Liver mets: resection, ablation, SBRT, Y-90, anything else?
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Thank you Z and Kar for the nice words, I appreciate it. I know in the whole scheme of things it could be much worse, so thank you for the positivethoughts and indulging my anxiety!
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Wanted to share some amazing news. I had my scans Wednesday AM and found out on Thursday that my liver had a 100% response to the Y90! My liver is now cancer free!!!!
I just wish I wasn’t so fatigued all the time but it really is amazing. I’ll be scanned every 3 months as part of my follow up
Wishing everyone gets similar results!
Babs
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Yay Babs! That's fantastic news!
~Kar
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Oh Babs that is wonderful news!!!! Happy dance on a table!!!! So happy for you. You brought tears of joyto my eyes.
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Babs couldn't be happier for you. Y90 is da bomb!
I had my one year scan yesterday. I hope my results are still good. Waiting till Tuesday to find out.
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I don't write much, but do check in often and your news is awesome babs! Celebrating with you!
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Go Babs!
>Z<
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Babs, your news brought tears to my eyes. Wonderful, wonderful news!!! Amazing that the liver buggersare not only inactive but gone. How much liver involvement did you have prior to Y90?
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Babs, thats amazing! Congrats! So happy for you!!!!
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Babs, I am excited that your response to the Y-90 procedure was so dramatic. WOOHOO! I see that Cathy is up on a table doing the happy dance. That shows you how wonderful your news is to us. I would join her up there, but I would probably fall off or break the table, so I am dancing on the floor. I hope they find something soon to relieve the fatigue. In the meantime , get some rest. You have been amazing during the past several months, Babs. Not many of us would have been able to work, travel, take care of a grandchild, and continue treatment as you have done. Thank you for sharing the good news.
Hugs and prayers from, Lynne
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Babs, Congratulations!! So happy for you!
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Babs-what wonderful news! Right behind you; having right lobe done Tuesday. And they said that Y90 wasn't commonly used for MBC.....
Best to all-MJH
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MJH. Well, you can tell them that it is commonly used on MBC on BCO. Lots of us are benefiting. Ha
I will find out results of my PET tomorrow. It's been one year since my last y90. Praying for no uptake. I am concerned that I have progression in lungs and chest. I think I've had more scanxiety for this PET than any other. No sleep for 2 nights, etc. I am taking my science friend with me this time because I'm having communication and trust issues with my MO. It's an important visit even without getting results.
It's hard to be me today. Ugh
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Grannax - Consider me with you on your appointment in spirit, but I am glad you have a friend coming with you in person. You have more than enough strength to deal with whatever comes. All that said, it is hard. We all know how hard it is. No way through it but to get through it ... Hugs ... I am expecting great results.
>Z<
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Grannax, good luck on your upcoming scan! Sounds like bringing someone will be a good idea. Writing down any questions you have beforehand can be helpful to ensure they are all asked and answered. Your bring can be in charge of that list of need be.
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Grannax we’re all there with you on this appointment. So glad you’re also bringing your friend
🙏for you
Babs
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Babs- great news on your scans! I hope your fatigue gets better. I also had a hard time with fatigue after my Y90.
Grannax-I will be thinking of you tomorrow. Praying for great news and I am glad you are taking someone with you.
I just got the results of my 6 month scan back last week. My liver is still all clear!
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Go Baby Ruth!!!!!!
Thanks for sharing the wonderful news.
>Z<
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Congrats on the clear liver scan, BabyRuth! How long did your Y90 fatigue last?
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Ladies I felt you there with me at my appointment yesterday. In one word PET was Stable. I'm not doing the happy dance yet, because there is so much I'm still trying to process about my very long, very bold conversation with my MO. My friend and I were able to put everything out there. Everything, meaning the elephant in the room. The trust issues, the second line treatment issues, the misinformation issues, communication issues, the am I going to stay with her issues, her opinion about patients reading their reports issues. Not all are resolved.
I do know that I am going to stay on Ibrance/Femara
I do know that she is not planning to use AA on me at progression. She's going to use Abema??clib, info from Foundation One report. Evidently, when she told me AA she wasn't looking at my F1 report, she got me mixed up with a different patient. All of the drama for four months could have been avoided. Grrr
I do know that she believes in my case Ibrance is the key player keeping me from progressing.But, she still intends to use an aromtace inhibitor at progression, along with the other one. She will go with what combinations she thinks my ins co will pay for.. combos approved by FDA.
I do know that she thinks F1 reports are not written for the lay person. It only causes stress and anxiety for her patients, she said. Her words. She stated the same opinion about patients reading their own pathology reports. So, that explains why she didn't answer my questions about F1. She's a young doctor and I liked her until I sensed this attitude. I thought only old doctors had this opinion?!?! Grrr
I do know that there is one tumor in my chest, in a lymph node that had more uptake this time. It correlates to the area of pain I've been having, that I told her about six weeks ago. She did not even bring the correlation up in our visit. After I read the report, after I left her office.I put it together. I have put in a call about that. ( Oh no, another I read my own report question)!!! Sarcasm is rolling out of my mouth today. Grrr
Yes, I'm growling today, out loud and on paper. 😤
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Great news Baby Ruth!
Grannax, it's fantastic to hear that your PET was stable! About the other news.... It makes me so angry when doctors don't think we should know what is happening with our bodies. I feel much more anxiety and stress not knowing every detail in my pathology reports. Of course, every patient is different. I think doctors should consider individual preferences. If you want all the information, your doctor should provide it. As far as confusing you with another patient (gasp!) I hope you can find an MO who considers your unique, individual preferences.
Hugs ~ Kari
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Hi Grannax- First of all, congrats on being stable! That is worth doing a happy dance, no matter if you are happy with your doctor.
But after reading your post- especially the part where she mixed you up with another patient- I would be looking for someone else as soon as possible. I know you are thinking about it, and it's hard to leave a known quantity, but I think it's so important to trust the competence of the person you are trusting with your life.
I can't imagine my doc confusing me with someone else even though he has been practicing for 30+ years and has a ton of patients. He wants me to read my reports and listens to my concerns and is interested in what I want to do next. He downloaded my F1 report for me without my asking for it- no condescension. He would welcome any questions I would have after reading it. And he doesn't base his treatments on "what he thinks my insurance co will pay for." He chooses what's best for me and makes sure my insurance co knows why I need it. You can do so much better.
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Wow! Loving the good news everyone is getting from the IR procedures. Congratulations everyone!
Had my right lobe Y90 yesterday. The first 12 hrs were a little rough with pain, heartburn and dry heaves. I could not keep any meds down. I am doing significantly better this afternoon, and resting on the couch. My IR said the procedure went well, and that the whole right lobe lit up appropriately. There is not much disease in the left lobe, so we will talk about what happens there later.
Glad to have it behind me.
Love and best wishes to all-MJH
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MJH, congrats on your successful procedure yesterday. Were the heaves from the anesthesia or the procedure?
Grannax, so happy your scan was stable. Your MO doesn't like to be questioned. That usually comes from insecurity, as she probably interprets your questions about you, your pathology and treatment questions about her competency. Run. That was my first MO. That personality doesn't change and you will always feel you have to fight for your concerns to be addressed and will likely be given the big “NO" on some requests that are very important to you. Also sounds like she views you as a number, a stat rather than a wonderful, funny, intelligent, fabulous human being that has a lot more living to do. You have enough on your plate with BC. Who needs that drama?! My current MO is the opposite and is open minded about hearing what I have to say. It feels like such a relief that I don't have to fight against my MO to have my issues addressed.
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MJH YAY, it's done. Sorry you're having pain and nausea. I hope it stays better. Mine seemed to cycle to a different SE each day for about five days. Each doable but scary at first.
JFL. That's exactly what I think about her, insecure and doesn't like questions. I need to run, not walk away. Thanks for the compliments, I needed to hear them today. She told me I wasn't embracing life because I don't have an exercise program. What? I said I beg to differ.
I Sandilee. I wish I could go to your doctor, that type of relationship is what I desperately need.
KarPC. That's exactly how I am. And I told her that's who I am and I'm not going to change. To which she said well, I'm not going to do anything differently. Gasp
Leaving now to go to my granddaughter's graduation from 5th grade.. She will lift my spirits. I will tell her the good news and have her make up a happy dance for me. That should prove to be good for lots of giggles.
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Granax. So happy about your scans and that your sweet granddaughter has you at her graduation. Please tape her happy dance for you! Those are the moments that mean the most! I’m glad you’re looking for a new mo. I often show mine things that I read on these boards for her opinion and she is more than receptive. That’s what you should have too!
MJL. Congrats on being finished with the Y90. I wish you had an easier time of it but it’s worth it if you get good tesults🙏🙏🙏🙏
Bab
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MJH - Congrats. Feel better.
Grannax - I am so impressed with you. Incredible job. Personally, i will say it's a crap shoot switching oncs and youve got what it takes to manage this one if you choose to stay. I am happier with my new oncs but they still s@#k in certain respects.
And yay for stable scans. Happy dancing over here.
Finally hang on to the friend that went with you. That one's a keeper.
Z
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Thanks everyone for your support! Improving, but still mostly on the couch. Do not do well with nausea and abdominal pain (like anyone does, right?) I did better with the bone pain. I think dry heaves were from the procedure itself. Anyway, moving forward and waiting to get back up and get back to normal things like walking and gardening!
Grannax-the exercise comment just put me over the edge-our personal lives are our business. An inappropriate thing for an oncologist to say. Lab and imaging reports should be available for all patients. The concern that they will be misinterpreted by, or stress patients out is antiquated. The prudent electronic chart will explain to patients that not every abnormal is significant, and that reviewing with a competent professional is important. Good for you for ditching this Dud.
Love and my best to each, MJH
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MJH. You must be able to read my mind. That's exactly what I was thinking about this morning. She made this big leap from onc to life coach. What? Inappropriate at the very least..Today I've decided that I'm going to my PCP who has known and cared for me for 20 years. She's already unhappy that my mo is leaving Texas Health and has no portal. Wait till I tell her the rest of the story.
I was very fortunate not to have nausea, I didn't have much of an appetite. I too hate nausea especially right after procedure. Yucky.
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Radiotherapy offers new treatment option for liver cancer
This is a link to a discussion of local treatment of liver mets with radiation (Y90). Like so much cancer news in the popular press, not actually news or new at all, but interesting that they feel that with limited mets Y90 can be curative.
>Z<
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