CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
Comments
-
Patty- Welcome aboard! You have found the place where you can't be too crazy.
We have a mayor, but she is temporarily indisposed. She will be along soon with your official welcome kit. In the meantime, pull up a chair and get to know us. Or get your crazy on as we say.
0 -
katy, if someone is on Tamoxifen for five years, I believe it can take two years to leave the body I think. I don't know how long you have been on it. I took it for a little over three weeks, and it is still leaving my system a few days short of a month later. I will probably take some time but it sounds as if your doctor is not worried.
0 -
I started August 1. They say it takes 2 weeks to reach therapeutic levels, so I thought it would hold in reverse.
ETA: I just looked up the half life. Most reference 5-7 days, one said 2 weeks. Also found a contradiction in that it takes much longer than 2 weeks for the active ingredient to level out. So there may be a definition issue between therapeutic level and fully functional levels.
Anyway, yes, I think I have reason to hope/expect the enzymes will come down some more in the next 30 days, all other things being equal. Yay.
0 -
half life of tamoxifen is 14 days
Drugs.com
Excretion
Studies in women receiving 20 mg of 14C Tamoxifen have shown that approximately 65% of the administered dose was excreted from the body over a period of 2 weeks with fecal excretion as the primary route of elimination. The drug is excreted mainly as polar conjugates, with unchanged drug and unconjugated metabolites accounting for less than 30% of the total fecal radioactivity.
0 -
thanks Marijen! We X posted!
0 -
Ok I feel like I'm going crazy. Is this the right place to be crazy and not judged?
0 -
yes ma'am. We are here. Completely nuts. Come on in!
0 -
unlimited ranting allowed.
Judgement of any kind not.
0 -
Ok here goes. I'm 5 years out from dxd. Had quite a few scares along the way.
Just got blood work today for brca gene.
My mind has taken me to a new low.
Feel like I need some crazy pills or a month in Mexico while I wait for results.
Can someone give me a kick up the ass and tell me to get a grip please!!!
0 -
Patty: that's not crazy. That's entirely normal and understandable....which is why you've come to the right place. Welcome!
Port in place for a year? And a migratory TE? (shudders) That's be enough to make a saint blaspheme.
I suppose as vice-mayor, I might step in until SlowDeep is back to her usual spread-sheet self, though don't let that stop anyone (and I mean anyone else) welcoming new arrivals)
0 -
Patti and Swansagirl...A very warm welcome to crazyville.!! Come and vent anytime.. We all do.. There's always someone around to lend an ear !
Katy.. Yay.. So happy to hear your great news :-)
Cubbie.. A 2 hour wait :-( I must say I'm not a good "waiter" at all.. I find myself fidgeting and sighing 😱
Hugs to all xx
.
0 -
Swansea: (amused, affectionate, welcoming, teasing) Hold your horses. The "swift kick in the pants and 'Get a Grip!' stage comes much much much later, if ever. Now: it's the '"Take comfort in the fact that we all pass through CrazyTown during this process, even if only in the dark lonely hours of the night."
But I'm with you on wanting a month in Mexico.
0 -
Swansea- how long before you get the results? You have daughters you are worried about and perhaps for yourself a revisitation of the beast?
It's very hard to wait. We all get that. Unlimited hugs here.
Hopefully it will all be negative. But I would thank my mother for arming me with info that could protect me. It it wouldn't be your fault if you tested positive for any genes, or for passing them on, they didn't even have these tests probably when you made the decision to have children.
But there is no holding crazy back sometimes....and you are entitled !
If you need distraction, scan through some if the early pages of this thread. You will see we have some good laughs as well as excellent support when nothing is making sense.
🎪🎪🎪🎪
0 -
Patty and Swansea, welcome! I think a nice, long trip to some place warm in Mexico is a good idea. I've heard great things about Cozumel. Octogirl can go snorkeling!
Lucy, I felt bad for the poor lady whose sim took that long. She said she could hardly move when she got back to the dressing room. Can you imagine laying there that long? I think they did give her a break while they were talking.
0 -
Patty and Swan...........jUst want to say......I am the oldest, funniest, smartest, sexiest, prettiest and a member of the Mile High Club on this website..........glad to have you.........
0 -
Cubbie- me too! Poor woman! Sometimes I have this vision of having Crazytown bizness cards printed up with a hot link. I just imagine myself handing them out wordlessly to people having days like that.
I'm in for a virtual trip to Mexico. A warm breeze and a cool drink sounds PDG right now, haha.
VM Queen- thanks for stepping in. Poor Beppy is having a major RA flare and really struggling. It hurts her to type but she sends her love. She'll be back in the saddle soon
Lucy- 🙋.
0 -
Jackie yes you are right. Worried about my kids and definitely worried that I might awaken the beast.
Queen, thanks I think I'll have a few dark hours. And I'll probably will need a kick up the ass unless my husband gets to me first.
Lucy thanks for the welcome and ear.
I know once I come to grasp with the possibility or acceptance I'll get my s...t together like I did first time around.
Cozumal is beautiful. Great diving location.
Meeting my sis and her husband this April in Mexico for a week.
I'm british but live in the states so it's a nice meeting place.
0 -
Welcome Patty and Swansea, I'm the professional lurker in CT. I reside in the observation tower near city center. Welcome to the most eclectic group of women thrown together for mutual support.
If anyone is still on the Out of Africa topic, I've read and watched the movie several times. Recently I've read books by and about Beryl Markham, a some-time friend of Karen and also lover of Denis Hatten Finch. Not great literature, but interesting.
I'm hoping to make orange marmalade yet this week. Send notice via tube if you are interested in a taste.
Waving hi to everyone. Wishing Beppie a quick recovery. Happy days to the entire population of our lively town. J
0 -
I'm sorry to hear Beppy is having a flare - I just assumed she was busy with holiday stuff. Feel better soon, girl!
0 -
Slow.. For you.. Xx
0 -
hey there fellow crazies,
Glad to see you're all out there raising crazy hell. Just stopping in for a moment as things have been a bit frantic lately. Tomorrow is my final Herceptin!!! I cannot believe this part of treatment is done. Having a bit of shoulder pain which may be due to my port which has been uncomfortable since the get go. Looking forward to it being gone. My MO likes to take them out rather soon as they say there have been too many problems with blockages trouble swelling, etc... And God forbid if I need one again they say they'll just put one in again.
I'm also scheduling an oopherectomy and will be glad when it's over. My ovaries have been shriveled useless little currants since chemo 26 yrs ago when I was in my 30's so it shouldn't effect anything else as I've been functioning quite happily since then.
Anyway...once tomorrow is done I'll be back hopefully a bit more relaxed....today's food porn from this weekends recipe testing...vegan pavlovas with vegan chocolate mousse
0 -
Thanks kind crazies for the iinformation on the half life and excretion of Tamoxifen. These numbers are apparently typical. There is a subset of women who are not able to metabolize Tamoxifen very well or at at all. When I get some time, I will see what I can find in the medical literature about women who suffer from SEs for quite a while after stopping the T. It is a few days short of a month since I stopped, and I feel a hot flash coming on. I had a very bad one last night that I described earlier. I never had hot flashes at all while going through the menopause. My body is clearly struggling to get rid of the Tamoxifen or the Tamoxifen has done something to alter to my endocrine system. In at least one documented case, Tamoxifen affected a woman to the degree that she will have to take medications for the rest of her life to control a mental disorder brought on by Tamoxifen.
0 -
Well! I took a few hours off and got behind. Patty and Swan, you have definitely come to the right place. Nobody here gives kicks in the ass. Crazy Town is come as you are. You can relax. Whining. moaning, ranting, raving, bitching, crying, going nuts are all allowed in a non-judgmental setting.
Jan, I've been nominated to start an entertainment thread where we post and share our thoughts about old and new movies, books, music releases, and even YouTube channels and artists. As soon as I get the thread up and running, I personally would love to see you share your thoughts and insights about Beryl Markham and her books.
0 -
Talk About Crazy.....It is 1:23 a.m. Guess what tommorow is? Blood tests at the Oncs. I cannot sleep.I have a Fine Art degree and a Holistic Health Degree. Before Breast Cancer I believed a good massage; some meditation/sweat lodging alongside vitamin supplements and excercise kept me safe from the Silent Beast as I call it.Since cancer I have had 4 surgeries in one year. That's 4 fairly major surgeries. Thats one every 90 days. I get my nipple put on the 11th this month. I am to be wide awake for 45 minutes while they suture a nipple on. Is that crazy? Or am I crazy? In mid October after breast reconstruction I was so happy I was finally done with major breast surgeries. I could get back into excercising. I was walking up cement steps at an outdoor concert and simply piveted my leg funny and blew my ACL. I heard my knee pop. So I have been limping for months. My insurance would not cover an MRI on my knee in November because I had a Pet/ Cat and MRI earlier in the year. So I am still limping in pain. But the Knee doc took an xray and said I have athritis in that knee for sure. For the New Years Eve Party I attended I refused to wear sneakers/flats/snowboots or duckboots with the dress I had to wear because I loved my new dress. I wore heels and walked very very slow all night. I came home at 1 am in agony. Then my psychiatrist decided Saturday I have put on too much weight from the Gabapentin/Tamoxifen and Major Depression so I started Phentermine. My day starts with aspirin for my heart. Levothyroxine for my Thyroid. Then an hour after breakfast Phentermine which is an amphetimine for serious emergency weight loss. I start ramping up then then! LOL I take Effexor for Depression. Then a few hours later I take Lmethylfolate becausemy body cannot make Folate acid on my own. Then an Ativan by 6/7 pm because I am starting to feel anxious and know if I do not take one I will not sleep. Then my Tamoxifen. Then a bit later Gabapentin.
I limp and hobble slow everywhere.I have public meltdowns. I went squirrelly in the hospital six months ago. Screaming and crying at the Insurance woman because she could not understand I have a secondary and primary insurance and how to bill either. I still have to leave public places when I fear the tears coming on. I have left whole carriages of food at the grocery store. I went Monkey crazy at Walgreens 3 weeks ago because they had to wait two days to fill my prescription and I did not want to come back for it. I treasure my time away from Walgreens as I am always there getting/refilling prescriptions. I went from a DD cup to a D cup. I have a huge belly from 4 surgeries in a years time and very little excercise. Then my liver started spasming two weeks ago. I waited a week to see anyone because my life is nothing but doctors. The pain was so unbearable I went to Urgent Care. In the waiting room sick and without sleep for two days the secretary is going on and on and on out loud in a crowded waiting room about how I had the wrong BCBS card. I had my dental card. So I limped my way up to her and explained she was humiliating me that I had been to Urgent Care there many times and my insurance covered it as it should be clear on her computer. I waited four hours to be seen. The PHD who looked younger than my 28 year old son took her hand and bared down so hard on my spasming liver it has not moved since. Yet I have had- top inside the shoulder- excruciating pain. Instead of my psychiatrist saying its ok its not a reccurance of cancer she said I needed to tell the Oncologist everything tommorow and get rescanned. My liver markers were off last time I saw the Oncologist for my regular blood tests.I cannot sleep. I think I am so tired of being sick and sick of cancer that if it is in my liver I will just go to palliative then hospice. Then I say NO! I will fight this Invisible Beast.
I listen to my thoughts upon first awakening and they are really crazy. Off center. They do not make sense. I went from a high paying career to high debt. I have lost my sexxy big boobies/body figure and left with what I call Satans claws that ripped my chest and left horrifying scars. I have a belly like Santas wife. I have 9 years college straight A student but I have been driven mad by cancer. The Silent Beast. I do find I laugh all the time at things by myself now. It is so nightmarishly awful that all I can do is laugh. What an endless scarey nightmare this is. It is 2 am. I have to sleep. I lost my best childhood friend last year to lung disease. Here is a picture of her. I lost my favorite cousin Sean last year to Opiate overdose. I lost my friend Leslie because her kidneys gave out then her heart. This past year has really really really really really SUCKED. My 24 year old daughter did not fly to see me not once during my breast cancer ordeal. But has had enough energy to call threatening me she was going to be homeless if I did not give her hundreds and hundreds of dollars in rent. Then I find out a day after my mastectomy my daughter went to jail and it was kept secret from me by my whole family and extended family for fear I would lose it. Lose it. Lose it? LOL LMAO!!!!! CRAZY
0 -
alt="">Katy...I am so extremely happy for you.0 -
Actually, I AM planning a trip to Cozumel!! and Cubbie: not just snorkling, I will be on scuba that trip....can't take quite a month, but will be there for ten days late spring...anyone want to come? To me, a long vacation in Mexico seems just like what the doctor ordered. It is the least crazy thing I've done lately, planning that vacation.
Beppy, feel better soon! Sending very gentle hugs.
Yay! Sula's food porn is back!!!
A big welcome to the new Crazies!!! You've found the right place.
So, speaking of crazy, I had discovered (as I mentioned a while ago earlier in the thread) that this bc stuff had resulted in a return of my long-standing but dormant fear of flying. There was a time in my life when I couldn't get on a plane without serious drinking first, which was a real problem when I was doing short trips for work. I eventually overcame the fear...but bc brought it back: I kept thinking 'hell if I am going to go through all this shit and then die in a plane crash...and that is sure to happen!' My fear is worse given where I live: all flights out of my small, local airport in the middle of the Great Central Valley are on little planes....
So, in December when I needed to go to San Diego for work, I drove. Seven hours each way, alone, over a three day period. Crazy. Yesterday I had another work meeting in San Diego. It was a couldn't miss, one day meeting, but I needed to be back home today for rads. (I wasn't going to skip more than one day, especially after already skipping Friday when they were closed for NYD.)
And I HATE the San Diego airport (love San Diego, they deserve a better airport!). But I didn't have much choice, so I forced myself to get on the plane. No sleep the night before, even with the help of my favorite green, leafy anti-anxiety drug. And THEN, I was bumped!! Or almost bumped! They switched to an even smaller aircraft, and called out the names of twelve people, including me, who would need to 'take a later flight'. However, that later flight wouldn't get me there on time for an important pre-meeting dinner (night before the meeting). Fortunately, I was the first in line at the podium when my name was called, and I told them in no uncertain terms that they needed to get me on the plane or find another sooner flight. Fortunately, someone they didn't bump didn't show, and I was the only one of the twelve to made it on the plane....(maybe they just felt sorry for me because of the cancer scarves?).
Anyway, the flights, both that one and the return, were smooth, easy (once I got on)...and my meeting went well. Return flight last night was totally uneventful, despite a coming storm. Instead of feeling crazy, I felt, well, almost normal...
Now, if the hair would just hurry up and grow back....
Oh, and did I mention that Gabe came with me? (Gabe is a Teddy Bear, for the newbies). He goes everywhere with me, even if I am only doing carry on. He is the real reason the plane didn't crash.
More later! Hugs to all!
Octogirl
0 -
Bcky, welcome! You've been through a lot in the past year. It's OK to be crazy in Crazy Town, though. We understand. We will be in your pocket today for your tests.
Octogirl, we will want to hear all about Cozumel when you go! Glad you and Gabe made it through your flights safely. When I was a kid, we had Charlie Brown who traveled everywhere with us. I still take Chuck on any overnight trips. He loves to travel!
I have to go in for lab tests today, since I'm scheduled to see the MO next week. This is the first time I've had this done, and I'm kind of scared.
0 -
Bcky, I can relate to the meltdowns. Also, if the Tamoxifen is causing or exacerbating your liver problems maybe your doctors could place you on another chemo preventive drug such as Evista. It might be a little less protective than Tamoxifen but the side effect profile is more favorable. If you have arthritis, see a rheumatologist. I know you are sick of doctors and that what you are going through sucks big time, but adjustments in your meds and some physical activity that you can do even with the conditions you have could do you a world of good. The researchers are learning that a very small amount of exercise is very beneficial. The rehab hospital staff could help you figure out what kind of exercises would be most beneficial. If you are having weight problems, it is important to get plenty of fiber in your diet to help control blood sugar, help pull cholesterol from your body, and help with weight loss. Those eight glasses of water a day can help and can even affect your brain function.
I went into such a severe depression along with all kinds of other problems that I had to go off Tamoxifen. Tamoxifen crosses the blood/brain barrier and has been known in at least one documented case to cause permanent mental illness in a woman that was perfectly normal before. A very famous breast surgeon told me in an email that no patient should stay on any drug that causes terrible side effects. I am not sure about Effexor, but some antidepressants can affect your insulin and affect your blood sugar and cause that big belly.
I can identify with what you are going through. I am permanently disabled from fibromyalgia and my doctors had to come up with ways to treat the breast cancer that would not inflict harm.
Just keep on trucking and keep looking for solutions. And, keep us informed about what is going on.
0 -
Octo..........your probably were not aware of my fear of flying, but there was another thread I was on where everyone knows.........my first trip was in April 2013 for my grandson's wedding.........no one can begin to imagine how petrified I was and still am of flying............I got on my first flight at 78 years old.....scared out of my mind, white knuckled and my son in law still has the nail marks in his legs..........I got no sympathy from my daughter and still don't..................I flew to Chicago............then I did it again 2 more times.....still as scared, and the last trip was not good......rain, lighting, thunder, and a horrible landing..............my daughter said "you are never coming with us again"......it annoys her, but I really don't care...........it is a true fear, which I will never get over............
So I know where your coming from.......and a small plane......that would never happen............the big ones are bad enough.......here is a picture of me leaving the plane the 1st time I flew.........a Steward heard about it and told me he wanted a picture of me with the pilot.........only reason I'm smiling is because the flight was over, and we had landed on a beautiful Chicago morning............still petrified.......
0 -
Slow, I hope you are feeling better already.. .soft hug. Thank you Katy for telling us.
Df, I did want to tell you there already is a perfectly great book topic, has been going on for years, I need to go, but I think Katy could help you find it. I will make a link when I get back, if you haven't already found it. Ok, got to go see about a nerve block... just a consult, at least the doc is young and handsome, and SMART!! And so yeah, got to drive in the mucky rain. In Los Angeles, people hardly slow down for rain, it's like its an affront to our driving pleasure! But so nice to see it rain
0
