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Anyone here with another primary cancer diagnosis??

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  • maggie2
    maggie2 Member Posts: 240
    edited March 2018
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    Yes, I had the surgery last week and it went as planned.  The surgeon was able to do it robotically and save most of the kidneySmile.  The path report takes 7-10 days so I haven't had the results yet. I've taken a break from breast cancer stuff this week to focus on shuffling around the house and recovering from the kidney surgery...one step at a time has definitely become my mantra, both literally and figuratively!  

  • 2FUN
    2FUN Member Posts: 789
    edited March 2018
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    maggie2, I'm glad u r up as nd shuffling around. Sounds Like THE Surgery was successful !Remember To Follow All Your Restrictions! !!

  • lekker
    lekker Member Posts: 238
    edited March 2018
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    Just let us know when you have a chance. We are thinking of you!

  • robinblessed54
    robinblessed54 Member Posts: 485
    edited March 2018
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    Hello all, Before BC I had 6 basil cell skin cancers removed, two by Moh’s. I also have Hashimotos. Now diagnosed with MGUS, the precursor to Multiple Myeloma. There is a connection between these. Just not sure what. Happy to know you all. Oh, btw I had 7 precancerous polyps removed from folon in November.

    Robin


  • lekker
    lekker Member Posts: 238
    edited March 2018
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    Hi Robin,

    Sorry you have to be here. Have you had any genetic testing?

  • maggie2
    maggie2 Member Posts: 240
    edited March 2018
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    Hi All, I just met with the kidney surgeon for post-op. The path report was as good as we could hope, knowing it was kidney cancer. It’s T1a, grade 2, with clear margins. The usual monitoring is a baseline chest X-ray and CT scan, then annually for three years. If all good, then they drop the CT and just do annual chest X-rays after that.

    He had asked if I’ve had genetic testing, given both the breast and kidney cancers. I meet with the MO tomorrow so I will definitely ask about this

  • lekker
    lekker Member Posts: 238
    edited March 2018
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    Maggie - glad it wasn’t worse! That sounds terrible but you know what I mean.

  • maggie2
    maggie2 Member Posts: 240
    edited March 2018
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    lekker, yes I know exactly what you mean.  It is amazing how one's perspective on medical diagnoses changes after a cancer diagnosis.

  • 2FUN
    2FUN Member Posts: 789
    edited March 2018
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    Maggie, that does sound like goid news!


  • robinblessed54
    robinblessed54 Member Posts: 485
    edited March 2018
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    no genetic testing. I would like to have some genetic counseling. Maybe I can ask my oncologist. Thanks for the suggestion.

    Robin


  • lekker
    lekker Member Posts: 238
    edited March 2018
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    Robin - asking for a referral to a licensed genetic counselor is probably a great move. It is shocking how little many MOs know about genetic testing. Of course they understand the science behind it, but a good LGC can also explain the possible emotional, insurance, and family issues that can come up after testing. The LGC will ask a lot of questions about your family and personal health history to determine which tests might be best for you. Most MOs just order BRCA or one of the multi-gene panels without really understanding all of the issues. Good luck!

  • maggie2
    maggie2 Member Posts: 240
    edited March 2018
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    I asked my MO today about ordering genetic testing and was a bit annoyed when he said he’d refer me to the genetic counseling. I was thinking, “Great, here we go again with more waiting for new patient appt, testing, and waiting for results”. I’m now glad this is how MO handles it. Thanks for the details, Lekker.

    2FUN, yes the path report was good news. Now it’s back to focusing on the breast cancer

  • julz4
    julz4 Member Posts: 1,373
    edited March 2018
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    Hello ALL!

    It’s been many years since I’ve been on here (BCO). I was DX with Thyroid Cancer about 6 weeks ago, had total Thyroidectomy with Parathyroidectomy 4 days after, & just got out of Radiation I-131 quarantine yesterday. I can’t believe I have another cancer. Really blindsided.

    Anyone else feel this way??? Do you wonder when the next shoe is gonna drop? I don’t know how to feel.....Lucky that I caught it early.....But ticked that it hit me again....

  • lekker
    lekker Member Posts: 238
    edited March 2018
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    Sorry to have to welcome you here, julz. Yes, I feel that “waiting for the other shoe to drop” feeling too. Have you received genetic counseling? It might be something to consider if you haven’t already

  • julz4
    julz4 Member Posts: 1,373
    edited March 2018
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    Hi lekker,

    I have a BRCA 2 variant. I was tested at my BC DX. Then a few years later they tested me for a few other genes. But they all came back negative. My Variant seems to not cause cancer. But I was the 34th in the world with that variant when I was DX. My maternal grandmother’s sister had BC twice & died of BC. Her daughter had BC survived about 35 years & died of brain cancer. But not related to the BC. My mother’s brother had prostate ca & is still living. There are a few basal cell cancers on my moms side. My niece has a very slow growing brain cancer & is still alive after 23 years. So that’s all I know for now. The type of Tyroid CA is not the genetic kind. So they will not test.

    Thanks lekker

  • ThreeC
    ThreeC Member Posts: 70
    edited April 2018
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    I'm finding this thread interesting. I was born in 1952 while my father was stationed at an Airforce Base in Ohio. I was born eight weeks early, my mother had complications of pregnancy and passed away. All my life I have had health issues. I had a stroke as a child, Have been diagnosed with Polycystic Ovarian Syndrome, Hashimotos Thyroiditis, Basal Cell and Sqamous Cell Skin cancers as well as Papillary Thy-ca and Breast Cancer. Several years ago I found a study through the NIH that had a site where you could input where you lived during the 1950s, what type of milk products you drank (goats milk vs cows milk) over a period of years,and it gave a prediction of whether being exposed to fallout from the nuclear tests conducted in the mid-west contributed to your Thyroid Cancer. If I remember right, there was a 78% chance mine was caused by exposure. I sometimes wonder if that exposure was the root cause of my various cancers. I haven't had any genetic testing, but may look into it.

  • talbrig13
    talbrig13 Member Posts: 358
    edited July 2018
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    Just diagnosed with Thyroid cancer and at least one lymph node involved. See a surgeon on Friday with another ultrasound that day. I will need a total thyroidectomy with neck dissection and Radioactive Iodine. I am worried about the lymph node and the small chance it could be a breast cancer met. It's been 11 1/2 years since my chemo and radiation. Strangely, I feel rather calm right now...worrying about staffing at work and not really wanting anyone to "help" me and hover over me.

    Has anyone had breast cancer metastize to the neck lymph nodes?

  • 2FUN
    2FUN Member Posts: 789
    edited July 2018
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    talbrig13, my thyroid was benign so I can't help u there. From what I researched, the treatment is not horrible. Could they tell from the biopsy if is another primary CA, or a met? I would think the cell type would tell them. Hang in there and let us know how u r doing! My endocrinologist says BC, uterine CA (my other CA), bladder. Kidney and thyroid all travel together, but they still don't have a genetic test for them. (((((Hugs))))))

  • talbrig13
    talbrig13 Member Posts: 358
    edited August 2018
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    2Fun....the surgeon did a more detailed ultrasound. I have papillary thyroid cancer. there are several lymph nodes involved. She says it is not thyroid cancer on the original biopsy. Of course, we will know more after the full surgery and pathology comes back. My left neck and behind the collarbone have lymph nodes involved. Surgery is scheduled for Sept 17....more to come!

  • 2FUN
    2FUN Member Posts: 789
    edited August 2018
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    good luck with the surgery. I had to wait for the real pathology results. The waiting is hard sometimes. Sending prayers and hugs!

  • Lula73
    Lula73 Member Posts: 705
    edited August 2018
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    I didn't have breast cancer Mets to thyroid, but I did have radiation I diced thyroid cancer from rads done 17 years prior. Hoping that's what it in your case! Much easier to treat. Ask about aftercare immediately after after the iodine rad treatment. My girlfriend had it a number of years ago and was told no one could be anywhere near her for a solid week as she was radioactive. It's really tough if you're sick after, so play it safe and have a plan B.goid luck with everything!🍀

  • robinblessed54
    robinblessed54 Member Posts: 485
    edited August 2018
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    lekker, I know it has been a while but finally asked for genetic counseling. I go on 9/11. At least I can ask a lot of questions and find out if they recommend testing.

    I don’t have a lot of cancer information of history of my family past my parentsand aunts/uncles. Did you see the study on basil cell skin cancer, 6 or more, having a greater occurance of breast, colon, and blood cancers? I have had 6 bcc removed from age 45-55. Had bc dx at age 60. Have had 7 pre-cancerous polyps removed from colon. And now have MGUS the pre-curser to multiple myeloma.

    Any suggestions on what to ask?

    Thanks

    Robin


  • lekker
    lekker Member Posts: 238
    edited August 2018
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    Robin - a good genetic counselor will ask you very detailed questions about your own medical history as well as that of your family. The more information you can give, the better. I’ve heard of a hereditary Basal Cell cancer syndrome but I don’t know much about it. Just google that and get a little information going in if you can. If not, the GC should be able to tell if you fit the pattern of the syndrome enough to test for it. Let us know how’s it goes. Good luck

  • 2FUN
    2FUN Member Posts: 789
    edited August 2018
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    the genetic counseling is really limited to what u know about family members and their health. Both of my grandfather's died when my parent were less than 5 yrs old, so I know the medical history of the men I knew as grandpa, but I am not blood related. My dad is clueless/won't share medical info, and my.mom passed many years ago, so I had a limited amount of knowledge. Before you go to counseling I would try to ask any remaining family, aunts,uncles, cousins what they know, so you may get a better picture of what's going on.

  • alicebastable
    alicebastable Member Posts: 1,945
    edited August 2018
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    Hello! The chest CT scan I had a few days before my lumpectomy found something on a kidney, so I had an abdominal CT a few weeks later. It's a kidney cancer, almost 6 cm. Lovely. So, I had a re-excision to get clean margins earlier this month, then I'll have a total L nephrectomy in September, and rads for the BC when I'm healed enough to stretch out without screaming. At least I don't need chemo for the BC, which would make the timing really complicated.

    I had endometrial cancer in 2008, and several basal cell carcinomas in the last ten years, mostly small and insignificant, except for one big messy one on my cheek that left me with a long, but barely visible, Mohs scar. I need a new hobby! Maybe it's time to start collecting something besides annoying cancers.


  • InnaB2018
    InnaB2018 Member Posts: 766
    edited August 2018
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    Hi, ladies. I was diagnosed with melanoma in situ in January of this year. Had an excision and was told to forget about it. But I decided to do a thorough check up with different specialists and that’s when BC was found... Undergoing chemo now for BC.

  • maggie2
    maggie2 Member Posts: 240
    edited August 2018
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    Alice, I'm sorry to hear that you've had to join this group.  It can be overwhelming to have the breast cancer treatment plan all mapped out and then be hit with another shock.  I too had kidney cancer discovered due to a CT scan for the breast cancer.  I had intended to have DIEP reconstruction during the January BMX surgery. The plastic surgeon ordered a CT of the abdomen as part of his pre-surgical protocol. The doctors all determined that the mastectomy should be first.  After 6 weeks recovery, I had a partial right nephrectomy. After another 6 weeks recovery, I started chemo.  I actually just had the exchange to implant surgery last week. 

    Each and every one of my doctors told me how lucky I was to have the kidney cancer discovered.  I'm sure your docs have told you the same thing.  At the time, it sure didn't feel like being "lucky", though.  Just take it one step at a time during your entire treatment plan.  Eventually, the end of surgeries and treatments will be in sight!  

  • maggie2
    maggie2 Member Posts: 240
    edited August 2018
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    InnaB, thank heaven you followed your instincts and switched doctors and insisted on a full checkup.  I know we're both on the April Chemo group and you haven't had the easiest time with all the  side effects. Hope your last few treatments go easier for you. 

  • 2FUN
    2FUN Member Posts: 789
    edited August 2018
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    Maggie. Can I ask what your kidney cancer looked like? I had a kidney cyst discovered when I had a scan for my endometrial cancer surgery just weeks after lumpectomy. They say it's begnign. Had cystoscopy. Still good. Really does make one wonder what I was exposed to that facilitated all this cancer

  • alicebastable
    alicebastable Member Posts: 1,945
    edited August 2018
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    Maggie, apparently most kidney cancers are found when testing for something else. So I guess "thank you breast cancer"? That just seems such a bizarre thing to think!