CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Happy Fukkity Anniversary Sula! You guys have made a great team. 36 years I hope you have a special one.
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Good Evening Crazies,
First things first.
I have one appointment on my spreadsheet for tomorrow and that pocket party goes to Cubbie!!
We will all be right with you tomorrow Cubbie during your RO consult. If they don't get it figured out tomorrow, I'm going to fly down there...or is it up?? In any case, I'm coming there to plan your treatment myself!! hahahaHow's that for taking the bull by the horns??? I always wanted to say that phrase. Best wishes tomorrow.
RobinLK, Welcome to Crazy Town!!!
Please pull up a char and get your crazy on!! You're in good company with these wonderfully, funny, compassionate women. I'm with you on the too many ologists in our lives. The lumps, bumps and inflammation can land you right in the middle of Crazy Town if you let it. We ALL fight like crazy to stay OUT of Crazy Town by congregating in Crazy Town....if that makes any kind of sense. I'm glad you found us!! Here is your Crazy Town kit consisting of a flashlight, magnifying glass, mirror and coconut oil. Use it sparingly!!
Sula, A big HAPPY ANNIVERSARY to you!! Any woman that can put up with a man for that long has my sincere admiration!! I bow to you oh great one!!
Gaia, When I did my year of Herceptin, they did my MUGA every three months. I think that's pretty standard. I know some doctors do MUGA's and some do Echos. Have you done a MUGA yet? Forgive me if you've said you have...I don't retain a lot of things.
WHO KNEW WE COULD DO NIFTY LINES??? Man, I've been missing out!!!
Doing another drive-by tonight. I think I'm coming down with something. Woke up this morning with sticky eye cancer. I hate when that happens!! In any case, my throat is starting to hurt and I won't even go into what's been coming out of my nose. TMI, huh?? Oh well...it IS Crazy Town after all.
I will try and do a better catch up tomorrow. Unless my nose and sticky eye cancer get worse. Love each one of you!! Sleep well my crazies!!
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Feel better, Beppy! Hope you beat (or sleep) whatever you're coming down with into submission!
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Sula...Happy Anniversary!!!
Katy...Hi honey...hoping you have a great day.
Robin...Welcome...sit back a while and enjoy your stay.
Beppy....Feel better
Ducky...Hi!!!
And hello to all my crazies...have a great day!!!
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Thank you all for the warm welcome. Forgive me if I lurk a bit so I can better get to know everyone!
I am scheduled for a consult with a tattoo artist today. I had finally worked up the nerve and sent in my ideas. Now I find out, at my rheumatologist's, that my lymphedema has spread up and into my torso. Ugh...minor but not....so I have a feeling my scars will remain as such with no decorations. Pretty bummed about it.
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Hi, RobinLK, welcome! I am pretty new to this thread. You have been through a great deal. My brain is slow this morning, but I will be back soon. So sorry about the lymphedema in your torso. This thread is a good place to voice your concerns, to let your crazy self show, and to find ways to laugh.
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afternoon all,
rainy, my rad shit ended dec 22 as well only in 08, hoping for no snow storms for NY area
happy anniversary Sula, awesome to be married so long
feeling a tad strange today as at the gym this morning I saw a woman who I remembered as going through cancer treatment the same time as me. I also remember overhearing her at the time say she was going to be put on Tamoxifin and then later saying she had developed problems that were requiring a hysterectomy. I also remember thinking at the time wonder why she was not put on an AL instead. It was all at almost the exact same time as my stupid shit. I never commented to her or questioned why T and not an AL. well seems she has had a shit load of problems since and was told there was no other med than T. I now think I should have spoken up as my doc had very dif ideas and did not like the side effects of Tamoxifin at all. She used the same place I did for my surgery but I went to a dif and better (in my mind) place for my MO and RO
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I had the planning CT for radiation today. If everything looks good, then they will call me in a week or so to setup the next appointment. Thanks for being in my pocket.
Beppy, I hope you're feeling better. Sounds like you caught one of the head colds that are going around. Tis the season!
Robin, that is so disappointing that you might not be able to have the tatoos after all. Did you go to see the tatoo artist anyway?
Iris, I wonder if there was another reason that woman couldn't take an AI? That's all I can think of, like maybe a serious bone density issue. But then would she be at the gym if that was the case? Makes you wonder.
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Good Evening Crazies,
I'm full blown sick and will try to get in to see the doctor tomorrow.
We do have a few appointments tomorrow and I want to make sure they are acknowledged.
Queen, We will all be right with you tomorrow for your surgery. We will be sending love, good juju and snacks through the tube. Think spa treatment!!
Hope all goes well for you!!
Iris, Good luck tomorrow with your new dentist. We will all be in your pocket!!
Robin, Good luck tomorrow at your infusion!! We will all be right with you!! Reach in your pocket if you need a squeeze!!!
Queen, Robin & Iris:
Thinking about all of you and hope to be back having fun in Crazy Town soon. Thanks for the good thoughts!!
Much love to all....quiet crazies too.
P.S. Katy, I sent you a PM.
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morning,
Cubbie, I do not know this woman well so not sure why not an AL, she is very sweet but seems to be having really bad side effects and had bad neuropathy and no strength in her one leg. So sweet though
Yesterday I got a Xmas gift from my sister. My sister and gone through a nasty period with her dip shit husband. But divorce is final and I am so happy that we are now communicating better, I felt like crying. Then again, maybe it is all the holiday movies on TV, dreamed about one last night!
well off to dentist and hope this one is good, I do not have any issues now but do need to have one to call if need be
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Good Morning Crazies,
We've got another appointment today.
Katy, The crazies will all be in your pocket today for your bone scan.
Reach in for a squeeze whenever you need us! Please let us know how it goes when you can. Hang in there sweet sister. (((((((Katy))))))
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Hugs to all with appointments today!!! Thinking of all of the crazies....
Octogirl
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Morning Crazies
I second Octo - Hi Octo!
Sending hugs to all the crazies and a strong squeeze to those with appointments!
xo
gaia aka gogo
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SlowDeep: thank you--pre-surgery nerves bad this time (I'm supposed to be at the facility at 1:15 pm; all my other surgeries were early morning so the Versed kicked in before I got to the clammily nervy stage) But at least my husband gets a nicer waiting room this time, as my surgery's at the outpatient facility rather than the hospital. I'll hold that spa hospital firmly in mind!
Ksty: let us know how the bone scan works out?
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So....my stepmom was supposed to have elective surgery this week, which would have put her out of commission for the rest of the month...she had help during recovery (my stepsister lives a few miles from her) but she was ambivalent about the surgery. She had been corresponding with me, and it was clear she wasn't sure she wanted to do the surgery or even that she needed it...I encouraged her to decide for herself, that since it was elective it really was her choice and she didn't need to do it if she wasn't ready...
She cancelled it. Probably a good choice, she has a lot of stress in her life right now, and it wasn't clear the surgery (knee surgery) would really help her QOL that much. But then I get an email from her thanking me for encouraging her not to do it (umm...no, I just told her to do what felt right to her) and saying 'ok, now that I am not having surgery what can I do for you?' Huh? Turns out she was hinting that I should invite her to come visit for 'a while' to 'help me out' (during rads I guess?). Is it possible she really thinks that I was encouraging her to cancel so she could come help me?
Sigh, I hate to tell her no, but the last thing I want is more visitors and house guests. Even having the kids visit raises my stress level, though I love them dearly. I wanted a few quiet days with just hubby this holiday, to rest and contemplate this sucky year and the (hopefully better) one to come. I know you all will tell me that is not crazy. And plus, as I may have mentioned, Christmas is not my favorite holiday: I like the decorations and even church services, but as a secularized Jew I really don't have any strong connection to it, and I absolutely HATE the commercialization and the expectations. Truth is, I've always been a bit of the Grinch. (My favorite Christmas show, by the way, by far. The original cartoon with Boris Karloff, not the movie.).
With a large extended family, many of whom do celebrate and well, it gets tricky (hubby is not Jewish and loves Christmas, though he likes quiet celebrations, one of my kids celebrates it, the other doesn't, take into account different traditions among my sisters' and stepsisters' families). But, I always have at least ten days and usually two weeks off at the holidays (work shuts down), so I get a chance for an extra vacation and everyone knows I don't need to work.....Most years I deal with 'the whole Christmas Season' by talking hubby into a trip somewhere. This year, that is off the table as I am stuck in town weekdays and non actual holidays for rads (which start Monday). Hubby is very happy that means he can celebrate a quiet Christmas at home, for once.
I will probably invite stepmom to come for my grandson's birthday party dinner a few days before Christmas, as DD and DS will both be here and want to see her (She is Grandma to them, and she doesn't get the see the Great Grands often)...but there is no room at the inn with the kids staying here. And if I invite her, do I need to invite all the rest of the family? This would be what I was trying to avoid at Thanksgiving by heading down to DDs for a few days! Stepmom can get a motel for GS's birthday party, but the trick is to convince her not to stay for a few days after to 'help'. I think I am going to have to invent a Christmas weekend trip away somewhere even if we don't do it. DD and DS will be leaving to spend a few days with their dad (my ex), and I will be seeing them later in the holiday stretch, so theoretically hubby and I could go somewhere close by for Christmas. Yosemite in the snow has some appeal, but I just don't want to spend the money to stay 80 miles from home. I want to spend Christmas weekend in front of my own fire.
BC has made me such a hermit. Or maybe I always was one and didn't fully realize it.
HUGS and, as always, thanks for listening.
Octogirl
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Queen- thinking of you and sending a hug
Octo- oh my I'm so sorry. I feel much like you about Christmas for some same and some different reasons. I feel so bad you have to deal with this extra family stress right now.
Speaking of stress I popped a gasket this morning. The rain and wind are so bad I felt it was unsafe to drive and canceled the scan. I have myself half talked into I was imagining the extent of the pain. That it could be because I'm laying in bed all the time. Anyway, frozen with fear and just couldn't.
Fully in Crazytown now.
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Katy....I would feel the same way about driving in the wind and the rain, especially if you have more than a few miles to go (as I imagine you might)...It sounds like you are getting hit very hard up there by this storm! I had a MO follow up apt scheduled today that I postponed till next week mostly for that reason, although I also found out that MO was out of town and I was supposed to meet with a NP I hadn't met before. Just seemed better and safer to wait for MOs return.
But that was just a followup visit. I wish we could all go with you and hold your hand, and that I could drive you in my new 4WD. However, if you are imagining the extent of the pain, clear scan results might help it go away. I'd love for you to be pain free. Whatever you do, sending hugs!
Stay dry, stay safe. Let us know how you are. We are on the CT porch with you.
XOX
Octogirl
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QMC: Hugs and mest wishes for the surgery! Please update us when you can!
Octogirl
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Octo: I'll see what I can do...afternoon (for me) surgery, so it'll be a while.
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Hey, crazy girls, I wrote a post about the lady on Tamoxifen who is having problems but it vanished. I stopped the Tamoxifen last night. I can't tolerate it. I was supposed to get in touch with the MO a month after starting the Tamoxifen. I called the hospital and left a message with the phone nurse listing all of the horrendous side effects. I can't live this way. The SEs from T are intolerable for me. Anyway, next step is to throw away the antidepressants. They will cause me to gain weight and place me at risk for diabetes.
Time to take a rest.
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Sigh....having my lumbar MRI tomorrow evening, and I'm hoping they don't find anything funky...like mets.I was diagnosed with spinal stenosis and I am hoping it is still the same diagnosis...sigh...
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Octo, I think you should have exactly the holiday YOU want to have. You've been through enough this year....you deserve to have it your way. Like at Burger King. Remember that slogan??? I think that should be our new slogan here in CT. HAVE IT YOUR WAY. Holidays have never been the same for me since I lost my parents. My DH, two kids and I usually lock ourselves in for the day and stay in our sweats or jammies and cook and eat. The past five years or so, we will get together for dessert with the rest of the family. I can't handle hosting the big dinners anymore and the younger generation hasn't really wanted to take over the task. I invite my sister now because her younger DD moved to Wisconsin, and her oldest DD will be moving to a different state at the end of the year. It's been VERY difficult for her since she lost her DH. She has taken their moves very hard. She may be moving in with us next year.
We can hide from anyone we don't want to see. We will wear our disguises and hide from anything that annoys. We will all be INCOGNITO!!!
See??? Shhhhhh......No one will even know who we are!! hahaha
Queen, Just a few short hours and you'll be all finished with your surgery!! I bet you can't wait.Katy, Be kind to yourself!! I'm glad you're not driving in that weather. The bone scan can be easily re-scheduled if you feel you'd like to have one done. I could never live where it rained a lot. I wouldn't be able to get out of bed. To scan or not to scan...that is the question.<------- does that sound familiar??? Good to see you posting with your crazies.
I'm being goofy this morning. I think I have a FEVER. I couldn't get in to see my PCP until tomorrow. I also have a bilateral breast US tomorrow - at different facilities.
Decision, That's got to be such a difficult choice. My heart really goes out to all of you Tamox girls. Gentle hugs to you.
Ducky, You're way too quiet. Did the sale of the house go through?? Did you land in jail for strangling the realtor and home inspector???Shorfi, Only us crazy BC girls could be wishing for spinal stenosis. Anything but progression. Degenerative disk disorder...I'll take it!! Fibromyalgia...YAY!! Total hip dislocation...no worries!! I'm sending the no progression vibe your way!!
I'm really liking these lines!! I think I'm line happy. Ok, gonna go try and take a nap. Love you all.
Edited
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shorfi, good luck on the scan and I feel for you on the spinal shit. I went to a new dentist this morning and have to say, the tech was sympathetic when I told her my back issues and the chair was not too bad.
Gee, I so get it about the holidays, I do like that I no longer try to drive to family but visit with neighbors only. I could be a hermit actually and if the neighbors had not invited me, think I would have hid out in my house!
I hate rain and wind for driving so do be save all. Gee I am a wimp
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Wow, I really wish I had peeked out of my windows and saw this town earlier.
Katy - completely understand. (Biopsy/no biopsy thing) Some days I can handle the info, others days not so much. Even when it may be good.
Octo - that is a tough spot. I am sure there is a compromise somewhere, but damn....
QMC - best wishes today.
Shorfi- gl tomorrow on the MRI
Decision Freak - I was at the point you are. Tamoxifen was completely debilitating for me. I was in so much pain my body was humming. I gained 40 pounds, have non-alcoholic fatty liver, pre-diabetes, arthritis, plantar fasciitis, panic attacks, bone pain and it was all attributed to tamoxifen. When I got to the point of quitting my RO suggested trying MMJ. I did and it felt like my body took a sigh of relief. I was pre-menopausal so tamoxifen was the med of choice. I know AIs are okay with OS but due to my chemo-induced osteoporosis that was not a great option. I felt like my body was fighting the med, and my ovaries weren't giving up the ghost. Had my ovaries out and planned to go on AI, but almost all the SEs have mysteriously disappeared. I am still on tamoxifen.
My infusion went well. Thank you all for being with me! I also stopped by my LE office to get my script back. Was going to shop around for an opening if possible. The Dept. Supervisor came out to talk with me and saw my hand and arm. She gave me some things to do while she tries to get me in ASAP.
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The drive to the hospital is 45 minutes usually, but there was flooding, thunder and lightning. Would have been over an hour. Then the plan was to inject me and me leave the hospital for 3 hours (in this weather) and go back for a 45 minute scan. Then another drive home. I've been trying to wean off the clonazepam the last couple of weeks, but frankly the stress has been worse than previous months, with the Tamoxifen issues not helping.
This morning I took a whole, instead of a half, as I was really reeling. Scheduled to talk to my shrink this afternoon. I have calmed down some. The scan can wait, I think, until the cataract surgeries are done,if my MO agrees to that. There's only so much a girl can take at once!
Still major weather here. Safe in bed with my friends, Jack the wonder dog and Toots. Jack's stomach is upset too. I've been hearing it grumbling. He's very sensitive to me and I not know how he knows, but he does.
And Shorfi- sending you a special hug. So sorry. I understand. Let's both just try to breathe today.
🎪🎪🎪🎪
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Robin- thank you for sharing that feedback onthe Tamox. Did you ever take a break from the med and go back on? I'm so glad to hear your SEs have minimized. So sorry to hear about all of the side issues, also glad the infusion went ok and the chance meeting with the LE supervisor may give you more and better attention, faster.
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My MO had me take a 2 week break. The SEs dissipated, but instantly returned when the break was over.
Forgot to add that I did meet with the tattoo artist anyway. I am going forward with them.
I should also add that it is best to research the MMJ options to find what works best for each individual. I was surprised with all the information and available options. Leafly is a good website for researching.
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Katy...I just don't know where this fear is coming from. You know when you are feeling happy and good...then all of a sudden you are paralyzed with fear. That is how I am feeling today. Just got back from the dentist...she put on a permanent crown...so sick and tired of seeing doctors. So happy you understand.
I will even take progression of the spinal stenosis...anything but mets...sigh. I think I will take an Ativan today so I can chillax.
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RobinLK, thank you for the comments. Is MMJ an acronym for medical marijuana? It's not legal in our state. I am post menopausal and could see if the AIs would work. Main fear from Medical team is they will make my fibromyalgia pain worse, but T has already done that. I am in bad shape.
I can go with 16 to 20 sessions of radiation and forego the chemo preventive drugs. I have been through job loss from Lyme disease, near starvation, loss of my sweet apartment right outside of Washington, D.C, fibromyalgia, relocation due to disability, finally admitting I was disabled and winning my disability award in five months with no legal help, 13 years of chronic pain, watching other family members suffering from chronic diseases, ad infinitum. I am unwilling to add five years of suffering from T to the list. I will be in my mid-60s by then. I want to enjoy these years. I have a Stage O, Level 1 form of DCIS. Ten year survival rate for lumpectomy and radiation is about 99 percent with same rate for mastectomy. A person can't try to prevent all the potential diseases out there from occurring.
shorfi, I know what it is like to be paralyzed with fear, as I suffer from an anxiety disorder. Can you take a warm bath and go to bed? Do you have meds to keep you calm? I have reduced my intake of anti-anxiety drugs, but they have a place when the world seems as if it is tumbling around our ears.
All of the rest of you crazies, I am going to eat dinner and rest awhile.
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Shorfi- that's exactly it. One day I'm entertaining myself, cooking, reading, doing who knows what and the next day just crippled by fear and anxiety. I used to know what my main triggers were and could do a pretty good job of avoiding it. Now it seems it comes out of nowhere and I just run for cover. Literally. I'm sure that's not the best route. I'm sure with the pain that accompanies your situation it's even harder to "just go do something to distract yourself", the advice I often get.
I know there's nothing I can say or do but I am sending good thoughts and a cyber hug. (((Shorfi)))
To all my other lovely Crazies, I acknowledge and apologize the neglect you are suffering from me. I care about you all and reading quietly, and sending good thoughts to each if you in turn. I just don't have the spirits to write more at the moment. Please forgive. Hugs to all.
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