CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Rainny, the bread looks good. Makes me miss baking!
Decision, welcome! Your poor mom, she has enough going on without bedsores. I hope they heal soon.
I have done some new things since my diagnosis. I started checking out the thrift stores for clothes, since I've needed some new items after my surgery, and it's a good distraction on a Saturday night. I've also read books a lot more. I love kids' books, and I've read the whole Origami Yoda series, Big Nate, and I'm now reading the Timmy Failure series.
I took Ambien years ago when I was unemployed and having trouble sleeping, and I never had any of the side effects people talk about. Now, I'm starting to wonder if I did do some crazy sleepwalking activity, and I just don't know about it!
Katy, I agree, I can't imagine where I would be without BCO. Actually in a padded room, I would suspect. Kum bay ya, my Lord, kum bay ya....
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Yes, queenmomcat, I have intractable functional issues in addition to bc. I just mentioned the possible Trazadone side effects as something to watch for. Everyone is different when it comes to meds.I was surprised though to find out that Trazadone can cause severe muscle weakness. That explained why I started crawling around the floor at some point. It made me so weak I couldn't walk.It took me nearly a year to recover.
Some researchers think fibromyalgia is a neurological disorder. Buspar nearly killed me too. On the other hand, I have had no weird side effects from Celexa and lots of people report strange things such as teeth clenching and yawning. Now researchers are looking at genetic factors that may influence the way people respond to drugs.
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Jackbirdie,
I am in awe that so many bc patients and survivors who have been through so much have taken the time to respond to my concerns, questions, fears, and even my gaps in knowledge.
People with fibromyalgia have an energy envelope. At any given moment, we know how much energy we have until we get tired. My Mom often wants me to do extra things not related to her care. My priorities for her are clean night gowns, plenty of disposable underwear, sanitized towels and wash cloths, clothes and shoes clean and in good condition, clean bed linens, sponge baths, wound care when needed, adherence to schedules with doctors and the home health people. I try to sit down with her and spend some time with my Mom. My brother shops for groceries, cooks for my Mom, gives her meds, and attends to her whims. There are days when I all I can do is accomplish are tasks related to the priorities. I have various doctors I see, and I have to stop and rest when my energy envelope is empty.Mom knows that there is a limit for me and for my brother, but I would say Mom gets very good care from her children. I just try to stay in the moment. I feel sometimes like I might go nuts, but I have an arsenal of meds from compassionate doctors who understand my health conditions well enough to give me what I need. Then, I have Heavenly Father, too. I have a spiritual life and a church that has helped sustain me through some dark hours. The love of Jesus Christ has kept me going. I try to help my neighbors when possible, and that is beneficial and is a blessing.
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Hello Crazies,
Only second time on this site and all I can say is WOW, what a wonderful group of woman! I'm so enjoying all the pictures and thoughtful posts. All the food looks amazing and would love to be able to cook like that. It makes me want to take a cooking class for something fun to do.
Eggroll - Love your magnet and can relate to your husband's breakdown. Often I worried more about my husband than my own troubles. He's big-hearted and doesn't handle personal misfortune very well. No need to try and reassign him to a guaranteed long-lived wife, as it doesn't exist. We will be better, stronger and wiser than anything out there!
Slow - Your hair is beautiful! How lucky for another woman to be on the receiving end of those locks. Me, I've never been overly attached to my hair but must say I am liking the way it has grown back in. Much more body and curls:)
Jackbird - Hang in there! Let us know how your cataract surgery goes. I bet seeing well again will be amazing.
Ducky - I love to dance! Can't say I'm good at it, but who really cares. Your wedding party looked like a hoot! You're blessed to have such an engaging family. They must take after you:)
Seeing MO on the 8th for 1-year follow-up. I think I will have my hip checked out as it has been throbbing at night lately. Not sure if they can just determine bone cancer with a lab draw. I'll look into it as I'm definitely a person who pursues information. I spent hours at it once I was diagnosed. Keeps me from my own terrible thoughts.
Best, love and hugs to all!. I know this time before Christmas can be difficult. I'm putting up my Christmas tree and decorations today by myself as my daughter is off to college as a freshman. Both of my children are now out of the house and I don't like it one bit. It won't be the same but will try and make the best of it.
journeygirl
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Decisions... My goodness.. You certainly have a lot on your plate.. Your Mum is very lucky to have you and your brother.. I worked in aged care for donkey years and yes bed sores can be hard to heal.. (( Hugs)) to you , your Mum and your brother.
Rainny.. You bread does look wonderful.!! I can smell it from here.!
Cubbie.. Same! I discovered thrift shops just before my mascetomy for the very same reason.. I wanted a few larger shirts to see me through the few weeks after my op to make dressing easier.. and I've fallen in love with them too.. I often find great stuff for the grand kids as well..!!
Journey girl.. Thinking of you.. It is hard when the kids first leave home.. Feels like a terrible void.. especially at times like putting up the Christmas Tree.. Will they be home for Christmas? I hope all goes well for you at your MO 's appointment on the 8th.. We will all be in your pocket with you!
Ugh.. It's 3am here.. Why, oh why am I awake 😞
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morning fellow crazies,
for me, since my diagnosis, I have changed the way I eat. I am not vegetarian but eating more green things than before diagnosis. If it is green (even the green smoothie sample at the gym this morning) then you better believe I will eat it. I remember hitting up my fav farm stand just as I was starting rads, the farmer was just coming in from the fields holding some weird big green sort of bouquet in his hand. Asked what it was and it was Kale, started my love affair with kale in all forms. I also gave up beef, although if you invite me to your house for a picnic, I do not make a big deal and will just eat less of the burgers. Oh yeah, I focused on finding a way to retire and now spend as much time as I can hanging at the gym.
course now, I am hungry so off to leftover land
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HI, Tomboy invited me to this thread because I'm going to Crazy town, too. I have a bump on my rib, normally I would think is nothing, but of course I think it's cancer now. Tomorrow I see my MO for my zoladex shot and I'll ask about it, and the nurse will probably say it's nothing and normal and I'll try to believe them but remain worried. Nice to meet you all!
Elizabeth
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PTS.. Yes, I've upped the greens since all this chit has happened too.. Upped all my veggies really, and eating much smaller meat portions too. Makes me feel like I'm doing something to help myself., I've also increased my exercise.. I don't go to the gym.. But I make sure I fit in a walk, or swim.. I enjoy having a bike ride too.. I haven't been on the last couple of months since I hurt my back.. but maybe its time to get back in the saddle.!! oh.. and I only have less wine 😞
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EW'717.......
I have not done this for a long time but for those who don't know me.........I am the oldes (80), smartest, funniest, sexiest, prettiest, nicest, lady on this thread...........and also a member of the Mile High Club................ask anyone......they will tell you.......especially Slow Deep Breaths.....by the way she is my adopted daughter...........
This is a happy place, full of loving crazy ladies that will make you laugh, cry, think, wonder, but most of all will make you feel loved......so "come on, sit a spell"
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Elizabeth.. Hi.. and a big welcome.. Sorry you are circling Crazy Town too, but glad you are here to keep us all company. Thinking of you tomorrow at you appointment.. Hopefully the nurse can reassure you that the bump is fine.. Honestly I know how you feel.. Any tiny lump, bump, rash, mozzie bite is enough to make me break out in a lather of sweat, and start hyperventilating!!! ((Hugs))
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Ducky.. Hi.. I love your welcome mat.. So lovely to see it again.. :-) and it's always good to be reminded your a member of the Mile High Club 😃
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DecisionFreak, when I approached my mailbox the other day, my mailman's greeting was "No packages for you today". And then went on to grumble about all the advertisements.
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lucy, sounds like we are both trying to do healthy stuff, used to ride bike outdoors till the gym opened up near me and I discovered the insanity of spin class
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Elizabeth-🙋🙋🙋
And welcome! You will get a Crazytown survival kit that will help you see all the bumps better! We are happy to have you here and will be at your disposal tomorrow, in spirit.
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Aw, Marijen,
I love those packages, don't you?
Shopping is therapy, right?
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Kum bay ya my crazies!
Wow lot's of new residents here in over the last few days. Welcome, in that odd way we all get welcomed to a party we didn't exactly choose. I tell you though it is a full on life enriching party here in CT so yes Welcome Decisions, Marjien and Elizabeth.
Decisions, you do have quite a lot to digest between caring for yourself and caring for mom. I actually think your brothers question about the bear was perfectly lucid. Then again I tend toward slanted thinking. I love that you are planning on learning the classical guitar. Lots of musical ladies here. My 'new 'adventures have been learning how to really rest and embracing being a couch potato when needed and Qi gong.
Lucy I hope you got some rest! Rest is so important to maintaining our well being.
Katy love the holiday card and Jack's pic. I think I will watch that Carrie Fisher clip again today. We actaully have tickets for the movie on Monday 12/21.
Slow how is your weekend?
Ducky you are all those things and More!
Rain the bread looked wonderful- I think I may have made that recipe in college- or maybe it was in my Aunt's rotation.
PTS yay for green.... though my entire life I never went a day without kale or some other dark leafy green..... and...... the real message is enjoy what your do to care for yourself because there is no magic bullet
Eggroll I am certain your husband would not want to trade you in for a guaranteed 'long lived wife' remember life is terminal and we really all are going to go at some time. I have a client whose mother is in her 90's. 8 cancers 2 massive strokes, just 3 weeks ago they brought in hospice and said she'd be on morphine and ice chips.... 2 days later she's up, eating and last week went out to lunch 2 times ( ate a pastrami sandwich) and went to her sons for Thanksgiving. We must be in the business of living, spirit prevails!
Ok I need to run some errands and pack up for my 'monthly ' Bedford gig. I will be back later.
Hugs
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by the way all, I've been off the Tamoxifen only 3 days and I think I feel better. I definitely woke up with the doom and knot in my stomach. I am also on day 3 of my liver cleanse. It stopped raining too. I might just take a short walk today. I'll try that 1/4 mile loop that circles Crazytown.
I know a lot of you have been sending me good thoughts. I can feel it and it helps. Thank you, my crazies.
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Ewt: while I haven't the many amazing qualities that duckyb does (so modest!), I'd just like to welcome you to CrazyTown, and the board.
Katy: glad you're feeling a tiny bit better. Did the walk help?
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Katy.. Glad you are feeling a bit better.Enjoy your walk . A stroll enjoying neighbourhood gardens always helps me to lift my spirits .. May I suggest you don't do the loop circling Crazy Town, but head off in the opposite direction instead . 😃
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Hi gals! So fun to see you all again, AND the newer gals.... I've just been fooling around, trying to figure out my clothes.... and like what I haven't worn in 10 years, and why I hang onto them! So we will make a trip to the Battered Women's shelter... That is part of the Family Tree organization.... I think that's it....
I only have one closet, and clothes stored upstairs, downstairs, and where-ever I can find room... Husband has the "coat" closet... much smaller.
Did you know the Frank Sinatra story is on tonight? And did you guys know that Peta and Maxim are engaged? OMG, I was amazed! I love Dancing with the Stars.... Been watching SVU today.... But now Football is on.... Just hate to see those guys hurt, and hauled off the field....
So you can TELL I don't have any news.... except I'm going for my physical tomorrow....Today is exactly 6 years ago that I had the cancer surgery! Just had a mammogram, and that went good.... I figure I'm too old to have any thing else wrong.... Except of course Ducky!
She is a wild woman that girl is....Ask her about her Pilot.... or maybe don't.... you would be embarrassed..... ... She is a frequent flyer now-a-days. Used to hate flying, but not anymore....
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Chevy.. Wonderful news about your mammogram.. and being six years out. :-)
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Chevy! Good to see you again, and as long as we're talking about Ducky, I would like to take this opportunity for thanking you, dear girl, for throwing out the welcome mat for our new friends! Thank you, Thank you, Thank you, Ducky! I was thinking the other day, especially after I have posted scary medical stuff, how wonderful it is to see you have posted some pictures of babies and pretty girls! It really is a cheering and healing thing that you do, so a big hug from me to you, for just being you!
Okay , yes, i did invite the two new ladies, because i found them out there in BCO land, and they seemed like they would fit right into this sexy group. So, I did find a new nickname for both of them (I kind of have nick-names for all of you all), Elizabeth I will call EZ-bet, and Decision freak I am calling D'Freak. So there you have it, your sweetstreet nicknames. I am so glad you came! You will see.
But. Then I started to feel sorry for Slow, (Soda, sweet and bubbly and bright), who does the spreadsheet and keeps track of everyone! I am sure she will be around soon.
Hello to all you, we will be having a rotating pocket party this month, looks like lots of doctor visits, so we will be bringing Katy-did's lovely bread crumbs to nibble on while we are with you. Chevy will turn up the sinatra, and all will be mellow. Goo will be practicing practical magic spells to sooth our fears, and Luc-Ozzy (Lucy55) will be swatting mozzies! (love that)!! Okay!!
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DecisionFreak, I know what you mean about changing overnight. It was spring I had classes in mind and lots of exercise, maybe some traveling and Boom! Next day on Femara, irritable and gloomy. But it didn't last, after a few months I found my voice to tell my family. Unfortunately they are pretty well clueless as was I a few months earlier.
Amazon Prime is my friend : ). They send me what I need in lickity split time.
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Tomboy, I feel like I am in a Rick James song. D'Freak. I gotta hook up the CD player and groove to...uh, I don't have much dance music. In the 80s, my friends and I in graduate school would get in some aerobics to Michael Jackson tunes.
Marijen, I love Amazon Prime. Talk a about instant gratification! Sometimes a lady UPS driver will deliver the Amazon stuff. This young woman is so thrilled with her job. She gives me the packages as if they are filled with precious jewels. I told her she was the happiest UPS man I had ever met! She beamed with delight.
Everybody else, thank you for the warmest welcome I have had in a long time. You can probably tell that I am pretty isolated out in the boondocks.
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Ewt717, welcome! I know about all the "normally I would think it's nothing" - things that wouldn't have even made my radar before have me worried now. It is so stressful, as if having cancer weren't already stressful enough by itself. You are in good company here in CrazyTown. Let us know what the nurse says tomorrow, OK?
JourneyGirl, it's so quiet when all the kids are gone, isn't it? I remember when my niece and nephew left home, it wasn't just that they were gone, it was also that all their friends were gone. When they were home, there were groups of kids in and out, playing video games, badminton in the backyard, eating all the food, and leaving their shoes everywhere. You wouldn't think you'd miss it, but it's too quiet without them. We'll be in your pocket for your checkup on Tuesday.
Iris, I haven't tried spin class. I've been by the door a few times, and insanity looks like a good description of it. It looks like fun, but I'd have to bring earplugs, the music is way too loud for me. How do you like to prepare your kale? I haven't tried kale, but it seems to be the trendy vegetable these days.
Katy, LOL about the loop around CrazyTown. So that's what I've been walking at the track! I hope a real walk outside (with Jack, of course) helped. I find that when I'm worrying, at least walking while worrying feels a bit better.
Chevy, when I was apporaching my surgery, I went through all my clothes and asked myself "If this doesn't fit right after my BMX, will I miss it?" If the answer was no, I gave it away. Got rid of four boxes of clothes that way. Check in with us after your appointment, ya hear? You know how I worry, that is why I am here in CrazyTown!
Tomboy, I'm glad Slow does the spreadsheet, or I would have to start one this month - we do have a lot of appointments this month. I don't even know when my next ones are yet, still waiting on phone calls.
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Hi Chevy....................guess what.....my daughter is going to Chicago next week to see the boys..........she did not ask me to go..........I think 'she thinks ;I'm disappointed..............NEWSFLASH...........I am not...........with all the shit going on in this world............the last place I am putting my ass is on a plane......regardless of what Obama just said............I still hate flying............but love the Pilots..............the last flight scared me to death......storms thunder, lightning.........horrible....plus I saw them last week at the wedding.......LOL.........
So many are coming up on their Anniversaries..........keep on keeping on girls.......love you all............
Tomboy.......your the best...........0 -
Tomboy...I would love a nickname! (hint, hint).
Ducky, I feel exactly the same way about flying. I always did hate it. I will get on a plane if there aren't other choices, but I don't like it. Anyway, I hate it so much that (and here comes a confession): I needed to be in San Diego Friday for a meeting. My original plan was to fly down Thursday night from the regional airport near me, and back Friday night. But, I couldn't stand the thought of getting on a small plane (regional jet; about 50 passengers), twice, and anyways I *detest* the San Diego airport...(mind you, I love San Diego, but that airport is always a zoo on Friday nights, and not much fun to fly in an out of)...
But I had to be at the meeting. So you guessed it. Yeah, I drove: all the way down Thursday afternoon, did the meeting Friday, drove right back as soon as I woke up and had some coffee Saturday am. Yep, that is the confession: I drove right by the exit for Tomboy's, probably the exit for Slow, and probably a few others of you as well...not to mention the exit for my own daughter's house (!)....More than 350 miles each way. Alone. and never told anyone I was in the nabe, or on the freeway next to the nabe. But hey, I didn't have to get on a plane, and I did have my new car, with the satellite radio and the Grateful Dead and Margaritaville channels. Hubby had to work, but Gabe came along for the ride. I feel like a hermit. Maybe I just needed some alone time.
Now *that* is a sign of true craziness. No wonder I am so low energy today.
On other topics:
Welcome to the new CT folks!
yay to walking Katy! A walk was about all I accomplished today but it was a very nice walk with hubby: it was mostly sunny, and the leaves are falling, and we checked out all the neighbors Christmas decorations. When I got home there were email message flurries from both of my kids. They are doing some planning: my east coast son is coming out West for the holidays, and he and DD have apparently managed to arrange to be at my home on the same day, along with DD's family!! On Dear Grandson's 3rd birthday no less! Yay! Cake in the works. (Now, if only i didn't need to clean my house. What is wrong with me that I feel the need to clean even for my kids?)
Tomorrow morning is the postponed rads sim. I am anxious. but honestly, I am more anxious to see my hair grow back. Got a weird comment at the meeting Friday, perhaps that is why. Slow, I am so grateful you sent me your pics at various stages as a reminder that it takes time....but even though hair is my big worry right now, I keep worrying that they could find something weird when they do the rads set up.....
Anxiety got the better of me, and I couldn't face making latkes tonight. Anyway, it is a group project. Maybe I will wait till the kids get here. Grandson can help make latkes I am sure, or at least help make the applesauce! Hubby says it will be a true miracle if our candles last that long :-) Hubby and Gabe are keeping me company and trying to get me to smile tonight....
Happy Hannukah to all and to all a good night!
Octogirl
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Octo............I would never, and I mean never get on a small plane.......my SIL told me one time he flew with the company same type plance about 50 people.........he at that time was a power lifter, and he is 6ft 3, and at the time wieghed around 230lb....much lighter now.......when he got on the plan the stewardess said to him......no you wait here, I have to decide which side of the plane you can sit on........
I said "my ass would have been off that plane quicker then they could say "life off"......I am petrified of flying...and it annoys my daughter (who I fly with) immensley.......she thinks I'm a drama queen.....................I don't care how many times I fly, and it has only been 3...........as soon as I hear......."ok I booked the flight"..............I begin to panic..................even if it is months ahead........can't help it............
However......when we were in Niagara Falls you could go on a helicoper ride over the falls......I asked my husband to go on ....he said "NO", and then said "you won't put your ass on a plane (at that point I had not flown and he wanted to go to Hawaii).....and you want to get in a helicopter..............my answer....
Well the helicopter doesn't go as high up as a plane.........he just looked at me and said "I will pretend I did not hear that"..."And please never repeat that to anyone"........LOL
Then said "You know Duck, when you hit the ground from a few thousand feet or 40 thousand feet they pick you up with a shovel"................
Well to me it doesn't seem as bad.......hahahahahahahha
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duckb1 and octogirl,
I hate flying too. I was so desperate for excellent medical care for this DCIS that I took Mercy Flights back and forth from the rinky dink town where I live to the city where the teaching hospital is located. I went in little tiny airplanes with volunteer pilots that own their own planes. I had to step on the wing and lower myself down into the plane. I did not have to pay.
Flying at 4000 feet on a clear day was scarier than being in a big jet flying much higher. Flying at 8000 feet was pretty scary too. We had engine problems on the first flight and had to land at the closest airport to see what was wrong. The second flight was great, but the pilot told me he had been training commercial pilots since 1955. That was the year I was born. I prayed the pilot would not have a heart attack in the air.
Would I do it again. Probably. If I go down, my brother will get a nice chunk of change. I have had a fabulous life. I could get killed on the main road of the town where I live. Still, I hate to fly, big plane or little plane.
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Good Evening Crazies,
What a busy bunch of crazies you have been. Oh my...where to start. First things first, as always!!
We have many pockets to fill today, and a few newbies to welcome.
Octo, We will all be with you tomorrow for your rads sim!! Thinking all GOOD thoughts for you. Soon they will be zapping away!!! I was very fortunate and had zero skin issues when I did rads. I'm sending the good skin vibe your way!! Next time you're coming to the hood, you had better look us up!!! I'll give you a free pass THIS time!! haha Seriously though...I'm glad you were able to get some quality time with Gabe. I love to drive and there's nothing more relaxing to me than to get in the car, turn up the tunes, and drive with no real destination. Such good therapy if you're not stuck in traffic!!
Chevy, We will all be in your pocket tomorrow for your physical!! Please let us know how it goes when you can. Good to see you back. YES, I did hear about the engagement. I also love watching Dancing with the Stars. Mostly because it just amazes me that women can twist themselves into those positions while wearing high heels. I miss the old entertainment shows they used to have on TV. Seems like everything now is reality TV. How is your friend doing??? Great news about the mammo and SIX years!! Doing the happy dance for you!!
Ewt717, Welcome to BCO!!
So glad Tomboy invited you here. Please pull up a chair and make yourself comfy. Here is your welcome kit consisting of a magnifying glass, mirror, flashlight and coconut oil. Please use them wisely!! Sorry to hear about the bump.We will all be in your pocket tomorrow during your appointment.The women here are wonderful and will be with you every step of the way!! I'm so glad Ducky was around to put out the welcome mat!! She's a good mom and yes....she does LOVE her pilot.
For Octo, Chevy and Ewt717!!
I hope I got everyone who has an appointment today. If not, please let me know!!
DecisionFreak, Welcome to Crazy Town!!
Any friend of Tomboy's is a friend of ours!!! Please pull up a chair and get comfy. Here is your welcome kit consisting of a magnifying glass, mirror, flashlight and coconut oil. Please use them with caution!! You've come to the right place. Clearly your postman needs an attitude adjustment. I know Italy can help with that!! I'm very glad you joined us!! It sounds like you really have your hands full with Fibro and care giver duties. Must be so difficult when you're not feeling well. I was diagnosed with Fibro after completing BC treatment. I'm not sure I agree with the diagnosis, but I'm trying to keep an open mind. They want me to go on Cymbalta. Do you have any experience with that drug?? I'm very glad you have your faith to sustain you!!
Katy, I will NEVER stop thinking about you or any of the crazies. I think about all of you daily. I'm so happy to hear you're feeling a bit better. Her Royal Bloodthirstiness - she looks so sweet and innocent. hahahahaha I LOVED the picture of Jack doing his therapy gig. He has the kindest dog eyes!! Carrie Fisher cracks me up. I can't wait to see the movie!! I'm a nerd at heart.
Iris, I was drugged to the hilt in that picture. I have another one a few minutes later and I looked so stoned. I don't even remember having my picture taken. Just a little question for you. Do you think the cuteness of your chiro person could be contributing to you feeling better?? hahaha
Ducky, How did the party go??? You're so lucky to have so many grandchildren to keep you distracted throughout the years. It's obvious that they all love their gram. I see a linebacker position in Bobbies future. Adorable!! My DD leaves for Chicago tomorrow. I was happy to hear they are having better weather this trip. She will be there all week.
Cubbie, So nice that a priority was put on your scan. I think we should all have priority scans. I've never really known how to count the anniversary day. I chose the day of surgery, because that was the day I had the two beasts cut out of me. Seemed like a logical choice to me.
Marie, I loved the cat and the mouse pic!! Too funny.
Lucy!! If I can ever get my Verizon account straightened out, I believe the new calling plan includes international texting. Do you have that on your plan too?? My Verizon nightmare is a very LONG story, starting with my account getting hacked. Now my account is frozen and no one can tell me why I can't make any changes. Holding back all the bad words I'd like to say right now!!
Shorfi!!! So good to hear from you. That stenosis sounds just awful. I do have considerable experience with pain medication and now I refuse to take anything other than a Celebrex. Even that I will only take once a day. It has been my own experience that the more I took, the less effective it was and I needed more and more to achieve the same result. Plus it gave me horrible constipation which isn't a good thing with my reconstructed innards. So, I know just how you feel about the pain meds. Let us know the date of your MRI and I will make sure we are in your pocket. As Katy said, there is no such thing as TMI in Crazy Town. I haven't played Words with Friends in so long!! I used to play it on my Kindle. I should get it back out and start playing again.
Chi, Believe it or not, my hair is dark brown. That picture made it look really red. My natural is dark brown but when I go out in the sun I do tend to pull a lot of red tones. Now that I'm a hermit, I don't get too much red anymore. I'm always worried about my DH when he sleeps. He stops breathing often and I have to nudge him and he starts again. He is too stubborn to go have it checked. I know he has sleep apnea - he has all the signs.
Rain, That stuffed sausage lymphedema description sounds so uncomfortable. I hope you were able to get some relief. 52% done with rads!! WhoooHooooo!!! Your bread looks amazing!!!! It's looks TUBALICIOUS!!! <--------new word.
Gaia, Thanks for the congrats. Thank you for the very kind words - you are always so good to me. I know I've talked about this before. I've had an RA diagnosis since I'm 18, and have been living with the pain and after effects from a flesh eating bacteria diagnosis twelve years ago. Pain and I are very well acquainted, and have been most of my adult life. I think it's easier for someone like me that's had to adjust most of my life to pains fickleness. I think it's far worse for healthy people who get hit with this all at once. It must be so difficult to re calibrate. I try really hard to just accept it, not give it power, or get the better of me. If I didn't think that way, a straight jacket would for sure be in my future. One day at a time is a good mindset for me. THANK you for sharing your photos. You look so much like your mom!! You are beautiful inside and out. Keep the pictures coming!! My weekend has been busy...thanks for asking. My DH has been keeping me moving which is a good thing. He goes back to work tomorrow - I can finally rest!!
Queen, Is there any other interpretation of Fliedermaus? If I recall correctly, flieder is some kind of a plant? - (German word). Iris...help me out here....you're PA Dutch. Do you speak the language? I'm just guessing here. My dad spoke the language, but I retained very few words as a child. I actually learned more of the Italian curse words being around my Grandmother so often. So that would be my guess....plant. Maus is mouse in German, no? I give up!! I'm sure you're talking about something that is WAY over my head. haha
Italy, I also wore my ear buds for my tests and treatments. I would be a sad girl without my iPod.
Rose, So glad you checked in!! Good to see you.I agree with you. I don't think anyone should have to suffer with pain. I'm all for pharmaceuticals if they give a person relief!! I did get addicted to liquid oxy when I was going through my flesh eating bacteria days. I didn't control the meds though - my nurse did. The detox from it was so incredibly horrible. I developed a new found compassion for people that have to come down from that stuff. I wouldn't hesitate to take pain meds if I didn't suffer from so many SE's. I am able to take a muscle relaxer that really helps. So far I've been SE free with that one and it also helps me sleep.
Sula, I don't even know what I was smoking. If they told me, I don't remember. I don't even remember being wheeled in to the OR. Hope your ribs are feeling better!! Please let us know when you get your last Herceptin. Any excuse for a party here in CT.
Marie, Good grief, you've been through so much. Too much for one person. PTSD is VERY real. I'm so glad you're here with us. It's a great place to get it all out - judgment free zone.
Lucy, I think you and I are two peas in a pod. I WORRY about everything too. I'm working very hard to change that and stick to the WHATEVER mantra. We need to remind ourselves....WHATEVER, WHATEVER, WHATEVER!!!
Journeygirl, Welcome back!! Sorry to hear about your hip pain. I had horrible back pain that landed me in the ER last year. They were worried I had a spinal compression due to the RA. It turned out to be sacroiliitis. It was rather comforting to know I could be in that much pain and have it NOT be a return of cancer. Sending good thoughts your way that it's something less complicated for you as well. Isn't it awful when they move out and go away to college?? Oh my goodness....that was so difficult for me!! (((((journeygirl)))))
Tomboy, Love the nicknames for the newbies!! Sooooo.....is that MY nickname??? Soda, sweet and bubbly and bright????? Let me tell you....I CAN be mean, and grouchy, and DARK. In fact, I'm going to practice. haha Gaia knows magic spells??? I've never heard the term swatting mozzies. Did Lucy teach you that one????
My eyes are closing. Can you believe this took me almost three hours to write??? Looks like a book. Love each one of you crazies...quiet crazies too. Tomorrow I'll tell you all about my new arrival. I'll even post a picture!!
Happy Chanukah to our Jewish crazies!!!
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