CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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gonna run out to pick up the written report of my spine mri, got the computer disk but creep of a doc did not give me the report
Course maybe I should not see it as Dr Google said nasty things about my symptoms
Yikes
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Sometimes the report is on the disk
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well I have the hard copy now, the place that did my test is real close
Course now I read it,, yikes as it says no spinal stenosis but more testing needed and it talks about the worse thing is ms
So now I am creeped, think I'm will draft my retired nurse pal to go to Friday nuerologist thing with me
Course it also talks cancer,
Next test is tomorrow
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Praying for you, Iris!
My confession for the day. I used my Estrace cream last night while flipping off my MO in my head. He absolutely won't budge about the idea of some sort of vaginal estrogen. Well at some point QOL comes before the tiny chance that a little bit of estrogen in my vaginal tissues will cause rogue BC cells to explode while taking the damn AI. I was having this imaginary convo with MO about HIM living with a painful bladder that is sometimes leaking, sometimes hanging down low and makes it impossible to walk much less exercise much less have a comfortable intimate R with my DH blah blah blah YES, I feel better now. Sorry for the TMI. I am a tad CRAZY today.
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Molly, you are not alone......although...um....maybe you should flip off the MO and then use the cream, just so he still isn't in your head when relating intimately with your DH... :-) Seriously, though, this QOL vs rogue BC cells is very much on my mind. I woke up hurting all over. I am on a Femara break, so maybe AIs have nothing to do with it, or maybe it is still in my system. Who knows. I just know I want my life back. I am working on it, but the pain is getting in the way!
I just found out yesterday that a relative died of cancer, just a few months after his diagnosis. I didn't get to see him often, but we had shared some happy holiday celebrations over the years and I will miss him. It sucks, and is adding to my craziness. :-(
Iris, in your pocket. Sending hugs to all of you;
Octogirl
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Octogirl,
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How long have you been on your Femara break? It took 3 weeks for me to really feel a difference off anastrozole. I feel really good on exemestane. Almost scary how good I feel except for the bladder/vaginal issues and some minor joint/bone pain. My mind is CLEAR!! I was convinced I was fast tracking alzheimers on anastrozole! I am very sorry about your relative. That just sucks.
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Thanks Molly....it has only been 2.5 weeks, which seems scary that it may not be long enough....He did want me to wait another two weeks before determining how much is the AI....but of course, that adds a bit to my craziness because I feel guilty about not taking a pill every day to catch those rogue cells! So glad that you are doing so much better on the exemestane!
Octogirl
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I read somewhere that you can take a 4 week break without worry. I hope that is true.
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Iris, I'll be in your pocket for the neurologist. I think taking your retired nurse pal is a good idea.
So sport to hear about your relative, Octo. It seems like it's everywhere these days, isn't it? A friend of a friend at work was just diagnosed, and he is only in his 30s. The good news is that it sounds like they can treat him pretty easily, but it's so scary.
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I am so jealous you all got to meet. I'm a "lurker' and feel I know you all... If ever in the Charlotte NC area, let me know.
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Hi ladies.thinking about all of you........just saying prayers that everything turns out positive........so sad how every damn ache or pain brings back "cancer thoughts"........after stopping my Letrozole (my choice after 4 years of hell) I thought.......you made the choice "deal with it"..........I only wish the SE's had gone away completely, but that was not to be........still have many........the worst being always dizzy, off balance, and in general......crappy......never a day where you can say "I feel great today"..........but hey shit happens right.......
Oh, the shore........there was a horrendous storm here the other day,, and I mean bad.......(nothing in comparison to what people suffer in a Midwest storm, but scary as hell)............my sons home is right at the ocean.........he has a town home, but there is a hotel near him....huge, very tall...........the roof blew off, and landed in his street.....more expected today............
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By the grace of God........the 80 MPH microburst straight line winds were going toward the ocean....had it come off the ocean the roof would have hit my sons home.......instead the beach was littered with debris...............glass showcases were blown off the boardwalk and shattered glass was all over........they were sucked right out of the stores by the wind.........really gray and threatening here now, but the severe storms are not expected till around 2pm..........
On a brighter note, having a really nice time with my DIL.....and my grandson.....my son had to go back home for work, but will be down tomorrow........hope you all are ok......0 -
oh ducky. Been at my sisters place in Scituate mass during wicked bad storm, scarey and then seeing the damage, do stay safe
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be safe, Ducky
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Be safe, Ducky. Is the grandson you're with little Bobby? Glad you're at the shore--I know how much you love it!
Watered the plants. Should be raining any minute. Squirrels running through the garden thumbing their noses at me and waiting for the blossoming cucumbers, tomatoes, and peppers to bear
mytheir fruit. Sigh.0 -
Ducky...Hope you are having a wonderful time with your family...I know you are
Everything is quiet here...taking off tomorrow so the hubby can get me a new car. Not looking for anything too expensive, but I do want a new one...lol.Iris...got you in my pocket. I am hoping everything turns out well for you. It's always something, isn't it?
Valstim...Great seeing you. How are you feeling these days?
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so went to gym to kill time but trying to be cool. I do not mind the mri, but freaked out on doc on friday
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Everyone in storms be safe!! We had the storms last week. Drove the dog nuts!
Well, I will be too busy to think about PS visit next week. I have a 2 hour drive (one way) to DH side family reunion on Saturday. We have to be back for church on Sunday and then Weds I see the PS - I'm hoping the scar looks good enough that he will do the other side instead of injecting it with more steroid. If he injects it, I will have to wait another 6 weeks before he can revise the other scar.
After the doc visit, I get to spend the next 3 days at my son's place - He has his daughter for only 3 weeks this year. ExDIL lost her boyfriend, so is only giving son 3 weeks instead of 7weeks (last year).. It's a bummer - I don't get to take her home with me this year. So making the best of the time - I will be teaching my granddaughter jewelry making this year. Every year I teach her one of my crafts. So far its been sculpture, painting, drawing, sewing, and dreamcatchers. She turns 16 this year and we are thinking of giving her a party early
too. Anyway if I disappear for a while - that is why - will take pictures for you all.
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Hoping this turns out - first video - of crazy hummingbirds - they fit right in with the rest of us.
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Gma, that is just awful that your son only has DD for 3 weeks! Make the best of the time! HUGS.
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ducky, stay safe!
Gma, so sad about your son’s time with his DD has been cut in half. There is no legal or moral justification to what your DIL did--your DGD should not be a substitute for the partner your DIL lost. So she’s (DIL) lonely. Life happens--and children were not put on this earth to fill the holes in one’s heart left by the loss (for whatever reason) of a lover. Depriving her of her dad is especially cruel & selfish.
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Chi....thanks to you and my other lovely ladies who expressed concern....we're good......Rainy......I have so many grandkids, great-grandkids it's easy to get confused....LOL........I am with my Grandson Stephen.................Bob'by, my little love is my great-grandson........will share this with all of you. Stephen is the older boy in the middle
This is my Bob'by.
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Kinda fell off BCO for a while. I skimmed thru messages quickly and learned Octo's sister had a stroke (sorry), several want to take a road trip similar to Beppy's, others with scary pains, and Ducky's one lucky grandma and great grandma (love the pictures). I've had a birthday and my memory is going in reverse, so I'm having a hard time remembering what all is going on with everyone. My apologies for not acknowledging each of you.
I've been hearing about very bad weather is the mid- and east part of country. Wondering where Beppy is right now and hope she and her DH are safe. Well, I hope everyone is safe. I live in a very high fire danger zone in the Sierra mountains. We feel like it's just a matter of time until you'll be hearing about another fire in our area. Last summer was so dangerous and this summer is predicted to be worse. It's been 100 this week even here in mountains and will be again this weekend. Jan
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Jan!! Duckyb, I swear that Bobby speaks with those eyes.
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Jan...........a very happy Hi to you..........we all forget things.....no worries your doing great...don't be a stranger.....missed you.
Molly......he is such a sweetheart, and he keeps us laughing.......not sure how to send short video's if I ever figure it out I will send a couple of him being a "loon"........he keeps me laughing all the time...typical boy..........and my only male great-grandchild..the other 5 are girls.........
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Jan, thinking of you...and glad to see you back here! Yes, the fires are worrisome up there....there was one down at Lake Isabella last night that destroyed 80 homes overnight! Hugs!
Ducky, Bobby is precious, and Stephen is going to be a heart breaker soon!
Waving to all...
Octogirl
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Ducky he is a cutey. Isn't it amazing how their eyes speak to you!
- I just did my first video - you put it on utube first - then use the url they give you and click on the video button here and paste the url.. and click submit -
If you can't see my video above, then I guess mine didn't work LOL.
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I have been following all of you! Your mayor is the bomb! Tomboy is so supportive of the newly diagnosed. I loved her post in an old Nodes Positive thread. She said simply, "I am here." It was very powerful! The anxiety has lessened for me by following your daily antics. It is what it is! Stupid cancer. I had something I wanted to post I have to figure out how. Thank you, thank you. The mayors travels are particularly fun! Keep us posted
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Welcome Fraidycat! Yes our mayor is the best. Tomboy is just as lovely in person and all the crazies are incredibly supportive.
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