Breastcancer.org Podcasts: Experts discuss research & issues
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Shades of Brown Foundation -- Heard in the Halls: Voices From the 2018 American Association for Cancer Research Annual Meeting
April 17, 2018
Sheila McGlown, who was diagnosed with metastatic breast cancer 5 years after her mother died of the disease, talks about her work with the Shades of Brown Foundation to advocate for, educate, and support African American women diagnosed with breast cancer.
Running time: 3:02
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Meeting Highlights -- Heard in the Halls: Voices From the 2018 American Association for Cancer Research Annual Meeting
April 17, 2018
Dr. Levi Garraway, senior vice president of oncology development and medical affairs at Eli Lilly and Company, discusses some of the research highlights at the 2018 AACR Annual Meeting, particularly those in breast cancer.
Running time: 3:06
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Diarrhea -- Breast Cancer Treatment Side Effects
May 18, 2018
Dr. Brian Wojciechowski, Breastcancer.org's medical adviser, specializes in the care of patients with cancer. He practices medical oncology in Delaware County, Pennsylvania at Riddle, Taylor, and Crozer Hospitals. His research has been presented at the San Antonio Breast Cancer Symposium, the world's largest scientific meeting on breast cancer.
Listen to the podcast to hear Dr. Wojciechowski explain:
- the breast cancer treatments that may cause diarrhea
- why some people may be more prone to experiencing diarrhea
- treatments for diarrhea
- why it's important to always report diarrhea to your doctor
Running time: 12:27
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Revision Reconstruction: What You Need to Know
June 11, 2018
Dr. Frank DellaCroce, or "Dr. D" as he has come to be known, is a founding partner of the Center for Restorative Breast Surgery and St. Charles Surgical Hospital in New Orleans. Board-certified in plastic surgery, Dr. D has performed thousands of reconstructive procedures, both for women diagnosed with breast cancer and women at high risk of the disease who choose to have prophylactic breast removal. He is a Fellow of the American College of Surgeons and a member of numerous professional societies, including the American Society of Plastic and Reconstructive Surgery, the American Society for Reconstructive Microsurgery, and the World Society for Reconstructive Microsurgery. He also has been named one of the "Best Doctors in America."
Listen to the podcast to hear Dr. D discuss:
- why a woman might consider revision reconstruction
- the results of revision reconstruction: what to expect, as well as recovery and side effects
- questions to ask a plastic surgeon if you're considering revision reconstruction
Running time: 20:22
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Clinical Trials Part 2: How Are the Results Used?Dawn Hershman, M.D., M.S. April 11, 2018
Dr. Dawn Hershman is professor of medicine and epidemiology at Columbia University. She also serves as leader of the Breast Cancer Program at the Herbert Irving Comprehensive Cancer Center at Columbia and is nationally recognized for her expertise in breast cancer treatment, prevention, and survivorship. A member of the Breastcancer.org Professional Advisory Board, Dr. Hershman also has conducted extensive research on breast cancer treatment and quality of life -- she has published more than 250 scientific papers and has received the Advanced Clinical Research Award in Breast Cancer from the American Society of Clinical Oncology and the Advanced Medical Achievement Award from the Avon Foundation. Dr. Hershman is also on the editorial board of the Journal of Clinical Oncology and is an associate editor at the Journal of the National Cancer Institute.
Listen to the podcast to hear Dr. Hershman explain:
- how clinical trial results are used
- how clinical trial results have changed the standard of care
- why factors such as diet or exercise for reducing breast cancer risk are difficult to study in clinical trials
- why some trials are stopped early because of good or not-so-good results
Running time: 29:12
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Advocating as a Man With Metastatic Breast Cancer July 6, 2018
Michael Kovarik is a retired elementary school teacher who is living with metastatic breast cancer. He is the author of "Healing Within: My Journey with Breast Cancer" and the former host of the Healing Journeys with Michael Kovarik radio show. He was also one of the people profiled in Breast Cancer: A Story Half Told, a campaign to increase public awareness of metastatic breast cancer. Since his metastatic diagnosis, Michael participates in a number of advocacy organizations, including the Male Breast Cancer Coalition, the MBC Alliance, and METAvivor.
Listen to the podcast to hear Michael talk about:
- the importance of the doctor-patient relationship
- the importance of a support system
- deciding not to let fear run his life
- becoming an advocate and sharing his story
- how being stage IV has helped him live his truth
Running time: 1:01:12
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Neuropathy: Causes and Treatments
August 8, 2018
Michael Stubblefield, M.D. is medical director of cancer rehabilitation at the Kessler Institute for Rehabilitation in New Jersey and the national medical director for Select Medical's ReVital Cancer Rehabilitation program. He is known around the world for his expertise in the identification, evaluation, and rehabilitation of pain and functional disorders caused by cancer and cancer treatments, particularly problems caused by radiation and chemotherapy. Dr. Stubblefield is an accomplished researcher and has published extensively on medical rehabilitation, oncology, pain management, palliative care, and neurophysiology.
Listen to the podcast to hear Dr. Stubblefield explain:
- what neuropathy is, how it happens, and the treatments that can cause it
- how to explain neuropathy to friends and family
- risk factors for neuropathy
- treatments for neuropathy
- the three things that anyone diagnosed with neuropathy should know
Running time: 31:32
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Post-Mastectomy Pain Syndrome: What It Is and How It's Treated October 5, 2018
Michael Stubblefield, M.D. is medical director of cancer rehabilitation at the Kessler Institute for Rehabilitation in New Jersey and the national medical director for Select Medical's ReVital Cancer Rehabilitation program. He is known around the world for his expertise in the identification, evaluation, and rehabilitation of pain and functional disorders caused by cancer and cancer treatments, particularly problems caused by radiation and chemotherapy. Dr. Stubblefield is an accomplished researcher and has published extensively on medical rehabilitation, oncology, pain management, palliative care, and neurophysiology.
Listen to the podcast to hear Dr. Stubblefield explain:
- the definition of post-mastectomy pain syndrome and the different ways it affects people
- how surgeries and radiation can cause this pain syndrome
- treatments for post-mastectomy pain syndrome
- the three things that anyone experiencing post-mastectomy pain syndrome should know
Running time: 29:38
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Survivorship Care Plans, October 9, 2018
An adult nurse practitioner, Dori Klemanski, DNP, CNP is clinical director of survivorship at the Ohio State University Comprehensive Cancer Center-James Cancer Hospital and Solove Research Institute. In this role she helps identify the unmet needs of cancer survivors, as well as late- and long-term effects of treatment. She also oversees the creation of survivorship care plans to meet the long-term needs of survivors.
Listen to the podcast to hear Klemanski explain:
- what a survivorship care plan is and the information included in one
- why it's so important that a survivorship care plan be personalized
- who creates a survivorship care plan
- how to get a survivorship care plan if you don't have one
Running time: 26:10
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Flat: How One Woman Reclaimed Her Body From Breast Cancer, October 18, 2018
Catherine Guthrie is a women's health journalist with two decades of experience in the magazine and publishing industry. She has written for Cosmopolitan; O, The Oprah Magazine; Slate; Time; and Better Homes and Gardens, among others.
In 2009, at age 38, Catherine was diagnosed with breast cancer. Although the cancer was only in one breast, she opted for a double mastectomy and chose not to reconstruct. She was diagnosed with breast cancer a second time a year later in 2010. During her treatment, she searched for a memoir where the narrator grappled with the reality of the disease, where she unpacked questions about reconstruction, and challenged the tacit assumptions about what women want or need to feel whole after cancer. She couldn't find a book that filled that niche, so she wrote one. Catherine's queer, feminist memoir, FLAT: Reclaiming My Body From Breast Cancer, was published in September 2018.
Listen to the podcast to hear Catherine discuss:
- "the male gaze" and how it informs breast reconstruction, even if the surgeon is a woman
- how her queerness affected her experience with breast cancer
- how her experience with breast cancer has changed how she reports on the disease
- her advice to women on things they can do to help ensure that their choices about reconstruction — or not — are respected by surgeons
Running time: 33:34
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Caring for Men Who Are Cancer Caregivers, October 31, 2018
Kyle Woody is cofounder and executive director of Jack's Caregiver Coalition, a community of men who are cancer caregivers. Kyle believes that one of the biggest and most important challenges a man can face in his lifetime is engaging as a caregiver for a loved one with a serious disease such as cancer. Kyle believes that every man has the potential to rise to that challenge and be his boldest and most confident self. Reflecting on his experience as a primary caregiver for his spouse with metastatic colon cancer, he realized the principles of excellence and sound teamwork that he preached in his professional career should have been applied at home in his caregiving experience, which is why he helped found Jack's in 2014 to improve the way men think, feel, and act in their role as cancer caregivers.
Listen to the podcast to hear Kyle talk about:
- how Jack's was founded
- some of the programs Jack's offers to help men who are caregivers
- some things that he'd like men who are cancer caregivers to know
- why caregiving is akin to a team sport
Running time: 37:31
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Holiday Eating: Tips to Eat Healthy and Feel Good, November 13, 2018
Kelly Hogan received her undergraduate degree in journalism from Northeastern University and her nutrition education, training, and master's degree in clinical nutrition from New York University. As the nutrition and wellness manager at the Dubin Breast Center at Mount Sinai Hospital in New York City, Kelly incorporates a holistic approach, focusing not only on nutrition, but overall wellness including physical activity, stress management, and sleep. Before the Dubin Breast Center, Kelly worked with the general surgery and oncology inpatient populations at Mount Sinai.
Listen to the podcast to hear Kelly discuss:
- how people who want to eat healthy can have fun and not feel left out or hungry
- why the holidays are a great time for creative mocktails
- how some traditional holiday dishes can be modified to be a bit healthier
- what she's making for her Thanksgiving dinner
Running time: 14:34
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2018 SABCS Preview -- Heard in the Halls: Voices From the 2018 San Antonio Breast Cancer Symposium
December 4, 2018
Dr. Maura Dickler, vice president of late phase development for Lilly Oncology, discusses some of the research presentations she is looking forward to hearing at the 2018 San Antonio Breast Cancer Symposium.
Running time: 6:40
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Verzenio Side Effects: What Patients Are Reporting
December 4, 2018
Matthew Goetz, M.D., professor of oncology at the Mayo Clinic where he is also co-leader of the Women's Cancer Program and chair of the Breast Cancer Disease-Oriented Group, discusses the research he presented at the 2018 San Antonio Breast Cancer Symposium on patient-reported outcomes from women being treated with Verzenio (chemical name: abemaciclib) plus an aromatase inhibitor as the first treatment for advanced-stage, hormone-receptor-positive, HER2-negative breast cancer.
Listen to the podcast to hear Dr. Goetz talk about:
- what patient-reported outcomes are and why they're important for both doctors and patients
- the Verzenio side effects reported in the study
- how diarrhea caused by Verzenio can be proactively managed so a woman doesn't have to plan her life around a side effect
Running time: 9:31
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December 5, 2018
Christine Benjamin, breast cancer program director for SHARE Cancer Support and vice chair of the Metastatic Breast Cancer Alliance, explains some of the new programs each organization will roll out in 2019.
Running time: 2:55
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December 5, 2018
Shirley Mertz, president of the Metastatic Breast Cancer Network and chair of the Metastatic Breast Cancer Alliance, has been living with metastatic disease for 15 years. She talks about the increasing body of research on metastatic breast cancer at the San Antonio Breast Cancer Symposium.
Running time: 2:47
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December 5, 2018
Kelly Owens, director of education and research for FORCE, explains the organization's XRAYS (eXamining the Relevance of Articles for Young Survivors) program.
Running time: 3:44
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The Elements Project -- Heard in the Halls: Voices From the 2018 San Antonio Breast Cancer Symposium
December 5, 2018
Beth Fairchild, president of METAvivor, talks about the This Is MBC Elements Project.
Running time: 56 seconds
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December 5, 2018
Bret Miller found a lump in his right breast when he was 17 and was finally diagnosed with breast cancer at age 24. His journey led him to found the Bret Miller 1T Foundation and the Male Breast Cancer Coalition.
Running time: 12:03
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Caregiving for a Person With Metastatic Breast Cancer
December 6, 2018
Tim Watkins is the owner of the Watkins Garden Center and also is the partner of Michael Kovarik, a man with metastatic breast cancer. Tim and Michael became a couple after Michael had been diagnosed with breast cancer, but before he had been diagnosed with metastatic disease.
Listen to the podcast to hear Tim talk about:
- what it's like to date someone with breast cancer
- how Tim's role as caregiver changed when Michael was diagnosed with metastatic disease
- the advice he would offer to people who are cancer caregivers
Running time: 15:07
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Oxybutynin to Ease Hot Flashes
December 7, 2018
Roberto Leon-Ferre, M.D., breast oncologist at the Mayo Clinic, discusses the research he presented at the 2018 San Antonio Breast Cancer Symposium evaluating the effectiveness of oxybutynin, a medicine commonly used to treated bladder incontinence, to treat hot flashes in women who can't take hormone replacement therapy, which includes most women treated for breast cancer.
Listen to the podcast to hear Dr. Leon-Ferre explain:
- the design of the study
- why he thought oxybutynin might be able to ease hot flashes
- possible side effects of long-term use of oxybutynin and why the medicine may still be useful for women who have been treated for breast cancer
Running time: 9:53
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Surgery Choice Seems to Affect Quality of Life for Younger Women
December 7, 2018
Dr. Laura Dominici, surgeon at the Dana-Farber/Brigham and Women's Cancer Center, assistant professor of surgery at Harvard Medical School, and division chief of breast surgery at Brigham and Women's Faulkner Hospital, discusses the research she presented at the 2018 San Antonio Breast Cancer Symposium looking at how the type of breast cancer surgery affected quality of life in women 40 and younger who had been diagnosed with breast cancer.
Listen to the podcast to hear Dr. Dominici explain:
- the design of the study
- what we can and can't infer from the results
- why she hopes these results will lead to better communication between doctors and patients
Running time: 10:13
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Longer Time to Chemotherapy Linked to Worse Outcomes in Triple-Negative Disease
December 7, 2018
Dr. Zaida Morante, medical oncologist at Instituto Nacional de Enfermedades Neoplásicas in Lima, Peru, explains her research that found delaying chemotherapy for more than 30 days was associated with worse outcomes in women diagnosed with early-stage, triple-negative breast cancer. Triple-negative breast cancer is breast cancer that is estrogen-receptor-negative, progesterone-receptor-negative, and HER2-negative.
Listen to the podcast to hear Dr. Morante explain:
- the design of the study
- which outcomes delaying chemotherapy affected
- possible explanations for why chemotherapy was delayed for some women
Running time: 7:07
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Post-Traumatic Stress Disorder After a Cancer Diagnosis
December 19, 2018
For nearly 25 years, Kelly Grosklags has dedicated her practice to minimizing suffering through her work in oncology, palliative care and hospice. An experienced therapist, Kelly is a licensed clinical social worker and a board-certified diplomat in clinical social work. She also earned a fellowship in grief counseling from the American Academy of Health Care Professionals and is the author of A Comforted Heart: An Oncology Psychotherapist Perspective on Finding Meaning and Hope During Illness and Loss. Kelly speaks frequently about end-of-life issues, including care, grief and loss, both in person and on her website, Conversations With Kelly. Her passionate and supportive demeanor helps patients, caregivers and health professionals connect with the wisdom of making life more meaningful, coping with depression and anxiety, transforming fear into hope, healing versus curing, and the wisdom of dying a good death.
Listen to the podcast to hear Kelly talk about:
- what PTSD is, what causes it, and some of the most common symptoms of PTSD in people diagnosed with cancer
- why people who've experienced trauma in the past may want to be proactive and schedule an appointment with a mental health professional or spiritual guide shortly after being diagnosed
- when PTSD can happen
- how PTSD is treated
- three things people diagnosed with breast cancer should know about PTSD
For more information on PTSD in people diagnosed with cancer, you can read a piece Kelly wrote for the journal Oncology Issues.
Running time: 38:18
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Fashion Statements With Beth Fairchild: Metastatic Breast Cancer on the AnaOno Runway
February 10, 2019
Beth Fairchild talks about what it's like to walk in the AnaOno Fashion Week runway show and what it means for people with metastatic disease.
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Fashion Statements With Barbara Bigelow: Metastatic Breast Cancer on the AnaOno Runway
February 10, 2019
Barbara Bigelow talks about her experience with metastatic breast cancer and what walking in the AnaOno fashion show means for her.
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Fashion Statements With Terlisa Sheppard: Metastatic Breast Cancer on the AnaOno Runway
February 10, 2019
Terlisa Sheppard talks about what it's like to walk in the AnaOno Fashion Week show and what it means for people with metastatic disease.
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Fashion Statements With Emily Garnett: Metastatic Breast Cancer on the AnaOno Runway
February 10, 2019
Emily Garnett talks about what it's like to walk in the AnaOno fashion show and what it means for people with metastatic disease.
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Fashion Statements With Monica Hill: Metastatic Breast Cancer on the AnaOno Runway
February 10, 2019
Monica Hill talks about what it's like to walk in the AnaOno Fashion Week show and what it means for people with metastatic disease
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Fashion Statements With Maggie Kudirka: Metastatic Breast Cancer on the AnaOno Runway
February 10, 2019
Maggie Kudirka talks about what it's like to walk in the AnaOno Fashion Week show and what it means for people with metastatic disease
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