CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Hi Crazies-
Ducking into say hello to you all and so glad to see you here.
Octo- congrats on finishing rads! Once the burn finished (which probably took another week and was ugly as they used the dreaded bolus, it did heal quickly and the color is totally normal years later- even had reconstruction and no prob with radiated skin.) One tip- calendula cream is an amazing healer. Hope the job news is good news.
Ooh the bowels- this is an issue for me- I think because Tamoxifen dries me out, and perhaps because chemo impaired digestion? Based on a recommendation on BCO, I did try Source Natural Daily Essential Enzymes and they worked- I felt like myself again for a week!. But I got some very intense dizzy/lightheaded spells (aka temporary CT brain tumors that freaked me out!) which stopped when I stopped the enzymes. Don't know what that was about but will seek out nature path to help because those digestive enzymes were the only thing that really worked. I do take senna which I don't like to take regularly. (I also take magnesium, fish oil, ginger/tumeric, and have tried fiber pills). If anyone has insights would appreciate.
Next week I have a followup MRI for what is hopefully nothing. Found out there is a larger MRI machine and that I can use it so hopefully claustrophobia won't be an issue- I was feeling as anxious about the claustrophobia as about the scan. So relieved now- sure on Tuesday during and after I'll be a wreck. But comes with the territory as they say. Have had multiple false positive callbacks, in fact each time I get a scan apart from my original dx) and am praying this will be another.
And here's to continuing 2016 resolutions! I'm gearing up for looking for a new job and basically shake off some inertia I'd been feeling since dx. Also looking forward to shedding 10lb, eating more consciously, doing yoga every day, and building in regular aerobic activity.
Love to all, especially our CT founder Slow Deep! Thanks for being accepting of the lurker/occasional poster. Means so much.
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Wow! I'm so incredibly behind. Very sorry for being MIA. Had some health issues unrelated to BC (I think). Thank you so much for all the well wishes. The crazies are such a warm, loving group of ladies. I will slowly catch up, but in the meantime, I want to welcome the new crazies with their official welcome kit!!! I apologize for taking so long.
Grandma3x, Welcome to Crazy Town!!
I'm so glad DecisionFreak invited you!! Please pull up a hair and make yourself comfortable. The women here are so awesome and will be by your side every step of the way. I've got your surgery date down on the spreadsheet!!
Queen_Celeste, Welcome to Crazy Town!!
We now have TWO queens in the house!! So happy you found us. My vote is the Christmas cookies. haha I won't even talk about the holiday weight I've gained. Please pull up a chair and make yourself comfy.
PMR53 (Patty), Welcome to our thread!!
I bet you'll be so happy to get rid of the port. I'm very happy you found us and I hope you'll stay and share your crazy stories, or just hang out with us all.
Swanseagirl, You've come to the right place. Welcome!!
Never any judgment here in Crazy Town. We can let it all hang out without the men with the big nets coming after us!! Feel free to get your crazy on!! We are more than happy to give you a kick up the ass as requested, but shortly after. we will all give you a group hug!!
Bcky, Welcome to our thread!
I'm glad you found us. You've got a nice looking family. Thanks for sharing the pictures with us.
To all NEW residents of Crazy Town, here is your official welcome kit!! Inside you'll find a mirror for checking all weird growths on our bodies, a flashlight to see in the dark, a magnifying glass to get a better look, and coconut oil because ItalyChick said it can be used EVERYWHERE!! Please use these items sparingly. The more you use them, the crazier you become!!! Tomboy is still working on the medicine bag. I can't wait to hear what she's come up with!!
I missed you ALL so much. A very special THANK YOU to Katy, our Vice-Mayor - Queen, Tomboy, Ducky and ALL that kept this thread moving along for all the newbies. I'm often moved to tears with all the kindness and support shown on this thread.
Now I will try to catch up with you ALL!! I've got such a funny story to tell once I'm all caught up!!
Be back in a bit!!
Love to all....quiet crazies too!!
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beppy, such a wonderful welcome for the new Crazy Town members!
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YIPPEE............OUR FAVORITE GIRL IS BACK.....................
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Glad to have you back, SlowDeep. I'll make a note of the basket contents, for future reference, though I haven't your skill with images for a proper greeting.
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Here goes. This may be long. haha
rwiley, We are all in your pocket today for your appointment!! YAY for Ativan!! Please let us know how it goes when you can
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Shorfi, I'm very interested to know how the Lyrica works for you. My Rheumatologist wants to put me on Cymbalta which I think is very similar to Lyrica. I read about some of the side effects and I must admit, I'm a little scared to take it. I filled the prescription, but it's still sitting on my kitchen counter. She said it's a common treatment for Fibromyalgia. I hope you get some relief soon!! You've been in my thoughts.
Gaia, I LOVE your pics. Thanks for sharing them with us. You've got such a beautiful smile. I'm wishing you pain free days!! I hope the rads will get it under control. We are all with you. Your dishes look amazing. I've really missed the food porn!! I think I may just dive into that mini souffle. haha You're entitled to all the pity parties you want.We are all holding you close.
Ducky, I just love your golden slippers. The picture with the shoes and sweatpants cracked me up!!! I'm sorry I missed the opportunity to put on my heeled shoes and sweatpants!! What a great party we would have had!! Of course we all care about you ....you are OUR Ducky!! Also, NO ONE can tell a story like you can!! Bobby pictures always make me smile. I just love you to pieces. But, you already know that.
Katy, I didn't even notice we went over 5,000 posts!! Shouldn't we have some kind of party for that milestone??? Food, drinks and virtual dancing!!! We must celebrate!! Do we have a party planner in Crazy Town??? I can't remember. And dear 2015: Fuck you and the horse you rode in on. Don't let the door hit you on the way OUT!!!!! hahahahahahahahahahaha......I think Ducky is rubbing off on you!! hehe I have to say something about your mom. I think sometimes they do slip away when we aren't there to make it easier on us. For the longest time I felt so guilty that my dad went for a walk and never returned home. He had a heart attack just 1/2 a block from our home (he lived with me). After further reflection, I think he knew how difficult it would have been for me, and perhaps he wouldn't have been able to move on with me there. I did get to say goodbye at the hospital because they kept him alive for several days for testing. However, he was already gone at that point. (((((((Katy))))))))
Chi, I'm enjoying the tour so much. Thank you for sharing that story. It did make me tear up just a bit. I sure hope you don't have shingles. Keeping my fingers and toes crossed. I can tell you a few stories about bowels!!! DON'T get me started!!
DF, I love reading about your love for your mom. You are so fortunate to have her around. I miss my mom more than I can ever express. Anne is beautiful. I'm glad she is feeling better. I wish you great success with your new thread!!! I must applaud your ability to make a live link in your post after a few short months. It took me over a year or longer to learn that process!! haha They don't call me SLOW for nothing.
Readytotock, I'm doing a big happy dance for you!!
Very glad your US and mammo were clear. Wooohooo!!
Cubbie, A big happy dance for your family member!!
I love reading the words "all clear." Please give us the date of your MO appointment so we can all gather in your pocket. It IS scary but we will all be right by your side.
Rain, Sorry to hear about your reaction to rads. Sending quick healing vibes through the tube. Hope you enjoyed the time with your friend on New Year's Eve!! I DVR'd Downton Abbey and watched it a few nights ago. I'm sad it's their last season. Also, it's NEVER too late for any party in Crazy Town!!
Notagain, I bet you were so happy to get those drains out!! You didn't give any specific dates, but please know we are all with you in spirit when you go to your appointments!!
Lucy, HI!! I've really missed my Aussie friend. I am the same way about de-cluttering. I seem to hold on to the weirdest things. My DD throws everything away when she moves. I could NEVER do that. Just thinking about it gives me anxiety. haha We packed away the train, but we can get to it easily once I make some room.
Sula, As usual, you never disappoint in the food porn department. I'm glad you're finally able to get a breather. Happy dance on the final Herceptin!!!
Or not???? hahaha....it's ok....we can celebrate twice!!! Notice how I give you the inappropriate happy dance person??? hahahaha I wish I had those moves.
Iris, So good to see you posting!! Sorry to hear about your cold/flu thing. Getting used to a new computer is always an adjustment!! What a way to go in a puddle of juice!! My DD swears by those coloring books to reduce stress.
7, I'm doing a very big happy dance for your clear bone scan. Lots of dancing going on here.
Thanks for posting the picture of you and your son. You are beautiful and your son is a cutie pie!! You're way too young to be dealing with this nonsense. Everyone is different when it comes to rads. I had zero skin side effects but it did make me very fatigued. I had to drive an hour or more each way, so I'm sure that contributed to my fatigue. Please let us know when you hear about the CAT scan. Sending good thoughts your way.
Grandmax3, Happy dance for you as well!!
YAY for clean scans!! I seem to be running out of happy dancers today!!
Rose, Did I read that correctly???Troll free???? We need to throw a party!!! I'll bring the drinks!!
Octo, Thanks for sharing that picture!! I'm so proud of you for going through with your snorkeling!! Was Gabe watching??? I'm hoping so much that your New Year's theory doesn't hold true for me!! haha I'm voting for early retirement. We would all love to meet you on your cross country tour!! Ummmmm.....party tomorrow for sure!!!
Queen...We have two of you now. Any suggestions on how to differentiate? Maybe we can call you Queenvice??? QVM??? I hope you feel better soon. You did a fabulous job even without the dancing welcome signs!! Be careful of the anti b's. My DD ended up with C-Diff because of too many anti b's. It was really hard to shake too.
Did someone say we are all going to Mexico???
Swan, Sending all our collective good thoughts to keep the beast away. Waiting just sucks. We will all be waiting right along with you. Gentle hugs to you!!
JAN!! I always love when you make an appearance!! I'm going to make you a professional lurker cape. Oh wait!! I call it quiet crazies now....sounds so much less creepy!! haha Orange marmalade through the tube???? Count me in!!
Tomboy, I'm building an ark....care to join me??? I enjoyed Kara Walker. Thanks for sharing the link!! We need to get together for a play date.
Chevy, shhhhhh.....Ducky doesn't want the shenanigans with the pilot revealed. We need to keep up her sterling reputation!!! Don't worry Ducky, I've got your back!!
I'm really digging these lines!!!
Robin, Great big hugs to you!! You come right in and sit next to me. One day at a time. You'll move forward when you're ready. Give yourself some time to absorb it all. It takes awhile for our minds to catch up.
Littleblue, I agree wholeheartedly about Katy.
Momwriter, Always great to see you. I've got you down for next Tuesday. We will all be in your pocket for your MRI. You're always a part of our Town whether you post or not. Once a crazy, always a crazy!!!
Whew!! I think that caught me up. I sure hope I didn't miss anyone. I'm sorry I missed wishing you all a Happy New Year. I can't even express what this thread and all of you mean to me. It is comforting knowing we aren't alone in our crazy. I look forward to hearing about all of your lives so much. I'm so grateful for everyone that posts and reads. Thank you for being a part of this special place we built. There would be no Crazy Town without the crazies!!!Love to all....quiet crazies too!!
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Has anyone gotten that nesting urge I think they called it before you have a baby....pre surgery jitters has me going through and tossing crap out left and right as I put away the Christmas stuff. It's not that I don't think I'll be here next year for Christmas...but knowing I've got surgery layup coming in a few weeks...I want to de-clutter this post Christmas disaster zone of bows, boxes, bags and Lord knows what my father in law was thinking when he got me a purple sweater and a salmon sweater....ugh. My hair used to be blonde....like 4 years ago before chemo gave me this mouse turd brown reddish orange mop. I color it dark maroon/burgundy but it's naturally blonde/grey so I get orange after a few weeks (thanks to some of the long steaming hot showers I love to take) which I also understand I will not be enjoying for sometime during and after radiation.
I am hoping we get enough snow to go sledding with our 6 year old next weekend before surgery as flying down the hill on a saucer sled or streaking headfirst on one of the flexible flyers after axillary node dissection and ooph + possible hysterectomy (even if laparoscopic) probably won't be recommended. That and bowling. I love to go bowling. Instead I'll be walking laps at the indoor track at the rec center with all the seniors during our typically sub freezing Ohio January - February weather.
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Slow deep breaths....thanks for the little dancing pictures! i just saw them ...and one is for me....ya! Thank you thank you
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Oh and my CAT scan came back "probable" clear.....wtf? I now have a 5 cm mass that the gyn surgeon ultrasounded and told me within 20 minutes that she thought is was a fibroid. Liver, pancrease....everyone else checking in CLEAN. I'm just begging the gyn to take it all while she's in there. I knew they broke the mold when I had my son...now I can say it's true!
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In re. the two queens: I suppose that may depend to an extent on how Queen Celeste feels, though I would find "QueenVice" amusing. "Tybalt" might be a bit of a leap. Hmm. Let me get back to this after I've finished contemplating the idea of two queens, in full regalia, dancing in our golden slippers at the CrazyTown "get shut of 2015" party.
Thankfully, I didn't get stuck with yet another round of antibiotics for the bronchitis, just prednisone and industrial-strength cough suppressant. My PCP was well aware of the four I got prescribed in October, not to mention the fact that what I had then.....was antibiotic-resistant. (And we apprised her of the fact that this started as I was coming of yet another antibiotic.)
coff coff coff
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I just read all the posts and it struck me to say something.
Chi...I was told by my PHD
Wellbutrin cancels out the effect of anti hormonals (Tamoxifen,etc.) rendering them ineffective as cancer treatment. This information is the result of fairly new medical research and some Onc's are not hip to it yet. It is snowing and very cold. I was forgotten in the Welcome List of names. Have a goodnight everyone. Big Hugs. Thanks for having me here.
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Bcky: please don't think that means we've forgotten you?
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Awww Bcky, I didn't forget you! Please read again. I know sometimes the welcomes can get lost. That's why I started doing lines to separate them all. Clearly that didn't work!! haha
I will give you a second welcome just for good measure. Welcome to Crazy Town!
QueenVice, Contemplate and let us know!! I'm glad they prescribed prednisone. Hopefully that will kick that cough to the curb!!
7, Probable clear? What the heck is that??? <rolling eyes> After treatment I did have an urge to purge. I donated so many things to our local thrift store. Maybe that's a side effect of treatment??? haha
Sledding with your son sounds like so much fun. I miss little ones around the house!! I'm wishing you enough snow to go sledding!!!!! Take lots of pictures!!
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Doing considerably better, though I still sound like a dis-barked dog. Prednisone and "Tessilon perles" for the win.
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Q, My DD swears that putting Vick's on your feet before bedtime and wearing socks quiets the cough. I'm still trying to decide if she is just pulling my leg.
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Welcome back, oh mayoress! That was some post (or posts)!
I hope you're feeling better. We've missed you!
Dear crazies, Today's lesson learned: Noise canceling headphones and wigs Do Not Mix. Please feel free to benefit from my experience.
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Oh no Rain!! I can just imagine. Wig ejectulation???? Yes, that's my NEW word.
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Sandy, I'd been wondering where you were. Glad the bronchitis is clearing up. I never thought of taking voice lessons via Skype - I suppose if you have a good quality microphone and speakers (or headset), it would work.
Queenie, glad you are feeling better as well. Bronchitis seems to be going around CrazyTown.
Octo, I can't believe you're already going to be done with radiation - that shortened protocol sure paid off. I started a little after you did, and I'm not even halfway through yet.
Momwriter, we'll be in your pocket for your scan. Let us know when you find out more.
7of9, I tossed and donated a bunch of stuff before my surgery, and shredded old papers, trying to get things a little cleaner so when I returned the house was neater. I wish I could say it stayed that way, but Christmas did a number on my house as well. I'd sure hate to crash on a sled post surgery. Ouch!
Rainny, did you get the wig untangled from the headphones yet?
Beppy, so good to see you again! Last I heard the medicine bag had a kitten in it, besides the chocolate and bacon. My MO appointment is on Tuesday.
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whoa, slow. Thank you for the comprehensive commentary. I don't know how you manage to meet and greet many people. You are SPECIAL.
Everybody, all you crazies, please know that I read your posts and that I am keeping you in my thoughts. It has been a very rough last few days, and I have wondered if I can survive the onslaught of so many things going on.
I am very nervous now because I don't have closure on my appointment to meet with the plastic surgeon yet. As you know, we are adding breast reduction to my lumpectomy. Reducing my breast size (40DD) will lower my bc risk as much as Tamoxifen. I am slightly afraid because breast reduction also comes with possible risks and side effects. Except for fibromyalgia and a few other minor health conditions, I am generally healthy, although I am getting run down from emotional stresses.
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It's ok. I have my last surgery in 4 days. I will have a nipple put on then DONE! My 5th and hopefully last surgery. I cannot understand why I will be awake
for that. That is 45 minutes wide awake while the PS puts a nipple on me. Yikes!!! Someone on the thread says I look familiar. People say I bare a striking resemblance to Dorothy.
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hahahaha I should have known she would sneak a kitten in there!!
I've got you down on the spreadsheet Cubbie.
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It wasn't EJECTulation as part-around-the-ear or top-of-the-wig-about-two-inches-back-of-the-hairline. Sigh.
But it IS a good word!
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OMG! You did welcome me. I just scrolled up to check. I am really nuts. Sorry! I have PTSD the shrink says. A woman at the Breast Cancer Support group I go to offered to drive me to nipple surgery. She took me for my expander surgery and guess what!? I cannot remember her name tonight. I have known her for a year. I did not do chemo yet someday's my brains are just not working. Not sure why.
lol......embaressing
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Met with my MO today for my 3 month visit. Everything is fine, no symptoms of any kind, tumor markers continue to go down. Hopefully no meltdowns/anxiety for the next three months. We'll see...
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Slow..................I can do that dance you said you wish you could do...............ONLY PROBLEM IS "THE NEXT 3 DAYS I I CAN'T MOVE, AND I DOWN A BOTTLE OF ASPIRIN .............................LMAO.............
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There have been studies both for and against the use of welbutrin during tamoxifen. It's always an ongoing thing. It only uses the same CYp2d6 pathway, that is common for a lot of drugs to use that cytochrome pathway. There's a separate tamoxifin thread where this is debated endlessly. Ok, gonna go back and catch up later.
Bcky, you got the red welcome with purple feet...
Anybody hear of sock puppets?
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bcky, it was the third picture you posted, the one with a nasal oxygen tube, thin with a plaid kind of blouse over a tee? Looks like it's at a restaurant or something? The one after your daughter, and your son and his friend? Is that your face? I thought it was you...
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Ladies, all that tea talk and the cold, wet desert, I made some Ginger Peach Green Tea by Stash
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TOMBOY........MY GRANDSON SEAN WHO IS NOW 17 had things we put on his feet when he was a baby...........they had a face, and little bells on them and when he shook his feet they made noise............OMG.........he loved them....................but for babies of .course.
Going out with my daughter-in-law tomorrow...........she is taking me to a place in Delaware called Booths Corner........it is Farmer's Market type place, and also one of those places that has every damn thing you need under one roof................she gets the best stuff there...............Lots of Amish people bring their wares and it is just so cool........can't wait.
Will also see my son (her husband) who had cancer removed from his face.....it took 4 cuts to finally get down to "no cancer".......they did the MOHs procedure..........this is the same son who had the melanoma removed from the calf of his leg......................I worry about him........he had 5 other cancers removed over the course of a few years.
He seems good....spoke with him tonight..........
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Bcky: we'll welcome you as often as you need to be welcomed. 'Cause I'd say that's part of belonging to CrazyTown. You're here. You're one of us. Red slippers and all.
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