CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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It's too cold to go out. I'm watching Netflix, Sensitive Skin. Anyone seen it? I can't help wondering if the female character will get BC? Right now her biggest problem is she's 50 something
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hello and Happy New Year to all....will add a few movie nominations when I have a chance, and thanks for the reminder to record Downton Abbey since I may be busy Sunday night (I am totally hooked)...but mostly I am checking in briefly before my shower and dinner to report back that yes, I did indeed get in the ocean today! Woohoo!
More, including pics, later...possibly tomorrow as I may sleep well and early tonight!
XOXO
Octogirl
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Never seen Sensitive Skin. Let us know what you think.
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Only one season will have to wait for next season to decide. Has potential. I'm on Nurse Jackie now....
she 's addicted to painkillers.
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when I get my scan results on Monday I can figure my odds .. .. Though number of lymph nodes will drive up or down after surgery on the 19th. Kinda like the derby future wagering pools... Funny, I always looked forward to them each year.... Still I dragged hubby to Cleveland Hard Rock after meeting with surgeon on Wednesday and we came out ahead $218.... Off to a good start. Won most of it on some crazy fishing 2 cent slot machine...
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Just saw a study on Pub Med showing some early data on beta blockers reducing breast cancer mortality. I took beta blockers years ago because I have an extra heartbeat and mitral valve prolapse, conditions linked in some people to chronic anxiety and anxiety attacks. The beta blockers got rid of my anxiety, but lowered my blood pressure, and I already have amazingly low blood pressure for someone my age. On ADHD stimulants 120 over 80. Not on ADHD stimulants, 100 over 70. On beta blockers 90 over 50. One of my docs said no beta blockers for me.
Well, who woulda guessed that beta blockers could be part of the war on cancer?
Read the text of two studies that show a significantly lower risk of breast cancer among women that had breast reduction surgery. Again, nobody is saying that a woman should have breast reduction surgery to reduce her risk of breast cancer. Since I am not having radiation or taking chemo preventive drugs, breast reduction surgery could lower my risk of breast cancer by 30 to 60 percent. For someone my age, the decrease in risk is in the neighborhood of 60 percent. That is higher than Tamoxifen.
Something the doctors don't tell patients with ductal carcinoma in situ is that radiation does not improve overall survival for DCIS. Why have radiation when you have low grade cancer like mine if it will not save your life? So, I may have a recurrence or invasive cancer, but I may not. In addition, I want to grab the brass ring and have a high quality of life if possible. I don't see any reason to save my life, if the treatments will ruin it.
Anne had to stop her radiation prematurely due to over-exposure. Seven years later, we are still dealing with radiation wound on her chest that opens up after chemo. Good news is that radiation wounds on the chest are usually not anything to worry about. Vaseline works wonders to promote healing.
If you live near Panama City, I am about 100 miles from you. I have some huge aloe plants on the back porch. If you want aloe for your skin while you are undergoing radiation, I have plenty to give away if you would like to drive 100 miles, LOL.
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Grandma....welcome........glad you decided to join us.......
Jack, love your story...she sounds like a great lady.......nothing like your Mother as a friend.
Hope you all had a great N.Y...........Spent the day with my son's family....he decided to have the entire family over his house........beautiful time.....great food,and my kids, grandkids, and great grandkids....jsut a fe missing........but it was sitll a crowd.....hugs everyone.....
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Just finished watching Babette's Feast again. Marvelous movie.
I had forgotten it was based on a story by Karen Blixen.
Karen Blixen also wrote under the name Isak Dinesan. Who wrote Out Of Africa.
Which I'd like to nominate as well. I did say I liked Meryl Streep.
Interesting coincidence
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just read this quote from Gilda Radnor. I loved her, and loved what she said about life (she had ovarian cancer) here:
"The goal is to live a full productive life, even with all that ambiguity. No matter what happens, whether the cancer never flares up again or whether you die, the important thing is the days that you have had, you will have lived."
Not easy to do, but an honorable aspiration. I will try in 2016.
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Wonderful quote, katy. Gilda was right.
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Happy New Year to all the Crazies!!!!
I have fallen sooooo far behind on what is going on here I've been trying to read tonight and catch up with everyone and what all of you are up to!!!!
Chi,
Love the travel shots! That's some adventure you're on!
Ducky,
What can I say... Oh them Golden Slippers!!! And you do look fierce girl....in the very best way!
Jack,
Tutti and Jack are adorable as always ... It's so good to see you guys enjoying your holiday
Gaia,
Love your kitchen shots! I never look that good around the stove! Your parents and that vacuum...whoa! I just want to put a soundtrack to that.
Slow, and Tom,
Thanks so much to you for bringing us all together even though I've been running silent the past weeks I'm still Checking in occasionally.
The rollcall here in Crazy Town is getting longer and longer
Around here we've been freezing our butts off... But at least we're getting rain and there's lots of snow up in the Sierra.
Our house guest finally left the other day and it's been a mad whirl of cooking, and parties etc. Inwas planning a New Years Eve birthday dinner for my husband ( it's what I usually do) but Inwas just exhausted practically to nausea the other day and he suggested I not push myself. I just hit the wall and couldn't face doing it. Instead I cooked the meal I was going to do for a crowd and we dined alone. I gave him lobster risotto, and a bunch of fancy fixings including a chocolate raspberry ganache cake. We have spent the last few nights catching up with all the Academy screeners we've been sent as nominations are due in soon. Last night we watched The Hateful 8, 99 Houses, Son of Saul. Tonight we plowed through The Danish Girl and Brooklyn. We still have to watch Suffragette, and something else I can't remember. I think we've watched 20 plus movies in the last few weeks. So now each of us have to figure out 5 original screenplays, and 5 adapted screenplays worthy of nomination and get our votes in
Tuesday I have my final herceptin, then surgery to remove the port and set a surgical date to remove ovaries as I want those gone since my mom died of ovarian cancer. Of course after that we have to get back to the script we are supposed to be writing.
I have also been working on vegan meringues and pavlovas made using the Aquafaba method.
Those are the meringues before they got their chocolate top hats.
I'm getting the usual anxiety I always get when chemo/ treatment ends and I'm out on my own. I'll be seeing one of my oncologists every 3 months which is a relief. Anyway sorry to be so absent and out of touch but I think this energizer bunny finally has hit the wall. A friend pointed out to me the other day that this current blast of cancer has been going on since Sept of 2014 and I realized just how long that's been. Anyway it's a new year now...onward and upward
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Sula............missed you....take it easy dear, we need you here...hugs
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Morning all, looks like all have been busy, sorry my brain can not remember all. This past Sunday I started with a dandy cold or flu thing. Had a regular visit to my pad on Monday and she gave me antibiotics and told me to other sinus prevention tricks. Dang but it is first problem since sinus surgery in 2013 so dang it
Df, sort of thought into mentioned that my sisters breast reduction surgery a few years ago took 5 pounds off of each boob, she did a ton of swimming to loose weight and get in shape before and now looks like her pre baby Self
Still learning my new toy as old laptop drowned in spilt juice. Boy this thing is way dif than old laptop. Dumb spell check, can not seem to get words to print correct. Primary care doctor was the person I saw
Shorfi, good luck on your back plans, mine is happy today but I fell the other day, think it is my hip joint and think it it is related to the spinal stenosis
Giving myself a day on the couch to cure my cold, soup is in work
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Ladies..had to share this......my grandaughter happened to catch this shot of Bobby, at my sons New Year gathering last night............love it......
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ducky, aw, too cute.
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Bone scan is clean! I was happy and relieved for about an hour.... So happy to get results on a Saturday while at a train show with my son and husband.... Of course now Im worried that they posted bonescan and a bunch of other weird blood tests but I don't see the CAT scan results posted yet..... Argh!
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Decision Freak: thanks for the information. A little concerned about radiation from what you say as I didn't have it first time around (they thought they got it all....oops) but it looks like it's in my future now. Find out more on Tuesday. I have heard some people say it just made them tired...read stuff about burns and sores. Good grief Charlie Brown. At least I should get mine well before summer months are here....though prickling fear they may want me to do another round of chemo as precaution since it came back in the armpit lymph nodes. I don't care for the hair that came back after first go round with chemo but at least it's hair....
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7of9, I'm one third of the way through radiation, and it hasn't been too bad. I'm a little pink, but it doesn't hurt, and I haven't been tired. The biggest side effect I've had so far is itching. The doctor has me trying some hydrocortisone cream for that.
Love the picture of you and your son - that looks like fun! What a relief about the bone scan. Let us know when you hear about the CAT scan.
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7of9 - I agree - Argh! I had a bone scan last week and was relieved to see that it was clean, but then noticed that the radiologist posted his results less than 10 minutes after i completed the scan! Did he just not look at it carefully? Or was it so benign that he could just tell at a glance it was clean? Anyway, I got a second opinion from Johns Hopkins where I am having my surgery and they confirmed that it was good.....but not until after a couple of sleepless nights.
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Ducky, glad you had a party to go to for New Year's. That's a beautiful picture of Bobby. I love the lighting, it makes the scene look so magical.
Iris, I had that bug as well, over Christmas. I'm still kind of congested, it seems like it takes a while to get over it.
Sula, I can believe you'd need to take a break after your whirlwind December. The meringues look perfect, can we get a pic of them after the chocolate is on?
Just saw your good news, GrandmaX3. It does seem like reading scans and xrays doesnt take as long as you might think. I wonder if they can look at the scan while it is in progress, so it seems like it took less time than it did? Don't know. When will you have your surgery?
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grandma3x...I noticed too that my scan was read within 45 minutes of when I had it done but it must have gone to my onc for him to review or see first.... my onc must have been sent it first and it's like he was going through his charts and oking things first...
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Plus, if you don't do rads the first time, if it does recur, - then you can use it.
7,you are a beaut, and maybe the youngest one here. Your son looks terrifically happy, as does ducky's Bobby.
Sula, all those movies, all that food, all those people! Birthdays and holidays,wow, I don't know how you do it! (i'll just throw together a little lobster risotto here- NOT!!) My goal is to become a better cook, my poor man. He likes my food , I don't know why.
D'Freak, I know there is a book thread here, I think you should start a movie thread, or someone should, I am sure it would be wildly popular! Especially amongst women doing chemo, or who are otherwise flat on their backs. Being careful to not reveal too much.
GrandmaX3, Welcome to our crazy town! I am sure our mayor, when she arrives , will give you one of the most wild welcomes you may ever receive. Oh, I meant to ask, was it a Dexa-scan you had, checking for osteoporosis, or a bone scan checking for mets? I think maybe I missed something.
To all other crazies, we couldn't have built such a lovely town with out each and everyone who lives here or just visits. So thank you for making it a special place.
Gaia, just hello! I loved your pics! Your family sounds like so much fun! It must have been wild to be there daughter, when you were a kid. They probably dragged you off to many adventures!
Katy- dear- o my! I will have to see Babetts feast. I saw Out Of Africa years ago, then read the book, and I would watch or read either again, Karen/Isak is a very interesting woman.
Plus I owe some pms, i better get busy! Love
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7of9, I scrubbed my mothers radiation wounds for about two years. She had a radical mastectomy and the RO was not in the office one day, and there was only one tech when there were supposed to be two. I found out later that the skin damage from radiation is not a burn. What happens is that too much radiation (and maybe there are other reasons why patients get open wounds besides medical neglect) temporarily destroys he skin's ability to make new skin. I don't know exactly why this happens. We had to scrub off the scabs and clean and dress the wounds. I don't know why some women get radiation wounds and others don't. I also don't know if my mother got her wounds easily because the radiation was directed at the chest wall. It may be that women who have full or partial breast radiation get fewer wounds. I didn't see that you see going to have a mastectomy. Radiation knocked out my mother's thyroid completely.
If I were you, I would want to understand the impact of radiation on my breast, and I would want to know how I am being protected against scatter. or radiation that hits other places on my body and that can damage the heart, the lungs, and the thyroid.You can call a cancer information specialist at the American Cancer Society or do a PubMed search or ask for an appointment with a nurse practitioner or clinical care coordinator to learn about the potential effects of radiation.
I don't think there is a way to have absolute protection against radiation wounds. Some women report that creams prescribed by their doctors help. Others say that purified aloe vera or pulling off a leaf from the plant and using the aloe directly from the leaf helps. You could ask your doctor if it would be beneficial after radiation therapy to to spray on a solution such as GRANULEX that reduces pain, promotes healing, and toughens up your skin. We have used this with great success to keep my mother from getting new bed sores after chemo.
My problems with radiation are mostly unique to me, except that I do have a problem with treating low grade DCIS with radiation. I am severely and permanently disabled and also helping my brother take care of my mother who is fighting Stage IV breast cancer. The surgeon with whom I consulted said radiation is too risky for me given chronic pain from fibromyalgia. Lumpectomy plus breast reduction will provide a good deal of protection against recurrence of DCIS or the development of new tumours. I will take a high quality of life while I am young enough to enjoy it. I am low risk but there are no guarantees in life.
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thank you all for the warm welcome
My surgery is scheduled for Jan. 13 - UMX with TE.
I had a CT because of abdominal pain (my crazy storyabove) and the radiologist noticed a lesion on my vertebra. He said it was likely age-related degeneration (arthritis) but with cancer patients he recommends a bone scan to be sure it's not mets. Luckily (!) it turned out to be arthritis (never thought I'd be glad I had arthritis).
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Grandma3X, you ain't seen nuthin' yet. Just you wait til the Mayor checks in
I am so glad you joined us here.
Tomboy recruited me when I didn't realize I was on the edge of Crazy Town. I am glad she did. It helps to have a heap 'o kindness, information, and good listeners.
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Tomboy, are you thinking of a movie thread on this forum? What about a Great Entertainment thread? That way people could talk about books, movies, television shows, and even music.Wadda ya think, crazies?
My first resolution is to laugh more this year than last year. I still have to tell my On My Butt Story. I don't know if it is funny as the others, but is has humor, danger, and the crucial element of landing on my butt without knowing if I would get back up again without public humiliation.
This is the trailer. The full cinematic story will be released soon.
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DF- yes good idea for you to do a thread like that!
I just took my own recommendation and watched Out of Africa again. A Dinesan weekend theme going on.
Streep is magnificent. I cried starting at the opening credits. The picture is worth a watch just for the music. Or the photography. Or the story. Any one of those things makes it worth it, and together ..... quite a ride.
It occurs to me I'm a very raw human being. Not sure this is a good thing. Thank god the holidays are over.
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So, katy, a Great Entertainment thread?
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Yes DF, I second an entertainment thread!!! Great idea.
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8 pages behind. Happy New Year to you wonderful crazies and on the 9th day of Christmas my true love gave to me.... 9 ladies dancing, 8 maids a milking, 7 swans a swimming, 6 geese a laying 5 GOLDEN RINGS, 4 turtle doves, 3 French hens, 2 turtle doves and a partridge in a pear tree...
Good times with brother and gf. Remodel starts Monday and troll free the week after.
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