Breastcancer.org Podcasts: Experts discuss research & issues
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Living Well With Metastatic Disease: Controlling Fear, Finding Joy, May 30, 2017
Teva Harrison is an artist, writer, and cartoonist who was diagnosed with stage IV breast cancer at age 37. She is the author of the bestselling, critically acclaimed graphic memoir, In-Between Days; the book was shortlisted for the Governor General's Literary Award for Non-Fiction.
Teva is a Canadian Magazine Award and National Magazine Award finalist whose writing and/or comics have appeared in The Walrus, Quill & Quire, Huffington Post, Carte Blanche, The Humber Literary Review, The Globe and Mail, and more. She is a regular commentator on radio, television, and in newspapers, including CBC Radio, the Toronto Star, The Globe and Mail, and The Agenda with Steve Paikin.
Born and raised in rural Oregon, Teva currently lives in Toronto with her husband.
Listen to the podcast to hear Teva talk about:
- how she changed her mind about being public about her diagnosis
- how she controls her fear and finds joy and beauty in her life
- the things she's saying yes to and how they are making her happy
- what leaving a legacy means to her
Running time: 25:09
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Personal Finance After a Breast Cancer Diagnosis: Advice From Suze Orman, June 26, 2017
Suze Orman has been called "a force in the world of personal finance" and a "one-woman financial advice powerhouse" by USA Today. A two-time Emmy Award-winning television host, New York Times mega bestselling author, magazine and online columnist, writer/producer, and one of the top motivational speakers in the world today, Orman is undeniably America's most recognized expert on personal finance.
Listen to the podcast to hear Suze discuss:
- the four documents that EVERYONE should have
- what a young parent with metastatic disease can do protect the financial future of her minor children
- when to start taking disability or Social Security payments if you've been diagnosed with stage IV breast cancer
- the differences between wills and trusts
Running time: 30:44
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Managing the Emotions of Metastatic Breast Cancer, July 14, 2017
For nearly 25 years, Kelly Grosklags has dedicated her practice to minimizing suffering through her work in oncology, palliative care and hospice. An experienced therapist, Kelly is a licensed clinical social worker and a board-certified diplomat in clinical social work. She also earned a fellowship in grief counseling from the American Academy of Health Care Professionals. Kelly speaks frequently about end-of-life issues, including care, grief and loss, both in person and on her website, Conversations With Kelly. Her passionate and supportive demeanor helps patients, caregivers and health professionals connect with the wisdom of making life more meaningful, coping with depression and anxiety, transforming fear into hope, healing versus curing, and the wisdom of dying a good death.
Listen to the podcast to hear Kelly talk about:
- taming the feelings of fear, anger, and loss of control that can come with a metastatic diagnosis
- strategies to deal with "scanxiety"
- how to allow yourself to ask for help
- how and how much to disclose about your diagnosis to your friends and at work
Running time: 46:06
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Controlling Pain During and After Breast Cancer Surgery, July 24, 2017
Beth Baughman DuPree performs breast cancer surgery and is vice president at the Holy Redeemer Health System, as well as an adjunct assistant professor of surgery at the University of Pennsylvania. She is a board certified general surgeon specializing in diseases of the breast. She also has obtained dual board certification in integrative and holistic medicine. She has won numerous awards for her medical work as well as her humanitarian endeavors. Dr. DuPree's skin-sparing mastectomies, performed in conjunction with plastic surgeon Robert Skalicky, were featured live on the Internet; the webcast and subsequent documentary received a Gracie Award.
Listen to the podcast to hear Dr. DuPree discuss:
- the types of medicines used to control pain during breast cancer surgery
- non-opioid pain control options for people in recovery or who simply don't want an opioid
- the side effects of pain medications
- ways to control pain that don't involve medication
Running time: 23:11
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Facing the End of Life, July 31, 2017
For nearly 25 years, Kelly Grosklags has dedicated her practice to minimizing suffering through her work in oncology, palliative care and hospice. An experienced therapist, Kelly is a licensed clinical social worker and a board-certified diplomat in clinical social work. She also earned a fellowship in grief counseling from the American Academy of Health Care Professionals. Kelly speaks frequently about end-of-life issues, including care, grief and loss, both in person and on her website, Conversations With Kelly. Her passionate and supportive demeanor helps patients, caregivers and health professionals connect with the wisdom of making life more meaningful, coping with depression and anxiety, transforming fear into hope, healing versus curing, and the wisdom of dying a good death.
Listen to the podcast to hear Kelly talk about:
- becoming comfortable with talking about the end of life
- why stopping treatment is not giving up
- hospice care -- what it is and when to start talking about it
- how to talk to children about the end of life
Running time: 34:05
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Nipple Reconstruction, September 21, 2017
Dr. Frank DellaCroce, or "Dr. D" as he has come to be known, is a founding partner of the Center for Restorative Breast Surgery and St. Charles Surgical Hospital in New Orleans. Board-certified in plastic surgery, Dr. D has performed thousands of reconstructive procedures, both for women diagnosed with breast cancer and women at high risk of the disease who choose to have prophylactic breast removal. He is a fellow of the American College of Surgeons and a member of numerous professional societies, including the American Society of Plastic and Reconstructive Surgery, the American Society for Reconstructive Microsurgery, and the World Society for Reconstructive Microsurgery. He also has been named one of the "Best Doctors in America."
Listen to the podcast to hear Dr. D discuss:
- the benefits and risks of nipple reconstruction
- the timing of nipple reconstruction
- how nipple reconstruction has evolved over the years
- how long the procedure takes and what recovery is like
Running time: 18:06
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Metastatic Breast Cancer: Now What?, September 22, 2017
Krista Curley was diagnosed 3 1/2 years ago with estrogen-receptor-positive metastatic breast cancer in her lymph system and bones at the age of 39. She had no previous diagnosis of cancer. Since her initial diagnosis, the cancer has spread further into her bones and to her liver, despite surgery, various hormonal therapies, and chemotherapy. Krista lives in Ontario, Canada and is married to Patrick, the love of her life. She is the mother of Ethan, who is 16, and Naomi, who is 10. She has a blog about living with metastatic disease called "Metastatic Breast Cancer: Now What?"
Listen to the podcast to hear Krista talk about:
- what writing the blog gives to her
- how she and her family find joy and humor in day-to-day life
- how she talked to her kids about metastatic disease
- the one thing she would tell people about metastatic breast cancer
Running time: 25:20
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Stories of Mastectomy and Reconstruction: Deidra, October 2, 2017
A former pharmaceutical sales rep, Deidra is a 3-time cancer survivor. She was diagnosed with melanoma in 1991 at age 32 in 1991. In 2006, she was diagnosed with non-Hodgkin lymphoma at age 47. Three days before Christmas in 2014 and 12 weeks before the wedding of her son, Pierce, she was diagnosed with hormone-receptor-positive breast cancer in two spots. She had double mastectomy and immediate DIEP flap reconstruction on January 18. She also had nipple reconstruction and tattooing. Her goal was to be able to dance at Pierce's wedding, and she did. She continues to take an aromatase inhibitor.
Deidra is one of three women whose stories are featured in the Breastcancer.org video series on reconstruction after mastectomy.
Listen to the podcast to here Deidra talk about:
- why she was honored to share her story
- what she would tell a woman who was recently diagnosed with breast cancer
- how she felt when she was relating her story on camera
- what dancing at Pierce's wedding meant to her
Running time: 20:17
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Stories of Mastectomy and Reconstruction: Mimi, October 5, 2017
Breast cancer was familiar to Mimi, even before she was diagnosed. Her mother has been diagnosed with breast cancer three times. She was treated with a double mastectomy, radiation and chemotherapy. Fifteen years later, she is cancer-free. Mimi's cousin Annette, her best friend, was diagnosed with breast cancer in 2009 and passed away from the disease that same year at age 42. Mimi herself was diagnosed with stage I breast cancer in April 2015 at age 45, the same age her mother was first diagnosed. She had a double mastectomy with immediate DIEP flap reconstruction. Later she also had a preventive hysterectomy because the cancer was hormone-receptor-positive. She took tamoxifen and an aromatase inhibitor but has since stopped.
Mimi is one of three women whose stories are featured in the Breastcancer.org video series on reconstruction after mastectomy.
Listen to the podcast to hear Mimi discuss:
- how she made her decisions about surgery and reconstruction
- the positives she believes breast cancer brought to her life
- what she would say to a woman who was recently diagnosed with breast cancer
Running time: 16:51
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Stories of Mastectomy and Reconstruction: Peggy, October 18, 2017
A former first grade teacher, Peggy Johnson was diagnosed with breast cancer in November 2009 after she became concerned about some dimpling in her left breast. She had six rounds of chemotherapy, then a double mastectomy with immediate implant reconstruction in May 2010. She then had radiation therapy. After that treatment was completed, she had new implants inserted in December 2010. At that time, nipple reconstruction wasn't offered to her. In early 2016, at her annual exam with her breast surgeon, the surgeon discovered that one of her implants had ruptured and was leaking. Peggy was told she would have to have her implants replaced yet again. Instead, she decided to have DIEP flap reconstruction as well as nipple reconstruction and nipple tattooing in May 2016.
Peggy is one of three women whose stories are featured in the Breastcancer.org video series on reconstruction after mastectomy.
Listen to the podcast to hear Peggy talk about:
- why she decided to have DIEP flap surgery when her implant ruptured
- how keeping a journal helped her
- how she tries to be a resource for women diagnosed with breast cancer
Running time: 17:43
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Where Are We With Immunotherapy to Treat Breast Cancer? -- Heard in the Halls: Voices from the 2017 San Antonio Breast Cancer Symposium Leisha Emens, M.D., Ph.D.
December 5, 2017
Leisha Emens, associate professor of oncology at Johns Hopkins University School of Medicine and member of the Bloomberg~Kimmel Institute for Cancer Immunotherapy, discusses the state of immunotherapy to treat breast cancer.
Running time: 3:15
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The Metastatic Breast Cancer Alliance: Looking Forward -- Heard in the Halls: Voices from the 2017 San Antonio Breast Cancer Symposium Marc Hurlbert
December 6, 2017
Marc Hurlbert, chairperson of the Metastatic Breast Cancer Alliance (MBCA) and chief mission officer of the Breast Cancer Research Foundation, discusses some research presented in San Antonio by MBCA collaborators.
Running time: 3:00
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Kisqali in Combination with Hormonal Therapy and Ovarian Suppression Effective Treatment for Metastatic Hormone-Receptor-Positive, HER2-Negative Disease in Premenopausal Women: 2017 SABCS Debu Tripathy, M.D.
December 6, 2017
The targeted therapy Kisqali (chemical name: ribociclib) is approved to be used in combination with an aromatase inhibitor to treat advanced-stage or metastatic hormone-receptor-positive, HER2-negative breast cancer that hasn't been treated with hormonal therapy yet in postmenopausal women. Dr. Debu Tripathy, professor of medicine and chairperson of the Department of Breast Medical Oncology at the University of Texas MD Anderson Cancer Center, discusses the results of the MONALEESA-7 study he presented at the 2017 San Antonio Breast Cancer Symposium showing that Kisqali can help treat premenopausal and perimenopausal women diagnosed with the same type of breast cancer.
Listen to the podcast to hear Dr. Tripathy explain:
- why the study is important
- why ovarian suppression helps make the treatments more effective
- the side effects caused by Kisqali
- why he thinks this study will change practice
Running time: 7:25
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The Serenity Project: This Is Metastatic Breast Cancer -- Heard in the Halls: Voices from the 2017 San Antonio Breast Cancer Symposium Kelly Shanahan, M.D.
December 7, 2017
Kelly Shanahan, MD, a former obstetrician/gynecologist, was diagnosed with early-stage breast cancer in 2008 and then diagnosed with metastatic disease in 2013, on her birthday. Here she talks about how empowering it was to participate in the #ThisIsMBC Serenity Project, which gives women and men living with metastatic breast cancer an opportunity to tell their personal stories through a series of unique pictures and inspiring videos.
Running time: 4:01
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Raising Awareness of Inflammatory Breast Cancer -- Heard in the Halls: Voices from the 2017 San Antonio Breast Cancer Symposium Terry Lynn Arnold
December 7, 2017
Terry Lynn Arnold, founder of The IBC Network Foundation who was diagnosed with triple-negative inflammatory breast cancer in 2007, talks about how her organization is raising awareness of and funding research on this rare type of breast cancer.
Running time: 1:48
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Acupuncture Helps Ease Joint Pain Caused by Aromatase Inhibitors Dawn Hershman, M.D.
December 8, 2017
Joint pain is one of the most common side effects of aromatase inhibitors and may be a big reason why women stop taking these medicines early. Dr. Dawn Hershman, leader of the Breast Cancer Program at the Herbert Irving Comprehensive Cancer Center at New York-Presbyterian/Columbia University Medical Center, presented research at the 2017 San Antonio Breast Cancer Symposium showing that acupuncture can ease aromatase inhibitor-caused joint pain, even after the acupuncture treatment sessions stop.
Listen to the podcast to hear Dr. Hershman explain:
- how much acupuncture eases joint pain
- why she believes acupuncture could help many women stick to their hormonal therapy treatment plans
- the cost of acupuncture relative to other treatments
- the few and mild side effects of acupuncture
Running time: 13:26
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Ovarian Suppression Can Help Protect Ovarian Function and May Preserve Fertility in Younger Women Being Treated with Chemotherapy Matteo Lambertini, M.D.
December 8, 2017
Preserving fertility after chemotherapy is an important issue for many, many younger women diagnosed with early-stage breast cancer. Dr. Matteo Lambertini, medical oncologist at the Institute Jules Bordet Brussels, presented research at the 2017 San Antonio Breast Cancer Symposium showing that ovarian suppression with a gonadotropin-releasing hormone analogue such as Lupron, Trelstar, or Zoladex, can safely protect ovarian function and may help preserve fertility in younger women being treated with chemotherapy for early-stage disease.
Listen to the podcast to hear Dr. Lambertini explain:
- why earlier studies on this topic had mixed results
- the results of the study
- the side effects of gonadotropin-releasing hormone analogues
- the strategies he recommends to his younger patients diagnosed with early-stage breast cancer who want to have a child after chemotherapy
Running time: 9:09
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Experimental Talazoparib Seems Better Than Chemotherapy for Metastatic HER2-Negative Disease in Women With a BRCA Mutation Jennifer Litton, M.D.
December 8, 2017
Jennifer Litton, associate professor of breast Medical Oncology at the University of Texas MD Anderson Cancer Center, discusses the results of the EMBRACA study she presented at the 2017 San Antonio Breast Cancer Symposium showing that talazoparib, an experimental targeted therapy medicine, improved the time until the cancer grew in women with a BRCA1 or BRCA2 mutation who had been diagnosed with metastatic HER2-negative breast cancer compared to chemotherapy.
Listen to the podcast to hear Dr. Litton explain:
- how talazoparib works
- whether talazoparib will offer benefits to women with other mutations linked to a higher risk of breast cancer
- how the side effects differed between talazoparib and chemotherapy
- why quality of life was better in women who were treated with talazoparib
Running time: 9:58
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Postmenopausal Women Who Lose Modest Amount of Weight Have Lower Breast Cancer Risk Rowan Chlebowski, M.D., Ph.D.
December 8, 2017
Research has shown that women who are overweight or obese have a higher risk of breast cancer, especially after menopause. Still, research results have been mixed on whether losing weight would decrease a postmenopausal woman's breast cancer risk. Rowan Chlebowski, research professor in the Department of Medical Oncology and Therapeutics Research at City of Hope, discusses an analysis of data from the very large Women's Health Initiative Observational Study that found that overweight or obese postmenopausal women who lost just a modest amount of weight -- as little as 10 or 15 pounds -- had a lower risk of breast cancer.
Listen to the podcast to hear Dr. Chlebowski explain:
- why he wanted to do this study
- why this study was different than earlier studies
- his advice to postmenopausal women
Running time: 7:48
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HER2-Positive Breast Cancer Recurrence
December 15, 2017
Dr. Marleen Meyers is a medical oncologist and clinical assistant professor of medicine at NYU Langone. She also serves as director of the Perlmutter Cancer Center Survivorship Program. She received her medical degree from the NYU School of Medicine and has been in practice for more than 20 years.
Listen to the podcast to hear Dr. Meyers talk about:
- what HER2-positive breast cancer is and how its aggressiveness ranks compared to other types of breast cancer
- factors doctors consider when estimating a person's risk of recurrence
- specific ways to reduce the risk of HER2-positive disease recurrence
- how she helps her patients manage the fear of recurrence
Running time: 17:06
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The Serenity Project
February 26, 2018
Beth Fairchild was diagnosed with de novo metastatic breast cancer in 2014 at age 34. The diagnosis was a surprise to her because her mammogram results from the month before were negative, and she had never had a lump in her breast. Beth was familiar with breast cancer though. Her mother was diagnosed with breast cancer at age 44, and her paternal grandmother died from breast cancer at age 33.
An artist and tattoo professional, Beth and her husband own five tattoo studios. Her focus is on permanent cosmetics, scar camouflage, and areola restoration for people diagnosed with breast cancer. Beth is the current president of METAvivor, a nonprofit organization dedicated to increasing awareness of metastatic breast cancer and funding research on metastatic disease. Beth also is one of the creators of the Serenity Project, a metastatic breast cancer support campaign that gives patients an opportunity to tell their personal metastatic breast cancer stories through a series of photos and videos.
Listen to the podcast to hear Beth talk about:
- what the Serenity Project is
- the inspiration for the Serenity Project and how it became reality
- what the participants have said about the project
- what public reaction has been to the project
Running time: 19:47
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Permanent Cosmetics, Scar Camouflage, and Nipple Tattooing
March 2, 2018Beth Fairchild was diagnosed with de novo metastatic breast cancer in 2014 at age 34. The diagnosis was a surprise to her because her mammogram results from the month before were negative and she had never had a lump in her breast. Beth was familiar with breast cancer though. Her mother was diagnosed with breast cancer at age 44 and her paternal grandmother died from breast cancer at age 33.
An artist and tattoo professional, Beth and her husband own five tattoo studios. Her focus is on permanent cosmetics, scar camouflage and areola restoration for people diagnosed with breast cancer. Beth is the current president of METAvivor, a non-profit organization dedicated to increasing awareness of metastatic breast cancer and funding research on metastatic disease. Beth tattoos permanent cosmetics, such as eyebrows or eyeliner, as well as nipples and areolas for women who have had breast cancer surgery.
Listen to the podcast to hear Beth explain:
- how to find a professional who can do permanent cosmetics
- what scar camouflage is
- how she approaches the nipple tattooing process
- what nipple tattooing and areola restoration has done for her clients
Running time: 22:18
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Benefits and Drawbacks of At-Home Genetic Tests
March 9, 2018
Cristina Nixon is a licensed certified genetic counselor with the Cancer Risk Assessment and Genetics Program at Main Line Health in Pennsylvania. In addition to counseling patients, she also assists with research, including a study looking at multi-gene panels in BRCA1/BRCA2-positive families. Cristina also has completed the City of Hope's intensive course in cancer risk assessment.
In the wake of the March 6, 2018 U.S. Food and Drug Administration authorization of the 23andMe Personal Genomic Service Genetic Health Risk Report for BRCA1/BRCA2 (Selected Variants) test, we talked to Cristina about at-home genetic testing.
Listen to the podcast to hear Cristina explain:
- the differences between an at-home genetic test, such as the 23andMe BRCA genetic test, and a genetic test that is ordered by your doctor, as well as the benefits and drawbacks of each
- how the cost of a genetic test ordered by a doctor isn't much more than the cost of an at-home genetic test
- why genetic counseling is so important when having genetic testing
- what she wants people to know about at-home genetic tests
Running time: 20:00
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Doctor-Patient Communication for People With Metastatic DiseaseMarch 26, 2018
Dr. Timothy Pluard is medical director at the Saint Luke's Cancer Institute and the Koontz Center for Advanced Breast Cancer in Kansas City, Missouri. A medical oncologist, Dr. Pluard specializes in offering comprehensive care, including treatments that use advanced genomics and immunotherapy to women diagnosed with metastatic breast cancer. He also incorporates nutrition planning, spiritual counseling, exercise physiology, massage, yoga, palliative care, and emotional support into patient care. He also advises patients on participating in clinical trials on leading-edge treatments for advanced-stage breast cancer. Many of Dr. Pluard's patients have praised his communication skills.
Listen to the podcast to hear Dr. Pluard discuss:
- how he tailors his communication to each individual patient and that person's unique situation
- how he talks to patients about disappointing news, such as cancer progression or a treatment that stops working
- what makes someone a good communicator
- his tips on how to make doctor-patient communication the best it can be
Running time: 18:47
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Immunotherapy for Breast Cancer: Part 1March 28, 2018
Dr. Sherene Loi is a medical oncologist who specializes in treating breast cancer. In addition to treating patients, particularly patients diagnosed with HER2-positive breast cancer, she also leads the Translation Breast Cancer Genomics and Therapeutics Laboratory at the Peter MacCallum Cancer Centre in Melbourne, Australia, where she is a professor. Much of her clinical research focuses on investigating new treatments, such as immunotherapy, especially for breast cancers that have become resistant to standard treatments.
Listen to the podcast to hear Dr. Loi explain:
- results from the PANACEA trial, which looked at using the immunotherapy medicine Keytruda (chemical name: pembrolizumab) along with Herceptin to treat Herceptin-resistant, HER2-positive, advanced-stage breast cancer that had high levels of PDL-1, a biomarker that indicates that Keytruda will be effective
- how an immunotherapy medicine like Keytruda works
- what tumor-infiltrating lymphocytes (TILs) are and why cancer tumors with high numbers of TILs seem to respond better to immunotherapy
- side effects of immunotherapy medicines
Running time: 17:52
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Managing Breast Cancer Surgery Side Effects April 5, 2018
Dr. Alexander Miller is a surgical oncologist who specializes in treating breast cancer and people at high risk of the disease. Currently at the START Center for Cancer Care in San Antonio, Texas, he trained at MD Anderson and the Mayo Clinic. Dr. Miller has received awards for excellence in research, education, and patient care. He has been lead or collaborating researcher for several studies on breast cancer treatments, prevention, genetic testing, and the psychosocial experiences of people receiving cancer care.
Listen to the podcast to hear Dr. Miller explain:
- the most common side effects of both mastectomy and lumpectomy and how to manage them
- why the risk of lymphedema, while still a concern, has gone down in the last 10 years
- steps people can take before surgery to reduce the risk of side effects
Running time: 31:480 -
April 15, 2018
Artist Kathryn Stella, vice president of The Bodice Project, discusses how the sculptural exhibit promotes inner healing among women and men who have been diagnosed with breast cancer.
Running time: 3:44
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Evolving Mutations in Metastatic Breast Cancer
April 16, 2018
Dr. Utthara Nayar is a research fellow in medicine at the Dana-Farber Cancer Institute, the Harvard medical School, and the Broad Institute of MIT and Harvard. A cancer biologist, her broad research focuses on the interface of basic biology, targeted medicines, and drug resistance. At the 2018 American Association for Cancer Research Annual Meeting, she's presented research looking at how acquired HER2 mutations can make some metastatic hormone-receptor-positive breast cancers resistant to hormonal therapy.
Listen to the podcast to hear Dr. Nayar explain:
- the number of metastatic hormone-receptor-positive breast cancers that become resistant to hormonal therapy
- what whole-exome sequencing is and why she and her colleagues used it in this study
- the possibility that genetic sequencing of cancers could be an ongoing part of treatment at some point in the future
Running time: 15:08
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Advances in Breast Cancer Treatment
April 16, 2018
Dr. C. Kent Osborne is director of the Dan L Duncan Comprehensive Cancer Center at Baylor College of Medicine, where his is also a professor and the Dudley and Tina Sharp Chair for Cancer Research. Since 1992, he has been a codirector of the San Antonio Breast Cancer Symposium, the world's largest conference focusing entirely on breast cancer. His own research focuses on improving the effectiveness of hormonal therapy medicines and targeted therapies that treat HER2-positive disease. At the 2018 American Association for Cancer Annual Meeting, Dr. Osborne was honored with the 2018 AACR Distinguished Award for Extraordinary Scientific Achievement and Leadership in Breast Cancer Research, in part for his stewardship of the San Antonio Symposium.
Listen to the podcast to hear Dr. Osborne discuss:
- how our understanding of breast cancer has changed since the 1970s
- the most promising areas of breast cancer research going on right now
- the feasibility of a cure for breast cancer
Running time: 12:06
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Desirée Walker, who calls herself a two-time breast cancer "victor," talks about her poster on the importance of involving patients in breast cancer research projects.
Running time: 5:23
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