STEAM ROOM FOR ANGER
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I'm so sorry for your loss, ctmbsikia. Anniversaries are so hard. Take good care of yourself.
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ctm, words can't take away your pain, but please know that many are thinking of you and wishing we could just let you know that we care.
Love and hugs
Carol
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ctm, (((hugs)))
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Ctm great family photo. Sending hugs your way during this difficult time.
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Big hug, Ctmb.
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Popping in to have a good solid scream, followed by a good solid cry. I'm in the USA which, well, speaks for itself.
I have to find a way to get back to a healthier.................everything. If anyone has ever felt this way and pulled yourself back to a better frame of mind and place, please tell me what worked for you.
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I'm all for a good cry anytime.
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I vote for good loud scream!
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Throw pot holders as hard as I can. Nothing breaks, nothing to clean up.
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Spookiesmom, love that idea!!
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But Spookie, sometimes you need a good resounding crash, right? haha
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Truebut while I’m throwing them, I think this is your head you $&#%
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You guys are the best! I have found my people!
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So, I think I'm pretty good at remaining calm. Thanks to this place I can blow off and get some pot holders from Spookie!
I have a few problems going on and I just have to say, I'm almost too tired to type about them. In brief, I've been getting an intermittent sewer gas odor at home. Landlord blew me off at first, but I soon became the tenant from hell calling him constantly. The tank was pumped out on Tues., I had the day off on Wed. and nothing. No smell. Last night, and this morning it's back. WTF? It's driving me crazy, it's been going on too long, but after I called him once again this morning, I hope and pray he gets it now! We sort of figure there is a broken pipe someplace. How long it will take for someone to get in and repair it (IF that is the issue) I don't know. I NEED to know. It's the worst smell in the world and I feel I am living in the pits of hell. I'm paying money to live in this hell. Did I mention previously that hubs was a plumber? Is he trying to tell me something? Is he haunting me? I'm really angry he's not here to fix it!!!!!!!!!!
That's the main problem I'm having, however, I'll keep trudging on. Luckily it's not too cold here yet and I sleep with the door shut, windows open, and 2 blankets. My body temp has dropped a full degree!
Wishing all of you a wonderful weekend. Thanks for the vent.
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Hope you can get it fixed soon!!! 0
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Well I hope I don't jinx myself -but all weekend and so far this week I don't smell anything. Landlord never called me back so I don't know if he did or had anyone there on Friday? Here's hoping this problem has been resolved.
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Day after biopsy. Twiddling my thumbs. Came here to rant because y’all “get it.”
Here’s the condensed version: right axilla pain beginning of Sept. US advised biopsy, BS wanted MRI, MRI shows all good, Yay!?
Regular MO follow up and discuss recent pain. IDC TN 2003 (with lumpectomy, chemo, rads) IDC ER+ 2011 (BMX, hyst, recon and then implant removal 2017) Orders PET 9/17. Wait for insurance auth and finally scheduled for 9/28. Follow up 10/1- PET showed activity in a few areas with most prominent in LEFT axilla, onc out sick but the NP orders CT guided biopsy. Wait for auth, wait to be scheduled.
10/14 day of CT guided biopsy, nope they changed it to US guided. Consent was made out for the wrong side. No one called to review my history or the procedure being changed prior to my arrival. Several others things occurred that left me less than “satisfied about the experience. The nursing care was great but the other things weigh heavily on the experience. 2 cores and 4 aspirations were taken.
The radiologist was trying to explain how PET can light up for inflammation, infection or a possible disease process. (Not my first PET, thanks though. CBC doesn’t show any infectious process and no recent viral symptoms or issues. So the several areas of activity probably mean another cancer.) I’m very much a rational person and health professional so that discussion was followed up by my questioning the CT vs US approach. Radiologist determines approach, he apologized that no one called (PA previously stated “your not the first to say that”) to state the change. I advised him that had I known, I could have gone elsewhere- sooner than 2 weeks and not had to have anesthesia. Communication was less than stellar. He assured me that this approach would yield same results as CT guided but less time and radiation needed... (convenient for whom? I want accuracy, let’s make sure we compare targets apples to apples, but evidently it’s fine.)
Now we wait. I messaged the onc office that biopsy was done and regarding follow up the nurse replied she set an appt for 10/27. If that doesn’t work, just let her know...
So, I wait. 🤬
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Ugh mebmarj. Waiting is the worst. Hope you get some accurate answers soon.
My sister texted me and my brothers yesterday. Latest scan show 2 new mets on pelvic bones. They are small she said, but enough to change treatment course. Once insurance goes thru she will start the Ibrance/Letrozole combo. Her MO is confident still very manageable. My only concern is how fast the Faslodex failed her. This was her 1st PET since started that line. Good news is, no symptoms, no pain, so will read up some in that thread and of course hope this works well for her for several years!
I came home the other night to a note in my door from the landlord advising me of a rent increase. I knew this was coming but I can't seem to get through to him that you can't ask me for more money while I am having a problem. This intermittent sewer odor is driving me crazy! Then this note! I called my son over and he did find a slight crack on the drain pipe so he sprayed that flex stuff on it. I was (still am) so upset I didn't make it into work yesterday. I still feel there is a problem outside since the pump has stopped working a couple of times in the last 2 months. All day yesterday and this morning, no smell. This doesn't mean it won't come back. This has been my life smell, no smell. Landlord when he does come, doesn't smell it so again I feel he's blowing it off. It's not my problem, yet here I am with it all bearing down on me. I want to remain calm and civil. Right. What I'd really like to do is rent a dumpster throw everything in it, light it on fire, and get the hell out of there!
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Hello this is long over due!
I finished chemo August 21st, but this still annoys the hell out of me cuz I still think about!
When the nurse refers to me as Mrs Vanilla to the other nurse as if I couldnt hear her! But, I kept my mouth shut. I wish I would have said something! Here we go!
What the hell lady, sorry I wasnt cracking jokes , laughing and smiling like a ray of sunshine, maybe I had friggin frost bite from the ice packs on my hands and feet , yeah remember the neuropathy I have from the so called easy peasy poison flowing through my body. Not to mention the runs, exhaustion, pimples, weight gain, aches , sleepless nights, toe nail probs, constipation , heat waves, losing 80% of the hair on my body, ringing in my ear, etc etc but most of all that I have cancer during a friggin pandemic, you poor excuse for a chemo nurse!!!!
Dear Mom, I know you went through breast cancer also but can you please stop using my experience to talk about your experience. The convo doesnt always have to be YOU talking about you! And if you say WE one more time, we just gotta get finished with this chemo , we just gotta get through surgery! WE,WE,WE ! F@%k
Nothing like being asked (how are you doing) by your brother that hasnt bothered with you for most of your journey! And getting to respond with 2 sentences before he starts whining about his back hurting. I mean really, come on man!
Just had my lumpectomy and 14 nodes removed, and apparently Im good to go! I can started getting back to normal life , fyi thats what I've been doing all along, this is my normal life now! Psst, suprise, its not over yet, did ya forget all my other appointments, the radiation, the port thats still in my chest, side effects from chemo that I still have! Jesus christ! And the pill! The dreaded pill!
Maybe now I can go to bed , its 3:32am maybe now I'll be able to piece my pillows in a perfect tetris like pile just so my right arm and shoulder feel comfortable! Lol probably not! But, this felt good!
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Erin Wall, 44, Dies; Acclaimed Soprano in Mozart and Strauss
This woman was amazing. She rarely took gigs off, even during chemo and radiation. She ran the NY Marathon on her 43rd birthday, the year before she died. She hated the word "battle" and would not allow it to be used about her. Last night, I read her tweets and retweets back to 2017. I never do twitter. I am not an opera person. She wanted it out there that she had MBC and was terminal. She never hid her original diagnosis or her MBC. Very impressive woman. AND she was Canadian.
(Link to same content but from The Chicago Tribune where you are bothered less about having a subscription than the NY Times link above.)
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Here is a blog she wrote at some point during her treatment.
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Thanks for posting that, jaycee. I also read that Lucille Ball's great granddaughter (Desi junior's granddaughter) died of MBC at age 31. She was originally diagnosed at age 26. God, I hate this effing disease.
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Boob_2020.............I saw your post before you deleted it. I am very sorry for how you were treated. Many hugs.
jaycee49..........Thank you for sharing. I hate this disease so very much.
Trishyla.........I saw that last week (think it was last week). She was incredibly young. I agree....this disease is a b*tch!
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I'm sorry you're having such a tough time Jumpship. Sometimes it's hard to love the people in our lives, but not like them.
I've been dealing with that with a close family member. You start to wonder why you've been fighting so hard to survive. I finally decided that I'm fighting for me. Not for anyone else. And I am enough.
Be well. Sending a hug across the miles.
Trish
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I wish I had words of wisdom to help everyone who is going through tough times (Trishyla, ctmbsikia, Jump ship and everyone else). I hope it's a better day soon
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I think the whole isolation and everything from this stupid pandemic going around makes dealing with everything else even harder. We are alone and and isolated and seeing people "even virtually" on zoom or something is not the same. Those around us get tired of us too.
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Jumpship....I understand. I am sorry.
deleted this paragraph......
I have my first regular follow up with my breast surgeon tomorrow (6 months since surgery).
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bcincolorado...You are very right. I completely agree with you.
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Morning all. Last Friday it rained and when I got home from work-Bam!!! Sewer odor was present. I called the landlord and he was away and couldn't come. It was not a pleasant conversation, at all. He started yelling at me that I was nit picking at him. JHC mister. I did not raise my voice back. He also said I could move. He is a horrible person, so I placed a curse on him after I hung up that he will die a slow and painful death. He is late 60's Italian man whose culture is that women raise the kids and stay in the kitchen. I've never felt so discriminated upon. But, I've always known this about him, it's just with hubby gone I will not tolerate him speaking to me like I'm stupid.
Saturday the odor was still present. My son and I started moving things out back in case we have to dig. Hubs had an oil tank out back, my son transferred the fuel to the inside tank, and his buddy came to take the tank away. Then he moved the shed out away from the house over to where the tank was. By mid morning on Sunday, a nice sunny day, odor is gone. Nothing, nada. The weather this week is clear, and as of this posting, still no odor. Is it a miracle? Doubtful. This intermittent odor has been going on for a few months now. So, Monday morning I called a plumber over. $150. dollars later, all I know is it's not the vent. While the odor is not present, they just sort of seemed like-oh well. I'm like JHC! Again. They were nice fellows though, one knew hubs. Now I'm googling and have learned that other people have this problem and it can be a number of things, and there have been plumbers that have a hard time diagnosing the source. Some have spent hundreds to thousands figuring it out. At least I've eliminated one thing.
Now I wait, for the rain. See if odor comes back. If it does, I need to see if I can figure out where the odor is strongest. I will also call the landlord and hope my son can be present as well. Or, pray for a miracle, maybe it won't come back. Ever.
A very frustrating and upsetting problem to have. I'm OK today, but I'm not OK, if you know what I mean.
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So sorry you dealing with this. How frustrating. Odors and come and go are no help either when landord is there checking it out or you pay to have someone else come check either. Hopefully they can fix it soon and you and get some piece of mind!
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