STEAM ROOM FOR ANGER
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Spookiesmom- I don’t post often, but couldn’t resist when I saw your cute little pup! It was like stepping back in time. My little gal is 14 now. She was so mischievous in her youth, she would steal the socks right off my feet and “bury” them in her blankets. Now she just wants to cuddle with me in her blankets. The sun was a little too bright for her in this picture haha.
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Awwwwwww what a sweetheart. Xoxo from Spookie and Kris. They sure do help when you’re in funky town.
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I'm not in active treatment and recently I met my out-of-pocket maximum for the year. I'm not sure if I'm glad about that or not...
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Hopefully you did not have a high out of pocket. I was blessed before I got on Medicare to have a plan with a $700 a year deductible. a PET scan took care of it right off the bat.
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bcincolorado, it was $3500, with a $2500 deductible. I think that is fairly high, but I expect there are a lot worse.
According to the healthcare.gov website:
"A plan with a higher deductible than a traditional insurance plan. The monthly premium is usually lower, but you pay more health care costs yourself before the insurance company starts to pay its share (your deductible). A high deductible plan (HDHP) can be combined with a health savings account (HSA), allowing you to pay for certain medical expenses with money free from federal taxes.
For 2021, the IRS defines a high deductible health plan as any plan with a deductible of at least $1,400 for an individual or $2,800 for a family. An HDHP's total yearly out-of-pocket expenses (including deductibles, copayments, and coinsurance) can't be more than $7,000 for an individual or $14,000 for a family. (This limit doesn't apply to out-of-network services.)"
So yeah, it's high deductible. It's private insurance, not a plan on the marketplace, not employer. I pay all of it myself. The premium for next year is about $9500. But I'm 4 more years away from Medicare, so I don't have many good choices.
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I love cheese, and dairy in general. I've cut out cheese as a snack item due to the cancer, there is a correlation between ER+ breast cancer recurrence and consumption of high fat dairy such as cheese, but I occasionally have it as an ingredient. That being said, I had a pretty healthy diet and lifestyle for much of my adult life and made an effort to take steps to prevent some of the ailments my older relatives developed, but I'm starting to realize a lot of it is really just genetics and I'm developing a lot of these issues at a younger age than my parents, aunts, uncles, and grandparents did.
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WC3 - I gave up grapefruit due to taking tamoxifen, I had enjoyed one a day when they were in season. Looked forward to resuming grapefruit but was then put on a statin. Checked everything to avoid soy. Stopped using Splenda in my morning coffee and tea - throughout the day. Tried to stop putting milk in both, that failed but settled on 1%. Come to read here on BCO within the last month that BLACK TEA which I have consumed all my life is estrogenic????
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WC3 and Jelson, it honestly feels like you can't win on the dietary things. Even people who eat "healthy" food can find that the cards are stacked. Part of the issue is we are all quite individual. Part is that foods are not eaten by themselves, so what might be great by itself has some issue when eaten with something else. Part is that the actual science of digestion is not very far along, so information that comes out is revised quickly, leading to confusion. Part is that journalists often don't understand what they're reading, or they aren't careful at how they write, or their carefully written pieces are chopped up for space requirements, so what we have to read is an mishmash of facts that don't explain the real impact on real humans. And part is that, some people live long and healthy lives despite eating a crap diet, and some people suffer despite a great one. It's very frustrating for me, trying to figure it all out.
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So I called in a carry out order for pizza. Girl couldn’t understand what I wanted, a small, and tried to upsell the order. Go get it, walk in, she says Hi Sir! I growl back, it’s ma’m. Tell her order for ……. Gave her a $20. She had absolutely no idea how much to give me back. I had to tell her. The pizza was ok, I will never go there again.
I’m flat, extremely thin short hair. I wear funny pink shirts. I’m sick of this crap. Rant over
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Oh, Spookie, I'm so sorry. Maybe it would have been worth it if the pizza had been better.
I went to Pick Up Stix a LONG time ago (over 10 years?) and the kid behind the counter asked me if I wanted the "light" dressing. Then asked if I got the senior discount. So I'm fat and old??? I was probably around 125 pounds at the time and not yet 50 years old. Sheesh!
With regard to cheese, wine, chocolate, whatever... Moderation. And a little goes a long way to keep me a happy girl. Except for grapefruit. Ibrance has knocked that off of my food list. Oh well.
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mountainmia I know in Colorado I got on a State plan here that was great after I lost my employer insurance and could not work. It was so good I would have kept it if I could have. Your premium gets based off your household income which also incudes utilities even. I think we paid $153 a month for our plan with the $700 a year deductible. $40 co pay at the doctor including specialists. Once I got on Medicare though I could not keep it.
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bc, that's awesome. Iowa's options, last I looked, were not as good as the plan I've got. They wouldn't make my life better. I'm fortunate I can come up with the money. It hurts in years when I pay piles and don't need much, but I guess I got it all back and then some with my cancer treatment.
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Jelson: I drink at least 7 cups of black tea a day and have for at least 40 years. I guess it's to late to bother stopping now.
I love the smell of coffee but hate the taste. Once in awhile I've accidently taken a sip of my husbands...yuck!
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KIDI919, I'm another tea addict who hates coffee. How can anything that smells so good taste so foul? I drink Earl Grey most often, but lately I've been slurping Constant Comment, which is perfect with the pumpkin cake and gingerbread we've had recently. Now both of those are examples of beverages that taste as wonderful as they smell!
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I drink 2-3 cups per day with the zero sugar creamers. Pumpkin spice right now. It’s glorious. So sorry for those doing chemo that have lost taste.I would at least enjoy the smell. Or try to!
Have a friend facing a lung cancer diagnosis. Her friend who they live with just lost her ex (cancer). I will see them this week.
I actually went out outside and danced to another friend’s band Friday night. Almost felt normal. It was fun.
Got word this morning that I lost a cousin. We weren’t especially close but both his sisters who are older thanked me for texting my condolences. My sister is sending some stuff to his family and I didn’t have the heart to ask how her last scan went on the group text with my brothers. She will let us know right?My daughter was here this weekend. My son stopped in today. I don’t know if it’s the right time but I tell them how much I love them and what and where everything is when I go south. I would not want to be young today. It was hard enough 30/40years ago compared to today’s climate.
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AliceB those are two very good teas! I generally drink red rose but now that you have mentioned those 2 I'm going to get some. Yum
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ctmbsikia - there's a book called Shit You'll Need When I'm Gone (and others with more genteel names) that help you gather that kind of information in one place for your loved ones. I read about it somewhere on this forum back in the beginning (for me) and the name stuck with me.
Sunshine99 - great idea to use two windows for reading and responding. It's brilliant! I tell myself I could've thought of that...but, of course I didn't! Lol. Anyway, thanks for the tip!
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KID919 - My husband and his entire family loves coffee. He buys beans from a company in California, puzzling over descriptions of flavor, what country/farm they come from, he eagerly awaits the box's arrival and roasts them himself. He periodically mails bags to relatives who also love coffee and every Thursday brings a bag to our neighbors who discuss the various beans and the different flavors. Every morning he brews in a vacuum coffee pot (over the years I have found them at flea markets and on ebay) and he asks me what I think of my cup, perhaps compared to the day before or whatever. To me it is just a cup of coffee, to him it is a whole sensory experience - with a different taste as it cools. I'll say I liked it?
Now this is funny, in the summer I find I don't drink as much tea during the day because I substitute eating watermelon (which will probably turn out to be carcinogenic). So between Memorial Day and Labor Day, I always have a watermelon cut up in the refrigerator. The rest of the year I easily drink almost 10 cups of tea because I use a big mug. Maybe it will be less this year because without Splenda, sugar or honey it just doesn't taste as delicious to me.
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We made a big file folder with information in there on where things are. I also made a list of stuff in the house that is worth something and some are family heirlooms for a couple of generations now since I have stuff from my great grandma here. I would not want them to pack it off to donate somewhere after I am gone. Kids are grown and have houseful of stuff of their own at this point. The things we wanted from my in laws were not worth a lot but took a painting my mother in law did and a drawing that no one wanted. Some of ,my husband's sisters wanted the expensive jewlery she had but I did not care about that at all. I wanted things to remind me of them. We got my father in law's military medals and the flag from his funeral since he was in the service. We have it all in a nice case on display now.
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Jelson, I saw a cartoon about a "watermelon study" when I was a kid. The cartoon showed some guy in a lab jacket. He may have been holding up a mouse, but I don't remember that part. The caption was something like, "We fed this mouse 5 (or whatever number) watermelons and it exploded. Therefore, we conclude that watermelons are hazardous to your health."
So keep eating watermelons, as will I. At least we'll die happy, right?
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Coffee and tea are both tasty to me!
ctmbsikia - i need some of this zero sugar pumpkin spice you speak of. Enjoy reading this thread.
Chiming in to say I sent on online message into the black hole of my Dr.'s office, that I will be needing another medication refill.
A PERSON called me back same day. A real life person. I am SHOCKED. I wonder if I got put on a "list" last week......shouldn't be this way.
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Coffee and tea are both tasty to me!
ctmbsikia - i need some of this zero sugar pumpkin spice you speak of. Enjoy reading this thread.
Chiming in to say I sent an online message into the black hole of my Dr.'s office, that I will be needing another medication refill.
A PERSON called me back same day. A real life person. I am SHOCKED. I wonder if I got put on a "list" last week......shouldn't be this way.
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Love the "black hole" comment! I usually send a message and it takes 2 days before someone gets back to me and then they ask me another question in the portal instead of calling me. Then it is 2 days again so anything takes a week or more to resolve.
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Jelson, WOW they really love their coffee. As for watermelon or probably any food being cancerous, probably. There are so many chemicals used to grow food it's no wonder people get sick. I have noticed kids having more food allergies. My grandson it's milk and eggs. Little guy I'm babysitting it's milk and soy. I never heard of these types of allergies growing up.
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KID1919 - You are right about watermelon, any of the veggies/fruits that suck up a lot of water - like celery probably contain carcinogenic chemicals. I did see a news item a long time ago about a town somewhere in the midwest that had a watermelon festival, like maybe they were the watermelon capital of the US anyway the commentator was asking them about a study that claimed that watermelon rind increased men's virility - I think the interviewees just chuckled.
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My gripe today is the frustrating process I often must go through to get my prescription refilled. A nurse is in charge of overseeing “oral chemo”. They only renew it for three months at a time. I call her to say the prescription needs renewed. She must get the doctor to sign off on renewing the prescription. This takes a whole day. I call the pharmacy next day, “has it been ordered?” No. Must call the nurse again.. She “just” got the doctor’s approval. She has to now fax it to the pharm which takes awhile so later today I have to call the pharm again. They usually have to order the oral chemo pills which takes another day. If I don’t get a text telling me it’s ready tomorrow, I have to call to find out what the delay is. Last month they said it couldn’t be ordered, so I had to call the nurse, she was able to call them and it got ordered.
All of this is a whole lot of anxiety for me throughout the week. I can’t just call and refill the prescription, I have to follow up on everything multiple times to get what I need, what literally my life depends on. Everyone else in the prescription process just casually approaches this like it ain’t no big deal. Aaauuurrrgh!!!
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Frustrating indeed. That's some serious medication you are on and it shouldn't be too much to ask to get it refilled seamlessly through the system! Ugh
I use the pharmacy at the local grocery since I'm in there anyway. Last time scripts got refilled 2 of my docs made them out for 90 days from 30. Got all 3 filled at one time. Today, I'm on my 2nd text saying the anastrozole is ready (plus I still have a bunch left) but no texts about the other 2. I seriously cannot figure it out!!! I will need to go get the 1 before they pull it back. I'd rather have too many than not enough if they have to order them.
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Divine and ctm, don't we have enough on our plates without the prescription headaches? My last refill of Ibrance was delivered to CVS. Didn't get a call or text from the them, so I called them. I was told it wasn't there. I told them that I got a delivery notice from the specialty pharmacy. Oh, wait, here it is. Sorry about that. Went to pick it up. No, we don't have it. YES YOU DO!!! It was delivered on ___ and signed for by ___. Took them a while, but they found it. Sheesh! Good thing it wasn't blood pressure medication!
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After that frustration you might need some blood pressure medicine!
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Divine, that is exactly what I went through last week for my Xeloda. I ended up in tears of frustration.
Starting it again this week for my Tukysa refill, earlier this time, they've got 2 weeks to get it together, will call everyday till it's done. Has to come from mail order pharmacy too.
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