CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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So sorry to read that Gracie. Hope you have a plan in place soon. Thinking of you.
Glad you're on the mend Molly. How's Wyatt doing?
Good on your Son rainnyc. That's some serious "pocket money".
I had a fantastic weekend with the family. Was my youngest Grandson's 1st Birthday. Hard to believe it's been a year since his speedy arrival into the world. He was born in the car on the side of the road. They didn't make it to the hospital.
All the kids had colds which they have kindly given to me. My head is congested and I feel miserable but it was worth it.
Take care and be happy all. Hugs Donna.
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Prayers and hugs, Gracie. Hope the treatment going forward is tolerable and effective.
The long and gory details are over in the Lumpy Lounge thread, but the short version is that I do indeed have bilateral foot and leg edema, a bone bruise (but not a stress fx), and a big honkin’ heel spur (almost 1 cm seen on X-ray) on my R foot. Most likely from the long flight, preceded by several “long marches” in shoes other than sneakers--and probably lots of hidden sodium in the salumi & cheeses. No heart failure or ascites, but liver & kidney enzyme test results are pending. I am also now on Lasix, something I have in common with several illustrious racehorses. In the words of my PCP’s NP (who saw me today), I’m establishing a meaningful relationship with my toilet bowl, and have a decent supply of bladder pads of all sizes & strengths. Off to pee and prop up my feet again.
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Gracie.. I am so sorry to hear your news.. Sending love, hugs and prayers..
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Gracie I am so sorry! What shocking news. Do you have someone with you tonight? The Bone Mets Thread is full of people with great information. PM me if you want.
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So sorry to read this Gracie. Cancer sucks. I will be adding you to my thoughts and prayers tonight. Please keep us posted. I hope you and your team get a treatment plan figured out soon!
Hugs;
Octogirl
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rainnyc, I really like my onc. He's the same I had the first go round. I wish he would send me to a naturopath, but I think he's afraid I will not go through with conventional treatment. But conventional treatment bought me almost 10 years, so I won't abadon it
Smurfette, thanks
Can't wait..wish my biopsy was tomorrow.ChiSandy, thanks so much, me too! I want to start tomorrow!!!
Lucy55, thanks for the hugs, love and prayers, I'll take all you want to send my way
Fraidycat, I'm afraid I'm on my own tonight and probably all nights going forward. My son has four small children and he and his wife both have very active jobs. And my daughter lives 12 hours away. So I'm winging it.
Octogirl, thanks so much, I absolutely will accept every prayer you have time to say for me
Hugs!!!I'm in some pain tonight. One of my mets is on my upper spine, and I've been having problems with my left shoulder, but tonight, it's the side of my neck. I think as OCD as I am, that I'm going to end up being afraid to move my head at all! I know that's probably silly, but I have a tendency to freak out easily, and then cause myself a lot of anxiety. Not sure I'm going to be able to sleep tonight...
Thanks to you all
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Gracie, I am so sorry about the bone Mets.
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smurfette, thank you for asking about Wyatt. He's been doing pretty well lately. I am incredibly thankful because DH is really having a hard time being the primary caregiver instead of me. After this weekend I have been ordered by all that I just can't help with Wyatt right now.
My DD helped me wash my hair tonight and clean my upper body. She's not afraid to look thankfully. I have bruises everywhere and some edema in my feet. I see my BS tomorrow afternoon so I will finally get my pathology report. I don't expect to have anything in the report since my MRI was negative.
Thinking of all of you. Beppy, I hope you are doing well.
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Gracie...I don't have the words, but know that I'm so sorry about the bone mets.
Molly...Glad to hear that you are on the mend. Please take care of yourself..
I think I need to take a break for a while...and try to move forward if I can. If anyone wants to email me my address is sherioree@gmail.com. Please feel free to use it...Ducky you too...write it down😘😘😘😘😘
I'm sure I will be back soon, but for now, I am going to take a little break. Thanks to you all for your words of encouragement, love and concern.
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I don't know what to say other then.........I am so sorry you all are suffering.....please know you are in my prayers.........it's just not fair.........Just don't tell me life is not fair........I know that, but why do some get so much more unfairness.......love you all......
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Gracie, you have my prayers.. Big hugs!!!!
Here is a picture to just contemplate and breathe -
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Good news on my labs--all w/in normal limits, so the edema is due to external causes (too much dietary sodium, overuse syndrome, physical stress, long flight, and reaction to the pain from the heel spur) rather than my heart, liver, kidneys, or brain. Glucose was a tad high but still normal (98), but it was post-prandial (had breakfast before my NP told me to come right in) rather than the fasting 93 I had pre-op. NP says no need to re-take a1c, but my MO will probably take it, my CBC and my lipid panel tomorrow at my scheduled visit. The Lasix is working--down to 197 this morning. Still a little foot swelling and lots of point tenderness, but the NP says the latter is due to the skin and soft tissue having been stretched--some Voltaren or arnica gel should help with that. As to the heel spur, will have to perform Sat. morning sitting down....in my ugly sneakers.
My MO messaged me that she’s “looking into” approval for Prolia. She assures me that I will not be getting Zometa tomorrow, due to the "flu-ey feeling” side effects that’d keep me from driving up to Milwaukee to perform on Sat. morning. Because my glucose is normal, she probably won’t prescribe Metformin. Will see tomorrow what letrozole did to my LDL and triglycerides--if they’re too high we might consider Crestor (the statin that’s easiest on the liver, pancreas & muscles). I won’t take natural statins like red yeast rice, because their purity & strength aren’t FDA-regulated. Not sure what else they’ll measure--estrogen levels, maybe? She did message me to keep taking the letrozole (D’OH!)--and I wouldn’t be surprised if she breaks the news to me tomorrow that I will probably be on it or some AI for ten years, not five.
Must say I’m a bit (but not very) disappointed that the Lasix hasn’t been more dramatic. Not peeing urgently, just a bit oftener. Turns out I bought orange juice unnecessarily, because I had no trouble swallowing the potassium capsule (I don’t need the extra sugar, anyway--and Bob & Gordy will gladly drink it). I guess I was expecting the reaction my mom had after her NP gave it to her in the office via injection and we then drove home--she had an “accident" before we were able to get her into her bathroom and her “nose hose” connected to the O2 concentrator. She was mortified, but when I told her about the expressions “peeing like a racehorse” and “shit happens,” we both had a huge laugh together.
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Lasix does nothing for me........neither does Hydrochlorothyizide ..........absolutely nothing........
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Hugs and prayers Gracie.
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Gracie, I'm so sorry about your results. ((Hugs)) and prayers.
Shorfi, Thanks for letting us know you need to take a break. We worry when people just stop posting. I hope you feel better quickly. ((Hugs))
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Gracie, Comforting hugs and heartfelt prayers. Wish you weren't dealing with this alone.
I've been up and down California picking up and returning dd and 5dgk. Exhausted to tears. Cancelled tomorrow's MO appointment. Don't like the man and I'll still be hungover with exhaustion.
Poppy, thinking about what you recently said about your MO. I really want a new MO, but since I'm 5+ years from dx, I'm not sure who would want to take me on as just a follow-up.
Beppy, With you.
Waving hi to my fellow Crazies.
Jan
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I am glad that I am not the only one who doesn't like their MO. Good news my pathology was benign. I feel like crap and need to be careful so I don't get another hematoma.
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Jan, I'm sorry you're so tired. I bet you had a wonderful time with your grandchildren. Hope you recover your strength quickly.
Molly, So happy your results are benign. Hope you are taking it easy during your recovery. Easier said than done when you have so many responsibilities.
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Speaking of Grandkids - my grandsons, mommy and daddy are coming for 10 days.. Pirate 101 marathon. The boys love to play the game with me, so I know when they come - we play after I get off work and mommy and daddy have quiet time away from them.. I kind of wish the boys would grow out of it so we can do other things.. My bad though. I was the one that got them hooked.
I'm so tired. I hope I get energy before they get here.
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Gma, I hope you get energy too! I find my grandkids manage to give me some most of the time. They can be exhausting though. Jan, hope you get energy back too!
Happy Dance for benign results Molly!!!
Hugs to all
Octogirl
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Molly, so glad your results were benign. Take care of yourself while you heal.
Ditto ChiSandy: glad you got good labs.
Shorfi, thanks for letting us know you're taking a break. Hope all is well.
Get some rest, Jan69! And enjoy your grandkids, Gmafoley!
Grace, hope you are getting some answers.
Crazies, we could use your thoughts and prayers. My DS has a friend from elementary school who's in the hospital with Guillain-Barre syndrome. The day before yesterday, his arms and legs felt weak, and over the course of several hours, he became unable to speak, swallow, and walk. Finally, he had trouble breathing and had to be intubated. He is in the ICU of a major teaching hospital and getting good care, but it's a very severe manifestation of the disease. He is 17.
Waving to all quiet and noisy crazies.
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Morning, rainy, hate to hear about such a young person with such a serious Condition do hope he improves.
Gmail, i had to laugh about you and the grandkids game, I got I got my nephew hooked on origami years ago, lordie but he tortured me to make origami for years. Then again, he went to school and did origami for his class show and tell. Think he was about 8 at the time
Off to pick up scripts today
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I need to make a mammogram appt - With all the reconstruction, I haven't had one in 2 years
. I just dread it with what little I have and all the scarring.. Isn't there another way??? With the reduction, it left me with all those mammary glands and no fat, so they will be less dense. But...... sigh.... 0 -
Good morning to all!
Molly - what an ordeal! I'm thrilled to hear that your path is benign. I hope you're resting well.
Gracie - so sorry to hear about the mets.
Rainny - I'm sorry about your son's friend - what a scary thing.
I am feeling very overwhelmed with medical sh*t lately. It seems that every test is normal, but there is an unintended finding. I had the pulmonology appt, and there is some mild scarring in my right lung from rads, nothing too terrible, and fairly typical. BUT he thinks I need to address my mild asthma, and so have had oximetry test, will have pulmonary function test, etc. And I've now added Symbacort to my growing list of meds. I had an ultrasound of my neck last week to check for swelling of thyroid. My thyroid looks fine, but my parathyroid glands are swollen, so I will follow up with endocrinologist. I'm glad the docs are on top of things - but ready to put other parts of my life in focus.
*Rant over*
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Sorry about the lung stuff, Pennsy, but as a lifelong (well, all my adult life) asthmatic I can tell you that you can manage this. I’d be better able to manage mine if I could take Symbicort (or another combo inhaler with steroid) but I’m a singer and steroid inhalers irritate and weaken my vocal folds. Nonetheless, I take Singulair at bedtime and carry a rescue inhaler--and ever since my first diagnosis 30+ yrs. ago I’ve never needed even an ER visit for it. Ask them to give you a peak flow meter, use it daily and journal your scores. Might want to buy a home pulse oximeter--they’re cheap, tiny and easy to buy (any place that sells BP monitors and glucose monitors should have them--got mine on Amazon). You got this, sister--you’ll do fine.
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Thanks, Sandy. That's a good idea about the peak flow meter. I am notoriously terrible at using asthma meds, especially inhalers. If I saw the results, I'm sure I would be more motivated.
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Pennsy, was diagnosed with asthma many years ago, i use advair 250, used to be able to skip days but no more. It is the one med that I can tell if I missed. Once you get your med correct, all should be fine
If you can figure out your triggers, then you can stay away from them. Yesterday I was in a dr office waiting room which had a carpet......not good for me. I got rid of all carpeting in my house and never use perfume as both are issue for me
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Gma, I hope you find the energy for your grandsons visit. Get the mammogram scheduled so you can put it out of your mind. Rainny, praying for your DS's friend. How terrible for someone so young. Everyone else, thinking of you. A few posts and I am exhausted. I am not sleeping well at all. On top of that I am constipated and waiting to see if miralax works.
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Had my MO visit this morning. Because I had a complete metabolic panel drawn by my primary 2 days ago (and brought the printout), I was able to skip the lab visit and not get my one good vein punctured again. The bad news is that Humana Part D denied her prior authorization for Prolia. She agreed that this is not a good time to get a Zometa infusion (the SEs last about 3 days, which would keep me from playing my gig on Sat.) but that I am not at high enough risk for recurrence (or fullblown osteoporosis yet) that I can't let it slide a few months to see if I change my Part D carrier in Oct. whether they's cover Prolia. She also agrees it's not worth frying my esophagus with weekly Fosamax or even monthly Boniva. And I didn't get lectured about my weight, because thanks to 2 days of Lasix I'm down to where I was at my last MO visit in Feb. (2 lb. less than when we left for Rome). 9 lbs. of water weight gone in less than 48 hrs! (No, I'm not going to stay on it any longer than my PCP says to).
And I don’t need to see my MO again for 4-6 months, so I’ll try to do the 6-mo. mammo & BS visit the same day.
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sandy, sounds like a good visit, no need to explain to mo why weight is down just be glad
We'll got my new tests all set up , more mri and blood tests, tomorrow I see my primary and will have a talk with her also
Scary stuff
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