CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Awww ducky, I am sorry you are having one thing pile on top of another. If I were on your coast I would come get you. I wish you could enjoy the beautiful weather we are having this week. I am glad your son noticed the noise though. There always has to be a positive. You must be devastated giving up the shore home. Katy, thank you! I am happily crawling up to join you. Company is always good when lost in the quagmire. I will persevere and smile because I have lived this darkness for a long time. I think BC just added to the shade of darkness. I am still praying for the Mayor. I hope she has very large pockets!
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well CT town is certainly having a branch set up for all us snow threatened easterners. Got plenty of food but will need ,ore vine in the morn.
Shorfi, so sorry to hear that you are still in a in from your back proceedure. I have started taking the nsaid that my doc had given me, usually in afternoon, so far it seems to help and dang if I do not sleep later in morn
Sounds like some vision problems and sure hope all can resolve those
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Rainny.. Would so love it you girls could come through the tube and play on the beach with me.!!
Ducky. Sorry.. If its not one thing its another.. :-(
Molly.. I know that BC has added to my shade of darkness for sure.. :-(
Shorfi.. Glad to see you.. Sorry about the pain :-(
Octo.. Enjoy your weekend away !! Maybe with the weather it will have to be a "cosy" weekend away!
Slow.. lifting you up in thought and prayer (Hugs)
Hi to everyone.. I can't look back a page on my phone once I've started posting to comment.. and my memory is terrible.!!
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Feeling sad too.. We have the loveliest neighbours here.. The neighbour on our left has just finished chemo, Rads and having a colostomy bag put on for bowel cancer.. The neighbour on our right has been in hospital last 3 days.. He felt a lump in his stomach.. Thought he must of had a hernia, went to the hospital, and it's stomach cancer 😞 We need a cure for this disease 😢
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Proud...Honestly the pain is intermittent. I was able to take a walk this afternoon during my lunch break and had my nails done. That is progress. Maybe the injection is starting to work...even if I get 2 weeks of relief I would be grateful.
Ducky...Good grief...and now this awful snow crap coming.
Lucy...So sorry to hear about your neighbors.
Slow...Thinking about you...
Tomboy...Hi
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Lucy, sorry about your neighbors. Darn cancer!
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Katy, thanks for the update on Beppy! You are the town crier (I mean in a communicative, not a complaining, sense!) for sure. Keep us posted!
Molly, sorry you're caught in a quagmire. Or a morass. Sending hugs and virtual chocolate, though I know that's not enough. But we're here.
Lucy, that's very sad about your neighbors. Sometimes it does feel as if there are no degrees of separation--we all know folks to our left and right.
ChiSandy: We Jersey girls (birth state) are deeply grateful that you shared your memories of The Boss. Very cool.
Duckity duck duck duck! Hoping you'll continue to pull out good memories of your shore haven. I personally love winter, but I can appreciate that not everyone does!
Octo, have a wonderful escape weekend! It actually sounds quite romantic. Sorry for all the yuck at work--those things take it out of one.
DH is cooking supper tonight! I love it when that happens. So I'm sitting on the sofa, quite at my leisure, ignoring the serious mountain of laundry that needs to be folded. Why isn't it being folded? Because DS is doing his homework in that room and listening to Tom Waits. I personally love music--but Tom Waits, well, I just... I don't know. I'm just limited in my abilities to appreciate him. It's me.
And yes, I do realize that I could simply ask DS to fold the laundry. But his mountain tonight happens to be homework. Mine is laundry. So.
The moon is bright, deep in the heart of Brooklyn. But the storm's a'comin!
Hi to Cubbie, Gaia (in absentia), Proud, JerseyGirl, Shorfi, Tomboy, and all quiet and deep-thinking Crazies. Be well!
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Oooh morass is a good word! Or bog...hmmm I hope all you East Coasters enjoy your french toast!
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Hi all
Hopin to get some feed back and advice.
Firstly my head is spinning.
I got my Bcra results back. Sigh.....Relief.
I spoke with my sister this morning, she is in another country.
The conversation went.....
What was said what are the results. I explained. The conversation from the start was frosty her side. She then proceeded to tell me when I shared I was testing that I ruined her new years eve and weekend. I've been nothing but half glass, true Dat. More like scared. She hasn't slept in 4 weeks. If I was near her she would know whether to hug me or slap me. She's been worried and all of nothing. I said I was sorry I'd worried her and she said you don't sound sorry. I replied I'm listening to you. She replied you don't sound it I'm so angry I'm shaking and hung up the phone.
If j hadn't told her and said I didn't want to eorry you that would be wrong. I told her that's wrong.
Don't need anyone to side with me just would like to get non judgmental advice or thought.
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swanseagirl....first let me say congratulations it seems you are brac neg!? Though that doesn't get a lot of us out of the woods....I get very angry hearing about worry, anxiety, ...knowledge is more precious than anything.I was diagnosed with a recurrence two days before Christmas. I have a low tolerance for people's bs when they complain about their needless worry. It wasn't needless, they just came out on the good end and forgot what grace and humility look or sound like when they whine.
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Swanseagirl, I hope your sister is just reacting out of fear and relief, but I think she's being unreasonable. Great news on the BRCA result!
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Swansea- I'm so sorry for the stress this stupid disease brought you and your family! I'm sorry it's caused a rift between you and your sister. I think you did the right thing sharing, in my opinion it's in her benefit to know your genetic test results. But there's no accounting for people's actions when they are frightened. It's a shame. Hopefully at some point you two can reconcile.. Hugs.
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thanks 7of9.
Getting brca negative results were relieving especially for my kids, sis and her girls not having to test.
I'm still watching for second cancer, recurrence. Cancer is the gift that keeps on giving.
Sorry to hear about the recurrence. What are your plans? Big hugs xxxx f...g cancer
Cubbies grace and humanity never came up in our call. I'm learning that as my sister said to me last year, "if you can't share with your sister who can you share with" only meant good stuff.
Jack
My sister and i are on different pages. This was a difficult decision to make but like 7of9 shared. Knowledge is power.
I just never thought the call would be her angry and saying I'm selfish and I worried her for nothing.
If anything I won't be sharing again. She can read it on fb.
Thank you ladies. I was convincing myself I had done something wrong.
Maybe it take having cancer to have the compassion to listen and not judge.
Night ladies zzzzzz
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....I think it may be because, you are offered counseling before genetic testing. So your sis was just probably unprepared.
I have heard it said that cancer don't make you a saint, and also, just because we get cancer, doesn't especially mean that people know how to act around it. & , people who get cancer doesn't automatically mean your family improves. I guess that means then maybe we might want to have more compassion for them. (?!?!)
What I don't get, is how the fact that you said you were going to do the testing ruin her holidays more than the fact that you even had breast cancer, at all?
I know my sister, and I could hear it in her voice: So & so (member of sis-in-law's fam) diiiiiiiied from breast cancer! A gloating kind of weird tone was detected by me in her voice. and yeh, she didn't even say sorry, of any kind. About that same woman, my own mother said" When she found out, she just played right down in her bed, and gave up, and shit her pants & everything" . Yeah.
Really it was a matter of months, no- one told me anything, and when I asked questions, no- one knew the answers. What stage? No one knew?!?! Hah, no-one cared enough to know. I figure knowing what I know now, she must have been pretty sure she was discovered with a very advanced stage lV. And by things they described, in her brain. sad. And sad that every one acted as if she took to her bed on purpose.
Rainnyc, I would've gone into that room and helped! I love Tom Waits (for no one)! I am glad to hear the newer generations can find gems in our musical history!
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*Not played, Laid right down...
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Swanseagirl, I'm so sorry you got that response from your sister. With any luck, she'll come to her senses and realize how her response must have seemed to you.
Tomboy, I did eventually fold the laundry. I KNOW I'm deficient in the Tom Waits appreciation department. My fault. Not his!
Happy Friday, crazies!
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Crazies, I know it sounds like an excuse, but for the life of me cannot remember everyone when I post. I keep thinking I will get a notepad, and then promptly forget that I needed one.
My DD is visiting from NC and we are going to head down to Tombstone.
Ducky - sorry that the pile from your shitstorm feels so deep. I think you may need more than a chocolate shovel, but chocolate is never a bad start.
Octo - I hope that switching your dosing time is beneficial.
7 - so happy that things went smoothly and you had room for us all in your pockets!
Shorfi - so sorry about the back issues. Prior to BC we were dealing with DH's back for 3 years. He did injections, physical therapy and finally his first surgery. (Laminectomy/discectomy)pretty quick recovery time. It was a comp issue from when he worked in the jail that started us on that path. Needless to say, because comp played around with him and dragged out his first surgery date, he ended up with permanent nerve damage on one side of his foot. He then re-injured the back, went through injections, physical therapy and another back surgery. This time it was a 360 degree spinal fusion. Then followed by 6 - 9 months recovery/physical therapy. He feels so much better sincehaving it taken care of. Back issues are difficult and can bring you to a pretty dark place. Meet with the surgeon or 2 or 3 to find out all the options and who you feel is most capable.
👋🏻 Waving hello to my CT neighbors!
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Swansea, I am sorry about the conversation with your sister. I think Tomboy is right, BC doesn't change family dynamics and some people turn things around to be about them not you. I am fortunate that my sister is incredibly supportive. We both have the same genetic mutation it turns out. Both high risk for BC and possibly colon cancer.
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shorfi, partial relief... hope it continues to improve for you, dang but I am worried right now about cleaning my car tomorrow of snow. My back is feeling not too bad now but of course I am just back from a nice swim
Me too, always have problems remembering what I read, sure was easier when I was using a nice big laptop
Stay safe all, they seem to upping the inches
Got nice bottle of wine to go with my soup
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I love Tom Waits too....though I am finding that since dx I am listening to much more cheery (to me) and soothing (to me) music. In other words, alternating between Jimmy Buffett and Bach. going to have to cut back on Jimmy though, as I have convinced myself that the world won't realign in the proper orbit until I take a trip to Key West. (anyone in? :-))
So jealous of your swim, Proud. But the post rad skin is healing, so end of having to avoid the water unless I am in a drysuit, is visible on the horizon. Being an octo, I can hardly wait...
Hugs to all!
Octogirl
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Swansea girl, I've got both! One sister worries me and then runs off to play. The other one gets mad at me for worrying her. No win situation.
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Robin- there is no need to apologize and you are not making excuses. I think we all operate on the assumption that when we gone to Crazytown, there are blessings spoken and not spoken, but they are there nonetheless. Just sometimes we are moved to say a bit more.No obligations, no judgements, no apologies.
Have a wonderful time in Tombstone!
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RobinLK...thanks for telling me about your husband...and glad he is doing better.
Proud...I'll take partial relief at this point...lol.
Waiting for this snowstorm to hit us...but we are going to sit back with some goodies to eat and watch tv and sleep. I'm looking forward to it.
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thanks everyone for allowing me to share my crazy thoughts and feelings.
Much love xxxxx
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Swansea: Your sister? as opposed to what waiting for the results did for your weekend?
Shorfi: my spine sends your spine sympathy.
Robin: we appreciate you for what you can do, how you do reach out.
For me, a very frustrating but very DCIS search for new bras, having been the same size for donkey's years....and nowhere near a shop or store that has a significant selection of bras on site to try on.
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well...10 of fourteen nodes. That kinda sucks. Just took my first amastrozole and will know next week if we are doing 4 rounds of Taxotere or going right into rads.
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7- I'm sorry about the nodes. Whichever direction your tx takes, we will be there with you all the way. We have lots of graduates from both fields and several with double degrees. We have the experience and the heart to help you get through this. Keep holding our hands. Keep reaching down into that pocket. If there's either lint or cookie crumbs, you'll know we are there!
Sending a bucket of hugs through the tube. It's a renewable, sustainable, resource. So help yourself. Did you know every time you reach for one of our hugs our buckets are replenished as well?
💗🙏🏼💗
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7, very sorry to hear about the nodes. Whether it's chemo, rads, or--as Katy says--both, it's do-able. And the lights are always on in Crazytown for you. (East coast, midwest, west coast, down under; we've got you covered.) Hugs!
Swansea, share away.
Robin, no guilt. This thread moves quickly!!
Octo, I've definitely gone for musical comfort food these last several months. Started rads with Bach on my iPad, then branched out to Beethoven, then the schmalziest Rachmaninoff I could find. But I'm personally glad DS is raiding DH's iTunes collection: much more fun stuff for a teenage guy!
DH is cranky pants tonight because the school where he teaches on Saturdays is closed due to the storm. Everything seems to be closing, in fact. I confess to you, my Crazytown sisters, that I am not heartbroken about the aspect of the school's closing that involves sleeping through the usual 7:00 AM Saturday alarm clock!
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7of9, I am sorry about the nodes. If you find a chocolate chip cookie in your pocket it's from me. Chocolate cures everything so I have been told.
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7of9 I'm sorry for your bad news. Here is a forum that might help. https://community.breastcancer.org/forum/105/topics/837380?page=2#post_4618815
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