CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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gaia0132, this is the second time today I have laughed out loud. Longshoreman section, hilarious. Someone will be doing a study soon to find out if there is a relationship between foul mouths and BC.
My brain is on the off switch. We were discouraged from saying mean things about people when we were little. That doesn't stop me from thinking awful things at times. I know I will yet come up with some other words. My grandfather was a concert violinist but he was very critical of his children. I can swear with the best of them. Not sure where I learned how.
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cluster fuck
crud bucket
fart head
More to come.
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Yes.. Definately a connection between having a potty-mouth and BC.. Once you've been diagnosed you can spot a Fuck-Wit a mile away...and your happy to tell them they are. :-)
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Good Evening Beautifully, Funny Crazies!!
hahahahaha....you all gave me a good laugh tonight!! Loved the stories.
First things first.
Tomboy, We will all be in your pocket tomorrow for your mammo and US!! Sending all our collective good thoughts your way. Please let us know how it goes when you can.
Journeygirl, We will also be in your pocket tomorrow for your 1 yr. follow-up. Hope you get some answers regarding your hip pain. We will all be right there with you!!
Ewt717, We will also be with you during your GYN appointment.There are many of us here and we can fill many pockets. Please let us know how it goes when you can!
Tomboy, Journeygirl and Ewt717:
Just doing a drive-by tonight. Too tired to catch up. Tomorrow is a new day!!
Sleep well crazies....quiet crazies too!! Love you all.
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Lucy55,
Ha, Ha! I am going to see my GYN doc today about a discharge I had two weeks after going on the Tamoxifen. Some doctors act like butt wipes, but this doctor is usually a gentleman and a scholar.
Everybody, wow am I getting tired of seeing doctors. The ones in this town are nimrods, full of it. I have cancelled all optional medical appointments this month. I am trying to slow down, which seems difficult, and get exercise, rest some, and try to get up my energy to start cooking some green foods.Not thinking all of this will prevent breast cancer, but I want to avoid developing new health problems that can occur when BC patients are in treatment. A man from church picked up the elliptical bike and is bringing it by today!
Anne slept through the night. I have to check her bed sores and temp this a.m. since she had chemo yesterday. She 85 years old, and she is a warrior. I hope I can be as brave as she is.
Gotta remember to move the clothes from the washer to the dryer this morning.
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Morning gals.... Decision, don't let anyone drive you nuts.... Sometimes it IS best to cut all ties with trouble-makers, especially when you are trying your best to take care of your Mom....
I know this may sound harsh, but I hear these things myself, because I am actually older... not as old as the Duckster, but catching up fast...
Sometimes we don't NEED all the medical situations "they" put us into. I mean I was told I didn't NEED chemo if I didn't want it, presumably because of my .... ummmmm advancing age... ahem! And if I don't WANT a Colonoscopy, well then let's just not do it! And my PC doesn't give me a breast-check anymore, because I just had a Mammogram, and I know MYSELF what they feel like.
And when I was trying to take care of my Grandma, and all them wanting to do more tests and scans, and mental evaluations, well, I finally said
"No, let's not do this anymore..." she doesn't know what is going on, and it hurt ME to watch her trying to figure out if that picture was an apple or a car.... So finally we all got together, and just tried to make Grandma happy, and comfortable....
I just mean, if she wants to sleep on the couch, well she must have her own reasons... sometimes our minds just get quirky.... She is just lucky she is still home with you, I guess....
Hope the both of you are doing okay! Take good care.....
Aw geez Proud...! That would scare me 1/2 to death thinking it was eye cancer... ! Glad they figured it out!
You gals make me LAUGH! All those words you come up with....! I copied them all and will use them when appropriate....! Hah!
And then Ducky comes up with her "pound sand" speech, kind of like "go piss up a rope"..... or "and the horse you rode in on".....
"Fart Blossom"...... Haaaaaaaaaahhhhhhhhaaaaaaaaaaaaa! Good one!
And SLOW! Hah! Cute story about your Daughter! GOOD one!
Ducky! I can just SEE this happening to you! Great story! I'm laughing out loud!
So Chi! Let me get this straight.... Little Gordy is probably still pointing to his foot, saying "fuck fuck fuck" !!! Hahhhhhhhh!
Morning little Gaia! You are so perceptive and in-sightful..... Sometimes, like with my old friend Theresa who is 90, well the more they try and do, they more it hurts her.... She somehow wound up in the Hospital, after a 2 pint blood transfusion, and numerous meds! THEN a UTI had her flat on her back, and not knowing ANyone! They sent her to a rehab place, had someone figure out WTH went wrong, and I went to see her, and she didn't even KNOW me! I went out to my car and cried!
Finally, the UTI got cleared up, and PT started helping her, and one day her DIL called, and put Theresa on the phone! It was a miracle! I had prayed so hard for my dearest friend of 65 years!
Today she is back at Assisted Living... and they continue her PT, and she is happy and bright, and just a KICK to be around! But some Doctors will 1/2 kill you if they get 1/2 a chance!
Decision.... sorry about the damn people at the church.... You are better off without them.... Just do what doesn't hurt you.... I remember crying when I would leave my Grandma... because I didn't understand how I could help her.... But at least she was in Assisted Living, and then a Nursing Home....
NO Decision! It's Fuster Cluck! Haaaaaaaaaaaaah!
Oh Lucy.... ANOTHER one! I'm trying to write them all down!
Ahhhhh ! You gals made this a fun morning! THANK you! xoxo
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You ladies had me and the husband laughing so hard last night. The words are priceless...
Katy...your little fella is adorable.
Chevy...I can so relate to your experience with your grandmom. I went through the same with my mother who suffered from Alzheimer's Disease. Near the end of her life she absolutely knew no one. My sisters wanted to keep her alive. Her quality of life was zero. I wanted to keep my mom safe, comfortable and pain free. So since I was the POA, I decided that enough was enough. All the testing...for what?? It caused a lot of heartache between my sisters...even after her passing away...I have a sister who does not have anything to do with us...so sad.
Decision...you are a good daughter and I appreciate how you take care of your mom...despite going through your own health issues.
Oh, BTW...I am a "young" 61...but when I look in the mirror...that is another story...hahah
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Chevy: glad to hear the news about Theresa!
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A neighbor assured me that warm prune juice will get things moving. And as it happens I did read that warm drinks help and clearly prune juice helps... worth a shot!
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Hi guys! Thanks for all the lovely lovely words you share and especially the encouragement you have given to me. I woke up this morning with the 12 days of Christmas in my head and boom, I got inspired. This is meant to be funny, but maybe only my husband I will find it that way. He did get a laugh out of it! There are only six days in my ditty:
On the sixth day of Christmas my cancer gave to me
Six lymph nodes taken
5 . . . get . . . well . . .CARDS!
4 weeks of waiting
3 weeks of pain
2 biopsies
and a Bi-Rads 5 Mammo-gram!
(I can't seem to figure out how to add in the good stuff... like a new appreciation for my blessings, daily life and my loved ones)
I am doing so much better, pain is just about all gone from the lymph node surgery unless I wear a bra and then it goes up into my collarbone and back and into my upper arm. The very small amount of swelling in my arm is just the same as it was from the beginning, and some days when I do too much I wake up and it feels heavy. Sleeve should be arriving soon, but I am so happy to be mostly pain free. I got my Christmas tree up on Saturday!
April/aka Eggroll
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>>>. okay, Just one more cuss, before I head over to smash-o-gram: It's all fuckiddy. I really like that one, when things ARE all fuckiddy.
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Aw GEEZ little Tom! GOOD one!
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I like the phrase sentence enhancers~~works as very descriptive
ok so technical question for the holidays....I have sent Xmas cards in the past but the list has been getting smaller
do I still send cards? what do you all do. If I am going to send then I do need to get my butt out to buy some more
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Decided to make some low-carb latkes this morning. Reached up for the can of baking powder and...uh-oh...felt a tight feeling on the inside of my lower right arm. Damn...feels like cording might be setting in. Can't feel any ropiness, but the inside is sort of tender in spots, like a mild trigger point. So now with everything I have to do for the cruise I need to make an appt. with an LE specialist. Oy.
Speaking of appointments, my shrink suggested I get a consult with Dr. Murray Favus down at U. of C.--one of the top bone-health guys in the country. His wife (who doesn't have breast cancer) is a patient--a baseline DexaScan from her own hospital's (Rush) employee wellness program showed osteoporosis, and she was dissatisfied with Rush's doctors' treatment plan. Favus managed to get her back down to moderate osteopenia on a medication she could tolerate. Since my PCP and MO disagree about how to deal with my osteopenia once I start hormone therapy, I think I'd prefer to take Dr. Favus' advice.
Hadn’t sent cards in years, but am about to hunker down & do so today. Wish me luck!
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Thanks for the invite Tomboy, I currently feel as if I could be Mayor of Crazytown. I feel so beat down from all the extra gifts cancer has bestowed upon me. I am tired of trying to figure out which Dr may have ordered some kind of test , when I get automated phone calls. The calls never state the test or the doctor, so I get past the first two menu options and hang up, because I have no freakin' clue which menu option to chose next.
Is is endocrinologist, breast surgeon, medical oncologist, radiologist, radiation oncologist, rheumatologist, primary care, OB/Gyn, physical therapist, optometrist, gastroenterologist? Ridiculous....
Now I have some strange lump in my arm, and it is my uncontrolled LE arm, and I have the option of getting a biopsy. I said yes, but then called right back and said no. I do want to know what it is, but if my LE gets worse before I can be seen, that is not a good choice either. I am still limping after my cortisone injection into my heel for my tamoxifen induced plantar fasciitis.
Edited to add: Any Reclast patients here? Will be getting my first infusion this Thursday. Should be interesting with my crappy veins and no more port.
Taking my Ativan and taking a nap. Hi everyone, it's your new neighbor!
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Hopping in with a quick question for my Herceptin compatriots. How often during the course of treatment did you get repeat Muga scans? I've read anywhere from every 3- every 6 months. Want to hear from my trusted 'live audience 'here.
Thank you in advance and I will be back with more later
Oh and a quick Welcome to you Robyn.....
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I had echoes every three months during Herceptin
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welcome Robin, I had some foot pain in the past and my lovely trainer at the time told me to roll a tennie ball across my foot. I bought a can of balls and had one upstairs, one downstairs and one in my office! I kept rolling my foot across the ball and it went away! Maybe this will work for your pain?
well guess I will hit the discount store tomorrow for a few cards for a select group
by the way, assume I have sent ALL of you a holiday card
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Thank you Iris! I have an ice pack/roller/foot massager for the heel. If I am able to peel myself off the couch at some point in the near future, that is where I will be heading
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robin, hope it helps! my trainer at the time was working on his PHD in physical therapy with a specialty in cancer patients! he was awesome but had the nerve to move on and no longer does personal training but I love him dearly! he was full of good little tips and hey, this can not hurt you and maybe help!
ok, planning on making a dish I saw today on the Chew so off to prep!
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Gaia, I had MUGA scans every 3 months while on Herceptin.
Robin, you can also use one of those swim noodles to roll your foot on.
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Gaia, I've had 2 MUGA scans 6 months apart.
Hi crazies, just dropping by. 60% done with rads, 3 more lymphedema treatments to go. Both end on Dec. 22. Spending between 3 and 6 hours/day going to/from the hospital on the upper east side of Manhattan and home in Brooklyn. Dominant left hand wrapped for LE treatment; waiting for sleeve and glove. Lost a crown so am having a visit with new dentist tomorrow (cuz new insurance).
Dunno if I'm in Crazytown so much as in Grumpytown.
Though I did have the nicest experience today. Had time to kill between rads and lymphedema treatment so set up shop in the waiting room of the hospital's breast center, which has killer wifi and usually a working coffee machine. Coffee machine was down. I knew the coffee machine was also down on the oncology floor. So I went down to the floor with the boutique to try on hats, thinking I would get coffee on that floor. Lady in the shop said come back if it's broken and I'll get you coffee from the staff machine. Nah, I said, how silly would it be for a third machine to be broken. Guess what? It was broken, too. So I did go back to the lady, and she took me to the staff kitchen and made me my very own cup of coffee. It was a very sweet gesture at exactly the moment when I needed one!
Enjoying the conversation, but typing is kind of a pain at the moment....
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i'd say GrumpyTown might do as a suburb of CrazyTown.
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Rainny- those little moments of sweet in the middle of grump really make adifference! I'm glad you had one.
Welcome Robyn! You're in the right place.
Well my upward trajectory didn't continue today. Had to do a reboot for 3 hours cuz I just couldn't face any more of today.
A bit better now.
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Glad the reboot worked and you're a bit better, Katy. Hugs!
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Went to my GYN doctor today. He is not only smart but he is also a babe! Well, a girl can look, right? He took a bunch of tissue from uterus. He said if there are atypical cells he will have to do another D&C, the second one in about 15 months. He said I might need a hysterectomy although there are other treatments for uterine problems. I don't want any more treatments besides these awful BC protocols. They can just take out my uterus if there is a serious problem.
I had to get a friend from church to pick me up at the doctor's office because I had to rush home so I could let my brother do an urgent trip to his doctor. He has a big rash or wound that was spreading quickly. He is diabetic and has already lost one third of his foot to a diabetic foot infection. I had already taken photos of the leg wound and texted them to the doctor.
My home is an emergency room. I am a triage nurse.
Well, I do need the church. Our family is very isolated. Long story. Our church has many kind people motivated by the love of Christ. One of my personal challenges is to learn how to let go of anger and grudges. I try to take the good and let the bad stuff roll off. It is hard.
Have to check Anne out. My mother was a house wife but she has a touch of the diva in her. She can be fiery.
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Gaia,
Every 3 months or so ...I had 3 of them and did just fine . I was good to begin with but my docs were amazed my numbers actually went up... Maybe it was the running that I kept doing. I don't know. So there it is from the horses mouth...
Fellow crazies,
I do have a potty mouth...always have. Working in my business mainly surrounded by men it started as a defensive measure, then became just how I talk. We once had a producer come to our house to negotiate the number of "fucks" we put into a script. We went page by page, line by line... "Here you can keep this one, but that one's gotta go"
I usually wander around saying... Fuckitty fuck fuck fuck.....I'm also found of asshat....so glad you guys aren't language police!
Ok, dropping back to catch up on what everyone is doing. Tomorrow is our anniversary ...36 yrs married . We got married about a yr after my husband graduated from NYU.film school. He's 2 yrs older than me.
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wow, Sula, Congratulations on the anniversary and all the years with your hubby! I hope you two do something fun to celebrate....
xoxox
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Eggroll, I love your six days of Christmas - six is enough!
Sandy, the consult with Dr. Flavus sounds like a good idea, especially since you have two differing opinions right now. Sorry to hear about the arm - hopefully the LE people can head it off if anything is going wrong there. Better to get them in right away.
Robin, welcome to CrazyTown! That's a real quandary, being offered a biopsy in your LE arm. Can they get you into see an LE therapist sooner and coordinate your care with them?
Rainny, what a nice lady. There are some people we meet during our treatment that just go out of their way to try to make our day a bit easier, in whatever small way they can. GrumpyTown is definitely located somewhere near CrazyTown!
Katy, sorry today didn't go as well. Hope things are going a bit better this evening.
Decision, I don't blame you for preferring to have a hysterectomy rather than go through more treatments. Depending on what they are surgery might be simpler.
Congrats on 36 years of marriage, Sula!
Tomorrow it's back to see the RO to find out what comes next, and possibly planning session the same day. I as was telling one of my coworkers who asked what my status is, I'm not saying for sure what they are going to do until it is actually taking place!
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