CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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hey all. I usually bebop around in the March 2015 chemo room. I am in the sucky situation of waiting again for results. My mind is all over. I'm worried and scared of course. I had a Vad stroke in 2011, my BC in 2015 and have AVN now from steroids and chemo. So I had hip pain from AVN but it was getting worse and x-ray showednew spots My oncologist ran blood and TM are higher than they were last year at this time. I'm so scared. But not..I never felt like it was done. So I am waiting for stat bone scan on the 9th. That was the soonest. MRI on the 10th and doc 12th. I'm supposed to see my mom in Colorado on the 13th. Oh boy. Anyway I'm here in craY town. my very best thoughtsare with you all
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oh,Molly... I am so sorry. Is there anything I can do to help? Where are you at? I could come see you, or do anything for you. I will look in my pms for your number
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Fraidycat and Jumble, welcome to Crazy Town. Waiting, appointments and tests. They seem to go on forever!
Molly, Oh my! I'm so sorry this happened to you. Please keep us posted. Gentle hugs.
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Jumled, welcome to crazy town, and I am sorry for what you are going through. please come back and let us know how you are doing. I don't know what Vad is, or AVN, can you tell me? I hope it gets better, what ever it is, and I also do hope that you get to go on your trip, and they don't bully you to stick close to them..
Hi Ducky and val, Shorfi, QMC, cubbie, all quiet ones too
Poppy, I wish I could have your surgeon, too! I might have been thinking too much that day I responded to your post. And you know it's only 'cause I care. I am really starting to think that my whole deal with my docs had to do with the one incident, and even tho I didn't even think about suing, I did let them know, angrily and vocally, and ever since then, they have all treated me warily and shittily (is that a word?). But, I am finally taking steps to go somewhere else, altho I am not sure I can trust ANY doctors, ever again, really.
jackbirdie, I really miss not seeing you here.
And you too, Sula.
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Molly.. Oh no.. So sorry.. Hope you are feeling better.. I can't take the painkillers either, so I know how you feel..!!
Rainny.. Happy Birthday to your Hubby.. 😃
Jumble.. Thinking of you.. We can all understand how stressful it is waiting for tests, and then results... So come and spend time with us here in CT !
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Morning from rainy new Jersey!
Count me on the don't do pain meds well, actually making a bag of meds that I can not tolerate so to get rid of them, think the drug store will accept them
Hate to hear of surgery fails, but it took,3 tries to get rid of my dcis so maybe second try will be better
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((((((Molly))))))
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Thank you all for caring. I am doing better still in hospital but should go home this morning. My bp was low which is why they kept me. I am terrified of the exchange to a new expander.
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Oh, Molly. Joining in the circle of caring. Hope the exchange goes well.
Welcome, Amber Dawn.
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Jumbledbamboo: welcome to CrazyTown--the board for (among other things) exactly that fear of tests upcoming. We're here for you. Really. And I second the motion that you come back and let us know how things went
Guessing that VAD stroke is Vertebral Artery Dissection? (flawed/breached vessel in the neck) And AVN is Avascular Necrosis? (bone death).
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QMC! That's a pretty good guess! I am guessing you are right! Neither one of those things sounds so great....
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Nope, both right [bleep] to have, from what I read (no personal knowledge of either--had to go look them up)
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back home to Drexel Hill.......will be going bac to the shore on Friday and staying till Mo day night.....had a great time the entire week with my daughter and another daughter came down with her family on Saturday...we all came back tonight.....hugs ladies.
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ducky, sounds like you dodged the rain storms, glad you had a good time
OK so I just my second class of oldies type yoga
Think it good as all I a chair and gentle, little sore after first one last week but do think it good for me
Tommorrow is my appt with new nuerologist and looking forward to asking lots of questionsq
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Molly: Are you alright? That is such a horrible thing to happen. How are you?
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Molly Cyberhugs coming your way!
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I am much better! Went in to the OR last night. Took 750 cc's of blood from a giant hematoma. He said my pectoral muscle tore but TE was still in place. My pain is minimal. He has me wrapped up in an ace bandage.
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Molly, I hope you are home and resting comfortably today. How scary, painful and surprising all at once! Are you having the expander exchange soon? I would be terrified, too. You must be so much happier at home.
Tomboy, I hope you find a good MO who will help you. Mine is Dr. Nagaraj at Loma Linda University Med Center, if you want to look into seeing her. All of the nurses said I would love her... and they are correct. She explains everything, all of the options, the latest research, draws diagrams for you to take home. I know that we all look for different qualities in our doctors, so it is a personal choice. The one thing I have noticed at Loma Linda is that they treat the whole patient, not just the emergent issue. If the doctor/nurse doesn't have people skills, they are not kept on staff.
Iris, Gentle yoga sounds great. I hope your appointment goes well.
Ducky, I hope to have wonderful relationships with my kids when they are adults... just like you do!
I always thought my boys would want to go away for college, but it seems the oldest two want to be home. My oldest has started at the local community college and hopes to transfer to UCLA as a junior. Financially, it's a good plan. Plus, since he is the one who has depression issues, we can keep an eye on him to make sure he is in a healthy place. Our middle son is a high school senior this year. He has no interest in applying to universities. He wants to stay home and start at the community college, too. It's not the way I thought things would go, but I never thought I'd have cancer and age 30 yrs in 2 calendar years!
Hugs, Crazies! My hot flashes are so bad... I've got to get away from the heat of my laptop!
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Poppy, both my kids went the community college route, and for both of them it is a great choice! Both transferred to UC campuses to complete their Bachelor degrees, and now one also has a masters from UCLA and is working full time in her field of study, and the other is a third year PhD student at an Ivy League institution. You can't do much better than that (says proud Mom, without a bit of bias :-)..)!
So glad you are doing better, Moly.
Hugs to all!
Octogirl
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Poppy - I suspect they just want to be near you..
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Poppy......nothing wrong with Community College.....many start out tthat way, especially those who are not sure hat they want to major in, but want to get the credits.......
Then again some kids are not meant to go to college.........I had a grandson whose father insisted he go to college......the boy hated school.......was my son kidding......I told this to him, and boy did I get a rash of shit.........remember I have many grandchildren so of course my son thought I was having favorites, which I wasn't......I had a husband who was a Union carpenter, and 2 sons who were also, and I have a son in law who is too..........so really..........anyway this grandson went for 2 years......screwed up big time......missed classes......etc......finally told his father he was not going back.............I talked to my grandson heart to heart.....big long talk.......guess what he is doing now......He is a Union Carpenter (and a damn good one).....4 year apprentice and making fantastic money.......hey someone has to build the buildings.....right......
So my point is some kids are not meant for college......some do fantastic....some go away....many stay near by.....it's all in what makes them happy........
My belief whatever you do............It has to make you happy.............
Your boys need to be happy.............hugs, and they will be fine......
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There definitely needs to be a resurgence in well-paying/good-benefits skilled labor jobs that don’t require a college degree. (That would require a corresponding renaissance of the labor movement, which has been decimated by union-busting policies and laws that have allowed employers to “cheap out” and their non-union workers to resent those who are still fortunate enough to be able to work in union shops--instead of the resentment and backlash, they need to press for the return of the ability to join a union and enjoy collective bargaining. Corporations have gotten away with it for too long, and their attitude that workers should be grateful to have jobs that would otherwise be offshored or eliminated is disgusting. OK, off my soapbox). I am the holder of possibly the most useless of college degrees: a B.A. in English literature. All that qualifies one for is to seek a graduate degree in some more employable discipline. It’s not a coincidence that half the lawyers in America (and two of our tourguides in Rome) hold the same degree I do.
Molly, so glad your TE is intact, though ouch! on that pulled pec. Hope there’s a way to reduce the inflammation as it heals. Ducky, have fun and cool off down the Shore. We had CNN Live on our flight home from Rome yesterday, and I watched in horror as they showed footage off those floods in Maryland.
I’m approaching the CrazyTown city limits. Thursday I see my MO for my 6-mo. followup, and she’s gonna rip me a new one for the weight I gained on Letrozole (not to mention pasta & gelato in Italy). That day is also my first lab test since pre-op, so I am bracing myself for probable increases in both bad blood lipids (LDL & triglycerides) and glucose/a1c. I had started walking a lot, but between the Letrozole and the beating my feet took on those cobblestoned Italian streets (especially in the Forum), my cuboid syndrome is coming back in my L foot and my R now has plantar fasciitis at the heel and a possible stress fracture of at least one metatarsal. I had to get a wheelchair when we landed at O’Hare--Bob usually gets embarrassed if I ask for one, but he grudgingly admitted my R foot was grossly swollen. (Not sodium-related edema, as my LE hadn’t flared at all). At least it breezed us through Border Control and Customs. Had to go to CVS and Whole Foods yesterday for, respectively, prescription refills and fridge-replenishment; I used a shopping cart as a walker and still limped. Tomorrow is my first manicure in almost 4 weeks (and pedi in 6), and my nail tech is gonna chew me out when she sees that 8 of my 10 nails are press-ons: rummaging around in purses and suitcases caused my gels to peel off beyond my ability to glue them back on. The nails underneath are flimsy and shredded, despite my careful and gentle filing and several coats of strengthener.
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home sweet home! PoppyK, both of my kids are still at home. I love it
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Test results tomorrow! I am kind of freaking out here! Wish I didn't live alone....
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In your pocket, Gracie!
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Molly.. Glad you are improving :-)
Gracie.. In your pocket.. Hoping for great results.!!
Sandy.. Thinking of you for Thursday.!
Ducky.. You always seem to be off holidaying 😃
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Lucy.......that will cease once summer is done and gone...........LOL.......unless we get a wicked snow storm prediction......then my son will make sure I am with him at his house..............
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Sandy, gee you sound like Me and am stressing over my nuero appt as have horrible thoughts that they are going to recommend back surgery
Got nasty nails too,
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Hi everyone, and thank you so much to those who were thinking of me. Well, the news is not what I had hoped. I have bone mets. It's in five spots, one on my femur, one on my hip, two on my spine and one on the chest wall. I will have a biopsy in two weeks to see if it's changed, or the same and what kind of treatment I will go through. If you have a minute, I would appreciate your prayers
Thanks again, you are a great group of women!!!0 -
Oh, Grace. The news you don't want, ever. Hang in there; I hope you get some word soon about what your choices are going forward. Are you satisfied with your medical team? Keep us posted, ok?
Molly, glad you're feeling better! What a relief.
Community college is a fine way to get a start after high school. Poppy, I think it's great your guys don't want to leave home quite yet.
Sandy, maybe you're being hard on yourself? I have this theory that gelato is good for the soul. So is pasta in Rome. Just sayin'
My DS has spent the summer discovering that tutoring and dog walking are incredibly lucrative (he's also camp counseling). Today he deposited $1000 in the bank--most of it from the parents of 13-year-olds trying to ace the admission test for the elite high schools. Holy cow, is all I can say.
It's a little cooler here tonight. Hope the same is true for all of you! Waving to all crazies!
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