CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Suladog,
The apicot tart is making me salivate! Love food porn!!!!
Di
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Sula ..great to see you ..Love the food porn. !!!!
Iris ..(( Hugs )) thinking of you ..
Octo ..Love the hair.😃
I had my appointment with the BS yesterday ..After the biopsy and scare a couple of weeks ago with the fibroadenoma I have felt very uneasy , and put it to him that I would like a mascetomy on the other side as well ..but he says he doesn't advise it ...sigh. .Another thing that scares me a bit is I'm " fairly sure " that I'm a Des Daughter ..Dad told me years ago that Mum had taken medicine to prevent her miscarrying ..
Love to you all ,
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my IV IRON infusion at UW/Valley on Monday was uneventful....told my nurse for the day that I was a hard stick, so she got the best and he hit my vein first time, once iv was in she gave my iv a syringe of iron and made me wait for half an hour to see if I had any reaction....none....started the infusion and she gave me a menu and I told her I would like lunch at 11, told me to order room service Now......it arrived right at 11, ate my teriaki stir fry veggies with chicken over brown rice, Diet coke, very good. Took a nap for a couple hours, and then the volunteer ask if I wanted a snack and I had a diet Coke and pretzels ....about an hour later he brought me more!......around 2pm 2 men came into my room, (ifusion center rooms are 2 patients to an room) one man sat in the infusion chair and the other man just sat in a chair, the man in the infusion chair did not speak English, and the other man interpreted question and the nurse ask how he was, and he replied he had a cough and cold, and she ask what color was the muscus and the "interpreter" (I think they were related) didn't understand so she said what color was the SNOT and what he was coughing up, He said GREEN, at which time the nurse looked at me, made a scared look to her, AND I SAID, CAN I BE MOVED!?!?, she instead had them moved elsewhere.....PHEW! about 3:45 I saw my IV bag of iron was getting low, I called hubby to pick me up, as I had to have a driver. Husband loves the hospital cafeteria, as they have a grill and will cook to order fresh made Philly cheese steak sandwich & fries. I had a sandwich and ANOTHER DIET COKE.......got home and was WIRE!
Went to ortho docs office aand since my knee is not getting better, they ordered a MRI....waiting for that call.
In the afternoon hd another doc appointment and had a couple "FOUNTAIN OF YOUTH" injections.
Hugs,
Di
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Di, that had to be scary--I'd have had visions of big fat IV bags full of Vancomycin floating before my eyes! I was lucky enough to have a private roomette for my Zometa infusion, but all they offered me was juice & cookies. (I opted for water, knowing there was a slice of dark chocolate cream pie waiting for me at Hoosier Mama afterward). Bob says I should never tell nurses or phlebotomists I'm “not an easy stick," because it makes them nervous and they choke. About five years ago I had a bizarre arrhythmia that Bob listened to, and he whisked me off to the nearest ER posthaste. Of course, when they tried to start an IV and do a blood draw I said the “magic words," and they couldn't draw blood to get a troponin level to rule out a heart attack. Of course, my rhythm normalized right after they called upstairs to the anesthesiologist on duty, so I was kept there for an hour and then released so Bob could drive me home.
I too suspect I'm a DES daughter. My mom mentioned I was her “miracle baby," since she & my dad had tried to conceive for five years before they finally got lucky on a second honeymoon to Niagara Falls (apparently they, uh, "got it on" while on a tour boat on the Ontario side of the river--does being conceived in Canadian waters confer dual citizenship?). When she began to spot, they gave her a shot. But she was never good with medical terminology and couldn't remember what it was. She said “something like 'progestrol'." I asked “progesterone? stilbestrol?" She shrugged. OTOH, my kid sister was a “surprise," and a very robust one at that. But she and I both grew up to miscarry our own first pregnancies (both blighted-ova).
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Di ..oh my ..I'd be wanting to move from the person with green snot too. 😷 😵
Sandy ..when I try to read up on Des Daughters the breast cancer issue is not clear ..some sites say there is twice the risk after age 40...others say 2 percent increase in risk , and other say there MAY be a slight increase in risk ..sorry to hear you and your sister lost your first pregnancies ..Do you have extra gyno tests ? I only have yearly pap smear ..maybe I should be doing more ? Who knows ..I'm sick of worrying about things ...
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gee not heard much of des for a time, I think my sister is as remember family talk although sort of think I am not. My sister would know but she is very tight lipped about stuff. Also she is in one of her depressed times. She ignores ,e when I have health stuff
Green snot....my ent always said that was the worse but glad none of that
Off to doc soon . Can not tell you how helpful it is to talk to you all
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Sula, I am hungry looking at your pictures. I hope your oopherectomy goes smoothly. I passes my one year cancerversary in June. I can understand your anxiety. Lucy, I opted to remove my other breast due to my genetic mutation but also because the idea of mammograms was not appealing. Di, glad to hear the nurse moved the other patient. Hugs to everyone else. Praying for you, Beppy.
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Hi all, hope the day is good for everyone. Lucy, the green snot talk would have had me gagging. If I hear someone snort it (can't think what that's called), I have actually dry heaved. Glad they moved him for your sake. Ugh.
Sula, those desserts look so good. Is it as good with no gluten? Sometimes I have stomach issues, but don't know if it's the gluten or not. I just eat what's before me and hope it works out okay.
Y'all talking about DES reminded me that years ago, there was talk about that on the news and I asked my mother if she ever took it, and she said no, she never took anything that would hurt her girls. Not that they even knew at the time. I guess, though, Mama's babymaker was okay, since she popped out seven of us in eight years.
Let me ask y'all something. When is it you get to say you are a cancer survivor? Do I use my surgery date since that is when it was all removed?
Another thing. I had the ER-PR-HER2+. I see that many of you are taking some sort of medication like the AIs, and stuff. Is there anything else they can do for my type or is the treatment I have had it? Is there anything else I can do? Sula, is your oophorectomy because of your ER+? I am sure y'all can tell I don't know as much about all this as some of y'all do. Somewhat, because Dr. Google used to scare the pants off me, and I figured I would leave him alone. He gives out too much information that you don't ask for.
Iris, I hope that team of doctors you are assembling will get you all straightened out soon.
Octo, that is quite the head of hair you have. Nice curls, you lucky girl. Mine is stick straight, with a tendency to frizz at the ends, but it is coming in pretty good. It looks ragged right now, since it has grown another few inches. I had my first haircut just before my surgery in April, and none since then.
How many of you keep having surgeries to fix the boobs? I have to see the PS in November to see what he wants to do, since one is way lower than the other still. I am hoping the next surgery will be the last and then maybe some new nipples.
Di, what are "fountain of youth" injections? I want some.
Sandy, are you on Synthroid or Armour or something else for your thyroid? I take Armour after Synthroid in all its forms did me no good. Hey, your 305 cholesterol was still less than my sister, Cindy's is. I nearly fell over when she told me hers was in the 400s.
Beppy, I hope you are feeling well today.
Hi, Robin
Have a nice day all, and I am going to have another cup of this new Hawaiian coffee (Kauai) I got at the store today. I have been obsessed with making my own pour over coffee and it is so good and I am now so hyper. Can y'all tell?
Lisa
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wow, hearing those cholesterol number bers, guess I will live be thankful if I get mine back to lo 200s
Back from nuerosurgeon.
Yeap like him, he is part of Columbia Presbyterian and he is going to present my new scans to the tumor Board his opinion is no surgery now but sort of think the hydrocephelus is the cause of current issues. I have 3 dif issues. Feel so much better and really happy with doc. Also happy not to have any doc appt next week! So it is watch and rescan in 3 months.
Now can I get some ice cream
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Proud,
glad you are in good hands and happy about your dr...yes, I have some ice cream sending it down the tubes to you...cherry vanilla w/chocolate pearls
or..buttermilk blueberry
of course when it goes though the tubes...it comes out no calorie!
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great on the no call ice Cream! Boy, long time to get to this point, thank goodness for medicare as my work supplied insurance would not have paid for all these dang scans
So tired but plan on doing gym stuff again, balance still stinking so will work on that again starting tomorrow
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lcm,
yes, the pastries I'm designing for this restaurant is made from my own proprietary blend and it tastes just as good as non gluten. I am not gluten free myself but I have many celiac friends.The restaurant is certified gluten free since the owner and her kids are all celiacs..there will be many vegan offerings but also meat dishes too..it's absolutely gorgeous inside and the garden is amazing. I've signed another 9 month contract with them to develop seasonal dishes..everything is organic..so next time any of you guys are in Sonoma give me a shout out
The ooph is not because of the ER+ stuff but because my mom died of ovarian cancer...however at 90! The drs I talked to at ucsf said that ovarian cancer is fairly unusual and since my mom got it at such an advanced age and was never genetically tested and has no siblings to test, and my only sibling died 6 yrs ago...(not of ovarian cancer) my mom night have just been what they termed "unlucky" so....it's not a necessity for me..but also it's the only way that I can get peace of mind about that issue and since I was radiated as a child which likely caused me to get breast cancer twice...it's more of a precautionary action so that I don;t spend quite so much time in crazy town....at least not spending time there worrying about my non functioning ovaries. I spend enough time there worrying about siatica and butt muscle cancer..eyebrow cancer..toe cancer....etc, etc, etc....
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Lisa, turns out my thyroid is dead-bang normal, which is surprising. My lousy metabolism is apparently a combination of heredity and letrozole. Decades ago, after a classmate came back to our second year of law school 30 lbs. lighter after summer vacation, I asked her and she gave me the name of her diet-pill doctor. As the wife of a then-MD-PhD student, I should have seen several red flags: the guy was a D.O.; he didn’t personally see me until my initial blood test results were in (and for less than five minutes--I saw only his NPs most of the time); instead of being given prescriptions to fill, I was ushered into an anteroom with a wall full of little drawers and assistants retrieving little plastic baggies of pills and putting them into a brown paper bag stamped with the patient’s name; when after food started looking like nuts & bolts and I nearly fainted carrying a TV set up my stairs, I called later to ask what I was taking, the nurses first just referred to the color of the pill and “that’s for your metabolism, that’s for your appetite, that’s for sleep...etc.” They were resentful that I wanted to know the actual drug names (I didn’t tell them we had a PDR in our apt.) and got hostile when I asked how I could possibly cross the border (we lived in Seattle and often went up to Vancouver or Victoria) without original written prescriptions to show Customs--they actually said “the brown bag with your name is your prescription.” I looked everything up and stuck everything except the iodothyrin (the doc mentioned low T3 & T4 levels) in a plastic tackle box. I lost 30 lbs and kept it off until I got pregnant 10 yrs. later. But a family practitioner treating me a couple years later for a strep throat mentioned I should immediately stop taking the iodothyrin lest I permanently disable my thyroid and invite arrhythmia.
I get Paps every 3 yrs, per my OB-Gyn--about to stop, as she says as long as my husband & I are monogamous I wouldn’t get HPV and cervical cancer, especially at our age. When I was first trying to get pregnant, I had blood tests that revealed I had short luteal cycles and low LH, which gave me too frequent periods and impaired the ovum’s ability to implant and stay implanted.
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Sula, I hate to think of you spending time worrying in CrazyTown, but don't go too far away!!! Your food porn always makes my day!
I may not make it up your way till November, which seems a long ways off, but I will for sure let you know when I am going to be up there. Would love to try the restaurant......
Hugs to all the crazies!
Octogirl
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Ahh, Sula, I only wish we could squeeze the US thinner, so I would be closer to those desserts. Buttermilk blueberry ice cream? That sounds heavenly. California is just way too far away. Butt muscle cancer? I think about butt cancer, because it hurts when I sit too long on the side of the bed. It isn't comfortable and I sit wrong or something and after awhile makes my tailbone hurt and then I get to thinking. Doesn't seem right for your mama to get that at 90.
Sandy, I have never even heard of iodothyrin. That sounds pretty interesting going to get baggies of pills. I wonder what the others were that they gave you. We have a family history of thyroid issues in my family. I think out of seven sisters, four of us have it. Our mother gave it to us. I haven't had a pap in three years, and my MO told me at my last scan I should go sometime. He made me get a colonoscopy earlier this year. Said if he had to, I had to. I should tell him he has to go to the gyno, if I have to.
Iris, at least you get out there and work out. I say I am going to at least get out and walk, but that's as far as it usually gets. I think I am just lazy. Plus, it's over ninety every day here. It makes my head melt.
Lisa
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Oh, I can tell you what every one of those pills were. Phendimetrazine, Dexedrine, Ephedrine, Phenobarbital, Iodothyrine. Three uppers, a downer and thyroid (iodized extract mixed with lactose). Thank, you, PDR. The uppers made my ears "shut on & off” and set my teeth on edge; after the first couple of days, my appetite could not tell the difference between a dish of peas, ice cream, or nuts & bolts. (The first two might as well have been the latter). So all I took was the thyroid (except the couple of times I had to pull an all-nighter before driving down to Tacoma to take a final exam). Somewhere in the bottom of a closet I still have that tackle box (which contains only the speed). Not sure where it is, and I don’t care if I never find it.
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sandy, wow on all those pills, can not imagine how that made you feel, I am glad I never did diet pills, just stayed chubby
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Off to the PS this morning to check on my scar - half of it healed nicely - the other half... well.. it has a lump... whether a cyst or an overgrown scar - who knows... guess I will find out in a couple of hours. I was hoping it would all look good and we could move on to the other nasty scar. Thinking its probably not going to happen
. I will let you all know what he says.Visiting the grandkids for a few days. Doc appt is up by them, so good excuse to just stay up here and say hi.
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Enjoy the grands, Gma!
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GMA ..have a great time with the grandchildren ..I hope the PS has some ideas for you ..
It's Father's Day in Australia tomorrow. .We have Mother's Day on the same day as you all do ..but Father's Day is different ..We have Hubby's parents , our 3 kids and their spouse , and the 8 grand-babies all coming for the day ..( the eldest of them is only 6. !! ) ..So today is a busy cooking Day for us ..I'm making the savoury food , and Hubby the cakes and desserts..thankfully he loves to bake. ☺
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Enjoy your family, Lucy!
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nope nope nope - is all I hear from the PS - "I think we should abandon the steroid injection since the scar is unchanged sadly after our intervention."
Good news about mammogram though, "I also feel comfortable with ultrasound of your breast if you have any issues with screening in the future. If an abnormality is seen with the ultrasound, a mammogram may still be indicated."
I'm all good - I am going to research it a bit. I wasn't looking for looking nice, I was going for no pain. The scar he did Does not hurt so even though it looks bad, it feels good. I wanted him to do the other painful scar and he said no. He is back to blaming it on "arm rub" - which I watched myself with my shirt off and it doesn't rub the scar.... Anyway. Positive out of this - A year and a half ago I was in so much pain, I was on multiple pain meds. Today, I take tylenol and a tramadol once in a while at bedtime. Most the pain is gone.. I should be happy with his decision... but I'm sad.
Ok enough vent... It is ok and I will be ok with it... just not today.
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Wow, Sandy, you almost HAD the entire PDR in your baggies. Sounds like the Valley of the Dolls or something, without all the drama.
Gma and Lucy, I hope y'all enjoy the time with your grandkids. God willing, one day I will have some of them. Lucy, I'd love to know what savory foods you cook.
Gma, I hope you can get the other scar fixed, so it won't hurt.
Iris, I am about to set forth on a mission to pick up my dinner somewhere yet unknown. I am feeling like fast food (don't judge) tonight. I need to get back on track and walk and exercise, so I can keep the weight off that I have lost, and not put it all back on and then some. But, tonight, I need to eat some junk and stuff. I'm all by myself tonight, so no one will know except me, and y'all.
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Hi Ladies, I posted a long long post last night and just before I hit send...poof! Mozilla crashed...so if you see me posting multiple post, that is the reason why!
Been watching our grandson this week, before school starts next week....and PopPop ask GS if he wanted to go for a walk to the beach, and he said yes, so off they went, it is less than 2/10 of a mile away for public area....about an hour later they were home wth a handful of shells and a GUN! Husband took the gun to the police staition, and behind bullet proof glass is a sign that States NO GUNS ALLOWED. He told the employee behind the glass, he had found the gun at the beach, it was only slightly rusty, no barnacles on it and they call for a policeman who said said it was a 38 revolver......took info from my hubby and that was that...GUN IN POLICE CUSTODY/case closed.
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Wow, Di, I've never found anything but shells on the beach. How old is your GS? I bet he was all big eyed. My son would have been. His daddy is a policeman, and Bobby used to call him a whoa whoa man, because of the sound the siren made. I wonder if it was used in a crime.
Well, I was bad, and I ate my fast food. It was a fiesta taco salad from Taco Bell and some pintos and cheese. I was watching "Cops" while eating. It's on all evening. Now, I want some chocolate pudding. If you're gonna go bad, go bad all the way.
I have had a headache off and on for about three days. They used to come with my monthly cycle, but now my periods are over (hallelujah), I still have the symptoms of it. I wonder how long that continues.
Lisa
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GMA....PS are not perfect, I would get a second opinion, my friend.
My PS had the nerve to say I had a "wonky" body after he messed things up and I have High/Low foobs.....hi- low PS made nipples. I gave my PS many many chances....but I'm done, may go to someone else.
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Lisa,My GS is 10....my one & only grandchild. How old is your son?
There have been several shooting not far from the beach....mostly late at night/early am....I know there was a young woman 16 or 17 shot in the head dead while she was in the backseat of a car when the boys she was with walked to the public restroom......didn't ever hear if it was a random drive by or due to car recognition.
When I mentioned Fountain of youth injections....it usually botox, belotero, or bellafil......soon at a point nothing will help....next b-day will be the big 7-OH!
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Lucy, Have fun with all your grandkids tomorrow!
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ChiSandy,
I took diet pills when I was young woman, and I got the RX from my Doctor......Preludin Endurette.....my weight was great while taking them, MAJOR DRUG!!!!
I ending up being morbidly obese after always dieting...then not dieting....diet.....not....finally when I was 51 years old, 240 lbs I had gastric bypass.....losing 129lbs.....My stomach is still the size of my thumb.....per my gastroenterologist.
I never diet anymore, just healthier food choices , I can binge if I want, but most of the time I choose not to. Low BP, & 53-60/ heart rate. I had my gastric bypass 15 years ago.....2001 .......MY "SPACE" odyssey.
I sometimes eat fast food, but since I had severe sepsis I am VERY CAREFUL what I eat, the docs in the hospital thought I had e coli from chicken salad from Costo, but I never buy prepared salads, ruled out.
Di
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Di, I suspect that’s where I’ll end up too, maybe not bypass but probably lap-band. (Though Bob says his patients on low-carb don’t lose as fast but do maintain losses as well as those who had bariatric surgery). Right now, fine dining & wine are a big part of our shared lifestyle. If Bob ends up having to alter his diet again (as he did last year when limited to no-fiber after a botched colonoscopy perforated his bowel, necessitating a hemicolectomy) or we can no longer travel, I’ll revisit the concept of bariatric surgery. At present, I’m a bit fed up with surgery (one cataract next week, trigger-thumb tendon release in 2-1/2 wks, the other cataract a few days after Bob’s left eye cataract surgery). I asked my PCP and he said, “definitely not yet.” As long as I can keep below 200--and hopefully make it down to 175.....
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