CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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welcome Bcky- my heart sure goes out to you. You have had a terribly traumatic year on so many fronts ... Just a quick hug and a note that gabapentin causes elevated liver enzymes in some people. I was taking it but had to stop. Enzymes came down. Nothing else changed. Then Tamoxifen did the same. But a good drug for many people. It's just that everyone is different.
Please pull up a chair and sit with us a spell. I hope your tests go well today. We are with you.
Cubbie- you too! I hated my port. But now that it's gone and I'm back to regular sticks, I'm developing an aversion to needles. I can't look or I get dizzy. Let us know how it goes. The first few follow ups with the mo were nothing more than a glance at bloodwork and a quick feel up. Felt strange after the almost protected feeling you get when in chemo. Then you are pushed out of the nest and free falling!
DF- there is a book thread called Book Lovers Club I think. They are very nice and mostly recommend and review new and old books. I'm onmy phone right now so i can't do a link without risking the entire post. Having said that, I don't think it necessarily means you can't include them in your thread, especially in the way we have been doing, I.e. Recommending books movies were based on or books that add to the topic. I had just found Beryl Markham's book because after watching OOA again, I wanted to know more about Denys Finch Hatton's life (and how much literary license had been taken) so I say go ahead and leave it open! Once I get interested in a topic , I tend to hunt it down till it's dead.
Also I think sometimes it's intimidating and feels like one is barging in on an older established thread. Sometimes a newer thread will be a less scary place for newer sistas from different mistas!
🙋 (((Shorfi))) thank you!!!! 💞
Hi Jan! Good to 👀 You!
Hope everyone has a beautiful day!
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Octo- sending a special medal for bravery through the tube. These things don't have to be 100% rational for them not to be very real and scary. So glad Gabe could go. He is getting a miniature medal just like yours! Hugs! Jealous about Cozumel. Warm breezes and cool things to drink with little umbrellas. Haha. Or perhaps just a very strict little Maggie with the best tequila and fresh lime and Cointreau. Oh wait. I have to sop up the drool!!!
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And Tomboy!!! In your pocket for the consult! Even though not invasive, I find sometimes all the imagining of things they talk about doing to you make me almost faint! I'm very glad you have confidence in this doc and that you are advocating for yourself and a better QOL.
Please keep us posted!
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hi all. Dang cold here, so not as good at food porn as Sula but got pot of red sauce simmering on stove, figar,ure the 3 pounds I lost with recent flu will be happy to return to my hips
Welcome to the new folķs, this place is a cure for all, now if my silly new toy would be nicer to me tyhen would comment more, stay warm easterners
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Rain Rain RAIN rain Rain!!!!
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Okay Ducky! You conveniently left out the part of how you became "best friends" with that pilot, and how you are now a proud member of the Mile-Hi Club....!!! Can we say that with a straight face? Haaaaahah! Remember how much we used to tease each other.... ??
I think we can talk this way, because we are too old, and no-one would dare bother us, or even TRY and straighten us up..... we wouldn't pay any attention anyway.... would we?
I just HAD to comment after I saw your "picture" with your Pilot....
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Ducky, I HAD seen the pics of you and knew about the mile high club! :-) I kept wishing my pilot was as cute as yours! :-)
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ProudtoSpin; SNIFF SNIFF SNIFF SNIFF photographs as may be, my imagination will do quite well just now. (dribbles in anticipation)
Chevy: that wasn't serious? (runs away giggling)
Now back to the new crazies: welcome.. Established crazies: would the Official Welcome Basket be appropriate now, or should I wait for SlowDeep to confer that?
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Chevy...........LMAO......oh my word did we tease each other ......it was so much fun...........and your right.......we never did pay attention to anyone who thought we were goofy..................Goofy is good.............LOL......
Hope your doing well, and had an enjoyable holiday.............and you have a good 2016........take care of yourself.................hugs
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Thanks, Katy. I won't know the results until I see my MO next week. I always look away when they draw blood, too. The funny thing is, today I realized I was looking the wrong way - they have to draw from the right arm rather than the left arm, but I still turn my head to the right out of habit.
Off to support group, will write more later.
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Queen- go for it! Slow knows you are on the case and appreciates it!
Let the cornucopiae runneth!
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katy, thanks for the ideas and insights. Your thoughts are very helpful. I think we have appointed you Deputy of High Culture unless you prefer to be Queen of High Culture. Make no mistake now, I will be moving as fast I can to locate Babette's Feast and Out of Africa. I have a deep and abiding love for great cinema. However, you can counter my love of pop culture, indie films, cult films, and movies about lifee on the margins.
I will get this thread set up soon. Since the concept came from the Crazy Cauldron, I am hoping that the crazies will contribute and feel the thread is as wild, crazy, freewheeling as Crazy Town.
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Okay, so today was labs. I see my MO on Thursday. Last week I was anxious, then it settled down. Then yesterday and today the anxiety flared up again. When I was driving home from work today, on my way to have my blood drawn, I remembered that my MO had added Ativan to my post-Adriamycin anti-nausea meds, and I knew I hadn't taken all of them. After getting my blood drawn, I talked to the nurse and explained my anxiety. I asked about taking an Ativan, and she wholeheartedly encouraged me to do that. And add in a bottle of wine if necessary. I explained that I don't drink, so I'd just stick to the Ativan. Hopefully it helps until I see my MO on Thursday afternoon.
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DF- we already have our queen! QMC aka vice mayor.
Long ago in a galaxy far far away, I was given a CT position. I can't remember what exactly. I stuck my neck out interpreting a couple of dreams ( unasked and uninvited of course ) and pouf! A new identity was born. Haha.
I wonder if Slow has all those written on her spreadsheet?
Tomboy is art curator and head of the Crazytown museum
Octo is head bouncer, in charge of kicking people out who say stupid and hurtful things to us. She has the power in certain cases to order the workhouse. Cleaning up in the Crazytown Cafe. Sula as menu consultant for CT cafe.
There were so many others, anybody remember? If we can put this list back together, we could make it sticky in Slow's opening comments. Plenty of room there, hahaha!
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hey there crazies!!
How are you all doing? Getting a bit more organized here now we're into the New Year.
Ducky,
That Bobby is sure photogenic, a real little cutie... Your family really ticks all the boxes in the beauty department and we haven't even gotten around to brains yet... They're all smart too!!
Jack,
So glad you got an all clear on your scan! Such great news.... And for the bell chant, greatly appreciated!
PMR, Grandma,
Welcome to Crazy Town...growing by leaps and bounds every day!
Bcky,
Sorry you had such a sucky year, hoping things get better for you in this new year.
Patty, and Swans,
Welcome to you guys too!! The more I read the more people I'm meeting, this is turning into a metropolis!
Octo,
Glad things are going swimmingly for you! I like to think of the octogirl paddling away out there!
Slow,
Hope you're feeling better soon, miss you! You are the founder/ ringmaster of this mad circus
Gaia, Tom
Waving to you both from rainy Sonoma...
Sending love and some kick ass to all of you ... Seems to be a lend of what we need
Today.... May have been my last Herceptin... They need to see the chart so if the timing was on the nose... Some stuff got delayed by the holidays I may or may not be due for one more. I don't care as I will gladly take whatever they give me.... Anyhow, just got back and am tired ... So nighty night all you guys.., I have movies ( homework) to watch before voting.
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Sula, it's really nice to see you here, goodnight, and have fun with those screeners! Next year, I'm paying dues, so I will get to see them. When you've seen the screeners, it's so much more fun watching the academy awards.
QMC, you are doing a fine job as Honorary Mayor, with help from katy!
rwiley, s'prised that that nurse mentioned mixing Ativan with a bottle of wine! Wow! I would have to be peeled off the floor!
Octo, I am gonna clear my menu for late spring, and try to drag my man to Cozumel for a week or so! Even if we overlapped only a day or two, I think the water there looks amazing and I would love to frolic in it! I am still so proud of you going in on new year's day, where was that you went in, I forgot.
Love Beryl Markham's book, too, I only read the one that was mentioned, I never looked to see if she wrote more. I found it at a yardsale and bought it without ever having heard of her. Amazing woman pilot! Since I am a tomboy after all, I have always loved women who do things that weren't really things women were 'supposed' to do.
Since I am the artist in residence, I bring to you someone you might have missed:Beautiful Kara Walker, enjoy!
I really could have stayed home today, my visit was much like the last. I have decided to try it, just to see what happens. He did show me a bunch of imaging of myself, interesting! He said I have arthritis in my right hip. No one ever told me that. Plus, when I told him I hadn't seen my onc for a while, put in a request. It's been about 8 months, past time. Supposed to be six. And since I am persisting with tamox (I must, with all those +nodes), I really need to be followed more closely with my Gyno there.
But, Yay! I get to have some more LE sessions! So I can get my arm down a little more, and be measured for a new sleeve and glove. I am really overdue, and need to do this before I start lifting weights.
Katy, that's a really good idea about pinning our titles to the top! I am working on the medicine bag, but it's got a little way to go. (there IS a kitten in it, optional) Film soon.
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This morning I woke up and said "I cannot believe I wrote so much. They are going to think I am crazy!" LMAO. My appt. went well. In the Blood testing waiting room I struck up a conversation with a woman sitting next to me. She said she is 65 and was dxed last year. I told her I was 47 and jealous that I got BC almost 20 years younger than her. In the blood work waiting room this sweet lady gave me a big hug. My oncologist said my liver and blood counts are superb and more than likely the spasming was my muscles.
I was decorating my porch and stretching very high up to hang lights for Christmas. She is not worried about mets. She said my breast reconstruction came out nice. On the 11th I get my nipple. The 5th and last breast cancer surgery I hope. Here are my babies.My daughter in pic#1. My son and a friend of his in pic#2. I live in the desert and it is very cold and snowy here tonight.
I read a comment that perhaps I need rehabilitation. Actually all these pills have caused a massive improvement in me. It's Crazy I know. LMAO. I have to take so many pills. I feel like a paper doll being held up by tape and pins. Previous to the medications I was deeply suicidal and cried non stop. My brother committed suicide 15 years ago. I am the last remaining child for my parents. That is the only thing that kept me from committing suicide months ago. I really need every pill I am on. My psychiatrist. My psychologist. My BC Support Group. All have kept me glued. My therapist explained not all people come into a cancer dx with the emotional tools they need to cope. Some of us had traumatic lives to start with and cancer was the straw that broke the camels back.
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Sula.....hope your doing well.
Thank you, yest Bobby is a ham....he knows just the right things to do when someone flashes an IPHone...........LO
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Katy: weren't you the forum's Dream Interpreter? (I seem to recall one of mine, in regards Somali pirates) Was there something else?
BcKy: (laughs sympathetically) Well, that's why you're here, isn't it?
That's why we're all here, I think: that dark moment of fear. Sometimes it proves nothing--a smudge of chocolate. a bruise from a forgotten injury. Thankfully, it's often baseless, but not always. In the bright light of day, among friends, we can laugh. Because then it is funny. At three in the morning, alone? For a split-second, in the doctor's office? NO.
But at least here, we know we're not alone in that missed-step, lost-breath moment. And we can help fish one another out of the hole, and laugh sympathetically.
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My personal crazy for the day: appointment with PCP about incessant coughing (mine). I managed to produce a couple of bouts of truly spectacular same for her. Husband and I promptly walked away with phoned-in prescriptions for one of the prednisone variants, "Tessilon perles" (non-opioid cough suppressant) and an albuterol inhaler, duplicate of what DH has for his asthma.
Also a concession from PCP to DH, as they stood outside the bathroom listening to me whooping and gagging for a couple of minutes inside, that I must have been awfully ill to concede to an appointment today. This after a few blistering (figuratively and literally) exchanges back in October regarding my erysipelas, and hospitalization for same.
Big of her.
But we all have our descents into crazy.
(sheepishly) Now I just have to go back through our forum records for the actual welcome basket!
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Queenmomcat Yes Crazy Crazy Crazy. LOL I have a stuffed bunny I hold at night now to fall asleep with. I gave up my need for stuffed animals in my late childhood but after my BC dx I cling on to my bunny. I had a stuffed baby bunny when I was a little girl. I would suck my thumb and rub that bunny all over my face when I was tired or stressed. I have not resumed sucking my thumb or rubbing this bunny on my face. LOL But it does sleep with me every night. Perhaps I am experiencing a tad bit of REGRESSION. LOL
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Goodnight, Bcky. Goodnight, mush. Goodnight, moon. Goodnight, mittens. Goodnight, little old lady murmuring hush. Goodnight, crazies, everywhere.
I have a live boycat, who comes to snuggle at night. When it suits him. And a Comfort Sweater.
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Goodnight, Queenie!
Bcky, glad to hear the good news. This is silly, but I sleep with a stuffed fish, and have added a beach towel that my best friend gave me for my birthday when we were about 10. It's just a nice reminder of her. She lives halfway across the country now.
Ramona, I am right there with you on the stress of these followup visits. Mine is Tuesday. We can be stressed together!
So much more to say, but I've got to get to sleep, I'm exhausted. Goodnight, crazies, sleep well.
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Bcky, you have a good looking family, like Ducky does! Where do you guys get these looks! Nighty- night. Like , I am gonna lay down in a few hours, and then fall asleep a couple hours after that. I always think too much after an appointment, and i am pretty sure there are two weird flatish purplish lumps that are relativly new, that no one else can see or feel. Oh yeah, make that three. i keep forgetting about the smallest one. I hope it rains tomorrow, I want to go for a walk in it!
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I went to bed about 8pm last night (after taking one Ativan, no wine) and slept real good. This morning I don't feel like I'm liable to burst into tears at any moment. At least not yet.
Now to just get through today, tonight, and tomorrow until I see my MO at 4pm.
Side note--the nurse I spoke with last night is relatively new (less than a year) to my cancer center. She is ALL about putting together a "survivorship"/after treatment program. YAY!! I told her if she ever wants any patient input, please contact me. We also discussed the word "survivor" and I told her I'm somewhat ambivalent about that word because we really won't know if I survived breast cancer until I die of something else. She replied, yes, there is not really a cure. And I responded--"Yep, it's just NED".
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Thank you all for the warm welcome! I called and got a date to get port out on February 11th. That is the soonest they said. This TE is driving me CRAZY. I got my last fill December 29. Is it supposed to be sore and feel swollen? It's not red or anything. No fever. Wearing a bra for any length of time is painful. I guess I should be Thankful it looks mostly normal in a bra. After the exchange does it feel better? Ugg!
Thank you for any information!
Patty
Ps I wish we had a like button. I sleep with this silly pillow. I loved your stuffed animal stories.
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pm, I used to wear big nasty bras, gave up as my rib hurt, now wear cheapo stretching things and feel much better, who,cares how the boobies look
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How funny about the stuffed animal. As in ironic, I too slept with one for a bit. A little bear I received from the Women's Center. I found out this year that it is a "biopsy" bear, you get one with a breast biopsy. Never put it together over the course of the past two years. 😂
Welcome everyone! I think I am the CT recluse. I peer through the curtains and watch everyone playing nicely with each other.
Started to cry at RO appt yesterday. I hate the anxiety that comes with all the appointments. The only ones I truly look forward to, at this point, is my LE therapy. That is probably due to the fact that there is massage involved.
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Robin...........Hi, I don't remember you getting an official welcome.........correct me if I am wrong......but Rads can do that to you, and so can this whole. BC bullshit of a journey...................so I am happy to tell you.........."YOUR NORMAL"...............don't hide, come on in.......bring your tears, joys, happiness, funny stories with you.................we listen and love them all........................hugs
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Oh Robin, by the way....in case no one told you including "MOI"..........I am the oldest (80), prettiest, funniest, smartest, sexiest, one on this thread........and also a member of the Mile High Club.............you don't even want to hear that story..................LOL..........come sit a spell.........
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