CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.

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  • Noddyneevy
    Noddyneevy Member Posts: 9
    edited November 2015

    hi notagain

    My appointment is at 9am irish time.

    I am so loving all your posts ladies ,its so so great to have found you all x

    Will post tomorrow and fill ye in

    Thanks for listening

  • rosesrx
    rosesrx Member Posts: 264
    edited November 2015

    "Rose, are you saying that you had mac 'n cheese and egg sandwich in the same meal? Because if it's true, I would very much like to be you!" Why yes rain same meal a carbolicious// - dairy, grains + oh yes add mustard for the beneficial effects of the turmeric.

    Gaia. triple the H triple the time, 90 min for me. No tachy, but heck it could have be hyperthyroid causing the issue + the decadron + stress. Hope insurance approves and all goes well with the wedding site hunting.

    The front store at Cracker Barrel has Peanut Butter Cups 1/2 lb size (at least) Calorie count 2000 + per cup and comes in a 2 pack. Also had a Rice Crispy treat 16 x 24, I was behaving myself and had veggie platter.

    Noddy, I agree fireworks, wrong holiday. Cancerversaries suck especially when you have added traumas. Welcome and gentle hugs. Will be with you in the AM sending good Juju.

    NotAgain, Welcome and sorry you are here but glad you found us. I am sure you have been welcomed by the mayor. I am a two timer.. Second primary triple positive. My complex cyst (that I had named Larry, Mo and Curly) went rogue at the 5 yr routine screening.

    Octo, I am happy to report that the taste buds do come back, Glad you had a pleasant get-a-way for your anniversary.

    Ducky...I am catching up on the last 4 pages.. Hope the hospital visit was to spend time with a friend. Thinking of you... reading on. How scary to be there and not. First thing I though was she has been taking Ambien and doing the sleep cooking/eating thing. We will be in your pocket for your follow-up and hope you get some answers. DAMN RED SOLO CUP !!! ha ha. I keep my meds lined up in a pill minder- jumbo size.

    Finally got smart and started typing and previewing as I read. Hope I don't loose it.

    ChiSandy. How much of the 2 lbs of candy is left now?? Wow that is a lot of trick or treaters. I am at yr 17 of nada! Of course I was driving the interstate and didn't get home til 7 30 or so. Great visit with the nephews. (dn's ??) Will get to see them Thanksgiving weekend.

    Had a nice All Saint's Day service at church. Lit a candle for Mom. Been getting some God winks this past week.

  • rainnyc
    rainnyc Member Posts: 801
    edited November 2015

    Oh, Ducky, Ducky. How unsettling and scary. I hope you can take a deep breath this week and that things settle down. Please keep us posted!

    Crazies, I woke up this morning to a major Crazytown email from the NY State Dept of Health. It seems they are now closing my insurer not on Dec. 31 but on December 1. So I need, in the next two weeks, to choose an insurance company in time for it to take effect in one month. It need not be the one I choose for next year--but all this will be happening while I'm undergoing rads, and it's hard to see that I'll want three insurers in three months. And of course this will be for the whole family, not just me (though DH and DS are reasonably healthy). So this is a huge change from what we were told, and I'm anticipating having to drop everything tomorrow and get on the phone--with the hospital's insurance dept, the NY State Health Dept, various choices for insurers, a broker I've been speaking to. Not looking forward. Would like to have started today but of course everything was closed. Meanwhile, since the current insurer seems to be pretty much insolvent, I'm desperately worried about my outstanding claims, which include surgery late Sept. Yoiks.

    Still, with nothing that I could do today, we did go out to the NY Marathon, which passes only a block away. It's really fun, a big, citywide party. The weather was beautiful, and we saw runners from at least a couple of dozen countries, from huge corporations, in college shirts, in full Halloween costume, and not wearing much of anything (socks, shoes, tiny shorts)! Many people running to raise money for various causes: the top three seemed to be Alzheimers, ALS, and cancer. There is a team called Fred's Team, which raises $ for cancer research in honor of Fred Lebow, longtime president of the marathon, who died of a brain tumor a number of years ago. DH's music school had several student bands playing, and a few blocks away there is a parochial high school that has its band, which is enormous, playing the theme from Rocky over and over for hours. The runners love it!

    For fun, I've attached pix of DH with some of his students (tall guy top hat), DS looking like a teenager, and a photo that tries to show what it's like when things start getting really crowded with dozens of runners passing by every minute...

    image

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  • octogirl
    octogirl Member Posts: 2,434
    edited November 2015

    Afternoon crazies....honestly, re-entry is hard. Woke up feeling fine but as the morning progressed, started having a lot of pain in my upper back and my knee (with a bit of difficult walking, knee seems to be swollen) plus bad heartburn. My vision is taking a turn for the worse also... Ok, so while I was on vacation I had almost none of these problems. So now, feeling a bit like going down to the basement for a bit, and feeling a bit like a whiner for feeling so. Honestly, I just want to cry for a while.

    I had big plans and a big to do list for today but have managed not to do nearly all of it.

    Looked at my schedule for the week: normal work stuff, not much on it that is unusual except visit to the RO (Wednesday). This could be part of my stress, I suppose (?). With one more round of chemo scheduled on 11/9, I anticipate starting rads right before or right after Thanksgiving. We had already identified a RO for the rads who had the very distinct advantage of having an office about 1.5 miles from my house. We met, and I liked him, though I thought his office had a sort of weird vibe. However, when I mentioned his name to MO, MO made a face...I possibly could have tolerated that, but then MO's NP (who I really like; for that matter I really like MO as well) told me she had worked in the same practice as RO and wouldn't dream of letting one of her family members get treatment there....

    Ok then. Off Wednesday to meet the RO that MO recommends most highly. The only problem, and it is a significant one, especially this time of year as the weather starts to turn, is that his office is a good 35 to 45 minute drive (each way) from my house (with no public transportation options available). ( Ok, I hear all you New Yorkers chuckling over my concern about rain and fog, or for that matter about 35 minute drives: but hey, my work commute is five minutes and as for the predicted rains to come: it has been so long that we've forgotten how to drive in the rain. And of course we are all praying for it. But I digress.....)

    One of the purposes of the visit is to evaluate whether or not I am candidate for the three week version of Rads (this RO is the only one within sixty miles of me who does it, it wasn't even an option with the guy whose office is just up the street). I can tolerate that distance for three weeks, but for six, it will be tough. And of course it will ground me right through the holidays....(not that I mind that so much). It might even put a damper on the ocean thing for NYD but if I am wearing a dry suit I see no reason why I can't at least get in the water (no water would touch the rads site with a dry suit).

    But I digress again. I think I am just depressed and READY for this to be OVER, and today, without the distraction of mother ocean, I realized that crap, it is far from over....and besides, if I can't walk any better than this just with my normal arthritis, what the hell will AIs do?

    My other stressor: It was SOO nice to be somewhere where no one knew me and I could go anywhere and not feel self-conscious in my hats, scarves, whatever. I walked everywhere, went to the beach, to the store, out to dinner, museums... Even at the work event I attended it was either folks who knew the deal or who see me once a year at the event, so it was ok. But when I got home I realized I didn't even want to open the door for the trick or treaters (because I work with many of their parents) or go to the store (I know all the checkers, and they might give me the pity look). I just live in too small a town to feel this way, but I do, and it makes me feel a bit like I am stuck in home arrest. Yes, going to work, but no, not enjoying it at all....Hoping that it starts raining SOON so that I don't feel so weird in my hat collection....

    Still, seems like just petty whining compared to what could be going on. But thanks for listening anyway, crazies. Knowing it is ok to whine to you just pushed me one step higher on the stairs.

    Octogirl

  • cubbie2015
    cubbie2015 Member Posts: 773
    edited November 2015

    Great pictures, Katy!

    Ducky, we gotta get you something besides a red solo cup to drink your water from. LOL Gives the wrong, impression, ya know?

    Rainny, hope you can get all this insurance stuff straightened out quickly. You so do not need this stress during treatment. I like the marathon pics, I've never been there, so I didn't know what it looked like, although my nephew has been in it before, in addition to this year.

    Octo, I spent some time in the basement today, too. Ducky and I were sitting on the bottom step, but Slow has the door at the bottom locked, so we all have to come back up. In the meantime, at least we are together. You are not a whiner, we are all going through difficult stuff and we're allowed to feel what we feel.

    I would go with the RO who is better regarded, even if it is a nuisance to get there and back.

  • minustwo
    minustwo Member Posts: 13,359
    edited November 2015

    Octo - if you can afford it, give some thought to staying over some nights for the further RO. My son suggested that when I was doing chemo & had to be back the next day for Neulasta and it was a life saver. Like maybe stay Monday night and go home after tx Tuesday, then stay Wednesday night and go home Thursday. Or stay Wed & Thursday nights. It's all about you girl, so think about making it happen. Or keep the thought in reserve for the last week of rads if you have to go the 6 weeks and are really tired. Good luck when you meet the "better" doc.

  • chisandy
    chisandy Member Posts: 11,408
    edited November 2015

    Ducky, hang in there. My f-i-l began, at 87, to refuse to drink water (a holdover from his macrobiotic Zen days even though he’d returned to Catholicism). He had 3 emergency room visits after collapsing from dehydration, and didn’t remember any of them. And I once, after recovering from a cold, developed a really weird hearing problem in which my ears felt alternately stuffed and suddenly wide-open, with sound reverberating and pitches in one ear 1/4 tone higher than in the other. All unamplified acoustic stringed instruments, even my most expensive acoustic guitar, sounded like cheap Wal-Mart solidbody electric guitars being strummed unplugged--and horribly watery and off-key especially compared to vocals. (This in the midst of a week in which I had four shows to play, including a folk festival). Hearing tests, ear exams and brain MRI all were negative (no, I don’t mean they went looking for a brain and found nothing between my ears). Neurotologist accused me of being “too picky about pitch” (!!!). Finally demanded prednisone and took it with vit. E, antioxidants, manganese & vinpocetine (based on medical journal articles on sudden sensorineural hearing loss)--and it cleared up within four days. Still no idea to this day what it was--working diagnosis was “atypical Meniere’s syndrome” (“atypical” meaning no vertigo or nausea) because they ruled out everything else. The Life-Alert thing is a good idea, but I’d suggest you get it in pendant form instead--you can hide it beneath your clothing and still access the button when you need it. You’re less likely to wear it as a watch if it’s ugly (unless you lie and tell everyone it’s a “smartwatch,” in which case millennials will be impressed).

    Octo, even though we have to drive on ice & through blizzards and occasional tornado-spawning downpours around here, I’m not going to deride your reluctance to drive long distances through rain & fog: we used to rent a timeshare at San Vicente Tennis Ranch in rural San Diego County. Some of the scariest driving I’ve ever had to do (and I’ve driven in frog-stranglers across Alligator Alley between Sarasota and Ft. Lauderdale) was on those twisty unlit mountain roads after dark in the rain and fog between the freeway and the resort. Nonetheless, if I were you I’d opt for the shorter protocol with the more illustrious RO. It’s a longer drive but you’d have to do it for only 3 weeks instead of 6. Just get fresh wiper blades and new headlight bulbs.

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited November 2015

    Chi...........it looks like I mugged a 4 year old for their McDonald's Happy Meal Prize........image

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited November 2015

    Ladies thanks again for you concern..........I have had vertigo........very ugly stuff......

    I do have 3 pill containers.....its me I just am careless.......excuses.......oh I didn't eat yet.....oh its too late in the day............oh this, oh that.........my own damn fault...I just hate taking medicine..........

    I went from a very healty person to a heart attack in 2007, BC in 2011, and now this crap......guess I was not as healthy as I thought......99lbs before marriage.......6 kids and many years later.....weight gain, which they say causes cancer......not buying it.......I see massive women who do not have it and they are just a tad younger then I am.

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited November 2015

    So to continue..........I have no clue what caused this........but whatever it was........I will have to deal with it.......also.........they did oodles of bloodwork..............it came back that I was not dehydrated.......all bloodwork was fine.............so who tthe hell knows..............

  • queenmomcat
    queenmomcat Member Posts: 2,020
    edited November 2015

    Is the bracelet something you have to activate if you want help? or does it relay XYZ to someone on the other end?

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited November 2015

    Hi Ladies....just got this picture from my grandaughter......she is a nurse in the NICU at Children's Hospital in Phila..............

    This is the new shirt they were just given to wear in work...........is this sweet or what.image

  • octogirl
    octogirl Member Posts: 2,434
    edited November 2015

    Rain, somehow missed your post earlier.....loved the family and marathon pics but hated the news about insurance! You must be terribly worried! However, I suspect that you don't need to worry about claims, either pending or until it is cancelled: I am guessing that the State Insurance Commissioner's office or Dept of Health (which insurance commission equivalent may be under in NY) has to cover them. That is probably why they are now rushing you to switch now: to minimize their own damage. I know it is small comfort, but the NY Dept of Health is considered to be one of the best, if not the best, in the country in dealing with issues like this. Still, what a horrible pain!

    Octogirl

  • cubbie2015
    cubbie2015 Member Posts: 773
    edited November 2015

    Ducky, you'd think they could make that thing a bit more stylish.

  • suladog
    suladog Member Posts: 837
    edited November 2015

    Tomboy,

    That is genius!!!!!!

    Jack,

    Hope your feeling a bit better sounds like you're recovering from the whirlwind that is entertaining. Bet you're glad Oct is done... I know I am!

    Poppy,

    Love your sons' costume!

    Octo,

    Glad you had a great time. I sure hear you about the taste buds. I think that was one of the worst things for me. Putting stuff in my mouth and just getting meh!

    Notagain,

    Hope you're getting to like Crazy Town

    Noddy,

    Good luck tomorrow

    Ducky,

    That is alarming, glad you're back home ... Ok now a but of outhouse doctoring....I'm not a doctor but I've written some Doctor characters. Did anyone check you out for a UTI? My mom once had symptoms like that and that's what they were related to. The symptoms sound like they might be related to that, just guessing but that was the first thing that popped into my pea brain. Also I agree w/ Chi dehydration can do that too. I saw that with both my parents and it came from the two things I mentioned.. Btw they both lived into their 90s and died with all their marbles, but dehydration and UTIs can do strange and sudden things

    Gaia,

    I love that saying.

    Shofri,

    A night out is always a good thing.

    Slow,

    Sounds like you had a nice Halloween I always love seeing what the kids decide to wear. We had one girl who came dressed as Birdman with big wings. You do such a great job keeping Crazy Town going and keeping an eye on all of us

    Well crazies,

    I know I'm forgetting a LOT of people .. I had my herceptin on Fri my MO and I were talking I have only two more herceptin so and then the port removal. We talked about what next. I'll be seeing my mo( female his partner) every three months the one who doesn't mind my referring to my vagina and then 3 months after that him where we will not talk about lady parts ( since he gets all red) so Inwill be seeing one or the other of them every 3 months which makes me feel comfortable. Last night was Halloween so I carved some pumpkins


    image

    Lit up the path through the garden and we had a party including one of my nurses...I served Jacques Pepins birthday cake

    image

    Dark chocolate mandarin orange.

    Anyway cleaned up today. My head started feeling better as soon as I posted here about it... Magic??? I mentioned it to the mo along with future plans for a colonoscopy once the port is out. He was pleased that all my lady parts exams came back clean as he said a lot of people just don't see anyone but the oncologist and he was happy that I keep up with my regular check up stuff. Can't say I'm looking forward to the colonoscopy part.

    Back to work tomorrow, take care crazies!


  • SlowDeepBreaths
    SlowDeepBreaths Member Posts: 6,702
    edited November 2015

    Good Evening Crazies,


    First things first....

    Noddy, We will all be in your pocket tomorrow.

    image

    Sending our collective best wishes!! Please let us know how it goes when you can.


    ChiSandy, Welcome to our thread!!

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    Please pull up a chair and relax. Here is your very own Crazy Town kit consisting of a mirror, magnifying glass, flashlight and coconut oil. Please use the items wisely. That was very precise candy counting, I'm impressed. Are you an accountant by trade?? haha


    Eggroll, hahaha....that was funny. I think a coffee mug is a great idea!! Sign me up.

    M0mmy, Welcome home!! So good to see you back here. We missed you. Hope you're starting to feel better.

    Gaia, Such wise words. Hope your weekend was peaceful and pain free.

    Shorfi, I think you may need one of these. ((((((((shorfi)))))))....I hope you had fun with your friends if you went.

    Octo, we will all be with you in spirit on New Year's Day. Hang in there - it will get better. Chemo is cumulative....you're almost to the chemo finish line. Remember, it's NEVER petty whining here in Crazy Town. Yell, scream and get it all out!

    Ducky, Maybe you can put your meds in the red solo cup so you remember them? :) .....we can pretend your new watch is a teleporter taking you to any place in the world you want to go. Then we can make up imaginary stories of your adventures. The t-shirt IS very sweet.

    Rain, Great pictures...thanks for sharing. Such a fine looking young man. You must be so proud. All teenagers have that same look - it's universal. I hope the phone calls tomorrow offer some resolution.You deserve a break here.

    Katy, The love between you and your friend is apparent. Such lovely pictures. Thanks so much for sharing them. Beautiful as always!

    NotAgain, I hope you get that call from the BS tomorrow. Waiting is just awful. I hope once your treatment plan is in place, it gets easier for you. Big deep breaths.

    JAN, Great news for getting the all clear for six more months!! Doing the happy dance for you!!

    image

    I'm not sure how accurate an x-ray would be in showing mets. I would hope if your MO suspected mets, he would order a CT scan.


    Chevy, I noted on my spreadsheet that you were dropped on your head when younger. We will keep our eyes peeled for ANY strange or risqué behavior.

    Very sorry to hear about your friend of 65 years. That must be so incredibly hard to see her that way. How very fortunate to have a friend for so long. Breaks my heart hearing you describe how she didn't know you. You just must believe that she DOES know you, but something has gone screwy in there making it impossible to communicate the way she used to. Having that friendship for so long, you ARE in her heart and she IS in yours.....that bond can NEVER be broken. I hope she is able to come back.

    Lucy, My DH and I ran some errands. We also stopped at Starbucks for an iced tea, and I waited out in the car while he picked up a few groceries. I'm as slow as a turtle, so he can be in and out before I'm even out of the car!! haha

    PTS, The pill holder is a great idea if you can remember where you put the holder! haha....I've always lost track of mine.

    Cubbie, I DO have that door locked. Basement steps are ok for a little while, friends can visit us there. Deep down in the basement is not a place any of us want to be. I think it must be something about the time change. My mom had seasonal depression and it always started with the night the clocks were changed. There's something in the air today. ((((((Cubbie)))))

    Minus, That's a good idea about staying over for rads. My drive was an hour or more each way depending on traffic. I wish I had done what you suggested.

    Sula, Good to see you. The cake....oh my, looks scrupulously delicious! Nice pumpkin carving abilities. I love seeing the costumes too!! Glad to hear you're feeling better.

    I'll be taking a couple of days off from posting. I'm in the middle of a flare (I'm starting to look like a blowfish), and it's difficult for me to be at the computer for any length of time. Also, I'm too uncoordinated and impatient to type on a tablet or phone!!

    Don't think I won't be reading what you're ALL up to. I got my eyes on ALL of you! hahahaha.....I think the next most craziest should take over mayor duties...ummm......Tomboy??? heh heh

    Love you all...quiet crazies too.
  • chisandy
    chisandy Member Posts: 11,408
    edited November 2015

    Ducky, I agree that is one hideous-looking “watch." My profound sympathies. As ugly as the pendant is, at least you can wear it where nobody can see it. And then make your kids buy you a pretty bracelet. As for pill management, I use the AM/PM pillbox for travel. At home, every night I use three shot glasses, all different. My night pills, which I then take immediately, I put in the smallest glass, which is faceted. The morning pills go in the slightly bigger plain shot glass. The gummy vites, which I take in the morning or afternoon, go in the measuring shot glass. Before I go to bed, I put them atop the lockbox on the kitchen counter where the pills are kept.

    Suladog, that cake photo (and description) made me drool.

    Slowdeep..., not only am I not an accountant by training (I’m a mostly-retired attorney and fulltime performing songwriter), I absolutely stink on ice when it comes to math. Helped last night that the piece counts were on the candy bags. We actually had three people tallying the trick-or-treater count for the neighborhood (6 single and 2 double). Official count was 1385 via “clicker” and 1500 by survey of piece count. My double block had the highest number--670 (same as I counted). About 1.95 lbs. out of the 2 are still left. They’re mostly variations on milk chocolate, and I’m a dark-chocolate kinda gal.


  • m0mmyof3
    m0mmyof3 Member Posts: 9,764
    edited November 2015

    Hugs to all who need one

  • PoppyK
    PoppyK Member Posts: 1,275
    edited November 2015
    Thanks for the hug, Mommy! I'm actually just going to bed.

    One of my son's friends is over (the one who is an emancipated minor) and he needed to talk. Poor kid. He told me so much about his life and how he became emancipated, starting with the time he witnessed his mom's boyfriend try to kill her. Sadly, adults, the police, his family and the "system" have all let this kid down.


    Ducky! I'll say an extra prayer for you!
  • Chevyboy
    Chevyboy Member Posts: 10,258
    edited November 2015

    Ducky, I was just thinking.... Were you taking something like Ambien .... a sleep aid? I've heard of crazy things happening when people take this..

    http://www.drugs.com/answers/can-ambien-cause-amne...


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    Okay.... this could be you.....

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    And if you're not taking, or never had taken an Ambien.... never mind....

  • octogirl
    octogirl Member Posts: 2,434
    edited November 2015

    ChiSandy...I like your system....but umm...am I the only one who thinks that maybe the pill taking could be followed by a shot or two? :-) JK!!!!



  • octogirl
    octogirl Member Posts: 2,434
    edited November 2015

    The rain has come to the Great Central Valley!!! Real rain! and even more importantly from an ecosystem standpoint, snow to the Sierras! This is A BIG Deal! I woke up to the glorious sound and ran out to feel it on my (mostly bald) head...Rain dancing going on here!!!! Basically, if it rains every day this winter the drought probably won't be over, but we need all we can get into our ground, our reservoirs, our snowpack....

    It is a big enough deal that waking up to rain improved my outlook on life quite a bit. That, and the support from my crazy friends...

    Timing is everything in life and I am selfishly glad that the glorious weather we had on the coast last week held out until our return. Here is a pic that shows a bit of that, taken just a few blocks from our cottage

    image

    . And of course, because we all need food porn, a shot in my new favorite bakery.

    image

    Let it rain, let it rain, let it rain,

    Octogirl

  • Jackbirdie
    Jackbirdie Member Posts: 1,617
    edited November 2015

    Octo- I need to visit that bakery. Glad that rain is coming down and things are looking up.


  • shorfi
    shorfi Member Posts: 437
    edited November 2015

    Ducky...The first thing that came to my mind was......is she taking Ambien to help with sleep? I thought that because when I was taking them I did the craziest things ever. I would order from QVC and never reminder ordering. I would talk non-stop on the phone and never had a clue that I did that the next day. I'm not saying this is what is happening with you.....but it just came to mind. I am so relieved all your tests revealed normal results. I know it's hard not to think the worse....but your doctors didn't see any unusual findings....and that is the best news ever...........your children worry about you, and I can understand why they wanted the Life Alert......hoping you are feeling a bit better today.

    Slow...thanks for the hugs....I needed that. My DH had to make me go out with the girls and we had a lovely time. Had great Italian food and enjoyed the opera singing by the waiters and waitresses.

    Sula...a night out is a good thing and I'm glad I went.

    Gaia...hope you feel ok today.

  • Jackbirdie
    Jackbirdie Member Posts: 1,617
    edited November 2015

    thanks for the hug mommy. I needed one this morning. Glad you're back. Are you feeling better?


  • Chevyboy
    Chevyboy Member Posts: 10,258
    edited November 2015

    Shorfi! Great minds think alike...Ha! Watch.... she's probably never even taken it.......

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited November 2015
    Hi too all who care so much...........I will start by saying "no" to the Ambien.....I am a bitch with medicine.....I worked for Big Pharm in Mkt. Research, for 20 years.hate all meds, I know wht they can do to you......and have avoided them all my life..........I wouldn't even take the Ativan they gave me for the plane ride to Chicago on my very first flight to my grandson's wedding 2 years ago...........(That was when I met my Pilot.......quiet Chevy).........lol........

    I am positive I heard them say no to a UTI..they did check that......hydration came back "NO"...............no TMI.....no stroke.........not sure about the EEG.that had not been read when I left.....but I doubt it was a seizure..........you ladies have been super.........so caring and loving......all your suggestions and past experiences with loved ones has given me a tad of hope.......I know right now I am severly depressed..............I was little before, but snapped out of it almost right away.....................this new memory thing has gotten me way more upset then my BC........and my heart attack in 2007.....my heart is doing super there was no damage....mild HA...........BC small tumor.......almost like non of it ever happened............this is horrible.............Why......because they cannot give me answers as to .......what it was........what caused it..........and what "IS" it...................

    HA was 1 clogged artery, not a main one.........BC was a tumor 1.2 inches.....my fat ass probably caused that.....haha..........but there were answers...............proof...........a conclusion.................

    This told me nothing.........only what it wasn't (which I am grateful for).......but good God, it had to be something !!!!!!!!!!!!!!!!!..........you just don't function, yet lose 1/2 hour of your life, and not be able to remember what occurred...............

    Oh well I am killi'ng a dead horse, right......thanks for the love and help.
  • JAN69
    JAN69 Member Posts: 731
    edited November 2015

    Ducky - I can relate to your frustration. I just want to tell you that my DH was fine when his events occurred and still is to this day. Doctors were unable to say what it was with him either. Just want to tell you that your life will return to normal once your shock wears off. Can I take you out to lunch at the Crazy Cafe? Let's go on a day when Sula is cooking. We can tell stories, whose scars are bigger, longer, how our eyes are failing, and the aches of old age. You know, old lady conversation. That cures a lot of sadness for me. Hugs

    Note from California: IT'S RAINING. REAL RAIN. We all wondered if it would ever happen again.

    Slow - Feel better soon. J


  • proudtospin
    proudtospin Member Posts: 4,671
    edited November 2015

    wow, this has been some morning, can not believe all the news!

    Rain, Good luck with the insurance thing, must be lots of folks in your same situation so here's hoping the insurance guy comes up with a good new insurance company and you can get things fixed quickly. I remember going on medicare and doing over the top research and was pleased that I had found a good broker.

    Ducky, betcha someone on here with come up with the reason for your missing 30 min. I was ready to point to dehydration as the cause as I have seen some folks at my gym have problems when they forget to drink up! Drink up but only in a nifty water bottle so folks do not get the wrong idea!

    Octo, love love that bread but my weakness is definitely bread!

    Need to get some food as did a bunch of pool time this morning and well, I am sort of dehydrated now myself!

  • momwriter
    momwriter Member Posts: 276
    edited November 2015

    Hi all-

    Thanks for the kind words about my friends and their lost children. My kids are off on a 5 day trip so for the first time in a long time I get to have long afternoons without worrying about logistics or what food is around (DH is comfortable making food for himself so I don't feel I have to plan a dinner- maybe we'll just go out which we don't often do-- but this little joke saying describes how I would live if I could:

    [I made my favorite thing for dinner--- a reservation!]


    Momma- Love the daily hug- thank you!

    Ducky- how scary for you to lose 30 minutes. My mother-in-law had a blood pressure incident- she kind of fainted/collapsed at the and of a family dinner. She ended up not going to the hospital as my SIL is a nurse and she was monitoring the situation. But her BP was very high. We think she had skipped her BP meds and that may have been the reason for it. It's been over a year and she never had such an incident again. She does live with her husband and neither wear any lifeline thing- she'd refuse anyway-re: DNR she instructs us: take a casserole out of the freezer and walk around the block. Regarding the Lifeline thingy- that's your choice. If you'd been alone would you rather that an alarm was sounded? Would you rather not deal with it at all? Accepting it from the kids to assuage their worry is commendable- but it is up to you. There is often a tension between the agency of the the person with the health issue and the good intentions of the people helping out. Ultimately, you can decide what you want to do. You are an amazing matriarch and give so much to everyone. You deserve a cry, and to sit on the cellar step. But I also like the idea of inching your way up towards the sun. As Gaia said, you are planted and will grow- we are always growing no matter what age.


    Everyone, I don't have time to comment much right now, but I love reading about each and everyone one of you- wishing you all a beautiful day wherever you are and whatever you're doing knowing you are supported by everyone in CT.


    xoxoxo