CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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just checking in. So glad to read so many good results for lots of you!!!
Still praying for our mayor SDB. Thanks for the update Katy.
Congrats eggroll with being done with rads..
Octo, I remember that the effects linger on a bit. For me especially the tiredness. 8pm would roll around and it would be night night for me for a time. The skin...it is like you keep on cooking a bit. Hang in there. I have my own bottle of arimedex that I have stuffed in a drawer that I need to start in a week or so. I hated tamoxifen. Am hoping I fare better on A. Hate hate HATE the AIs. Dreading it really....
I am having a short surgery tomorrow at 3pm to clean up several aspects of my DIEP surgery. Hoping this will allow me to heal faster, the fun never ends!! Doing great overall though.
Like many of you, hard hit by the loss of David Bowie and Alan Rickman. Really loved them both. Have enjoyed the coverage of Bowie and listening to his wonderful songs and his intellect -smart cookie. Tomboy loved your picture.. I do see the resemblance!
Hugs to all.
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For all you Rickman fans....
http://www.newyorker.com/cartoons/daily-cartoon/bo...
Ducky, I certainly have been following your grandson's saga. That's great that he got into so many good colleges--with $.
U Penn is a tough school to get into no matter what. But it sounds as if he has wonderful choices!
NotAgain, good luck tomorrow!
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Readytorock: (amused/teasing but undeniably sympathetic) Well, of course anxiety's all in our heads. But that doesn't mean it isn't real!! As many of us have found out in the process of getting treated for cancer. On trazodone myself, for pretty much just that reason.
Eggroll: hurrah for last rads treatment! Started the arimidex? The Chihuahua Encounter may be funny in the coolly rational light of day, and when it didn't happen to you. But I think very much a place for that (hopefully brief) panicked reaction in CrazyTown.
NotAgain: good luck tomorrow! Hoping the tweaking to your reconstruction allows for peace of mind.
As for me, I am grateful to NOT be seeing the RO in any interventionist sense again--I suspect that my appointment in September will be the sort of thing I could phone in. A comfort I hadn't expected today was Sidekick Nurse mentioning "The pathology report came back negative." I boggled slightly, and she clarified that Dr. Plastic Surgeon had, as per appropriate treatment protocol, sent off the tissue he'd removed to the pathology lab. Because that's what you do when you remove breast tissue from someone who's just been diagnosed with breast cancer.
I will be seeing the MO in March, though barring a truly apocalyptic bloodwork result, I suspect any subsequent visits will be similarly low-key. Even MO allowed as how I could wait for my first post-diagnosis mammogram until May.
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Hi JerseyGirl! How are you? I am sorry you don't get to start RX on time!! I know you are done with Chemo and just getting Herceptin. Starting RX and completed MX. We're you doing recon now? Hope you are feeling well. I feel like crap in the morning. Like I am 100. Leftover joint pain from chemo 4 Rounds of TCHP or Herceptin. Who knows? We did get a new bed today. Memory foam. Should help with pressure points. It comes on Tuesday!
Hi Octo, Ducky,! Congrats to Ready to Rock!! Congrats to Eggroll. Not looking at your breast is strange? Shouldn't Dr check for redness etc?
Hi to Rainny and Jackiebirdie!!
Sorry to miss anyone! I care about you all and enjoy your posts. Not sure what drama is going on?
Hugs Patty
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Momwriter, that's great news! I was waiting to hear from you, I knew you went for your MRI the same day I went to the MO.
Katy, in your pocket tomorrow for the second eye surgery. You'll be seeing clearly this weekend!
Shorfi, we will then hop over to your pocket for your injection. It sounds sort of scary, having the conscious sedation. I'm not sure if that would be better or worse than being completely out - I hate being completely out for procedures, too.
Ducky, I love Bobby's litte moose outfit!
JerseyGirl, I had that happen at one of my treatments - they called and told me the machine was down. I sure want the thing to be working right before they use it, though!
Queenie, congrats on the good RO appointment. Nice to be set free until September, at least from one doc. I think here anything that gets removed from anyone, no matter what the circumstances, gets sent to pathology. I remember when I was in my early 20's I had a skin bump shaved down on my face because I didn't like the way it looked. My doctor told me on followup that it was benign, and "you were worried for nothing". And I was like, 1) I wasn't worried, I wanted it off because I didn't like the way it looked and 2) I had no idea he was sending it to pathology. Just protocol, apparently.
Eggroll, they always want to see my radation area, to check to see how the skin is doing. I'm surprised your doctor doesn't check it. In fact, I think they are required to. Did they recommend you do anything for the chihuahua problem? Antibiotics, or something? I can't imagine what they would do. I'm sorry to hear about your husband's uncle.
Readytorock, awesome news, also!
I see Grandmax3 was on the surgery thread, and her procedure went well.
I can't believe Alan Rickman is gone, when I'm still trying to wrap my head around David Bowie being gone. Bowie seemed like one of those people who would just go on forever. I'll have to crank up the tunes for him this weekend.
Hi to Rainny, Iris, PMR, Tomboy, and all the quiet crazies.
Prayers for Slow...
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Thanks Cubbie.........he is a cutie............
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So I was in crazy town tonight. I just found out that Holley Kitchen passed away this week. I sat down on my couch and just cried.... Sobbed really. My son asked me if I knew her..... no I did not. But I feel a great loss to the fight. It is amazing how we "know" each other and some of us have never met! Roller coaster!!!!
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I have to say, it really stinks when I hear other people had care that sounds a little more thorough than mine. I really think it's because I have a "sleepy little cancer." They have more urgent fish to fry. I wonder if I should just pull up chalks and walk away . . . if I do have an infection pop up, I think that will be the last straw. I am so gutless, I almost asked my RO today why she didn't want to see my breast? Why no one ever seems to need to see my breast? Well, that sounds pretty funny, doesn't it? "Please look at my boob. Look! Look!" Octo, is it hot too touch? Is it excruciating to touch? If redness is not spreading out I think you are ok, but go see your RO for peace of mind.
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Hugs to everyone this morning!
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eggroll: I was so confused I posted a reply to you on another thread...but here it is: it may be that the nurses or techs are looking at your breast during the treatments and reporting to the doc? Though I am with you, I'd be uncomfortable if the RO didn't at least ask to see it.
I wanted to report in that you can all tell me 'We told you so' and that I was just being crazy when I worried so much about my hair never returning, because it really does seem to be coming back FINALLY. Hubby even commented last night without a prompt from me, "Hey, you have hair". It is very slow, but I can see the hairline, I can see stubble, and the stubble gets a bit longer every day. I even have the start of eyebrows coming back. While it is of course much too early to be sure of color, it does appear to be the same dark brown it was before. I am actually sort of hoping for (A BIT) of gray as I feel I deserve it as a badge of honor after everything. Ok, that really is crazy thinking, forget I said that.
Once I have a bit more hair maybe I will even drop the shyness and post a pic!
Last night as we were getting ready for bed, hubby handed me Gabe and said that soon I would look like Gabe. I hope not: I think Gabe badly needs a shampoo and style...but Gabe of course, just kept smiling in his enigmatic way. I think he knows what I will look like when the hair comes back, but he's not telling!
Hugs to all!
Octogirl
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Happy for you..........won't say I told you so...........and can't wait for the picture......send one now.......your among friends.......and probably adorable with or without your shiny head or your peach fuzz..........we love you either way.................hugs...........
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raining have not had any cortisone shots.....yet,,still confused over it all so hold till my next pcd pt later in the month
Tired, someone told me this morning that she always naps after the gym so guess i will take a nap
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Will the craziness ever end? Ugh! I had my SIM for rads today and that was going well. Then the tech comes in and starts marking my neck... I'm like, What the what? She says, oh, based on your scans from last week and the team review, this is what Dr. wants. Um, ok? At this point my arm is beyond aching and asleep, I'm naked from the waist down and now my mind is spinning in 8 different directions. Doc has already left and all I wanted to do was leave. I had to hurry and get dressed and out the door, since my SIM was rescheduled and it was overlapping my PT, I needed to bolt. Worried all through Pt, and the called my RO on his cellphone - probably wishes he hadn't given me the #... He said he wants to hit the superclavicular nodes while doing my rads, so that he can be sure that there is nothing left anywhere, and those are nodes that don't show up on anything well... So, he wasn't saying he saw anything, just that he wants to be certain in all aspects. I'm feeling kind of bewildered about the whole thing... Anyone else have this area mapped for rads? Does this seem normal? Ugh! I'm glad they want to take extra precautions to make sure this cancer is gone, but.... maybe I'm just worrying over nothing and this is normal protocol...
Where's the cafe again, I need the double mocha Valium latte with lots of Ativan sprinkles tonight!
Ok, I guess I should just be thankful.... I just read the BCO article from June 2015 about the Radiation to regional lymph nodes, and it's cool.... still want the latte with lots of sprinkles, though! Lots of sprinkles!!! Jackbirdie, did they stock up?
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JerseyGirl: the cafe's always right around the corner from wherever you happen to be, and it's open 24/7. Also changeable in size so there's enough room for all who need to be there, yet never echoingly large. No practical advice on the radiation question from me, alas. Someone else here?
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Dear Crazies- thanks your support and good wishes today. Wasn't that pocket party a blast? The procedure went well and I did mostly fine. A bit nervous but it's over so fast! Tired now but at the first post op check 3 hrs after already seeing 20-25. Was attended by wonderful and familiar nurses at the short stay (for pre op BMX, port, and deport). I know them too well!
Having a bit of a rest now. Jack in charge of therapy.
Any word from Shorfi? Hugs all!
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Katy: welcome back, and sleep well tonight. 20-25? Wonderful!
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JerseyGirl, I had something similar. They're being thorough about hitting nodes. I think there is also a prevailing attitude on the part of rads techs that they are there to do their job, and it all seems normal to them, and they aren't great explainers. They're great calmer-downers, but they get really uncomfortable when you ask them medical questions, and it's not their job to give you the in-depth info in any case. You did the right thing in calling your RO.
Eggroll, I'd want my doc--or at least a senior nurse--to take a look!
Good job, Katy! 20-25 sounds amazing. Must-ve been a long day, but you're in good hands with therapy Jack.
Mama-bear, it was a tough week for losing people. I also saw that Holley Kitchen had died and was so sad for her and her family.
Octo, I've commented on other threads, but I am just SO happy about your stubble!
I've been kind of in Crazy-town today, for the silliest of reasons. Had my morning cocktail of Herceptin/Perjeta with the seriously sweet chemo nurse (his mom was a nurse; she retired the day he got his nursing degree!). Walked out and realized, oh this is it. I've got these drugs coming every three weeks for a while, but other than that, we're moving off active treatment and onto watchful waiting. MO appointment in early February and then?? We just hang out and obsess about every single twinge? Oh, jeez. So Crazy town.
Slow, Gaia, Shorfi, thinking of you. Hi to Proud, Cubbie, Ducky, Queen, Octo, Mommy, Kitty-Tomboy, and the rest of y'all.
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Jack,
So glad everything went well!!!! Whew, glad to hear it... Take it easy you've earned it
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Katy, Wonderful! So happy for your vision's quick recovery and that you were cared for by caring nurses.
Sewing up a storm today.
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katy! Glad it was over before you got too nervous and most of all, glad it went well! Happy Dance!
Rain, I feel the same way!
Hugs to all and TGIF!!!!
Octogirl
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Rainny: remember, nothing's silly in CrazyTown. Nothing. But I've seen others comment ruefully with variants on this same feeling: the intensity of active treatment's over....is that it? Never mind that our only desire, having been tossed into the beginning maelstrom of diagnosis and treatment planning, is to crawl out the other end and be shut of all this.
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I had 38 Rad treatments.....loved my techs, and can say it became such a part of my existence I missed them and my daily trip......I know, I'm goofy.............
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You're right of course, Queen, and you, too, Ducky. It's almost as if the sheer unpleasantness of the treatment--gastric symptoms, hair loss, burns, inconvenience, lopping off of treasured body parts, pain--transforms itself into a talisman that we hold up to ward off the thing we dread most of all: progression or recurrence. Which is sheer nonsense, since one can progress in the midst of active treatment. But as we shed the active parts of treatment, it's a reminder that one has to find the way back to some kind of normal life--which is made all the more precious by the reminder of mortality.
Well, on that chipper note, I'm going to bed! A happy weekend to all!
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So glad you are doing well, Katy. Jersey, I had my inner mammary and supra clavicle nodes as well as axillary nodes in my radiation fields. I had to turn my head during treatment to keep from hitting the esophagus. Best wishes to you all. I'm tired.
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Jersey, I had my supraclavicular nodes radiated as well, along with the breast, axillary and back of the breast. I can still see the darker skin on my shoulder that was radiated.
Good luck with the rads!!!
I have a question. I don't see my breast surgeon and RO till march and haven't called my family doctor yet. I see this small bump on one of the breast ribs and I can feel it as well as see it in the mirror. It feels a bit hard. I won't ask my family doctor about it as she won't say to contact the oncology team. Have any of you experience somethin omethin that ? I had CT scans done in 2014 after my RO thought she felt something an
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Lois-Welcome! How worrisome to have a bump or a lump or anything of the sort. Several of my nearest and dearest hear have had such things after treatment was over. In most cases it turned out to be scar tissue. But it definitely should be looked at by your breast surgeon or your MO. It's most likely nithing, sometimes they biopsy to make sure. You need to trust your gut, otherwise you won't be able to stop worrying. Sending hugs
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Everything went well. I did have a complete meltdown in the OR suite. I don't know why. Thank goodness everyone was so pastor and sweet about it. They were trying to reassure me that I would be fine and of course they gave me happy drugs to calm down. As they were getting ready I was constantly reminding them that I was awake and could 👀 everything going on. They probably thought I was crazy...oh wait I am😜 Next thing I know I'm in recovery half an hour later. Feels wonderful not having pain. Hope it lasts for a while. Doc said meds should kick in about next two weeks. Thanks for all your well wishes too😘😘. About to lay back down and sleep. Don't know why I'm so tired😴💤😴💤😴💤
Katy...I'm happy you got good results too (hugs).
Will BBL👋🏼
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Lois, have it looked at for your peace of mind. Shorfi, I hope you continue to have no pain.
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Shorfi, glad it went well! Get some well-deserved rest!
Octogirl
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great news shorti, pain free is a huge thing so do breath happy
Lois, I would surely give a holler to you by or mo. Likely mo is easier to see but that may just be mine. You in no way need new stress but likely to scar tissue, let us know when the pocket party is. By the way, I am in central nj so yell if you need a live crazy to join you
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