CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Good Evening Crazies
Wow the way the holidays fell it seems like endless time away from 'normally scheduled life'. HMM or maybe that's just the arc of my life at the moment. WE INTERRUPT THE REGULARLY SCHEDULED PROGRAMMING FOR A SPECIAL ANNOUNCEMENT.
HA
Ok a brief check in
Sula I've been a bit AWOL too so I am glad to see you surfaced as well and happy that you took a step back and just did a quiet dinner for you and DH. A movie marathon! My man, who was a bit in the biz would love all those screeners! We saw Hateful 8 The Roadshow. Visually Stunning. Samuel L is a hot as Hades. I love what Tarentino draws out of the characters, and this was truly like a play, but I have lost my tolerance for the gore....Maybe you hated it. Anyway happy to see you back and I also acknowledge your 'anxiety ' about being cut loose from treatment. It's a delicate moment.
Tom- it was a wild and uncensored childhood for certain. My parents were children. I read the stories of some of you and how your parents really brought you up and saw to your education etc. My parents were a wild mess. and somehow we all got a college ed ( I had a full scholarship to Oberlin as a double degree in voice and humanities.... another story all together there). My middle brother suffered most from my parents antics and barely made it through HS, but now has 4 masters degrees and a degree in tax law. The youngest ( 46 years old) is a has a successful collaborative relationship with his wife and they make cookbooks- he is a photographer and she recipes tests, edits and writes ( I've assisted them on occasion). So we all figured it out, but it wasn't a straight shot. In fact I'm re-visioning again with my new curve ball!
DF that photo of Ani is so beautiful. thank you for sharing.
Katy- ah twin souls we are on those movie pics and being a raw human being is an exquisite thing. We must just remember that self care is a priority and there is zero wrong with that.
Ducky what to say. Those shoes. That face. you are a force! Thank you for doing your dance at midnight. Recent pic of Bobby is beyond.
PTS good to see you too. Hope the rest and the soup kicked the cold to the curb.
7 and grandma excellent re clean scans. So happy for you both.
Queen is your skin healing?
Slow I'm waving at you! are you busy 'uncluttering'?
I don't remember if I posted about my RO appointment. I went to the Weill/Cornell Radiation center. An extremely welcoming stand alone facility. The staff was extraordinary. Very intimate. Did not feel at all like a 'sick place'. I liked the RO, Dr. Smith. He was a little startled at how much I 'knew'/ had researched before coming in and also about my questions based on my understanding/training in A& P. He was patient and really made room for me as a person rather than just addressing me as a person with a disease. I do, however, think he was thrown when I point blank asked if radiation to the pelvic area would impact my sex life ( thankfully nothing has done so yet). He really couldn't answer..... I mean he said no, but I wonder how much people really get into the deets of that.
Anyway the plan is I will have an MRI of the pelvis and lumbar this week, and hopefully the simulation this week too. We will 10 rounds starting the week of Jan 18. That's the plan...... will of course keep you crazies posted.
I will check in more tomorrow.
Love to you all
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Here is a post showing me in the water, snorkeling in a drysuit on New Year's Day....yes, my fins are pink. I've had them a long time, what can I say. Probably time to get a new pair.
I didn't stay in the water very long, even though it was warmer than the air temp, but wanted to do it on the theory that what you do on New Year's Day will bring more of that activity the rest of the year. I also walked along the ridge on the other side of the cove. A beautiful day with friends (but damned cold).
Love to all;
Octogirl
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that's beautiful Octo.
What a great way to swim into the new year.
Hugs
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I am so happy for you, Octo! I have always felt that way about the New Year, too, but this year I failed miserably on the first day..
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Not a happy camper...............up since 4:15 am..........could not go back to sleep.....so here I am IPad in hand,.......just read the newspaper, and deciding if I feel like doing the NY times crossword puzzle......
Going to my sons today......we're having leftovers from his NY's Day family gathering.....and of course watching the Eagles (hopefully not lose their final game of the season)...............honestly would rather just stay home.....getting cold here, and I hate the cold weather............
So for my East coast ladies who are lucky enough to still be sleeping.......and my. West cost friends, and everyone "in between"..who are probably turning over for the first time..............I hope you have a great day.........hugs........0 -
Good morning, crazies--
Ducky, you definitely were up earlier than I was! Cute, cute baby pix are always welcome! Sorry you're not a happy camper today; I hope the party at your son's house will cheer you up.
7of9 and Grandma3X, glad your scan results were clean. 7of9, that's a wonderful picture of you and your boy, who looks just like you, by the way!
Katy, thanks for the recommendation of Babette's Feast, which I've never seen. Pretty hard to ignore a rave review like yours--I'll have to check it out one of these days.
Roserx, glad the troll is soon to be packing. Happy New Year to that!
Gaia, that's such good news that you saw a RO and have a plan going forward. I hope it brings you all kinds of pain relief. Keep us posted?
Nice to see you back, Sula and Proud.
Octo, what a great picture. I refuse to believe anything is wrong with pink fins!
I like the idea that what you do on January 1 will somehow carry over into the new year. (Though that means I will spend the whole year slathering burn cream on the front of my chest. I can't wait for this rads SE adventure to be over.) On the other hand, we went out for dinner on the 1st with a large group to a Hunan restaurant in Flushing, Queens. I would welcome more Hunan food this year. Or more visits to the chinatown in Queens. It was fiery hot, with some chiles that I'd never had before; they'd been fried in such a way that they were crunchy crisp. Our table was half vegetarian, half carnivore, so we ordered a mix. Got to watch DH and DS eating snails for the first time. Excellent scallion pancakes, roasted cauliflower, lamb with cumin, fish in some sort of cabbage sauce. Two days later, the roof of my mouth is still a little traumatized from the chiles, but it was worth it!
Dipping into Atul Guwande's Being Mortal, but it's hitting a little too close to home. We'll see if I get through it. Enjoy your Sunday, everyone!
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Rainnyc, I really enjoyed that book. Pretty much everything he has written is worthwhile, but then I am weird that way.
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Octo: cheers for the snorkel! (my eyes are leaking, ever so slightly)
Rainny: though I had no part in bringing Babette's Feast to your attention, I'm glad you like it. It's one of my favorites as well. Babette's expression the first time she tastes ale-bread soup. The location. Well, all of it.
Gaia: the escar (or whatever that's called) isn't getting any worse, I think. About the same size and color, thank deity. But I've spent most of the last four days coughing like stink--the kind where your lungs get kinda carried away and run with the breathing pattern. Hoping it's just bronchitis. And that my PCP doesn't put me on yet another antibiotic.
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Click here for anti crazy mechanism
Queen- hope you're feeling better very soon
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So do I. So does my husband. So do the cats, if only because they bounce off the smell of cough-drop breath.
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For my Crazies- thanks for proving it.
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Okay, okay, I can take a hint. Will watch Babette's Feast!
Tomboy, I too really admire Atul Guwande's writing. I don't think it's weird. Or maybe I am--oh, never mind!
Feel better, QMC!
And in the meantime....
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Rainn- after that watch Out Of Africa again.
Best picture 1985. Nominated for 7 AA.
Some say one of the best pictures EVER made.
Based on a story by the same author.
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katy, that says it all.
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DecisionFreak: I don't know how much weight your breast reduction surgery will remove, but I hope you will be a lot more comfortable after that. Here is my 2 cents' worth: I was a 34DD before my bilateral mastectomy. The pathology report indicated the weight and measurements of each breast. Funny! The total weight was 1155 grams (2.5 pounds). Somehow my weight is the same as it was before breast cancer. How did that happen? Is it the implants or the Christmas cookies?
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Hi, Queen,
That does sound strange. Maybe you didn't have an accurate measure of your total body weight before surgery. Or, maybe it was the XMAS cookies. This year I refrained from eating holiday food except for one exception.
I am a 40DD. The surgeon that suggested this solution told me she has been doing this type of surgery for a decade with spectacular results. Based on my research, the more breast tissue you remove the lower the risk of breast cancer, but the prevailing view is that a mastectomy is too radical for low grade DCIS. These breasts pull on my back and neck, cause pain and discomfort, and exhaust me. I did not think of explaining all of the problems created by my breast size to the medical team. When I was 25, I got my weight down to 137 and I was a 32B. I am almost 61, weigh 186, and I am a 40DD. I was not a 40DD in my 20s when I weighed 180 pounds. Birth control pills prescribed to improve my mood also increased my breast size.
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Katy: in your pocket for the discussion of your test results.
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katy, ditto for me. I am hoping that you can get through all the medical stuff and enjoy life.
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hi all. So having issues with my new dumb note pad still, thinking of a bigger toy.,
Cold is better but trying not to give it to anyone else so oh well boring not doing my lovely gym & pool
Playing with coloring books
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crazies, I am working to develop the Great Entertainment! thread. I looking for a Web site where I can find some fun free graphics, including images that move. If you have any suggestions and /or links, can you please send me a PM?
I may have mentioned that my number one resolution is to laugh more in 2016 than I did in 2015. Last night, during a bad hot flash and awful crying jag, my brother suggested I might shed my clothes to get cool. So, I changed from jeans and a knit top into a summer nightgown. We turned the air down to 68 (low for me, although other women say they prefer low 60s). Within 20 minutes, I was calm and cool. I finally managed to hook up Netflix. I stopped doing anything to chill out, including watching TV and movies, after we found out about Anne's mets last March. It has taken me nearly a year to turn on a radio or television set. I have rarely left the house aside from going to a doctor's appointment and attending church two or three times. I did very little gardening and yard work last summer.
So, did I watch a funny movie last night? Are you kidding? I watched a movie about a young psychopath and thief that turned to a highly compensated career stalking crimes with a police radio and turning up with a camcorder to film death and mayhem. The movie starred Jake Gyllenhaal (sp?) the young actor who made his name in Brokeback Mountain. Gyllenhaal did a good job of playing a psychopath.
The problem in my mind is that a few actors have set the bar for playing psychopaths. Anthony Hopkins in Silence of the Lambs - hard to equal his suave but repulsive characterization. If you want my view of the most cynical portrayal of a psychopathic killer on film, coupled with a damming view of money and power, then I think you would have to consider Christian Bale in American Pycho.
So, I distracted myself with a grade B movie about a psychopath.
Anybody have a nomination for Psychopaths I Have Known and Hated? I have probably forgotten about a few psychopaths. In fact. I saw Brad Pitt in a chilling characterization of a psychopath in a road movie. And lest we forget the women, Charlize Theron was exceptional in Monster as the prostitute turned killer.
katy, I don't have a DVD player but I am going to see if I can rent Babette's Feast. I did see Out of Africa but looks as if I will have to watch it again. You can be our queen of high culture! We need somebody to remind us to turn away at least on occasion from mind-rotting entertainment in favor of films that are original, unique, and meaninful.
Getting back to raunchy, I watched two Saturday night XMAS specials back to back the other night. I must be getting old because I realized how crude Saturday Night Live can be. Still, I saw Martin Short and Ryan Gosling for the first time. Martin Short must really enjoy being sleazy. He did a wonderfully comic scene acting as the emissary for the Duchess of York preparing a GYN doctor on how to greet the royal ahem vagina. I fell in love with Ryan Gosling. He can be very luminous. He has quite a range of abilities as an actor. He can turn on a dime from charming and innocent to crazy and scary. This is an actor to watch. Since I am out in the country living across a cow pasture, I may have to work a little harder to keep up with entertainment than I did in the past!
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Reporting in with mostly good news
Bone scan is clear
Liver enzymes only improved a few points but other liver functions ok.
FSH was in meno, estradiol still not meno. But I think doc is swaying towards an AI with no OS needed. Since I haven't had a period in over 3 yrs!
So they are switching me to an AI. Not sure which one. She says they can try them all until I find one I can live with. And hopefully liver ezymes will continue downward. After 30 days they should have come down almost all the way. Weird.
So yay for degeneration !!!!
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So I was reading about Aromasin Jackbirdie, and it may raise liver enzymes. Just a heads up if that's what the doctor suggests. I posted the study at Clinical research here somewhere.
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Katy: Yay for degeneration indeed! May we all slide downhill together. (sheepishly) I can't now remember: how flustered were you doctors about the liver enzymes?
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They seem only mildly concerned. Said if they don't continue on an upward trend they could live with where they are now. I'd rather not. I had this problem last year and then they were good for months, including during chemo. So I know I'm capable of "normal".
Thanks for the pocket party everyone. Just sweeping up the crumbs now. 🎪🎪🎪
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Wait, is it too late for the party? Good news in general, I'd say!
Sliding, sliding, sliding....
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katy, this sounds like good news
I bet your liver enzymes normalize with time. I discovered in my reading that it can take a long time for Tamoxifen to leave the body.
Yay for katy. I bet you are relieved.
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Dashed home to see your news, Katy. Yay for a good scan! I thought about you when I was in my two hour wait for my radiation treatment this afternoon. They had problems with the sim they were doing ahead of me. Decision has a good point, Tamoxifen lasts a while in the body, maybe you need another month to recover. Sorry about all the crumbs, we can be kinda messy.
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Hi All! I want to join Crazy Town. You are the only ones that understand hot flashes, anxiety, a TE that slides under my arm pit when I lay flat and the fact that I want this damn port out. It's been in for 1 year tomorrow. It did its job and it's time to go!! My grandkids are always bumping into it. 2015 was the most horrible year of my life. It's over though. For that I am so glad!
Happy New Year 2016!
Patty
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yay for degeneration from here also!!! Happy Dance!
Octogirl
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Welcome Patty!
Katy=greaty!!!!
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