STEAM ROOM FOR ANGER
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Here's the before photos. We also salvaged some of the wood in one to re-use.
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ctmb, what amazing work by your DH. I am dreaming of sitting in that lone chair by the water.
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Wow! Really cool, ctmbsikia!!
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What beautiful work, and those cottages look so appealing!
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I was putting this task on the back burner since our spring weather has been dreadful, but yesterday hubs iPhone brought up one of those memory videos from last year. Now this is front and center. His cousin has a place there too and her husband passed away last year (same cancer) and she called him yesterday. It's a sign. Let's get it done!!!! Our house here has been really messy with daughter here, all the work from home stuff covering my kitchen table, and hubs just doing whatever--I can't even yell at him like before to like close a cabinet door or please stop leaving things wherever you drop it. He never puts anything away!! I'm an imbecile and particular. I wish I wasn't so meticulous. I will have plenty of time to get things how I want them later so lately I've only been doing what I must-like keeping the bathroom and kitchen cleaned. I vacuum, mop, and do the laundry once a week but that's it. No windows, cleaning closets, scrubbing walls, or painting them. Nothing. No time. So hard as this is the sort of stuff we did together all the time. Getting him back to the beach to supervise a crew to finish will be uplifting for him. Should he be well enough to travel. Let's see how he does. Daughter took him to radiation today, he has 5 more to go. He should get a break after and before another round of chemo. Can only hope.
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And just like that our dreams and hopes may be dashed. Daughter called on their way home from radiation. He is in pain suddenly, he wasn't bad when they left. WTF? I got his tea, painkillers, steroid and claritin ready. I got yelled at when I offered to help him take his shoes off. "I'm not an invalid" he said. I can't understand taking a steroid pill with a painkiller. Is that OK? Who the hell knows? Is all this from treatment or is the cancer winning? No rule book, what's going to happen is going to happen. I need a drink. I'm not ready to do this. He's moaning.
Thank you all again, for allowing me this space to vent.
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It is so hard to let people help you with simple things you used to do so easily. Really hard. And a guy? Even harder.
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Those are beautiful! I hope that he starts feeling better soon and gets to go back!
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Beautiful work. Prayers you can get there and enjoy the hard work.
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ctmbsikia
I think it's okay with the pain meds and steroids combined. I had some extreme dental work done a few years ago and got pain pills plus a 1-week steroid pack prescribed.
How frustrating for both of you!
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ctmb, love those charming cottages and can imagine they are a place of peace and good spirits. I am so sorry for everything you are going through. I read and shake my head and can only imagine that your words convey only the tip of the iceberg. Big hug in which I squeeze strength and peace into your heart.
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runor, well said!
Ctm, peace and strength and hopefully some sunshine!
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Thank you everyone. We did have sunshine yesterday and were able to go out on the deck. The kids bought dinner from a local place and it was very good. My son built some boxes that hubby wanted to plant into instead of just in the ground to help manage the weeds better in the garden. Hope to get the tomatoes and pepper plants in this week. It's raining (again!) today. Hubs doing OK. I think the excursion of going to the hospital everyday caused all that pain last week. We'll see how he does this week. 5 to go. I will request that he get wheeled down to the treatment room at the hospital today. I could insist in going in with him since he needs assistance, but there are some lovely volunteers there. I'll play it by ear. He's eating, doesn't seem to be suffering too terribly. Sleeps a lot. He is able to get up and down on his own.
Hope you all enjoyed your Mother's Day. Thanks again for all of your kind words, thoughts, and prayers.
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RO's nurse called me today since he saw the RO at treatment. I'm to cut back the steroid on Fri the last day to 4mg. He's down to 144 lbs. on their scale. I asked the guy at the hospital door to to have him wheeled downstairs, they are so very helpful. It was a chore just getting him out the door to make it there on time. He forgot his mask and his glasses!! Just because he was prescribed Ativan doesn't mean he has to take it everyday before hand does it? He's a walking zombie and I know it's from that. I'm going to put that away I think and see how he does tomorrow. The dietician also called. I know it's their job and she was helpful in reminding me to get some protein in him and if he's eating too few of small meals I should offer more Ensure. I need to pick up some more of that when I go to the store tomorrow for refills. Mary the NP called this morning. I put a refill request in the portal and this is the 3rd time she said she was upping the number of oxycodones from 15 to 60! I only asked for 30, whatever. I've been running around with 15 at a time for 3 weeks!
I'm wondering at what point will the white flag go up? My gut tells me it's up to him to let someone know. I don't think he's ready yet. I'm keeping my mouth shut, but I see he is dying!!!!!!!!!!!!!!!! I don't think this is radiation messing with him, other than some fatigue and him taking the lorazepam making him like a zombie. Truthfully, so hard to get to the finish line. If it was me, I think I would be putting on the brakes about now and just let nature take it's course. It's not up to me though, so I really need some help. I have given up hope but I can't tell anyone except for you guys. I'm just a well oiled machine going through the motions as emotionless as possible. I really rather scream.
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ctmbsikia Sending you a huge, gentle hug. I don't have any advice because I've never been in your circumstance, but know that I, and the rest of us, are listening, and I hope that eases at least one burden.
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ctmbslkia, sending soft hugs and offering a listening ear. I'd offer a shoulder to cry on but suspect the opportunity to scream and shout would be better suited just now. We are here for you.
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Piling on with the hugs and know we will listen, always.
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ctmb, I have no words. Just horror at what you're going through and hope that whatever lies ahead, you make it out the other side. THEN you can have a well deserved breakdown and fall apart and we'll all be here with our ears peeled and our hearts hurting for you. Hugs.
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I have to vent. I've been holding this in for several hours and I can't let go. A (real life) friend posted on FB about a badly bruised knee from EIGHT YEARS AGO and how it's ruined her quality of life worse than cancer or a heart problem could have. I bit my lip for a few hours, then explained to her that I've got nasty residual effects from falls years ago that still hurt, but unlike cancer, I DON'T HAVE TO WORRY EVERY FUCKING DAY THAT IT WILL COME BACK AND EVENTUALLY KILL ME, and that she should not make those comparisons. Her response was that she had that knee fixed but now the other one hurts, boo hoo hoo. WTF??? 🖕🖕🖕🖕🖕 She's gonna drive me nuts.
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Time to unfollow her. You stay FB friends but your feed is blissfully free from that nonsense.
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Unfortunately, although she drives me bonkers, FB is the only way we stay in touch and I'd feel terrible just cutting off all contact. She's one of those people whose life is a huge mess in many ways, but she's never intentionally cruel. I've learned to call her out on her more dramatic, outrageous statements, and ignore what I can. She's been in pity-party mode for several months since some guy she dated for a few years FORTY YEARS AGO died. Dramarama!
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Wow yeah that's a bizarre sense of proportion and drama to be sure.
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Wow. Sounds like she needs to be brought into the current year and realize you need to worry about the day ahead and not what happened all those years ago. You can't change history no matter what. Hopefully you can convince her since you are her friend.
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This is not a breast cancer topic, but is a medical topic. My DH’s gout has been acting up. He spent two days taking 15 year old pills and complaining. Finally (with much persuasion aka bitching), he called the doctor. While out running errands he received a message from the pharmacy his prescription was ready. When we arrived at the drive thru, the pharmacist asked if we knew the medication was $107.00? Noooooo! She was able to use some kind of coupon and got the price down to $69.00. There was a second prescription for Prednisone that cost over $20.00. Anyway, close to $100.00 later, he has his meds. I am annoyed we received no communication from the doctor. No return call explaining why these meds were chosen (They are different from the 15 yr old pill) or a heads up about the cost. DH has been a patient at this practice for over 25 years. Where is the appearance of customer service? I do not understand why a doctor or someone at his office is not aware of drug pricing or the tiers of Medicare coverage. Just another thing about medical insurance that chaps my ass
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15 year old meds? Should have been thrown out 14 years ago. Have either of you read how meds are covered by your Advantage plan or supplement? Not pharmacy fault, or dr office. If you don’t like it, change when open enrollment in fall this year
My DH had ground transportation to ER. He was convinced it would be over 1,000$. Read the plan. $200.
Read it and learn.
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JCSLibrarian, sorry you and DH have had a tough run with the meds and doctors. It can be very confusing! Indeed, the plans are complicated, and change. Hard to keep up with. Glad you got what he needs, and now can further discuss with the doctor (strange times now to get good communication), and better understand your medical/drug coverage.
Hang in there!
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An assumption was made on our part that he would be prescribed the same med as before. We were not informed of the medication change, so did not get to research anything. The pharmacist was wonderful in working to get the costs down. I feel the doctor’s office should have called to let us know what was being prescribed since it was a different medication. Then I could research the possible costs. It is a breakdown in communication that a lot of people get caught up in.
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Have you called the prescribing doctor? My gyn prescribe an antibiotic a few years ago and when I picked it up, it was $300. (Actually, I saw the price online in my Walgreen's account. I never pick up anything without knowing the price first.) I called her and she did some magic and it ended up being the price of a generic. $3.99. Doctors can pull strings and "adjust" what a drug costs. Maybe there is a cheaper alternative, at least. And please, DO NOT be reluctant to play the stage IV cancer card. I don't play it often but when I do, I am amazed at its power.
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