CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Ah Shorfi.... hang in there kid.... Your DX's sound like you are and have been pretty beat up.... You will have crappy days, and just can't figure it out. A lot of it are the meds you are taking.... Have things checked out when you hurt, but know that we will always be here to help you out of the basement.... Were you on Oxycodone? Man, that plugged me up TOO! I got off of it as soon as I could take Aleve, and it worked! That was for my Sciatica pain, along with the Piraformis muscle in my back & hip....
And DUCKY! You know your kids will all drive you nuts...Can't let them get to you.... don't listen.... well, if you do, just go in a closet and beat the hell out of a few pillows.... You can't "fix" anything, I don't suppose.... and they won't listen anyway......
And don't be sick and tired of being sick and tired and sick and tired and full of chit.... that can't help you either.... Got it?
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Shorfi- sending a hug this morning. Hope your spirits lift during the day. Pain makes you crazy, and not having answers makes you depressed.
Which leads me to Ducky. A hug for you too. Big one. Thinking of you and thanks for your support also,
Katy
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Thanks.....I needed those hugs. Pain makes me mean...and I can get pretty snippy at my husband for no reason. I hate that because he is so very patient and kind to me...and everyone.
Chevy...the only meds I take is for high blood pressure that I got from taking the Arimidex and I have been taking Lexapro since my first diagnosis. They said it was "situational depression". It helps because if I didn't take it I would be probably running in the streets stark naked and screaming...I know that is not funny...sorry. I told you I was crazy.
Katy...your post brought tears to my eyes. You get it.
Ducky...Thanks for your hug too. I appreciate.
I was thinking about staying off the boards, but I need you ladies. I'm like Ducky...sick and tired of being sick and tired. I am 61 years old, but I feel like I am in my 30s, but my body feels like I am 100. This is no way to live. Feeling so sorry for myself.
Gonna talk a lunch break and try to go for a very short walk....maybe that will help.
I love you ladies so much!!!!!
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evening all
So had mt gyny app yesterday ans all was well with the cyst thank god,but i do have endometriosis on my ovaries.My doc wants to give me an injection once a month for 4 months to treat this.anyone here have and experience with this?the injection is to stop oestrogen which feeds it but i am already taking exemestane so am a bit worried about this,as it says it will higher my oestrogen levels before lowering them!!!!! Am very confused about all this and am really sick of there always being something new to fix.i am very fed up today and find myself shakey and tight chested whenever i try to think about it all.its also my 4 year cancerversay today too.
Xx nods
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Noddy- I would definitely check with your MO before taking anything that affects E. Ugh. It's always something.
I just cheered myself up a bit by designing a holiday card with pics of Jack and Tutti and me. (50% off today at Vistaprint-was really easy). I would love to send holiday cards to anyone who would like one who doesn't think I'm a "stalker off my rocker". Haha..
Just pm me with your name and address and your screen name. I will never share your info.
Hugs to all. Going on my walk now. Taking the usuals in my pocket.
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afternoon all,
Shorfi, good info on the no surgery or stuff from Laser Spine guys. When I was doing physical therapy at my place a number of months back, I mentioned to one of the med guys that some of these places want your MRI faxed to them first (not sure if Laser Spine was one):, He was totally against it and well he and his team do not like surgery or shots actually. Did I tell you I have been doing chiropractor twice now? and believe it or not, today my back is real happy. I also changed up some of my water things but really think the key for my dumb back is the chiro plus massage thing.
Ducky, forget if I mention it or not but a couple of years ago I had a nasty bought of vertigo. Did loads of tests and at one point the neuro surgeon wanted to do brain surgery! yikes!..A pal of mine was even trying to encourage me that it was something her SIL had had done and happy with. My family has big heads (we all have over sized heads) and the stupid surgeon and my pal thought that it meant I had water on the brain and needed brain surgery! I got a second opinion who said no, likely since it was only once, it was like some infection and we would never know why. Couple years later I had sinus surgery for sinus polyps so I asked my ENT what he thought of all that. He said the vertigo was a symptom and not a desease so it might have been a sinus infection but since no more.....no way of telling.
Ducky, I know you do not want to think of never knowing the cause but it may likely be a symptom of something else. Hoping for nothing more for you.
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Shorfi, I'm sorry you are still dealing with this pain. When you are in pain all of the time it is exhausting. Your body and mind never get a chance for some peace. I'm sure your DH understands. I snapped at mine several times. There are so many different pain management options available; I hope they quickly find the cocktail that helps you. Have you called your insurance co directly to expedite approval? My DH did this a few times and it really sped the approvals up.
Ducky, I hate meds, too. BUT the best meds have been the antidepressants! You should consider them. For me, they took the "edge" off and allowed me to get out of bed and put on my "big girl panties". I was no longer teary eyed all day.
Thanks for the hugs Mommy!
I'm still in my robe, but should get ready to drive carpool! Where did the morning go?
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Poppy,
what a lovely view..blue skies after rain...
Gaia,
That's a great thing you posted. Important to remember that stuff..says she who never does....the herceptin tends to make me a bit urpy digestion wise but other than that no biggie hope it's the same for you. I was using a mmj hard candy lozenge, and sometimes sublingual drops for chemo/and or herceptin nausea (my MO recommended it) it worked better than all the pharma stuff which made me super groggy. I feel like Ducky when it comes to drugs..don;t llike to take stuff that messes up my head anymore than it is naturally.
Ducky,
I hope you;re feeling a bit better. I get the strong thing..we took care of my only sister who died in '10 from kidney failure, then I took care of my mom (ovarian cancer) for a year until she died in '13, then we took care of my dad who also died after a fall at the end of '13..then I spent months sick with Camphylobactre in 2014 and finally caped the year off being diagnosed with cancer again..sitting right back in the chemo chair where my mom had been sitting a few months before. I hope this day finds things a bit better for you Ducky
Shorfi,
Hope you get some relief soon..at least here you can vent and as you said everyone gets it.
Tom,
I like little stuff too, and after bc 25 yrs ago I started collecting these little stuffed mice wearing clothes (nurse mice, ballerina mice etc) ..I had them all over, now I don't know where they are..maybe I threw them out.
Jack,
That Christmas card sounds cute....Patsy is off and on about posing for pictures..I don;t think we could get her to sit still for something unless we were holding her down! Looking forward to seeing the pics of you and Tutti.
Rainn, Slow, Proud, Noddy, Not, Cubby, Chevy...I know i'm forgetting someone/s..CT is getting a population boom!
Off to work ,check in with you guys later!
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AAAAAAAAAAAAAAAAARGGGGGGGHHHHHH!!!!! I wish I could fix all of this, for all of us.....
for some reason, I am feeling like an idiot lately whenever I try and say something, so I am gonna leave you guys to it... Anything that comes out of my brain or mouth lately just sounds stupid... I am gonna see if I can forget about my self today, immerse my self in some task... I will use my day like a meditation/prayer for all of us... believe me, we SHOULD be sick of all of this stuff. Holidays are coming, and it just doesn't seem celebratory, it just seems like something else to have to do..like a slog. Where is my joy?
I am admiring of our absent mayor who always mentions everyone specifically by name, but I know she is thinking of all of you, and loves you all for being here.
I hope something tremendously good happens to each one today, to lift your spirit, and bring the light back into your life
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Tomboy- you have never sounded like an idiot.
Thanks though anyway, for the warm thoughts. I need them! x
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Well, shit. Today has turned into the worst kind of day for me. I can't explain without coming just a bit more out of my shell of anonymity.....but you are my crazies, you will understand, and I have to tell those who will understand. I especially feel bad to post after Tomboy's post hoping something good happens today for each of us. Maybe the best 'good' I can hope for today is that I can learn to be a little less private and fearful about people's reaction to knowing I have bc, because I am just about to inch a bit (and just a bit) further out of my own shell.....albeit with bad news....
Anyway, you can find more information on the 'net (it has hit the national news) so I don't even need to name names here (to give me a bit of pretense of privacy protection from Google), but this is why I am heartbroken today: the university campus I work at had a stabbing and shooting today: five people stabbed by a person (not clear if it was a student or not, but apparently it was) who was then shot and killed by campus police. Two of the stabbing victims were airlifted to local hospitals. There are rumors one of those didn't make it, although that hasn't been substantiated as of yet. Campus is on lock down and closed for the day.
My office is very close to where the shooting occurred, in fact you could see it from the windows in our break room right across the hall. Thankfully, I was not on campus: the events happened fairly early in the am, and I was just leaving home for campus with my mind on my first meeting of the day when I got an alert text from our emergency system (which worked as it was supposed to, yeah for that at least). Within five minutes I had a second alert and it was obvious that there was no point in coming to campus.
So I am fine. Still, I am not ok. I am heartbroken. This happens too damn much, and when it happens at home it just hits too hard. We still don't know who the victims are and I am anxious and worried for friends and colleagues who haven't checked in yet on FB or via official email channels. But regardless, I am heartbroken for the entire campus community here. We are a small institution and many here feel like family. It is my home. This is probably the saddest day since the campus opened ten years ago.
Hugs going out to all of you. Send hugs back. And reach out and hug someone you love today, for me. As Christine's list pointed out, I think, sometimes life can turn in a heartbeat.
Love to all;
Octogirl
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Poppy. thanks for the lovely view and information on liver enzymes; the more I hear from you ladies the better I am able to get through the days with some peace and calm. Still no test date yet but I am trying to put the anxiety on the shelf until I absolutely need it.
Shorfi and Ducky...sending you some good vibes and hoping for better days ahead for you. My Yogi says at the end of every Yoga class..."the light in me honors the light in you"...wishing you some light to fill up the spaces where sadness and pain and depression dwell today.
Katy, hope your walk was good.
I'll check in with y'all later ~ Mary
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octo, so sorry for that, truly is horrible
glad you are safe
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Good Morning Crazies!!
I'm sorry I wasn't here to properly welcome the newbies!! But it's never too late, right?? So here goes!
MEG2 & Marie. Welcome to our thread!! I'm so glad you both found us.
Here is your Crazy Town kit consisting of a flashlight, magnifying glass, mirror and coconut oil. Please use all items wisely. I think Tomboy is still working on the medicine bag.
Marie, You have been through more than your fair share this year. I hope your husband is doing well after his stroke. Sending you gentle hugs and best wishes for tomorrow. We will all be in your pocket for your biopsy. Please let us know how it goes when you can.
Octo, We are in your pocket for your RO visit today!! You've got a lot on your plate today. Safe travels. Thank you for the kind words. I hope your knees start feeling better soon!!
Cubbie, Good luck today on your Oncotype results!! We will all be holding your hand. I hope your support meeting went well last night. My DD colors all the time to relieve stress. She said it works really well.
MEG2, Sorry to hear about your elevated liver enzymes.I had problems with my ALT level when I was going through chemo, but all resolved after a few weeks.I stopped taking Tylenol and pain meds. Not sure if that was a contributing factor to them coming down or not, but I know both can be hard on the liver. Please let us know when they do your CT so we can all be in your pocket.
Ducky, Not knowing really is very frustrating. I hope with each day that passes you find yourself getting more confident that it won't return. ((((((Ducky))))))We all love you!!
Poppy, I'm glad the young man had you to talk to. Some kids have rough lives. You really are a wonderful mom and person. Thanks for sharing the view from your front door! My mind is loving the cooler weather....Just need my body to follow along!! My DH is like you Poppy - all unicorns and rainbows. I guess we balance each other out. I think without his positive attitude, I may not have made it through my illness before BC. Have you tried Biotin for the hair? I know many women get good results. Stress can make my hair fall out. I think you may need an extra one of these today ((((((Poppy))))))!!
Lucy, I miss see you and talking to you. How are you feeling?
Tomboy, Love your Shopkins. It's always fun to finally have the childhood we've mourned!! You NEVER sound like an idiot. Thank you for being such an unbelievable friend. Thank you for your kind words.
M0mmy, Hugs right back at you!! (((((M0mmy))))
Sula, Scully and Mulder....hahahaha...that cracked me up!!
Notagain, I didn't see any news from you. I hope I didn't miss it. Did you talk to your BS? Thinking of you!
Rain, I'm happy to hear you've made a friend to help with the insurance issue. I hope it's settled soon so you can concentrate on other things. Wow, Friday the 13th??? Not what I call a great birthday present. We will have a party here in Crazy Town for you!! What day is it???? GREAT news on your DS'sSAT results!!! Wooo Hoooo!!
Shorfi, So glad you had such a good time with the girls!! I hope the patch give you some relief from your pain. Sorry you're feeling blue. Here is a hug in addition to M0mmy's ((((((shorfi)))))).
PTS, Very traumatic losing your dad at such a young age. Loved the "pulled poverty" story.
Chevy, I apologize to you. When I read through the post the last time I was here, I missed the part about the difficult time you had as a child. No child should ever have to feel that helpless in their lives. I'd love to be the one to dole out the justice for adults that take advantage of kids in that way. Great big gentle hugs to you and your smaller self. Thanks for sharing that part of your life with us.
JAN and other CA gals, we finally got some more rain!! Thank you for asking about me JAN!!
Gaia, Thank you for your good wishes. I'm glad the MO was able to give you the affirmation you needed to remind you your spirit is strong. I know it's felt strongly here in CT. Keep believing in yourself dear sister. I love what you posted. I printed it out as a daily reminder. My condolences on the young man that came into your life for a brief moment. I hate cancer.
Katy, I really can relate to how you feel. Just when we think we have a little breather, another surgery is on the horizon. It's physically and mentally draining, especially on the anniversary of a PAST surgery. ((((((katy)))))....Stalker off my rocker!!! That did make me laugh. I look forward to see your card.
Noddy, Excellent news!! Doing the happy dance for you!! Oh wait....just read about the shots. Sorry you have to go through that every month. Happy 4 yr. beastfreeversary!!
Chi, I'm really putting some thought into your post. I must take some time to read the attached article when my body will allow more computer time.
I'm sorry I've been away. I've had some difficult challenges with my RA the past couple of weeks, making it very hard to sit up at a computer. I have faith that there is light at the end of the tunnel. I couldn't get a shot at my last RA appointment because I had a sore throat. As soon as that's completely gone, I'll be running to that doctor!! haha....ok...maybe not running....but, I'll be gimping pretty darn fast!! haha
The marker for Sjorgren's disease was negative (good news!!). Just when I remember how to spell it, I find out I don't have it.My blood test came back and my c reactive protein is 39.9 - normal is 2.9. My sed rate is also high at 75 - normal is 0 - 30. Both of those tests measure inflammation in your body. Now that Sjorgren's is ruled out, I'll go back to my RA doc and see where we go from here. I'd be lying if I didn't admit to being a bit frustrated. Small comparison though to what so many of you are having to go through. I'm glad we have each other to get us through the challenging days.
Love to all....quiet crazies too!!
No proofreading today. Please ignore any typos.
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Oh no Octo! I was typing away when you posted.
How truly awful. I'm so sorry. Thank God you weren't on campus. I just feel so badly for all that were involved. It really is a reminder to embrace each day we have. Gentle hugs to you sweet Octo. ((((((Octo))))) We all love you and I'm so relieved to know you're safe. My condolences to all that were involved - along with their family and friends.
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I never was into coloring books, but I loved those Venus Paradise color-by-number kits using colored pencils--the more intricate, the better. Sort of like needlepoint for klutzes. Art supply stores used to stock these pencils well into the 1980s. Anyone know if anyone carries these any more? Or if the blank pix can be downloaded?
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Octo, just tuning in to the news this afternoon with one of my kiddos to hear the news of your campus...So, so sorry you have to go through such a tragedy. I will be praying for your colleagues and student population. Perhaps your experience with BC makes you a good person to support those who were there and the trauma they will be facing. When will it end..
Thanks so much for the welcome SDB...glad I found this group. You all are at the right place at the right time.
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Octo, I am so sorry about your campus, sorry for the victims, for you, and for the sad state of affairs our culture seems to be in at times. I hadn't heard about it until I saw your post. I'm praying that they all will live.
I was thinking of opening a museum in CrazyTown. A museum of inspiration. In this museum will be mostly commemorations of people who've faced trials in their lives, and who in so doing, have left clues, flashlights, breadcrumbs, to help us at our darkest moments. One of the portraits in my museum is Nelson Mandela, who not only survived 27 years in prison, but found a way to live. I read his biography when I was first diagnosed and it helped me to find fortitude to bear my trials. Anyone can put up portraits/quotes and I will put up more as I go along.
Hugs to all-
xoxo
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I am intrigued by the adult coloring books, where do they sell them? guess online but book stores I suppose or art supply places? need to do some checking as would like to try them, seems relaxing
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Octo.........all I can say is OMG...........and thank the Lord ;you were not part of this.....................hugs
In Pa. we went through Sandy Hook, with all the kids, and others but that was the worst one
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Ok, I do need help........Sandy Hook was Connecticut.....I know....how the hell did I screw that up..........thank Goid my kids didn't see this.....
Ours was the little school house in Amish country in Lancaster, Pa. where the freak stood all the kids and teacher against the wall and shot them.......a few years ago................what was so horrible about that is..............the Amish are the most peaceful, loving people in Lancaster, and they bother no one.......not a soul..............
Sorry ladies, my bad....I'm sure by now your thinking......Ok, there is somthing wrong in her head...........
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ducky, you are just worried, maybe we should both be doing some coloring books?
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hahahahahaha. If what you just did warrants a Life Alert bracelet, I better be right in line behind you.
Remember - What's said in Crazy Town, stays in Crazy Town!!
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Coloring books...............next thing they will be giving me a crooked bed sheet and tell me to fold it till I can get it straight.........busy work in the psycho ward..................
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hahaha Ducky. Just don't mention that you hang out in a place called Crazy Town. They'll be coming after you with the big net.
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The coloring books can be bought at Michael's or Joann's. Amazon has them, too. Even though they are just for fun and relaxation, I would chose books that have a bit of quality to the paper (all of the ones from the suppliers I mentioned have been good). I use colored pencils, but you can also use markers, crayons and so on.... or a combination! I choose nature/animal themes because well, I like them and also because the flora and fauna can be any color I want and not make me feel a bit crazy. Here's a link to some at Michael's. The $5.99 books are fine. http://www.michaels.com/drawing/adult-coloring-books/851315821
Octo, ((hugs)). This campus violence is a frightening thing. I remember when they opened that campus. I haven't been there, but it must be beautiful. I hope you feel secure coming out of your shell. This summer, I met the California Dreaming ladies in real life and it was amazing. It was strange to know some truly intimate stuff about some of the ladies, but we all went through this BC crap. The kindness and warmth of these ladies was wonderful.
Tomboy, Those figures/toys are adorable. I think my DH is afraid that I just want to collect pets.... or children! But then, I've always behaved like everyone's mom when I'm around kids. I am a crazy momma bear looking out for all of the cubs.
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This is such a true quote......................
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poppy, thanks I looked them up on line and figure I will do some exploring tomorrow, gee you can spend big $$$ on them so think I will start with the 599 ones, think I may like this!
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The some of the $5.99 books are less on Amazon.
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Octo- I have been off line all day and just read your post. My eyes are filled with tears and my heart is breaking for you. I know there's nothing I can say right now. But I'm sending as many hugs as you need.
Katy
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