  :)

    Laurie

  • pinktiara
    pinktiara Member Posts: 716
    edited May 2014

    Thanks Laurie, Happy Mother's Day to you too.

    Happy Mother's day to everyone!

    Hold your kids tight for me. Mine are too far away :( But I did get a call from my son in Okinawa, Japan....yay! My oldest will call at the very last minute.....he likes to make me squirm...lol. brat.

    Love you guys

    Eve

     

     

  • anneb1149
    anneb1149 Member Posts: 821
    edited May 2014

    Happy Mothers Day to all.

    Having a quiet day today. Yesterday, my DD#1 drove me over a hundred miles to meet with DS#1 halfway to have pizza. There was an art festival in the next street, so we walked thru that, then we walked the Riverwalk a little (in Greenville, SC). Best part of whole day was spending time with 2 kids & 3 grandkids, including the absolutely enchanting 10 mo. old  Lucia. Got roses from both sons. 

    Enjoy your day. 

  • Mommyathome
    Mommyathome Member Posts: 876
    edited May 2014

    Ok so I can only say this to my January sisters... It's like 85 degrees here in Connecticut- finally! I'm making the most of it and put on my bikini top. Wow!!! These expanders really expand ya!!! Lol the fabric barely covers my foobs and if I had nipples lets just say they'd be poking out lol. But I don't do who cares!!! Guess this is one of "perks" no pun intended lol.

  • bc101
    bc101 Member Posts: 923
    edited May 2014

    Hi Beverly!

    I'm so jealous! 85 degrees - nice ! It's getting a little warmer, but it's still jacket weather here :(

    Glad to hear you are enjoying your foobs!! ;) I haven't tried on a swimsuit yet (haven't had a bikini for over 20 years), but I'm sure my suits won't fit me. For one, I've gained a little weight and plus I decided to go a little bigger than what I was before. At first I thought, wow, this is too much, but then again I reasoned that hey, I lost a diseased breast and had a perfectly healthy breast removed, so I should get something for that. I feel that reconstruction is our reward for going through treatment, right? I love my foobs and if my implants are anywhere close to this, I'll be very happy. Sure I'm gonna need some touch-up with lipo and fat grafting or whatever, but hey, I deserve to have something I like at the end of all this.

    Went to the hairstylist today and had a foil and a haircut. She kind of overdid it on the color - I'm REALLY blonde now, sheesh! ! Oh well, guess I'll put on a tight white T-shirt and see how many looks I get driving around in my convertible, lol!

    Happy Monday!

  • Mommyathome
    Mommyathome Member Posts: 876
    edited May 2014

    Bc101,

    Ok, I said I had a bikini on, I didn't go so far to say I looked good in it!! Lol I laid out on my deck and no one could see me so I figured heck, why not?!? I also like my foobs. I told my ps when she does the exchange on June 2 if in doubt go big lol she laughed, I'm like no really!!!! How do u know u need fat grafting etc? My ps said she wouldn't know til after exchange....  When is ur exchange?