CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Yes, Molly, wool, too. I don't know how many thousands of years ago, some sadist decided that it was a good thing to make scratchy things made of wool for innocent people to wear. I have never owned any merino wool, so I can't speak for whether or not it is soft. How about turtlenecks? I feel like someone is strangling me. They look so cute, but that feeling is awful.
Lisa
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Wool and anything but cotton for me - Tags are cut off and I wear a cotton tank inside out under the bra because the thread and seams bothers me... I have a hypersensitivity to any floral and chemical scents. I am a mess and meds are the same way.. But I watch what I wear and smile - so no one but you all know
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Saw Tom Petty in Manasses Virginia a few summers ago. He was the lead in band to Crosby Still and Nash, my all time favorite band. No Neil Young with them but I did see him in concert in Camden, NJ last summer. Recently saw Hall and Oates, they may still be touring. All were great concerts. Music is one of the first things that drew me and hubby together many years ago. He plays guitar and sings, and I play piano. Music is calming to my nerves and is a good break from worrying about cancer, especially right now as we wait for biopsy results.
Yes the song THE WAITING IS THE HARDEST PART by Tom Petty is a great theme song for this thread.
Have a good evening. cwp
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Bob’s & my first date was CSNY at the Fillmore East in June 1970. (His dad stood in line at the box office before work to get the tickets).
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Well, they don't need Neil Young around, anyhow. Joking, you know what that reference is to. I bet it was a great concert. One of my favorite concerts of all time, was a Beatlemania concert at the Festival of Arts, Salute to the United Kingdom. Whoever those singers were, they did a really good imitation of the Beatles. I agree with you about music.
Me, too, Gma, I love cotton. Don't you love those white cotton nightgowns? The first thing I want off me when I come in the door is my bra. Even before my shoes. Speaking of perfumes; have you ever had someone walk past you and the overwhelming amount of cologne or perfume will honestly just about take all the oxygen out of your lungs?
Aww, Sandy, that was sweet of his Daddy to stand in line for tickets. The things parents will do for their kids.
It's a new week and for everyone getting results, I am praying for good news, and for calmness and peace for those going to have tests done.
Lisa
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Icm, I have asthma attacks when some wonderful lady at church gives me a grand hug in the morning. I try to tell them, I love them but I'm allergic to your perfume.. so we need to hug from afar. Most of them thank me for letting them know, that they never thought about it before.
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Crossing my fingers that Beppy gets her surprise today - I so want to show you what I made with everyone's name on it.. It's really hard not to show pictures.
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I've never been diagnosed with asthma, but sometimes get asthma like symptoms. I have an inhaler for those times. Another thing my mother had. I just haven't gone to find out if I do. I don't think anyone at church is too heavily perfumed, but sometimes when I am shopping, someone will walk past, and suddenly all I can breathe is their scent. What was really bad is when I would go up to the chemo waiting room and someone there would be overscented. You're already ready to be sick to your stomach, and that isn't helping any.
I'm sorry I didn't get to add my name to Beppy's present. I do hope and pray she is doing well today.
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Icm - I can make a pin with your name and she can add it - You will see what I mean when I post the picture.
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Lisa, figures that as an Alabaman you'd make that Skynrd reference. Good one!
Over-scented people drive my nose & lungs crazy--some fabric softener sheets leave such a heavy scent that clothes reek of them and their owners don't realize it. The worst is if you're in a restaurant and the hostess is wearing heavy perfume and keeps walking past tables. Waitstaff know not to do that
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my primary care doc told me years ago I had asthma but I sort of guessed it based on my symptoms also my family included many folks with it
Think mine got bad when I was working I a printing plant and inhaled all the nasty fumes from the ink
When I first retired a pal convinced me to apply for disability based on my messed up I did to humor her but very quickly got a significant workman's comp settlement, mostly based on my asthma
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My first indication of asthma--despite having had hay fever since I was 10--was a month before my 30th birthday, on New Year's Eve at a friend's party. (He was a fellow Asst. IL AG in my office, and my guitar-jamming buddy). Joints were passed around (which all through law school never bothered me), and after one toke I had a coughing fit, the kind that you have when the only way you can “scratch" an itchy throat or windpipe is to cough it away. After that, I actually wheezed slightly--like I hadn't done since catching strep in my late 20s while still practicing law outside Seattle. Foolishly, I did nothing about it, and a year later, minus one day, I had to do a trial down in Ottawa, IL near Starved Rock State Park (where the incident in the case took place). When I left the house it was 68 degrees, but because the weather report called for temps to crash, I took my heavy winter coat with me. It was 70 when I got to the courthouse. After the trial, I noticed people were coming in with winter coats buttoned up, so I threw mine on and headed for the car. Emerged down the front steps and it felt like I was walking into a meat locker--my hands were freezing, I could see my breath and it felt like ice was being squirted into my lungs. Got into the car....and the thermometer mounted on the dash said 18. Turned on the radio, which confirmed it. I had the rest of the day off, and had planned to stop off at the supermarket for party supplies for New Year's Eve. All of a sudden, as I drove up Lake Shore Dr., I felt like I'd been hit by a sledgehammer and wanted to do nothing but sleep once I got home. Woke up with a fever and wheezing. Diagnosed with pneumonia on New Year's Day...then went back to work. (They sent me straight back home, but I took only a couple more days off).
But nobody said anything about “asthma" until, during my pregnancy with Gordy, I was going for my ragweed-desensitization shot (my OB insisted the immunity would cross the placenta....it didn't) when my allergist sent me home with two inhalers--a steroid & Ventolin. I laughed it off and never used them until a year later......after suffering an asthma attack while on a getaway weekend in Lake Geneva. (I had a cold, but wanted to give Bob the chance to relax so I even took our vaporizer along--but not my inhalers). Bob had to feed me black coffee all the way to the ER (there was only one EMS wagon in Walworth County, and it was out on another call). I walked in there with 20% lung function--sats so low I nearly needed a vent. I finally grudgingly accepted that I had asthma, and was released with two inhalers and a bottle of Theo-Dur. When we got home the next day, my primary diagnosed me with viral pneumonia.
Since then, I have taken my asthma very seriously. It never sent me to the ER again, but poor Gordy had his first attack at age four--and has had several ER visits and one hospitalization for it. We have our own nebulizer now. The family that wheezes together... I also am religious about my pneumonia and flu vaccines.
(edited to remove political comment--forgot which thread I was on)
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I read long ago that if you have asthma as a child, you can outgrow it
But if you developed it as an adult, you will always have it
So I am pretty religious about using my meds, for me I use advair 250 and know if I forget to Use! And course my lovely singular
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Wish I could use Advair--the steroid in it (or in similar inhalers like Symbicort or Combivent) causes vocal fold atrophy, and my primary agrees that if we can control my asthma with a nasal ‘roid to prevent postnasal drip, Singulair and a Ventolin rescue inhaler, we should. He considers singers to be a type of athlete, and so he insists I achieve greater peak flows than a non-athlete patient. If it ever comes down to my having to retire from performing, we will revisit the issue of combo inhalers. My son uses Symbicort and he is an improv actor who performs in small theaters without amplification, but his voice seems pretty strong. (Easier for baritones than mezzos).
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Well fuckity fuck fuck fuck…sincerest apologies ladies but I need to vent.
Started Letrozole about 5 weeks ago. Feeling more fatigued, out of breath and weaker as the days roll by. Hot flashes about 2 an hour and strong enough to make it rain inside my glasses. I also flashed off the leads of my holter monitor within 24 hours. Luckily that was all they needed. I am most likely going off letrozole and I am also needing a beta blocker. My heart's electrical system is wonky. No need for stronger intervention at this time. I also has a chest ct to rule out clots in my lungs. No clots but there is a small noncalcified left upper lobe 5 mm nodule (S3, I 30). The margin is slightly irregular. No other nodule or mass demonstrated. They want to wait to recheck in 3 months, and my oncologist was off today. I did bring up the fact that I had a 2.5 cm breast tumor and 9 positive nodes with extranodal extension, 3 of which were over 2 cm, and all developed within a 10 month period. Did I mention I hate cancer? So...I am in wait and see mode here in AZ while hubby is in Utah with his uncle. Feeling all over the place at the moment.
I have been reading along, usually about 3 pages behind. I love you all for being here. Sorry I am not more active
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Oh Robin! I will be praying it is nothing. What next after the Letrozole?
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The doctor today said it will be my oncologists call when she is back in the office. He is recommending one of the other AI's but that was prior to the nodule being found. If it is a recurrence, I will most likely need a different game plan.
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sandy, sorry j you can not use stuff like advair, since my singing voice is the pits..Not a issue for me and it does work well
Oh well, long day and off to bed, Lord but I get tired fast
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Oh, Robin, I am sorry about that. I will pray it's all going to be okay. If you need something to get you by, Sandy has pot. At least she used to have.
Gma, Thank you, I would love for you to add one for me for Beppy. Thanks!
Sandy, I have the wheezing and coughing and have had allergies to the world since I was little. I remember my mother telling someone I was allergic to grass, and who knows what else. I thought she was joking. When my throat is itching way down, I make some weird noises to try and "scratch" it. That itch makes you want to cry. It's funny how hot, black coffee can calm it down a bit. So does ice cold Coke, sometimes. Do those shots really work? How often do you get them? How often do you have to get a pneumonia vaccine? Bobby has bad allergies, too. My husband does, too, but when his get bad, he ends up with a sinus infection. That may be what led to the transverse myelitis, the doctor said, since his flu vaccine was a long time before it happened. I figured you'd get that reference, by the way.
Lisa
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Actually, I never had pot--too paranoid to keep it around. I'd just toke when the joint was passed around, and stopped New Year's Eve 1986--I just got tired of the seesaw between “gee, what I said was so witty," and “WTF was I thinking--that was the dumbest thing ever to escape my lips" and back again. I now use my asthma as an excuse to say “no thanks" without sounding judgmental. If I'm ever approved for a MMJ card, I'll probably get the edibles.
I got shots for ragweed from age 12-20, adding weeds, grasses, tree pollens & molds once I moved to Chicago for about 6 years (took a hiatus during my 7 years in Seattle, which had none of the stuff to which I'm allergic)--finishing just before giving birth. As bad as allergy season is now, it pales in comparison to my first autumn in Chicago--I thought for sure I had the world's longest URI (or an endless chain of colds) until I found out all the stuff here in Chicago's air to which I tested wildly positive, including having lost all my carefully-acquired immunity to ragweed during my sojourn in Seattle. I hear you, Lisa, about the horrid allergy throat--there are times I want to scratch my throat through my ears and vice versa. But it's nothing like it was when I first moved here. Of course, the meds have gotten way better: back in 1978, we didn't have mast cell degranulation-inhibitors like Nasalcrom, leukotriene inhibitors like Singulair, anti-inflammatory OTC corticosteroid nose sprays that eliminated the need for oral or spray decongestants (all we had were decongestant sprays Afrin & Neo-Synephrine--which caused “rebound"--and saline sprays that only cleared the way for the decongestant sprays to work), good antihistamine eye drops, or non-drowsy 24-hr. antihistamines (just Benadryl or ChlorTrimeton, which are still used...as sleep aids). What calms down the itchy throat is either a chocolate milkshake, chocolate milk from a carton or bottle, or--the least caloric alternative--a chocolate egg cream (basically chocolate milk & seltzer--you pour the milk, then the syrup, and then stir while adding the seltzer, forming a frothy head that resembles a beaten egg white or the froth atop a cappuccino). Hot black coffee keeps me from wheezing--keeps my lungs & trachea from feeling twitchy. And if I get really stuffy, hot chicken broth (not from a “base," cube or mix) breaks up the secretions so I can cough them up or blow them out. If all else fails, there's always my trusty Neil-Med saline sinus flush bottle (aka "Mt. Vesnotvius," for the way you clean it by squeezing it till the hot soapsuds gush out the top).
Pneumonia vaxes come in two “flavors:" the standard Pneumovax, which requires one shot by age 60 (55 if you're asthmatic) and a booster 5-20 yrs. later by 65; and Prevnar 13, which is for over 50, and "one-and-done." I do get flu shots faithfully each year, trying to time them so the immunity kicks in by the time the season starts but doesn't wear off before it's over.
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My mother turned 98 last week! I am taking her out to lunch this week with my middle sister (her caregiver for now)
I had a MRI last week to find out what is going on with my knee.....follow up isn't for 2 1/2 weeks....ggggggrrrrrrr.....I ask if I could have the results at the MRI office and they said sure....so I got the results and a CD of my knee.....cyst, fluid on knee and arthritis....oh joy!
I have major grass, pollen, tree, cats, oranges allergies....perfume and aftershave (Ieven taste it) since I had my palate shortened and uvula removed. When younger had the allergy testing and gave myself allergy shot. Air-conditioninghas really helped my allergies!Lisa....I know exactly what you are talking about the itchy throat,,,and the back of tongue "action''....mine is kinda a clicking sound.....my Mom"s tongue action was what us kids called "the fish".....silent....but she would suck in her cheeks at the mouth and then her lips would go up and down, and make her looked like a fish My iron infusion help quite a bit with my energy levelRobin.....thinkingof you....well wishes for a smooth road ahead....hugs....big hugs D
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Well, that's too bad. I figured if we all made a road trip to see you, you'd have joints and munchies. Just joking. You are so right. I do not like being out of control under the influence, because you think you are the cleverest person ever, until you remember the next day what you said or did, and you hope nobody else remembers, too. I don't mess with any of that stuff, either. Plus, I'm married to a cop. Wouldn't want him to get his handcuffs out.
I want to try that chocolate egg cream. I drink seltzer water a lot, so why not put chocolate syrup and milk in it? I used to take Benadryl all the time before they came out with all the non drowsy antihistamines. I got used to being sleepy all the time. I had allergic reactions to something that sent me to the hospital several times with extreme itching, hives, and swelling. They gave me so much Benadryl, I would sleep for two days. I have one of those NeilMed things, they sent it to me for free, but I've never used it. Does it clear you out good? I love homemade chicken soup. It cures almost everything.
Do you know where Elkhart, Indiana is? It isn't that far from you, and it's a place where we went on vacation several times when I was a kid. We stayed at a campground next to a farm. I think all of us would count that as a favorite place. Good memories.
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Chisandy
I also use the neil-med saline flush twice a day since I had my maxillary sinus surgery in April.......when My ENT doc suggested flushing twice a day I thought he was going to suggest the netty pot.....I said but doc I cant use the netty pot, I feel like I am drowning, and he said I can't use the netty pot either!
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I've stayed overnight in Elkhart when playing in South Bend or Mishawaka.
The Neil-Med works really well for me. I nearly fainted the first time I used it and saw the Technicolor gunk it flushed out of my sinuses. Just remember to use only the buffered saline packets that come with it, because pure saline stings. And use either distilled heated up to or boiled water cooled down to body temp.
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Oh, Robin. Keep us posted, ok? {{{{Hugs}}}}
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Robin I don't think you said 'fuck' enough, given your circumstances!
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Has anyone heard from Beppy? She isn't answering her text messages? I know she is in treatment for another couple of days. Let's all send extra prayers her way..
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after my last sinus surgery for polyps my ent introduced me to the wonders of simply saline, it is a can and when you spray your nose., it has more.......umph but really clears out my siysnuses. Aftear surgery, he had me using it every 2 hours at the start. It seems to prevent problems. Ys
Today's haircut day
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hi all,
Need to rant here. Long story short: IDC right with lumpectomy, rads and daily meds. 2 years later now waiting for biop results done on left which was the GOOD breast. Hah NOT!! biop was done 2 years to the day of initial diagnosis. Meds making hair fall out, pain in hands, can hardly wear any rings. One finger locks up...trigger finger? And got some brain fog and arm and leg tremors. Am thinking of going off the AI. If the med is supposed to suppressing estrogen and if the current biop is cancer that tells me the meds not working, right.? And even if the biop is B9, I am still always fearful of recurrence or new cancer...All this crap and just retired and closing on a house in Florida this week. This is supposed to be the relaxing time of life...NOT!!! How is this fair?????
Is there no end to this madness? Stuck in Crazy Town and see no exit.0 -
I do understand about the AI's - So sorry about what you are going through cwp, I tried them all and the doc told me I couldn't survive with all the symptoms I had, and my oncotype score was so small, that he thought I could go without it - he said just stay away from soy protein isolate and you will be ok... I am always worried about a recurrence but at least I'm not in pain.
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