CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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cwp, have you tried switching AI's? Gma, no word from Beppy. I just text her love with no expectations.
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Yup, Molly, me too.
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Gma and Molly, I am praying that Beppy is just resting from treatments. God bless Beppy.
Cwp, I am praying for you, hon. For B9 results and some peace of mind.
Sandy, thanks for the advice on using the Neil-Med, especially using distilled water. In light of the fact that their will be narsty stuff coming out, I believe doing it on an empty stomach would be best for me. I have a very weak stomach ever since treatment, and can gag and puke at the drop of a hat. Elkhart was very country back when I was a kid, I wonder if it still is. We all got really excited when we knew part of vacation would be spent there. It was the perfect place for a family with seven kids.
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ChiSandy,
I never heard of using warm/hot (?) distilled water.....just distilled water.....the squeeze bottle is so much better than the Netty Pot (both made by Neil Med)...
Netty pot=GAG....feels like drowning/gagging to me.
We love you Beppy....thinking of you....rest young lady!
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Beppy, not sure what treatment you are doing, maybe I missed a post, but hugs and much love. Thinkingabout you!
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Hi all...just popping in to say that I am back home after six days with my sister and family...everyone managed to gather from around the world for her husband's service, which was very nice. I am exhausted. Thank you all for the kinds words, thoughts and prayers. They mean a lot.
Beppy, thinking of you, as always. Sending love.
Octogirl
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Italychick - Beppy didn't say on the topic what treatment, but I did talk to her before she started. She said she just needs hugs.
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I am sending her lots of hugs and much love
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Plenty to go around. If you need one...this one's for you!😘0 -
New to this thread. Waiting for results just sucks
I'm still in the middle of first round of treatment (mx 8/15, last chemo 29.12.15, Herceptin until 11/16 and AI seemingly forever). I have my 1-yr control tomorrow, also my Herceptin control with the cardiologist, bc last two checks showed mild but increaaing dysfunction, although I had been without symptoms then. I am trying not to worry, but I am Monday I got the lab tech to show me my ECG, which I shouldn't have done, bc it is now is abnormal That shouldn't really surprise me, bc I've been feeling exhausted lately. So yes I'm a bit worried At least this time tomorrow I'll know where I stand, with heart issues and with this #$¥%€@&# cancer. I'm trying to calm myself with that thought. It's mostly the not-knowing-limbo that's getting to me.Wishing everybody here peace of mind
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Tessu: welcome to the thread! Stay as long as you need to.,,,and yes, "waiting for test results" is right up there in the worst parts of the (breast) cancer world. Doesn't matter where in the process of treatment you are, it's all nightmarish. Keep us posted please?
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Tessu - first of all close your eyes and breathe. Feel all the warmth from your support here and remember God is with you.. I always try to imagine God in his big rocking chair rocking me saying, "I'm with you, we can go through this together. It will be ok". Here is a picture to help you take a breath and relax - It is my favorite one I took long ago on our front porch.
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Great to see you here tessu....welcome! We will all be in your pocket for those test results. Waiting does suck.
G'MA, are you serious? Your front porch view? Clearly we should set up a Crazy Town annex at your place! :-)
Hugs to all that need them!
Octogirl
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I have had visitors from my Gaiscioch gaming guild and our home is always open to come visit. I feel God gave us this house to share with others. We are set up for emergency housing or just a visit. It's a great stopover if you are traveling north. It is up a dirt road about a mile, so some find it hard to drive their old cars up, but we come down and get them in those cases. Just let me know if you ever want to visit. Here is another favorite view.
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Gma!! Me and my depression are coming to sit on your front porch!! I hope you have a spare rocker.
Welcome Tessu, have a cafe aulait with Ativan sprinkles and climb the tree house or rock on the porch.
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We have a porch swing and BBQ ready for use. To sit out there in the mornings is awesome, birds chirping, deer visiting. Sometimes we might see fox, raccoon and lots of squirrels to entertain you.
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Hello to all,
Great news: got biopsy report this morning...benign !!!!!!!!! Thank God, what a relief.
A bit of info: I called twice a day to see if results were in, which were available on the 4th business day. Also we drove to the facility and got the report in person, you don't have to wait for the Dr. to call. They can be very busy and may not call you right away and you will be stuck in Crazy Town full of anxiety
ALso, those of you who had stereotactic biopsy: I had 24 tissue samples taken which seems like a lot to me. So I am very black and blue which they said would happen, and my husband who is an RN said the same. So expect shades of black, blue, yellow, etc.
Taking the first exit out of CRAZY TOWN but will keep in touch. Thanks for jumping in my pocket. This is a great thread.
CWP
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Oh Gma that is so peaceful!
A friend just recommended:
headspace.com or the headspace app for mindfulness and meditation. The first 10 sessions are free. I adore guided meditation. If they take you somewhere you don't find peaceful, create your own vision as they guide the breathing.
Tessu- sorry you have to join us. I am in the waiting room with you. It is tough place always. Thank goodness Beppy created this one...fresh air, sunshine, porch, treehouse, food porn...the list is endless...be careful of the rabbit holes, we have tried fencing around them, but occasionally someone still gets sucked in, myself included.
I am newly diagnosed with heart issues, as in Monday. I never truly had a final check after my Herceptin was completed. Atrial tachycardia with Premature Ventricular Contractions and Atrial premature complexes. I was prescribed a beta blocker but am afraid to start it while alone at home. I have had low blood pressure issues in the past and the med scares me. I also have 4 animals counting on me to take care of them. I can't do that passed out or in an ambulance. The 2 dogs cannot be left out together without supervision.
I have also talked to my oncologist. The spot on my lung is too small to do anything with but will need to be watched very closely for the next 2-2.5 years So it will either be stable and watched or grow, be tested and need further treatment. I have another CTscan scheduled for Nov 7th. Next week I have a new appointment with my onc and she will be determining whether I get a cervical spine MRI or not on that day. She does not feel my new(started 8/29/16) neuropathy in my hands is related to the letrozole(started 8/8/16) and is concerned about it being neck or spine related. It is not from my chemo as that has been gone for more than a year and does not come back once gone. She is also concerned because it is bilateral.
My husband will be back from Utah by my appointments next week. That is a good thing because I was kind of knocked on my ass and blanked out a bunch of things I should have asked about while there. Then did the whole OMG how stupid am I routine upon arriving home. <Insert face palm here> To think I was handed all this 10 days prior to my lump finding anniversary. Bummer to put it mildly. I was much more profane two days ago.
Thank you all for your encouragement. I know each and everyone of you here understand. We are all "shoulders and ears" here. XOX
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cwp....
Awesome news!!
Have fun on your travels outta here!
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back from gym visit and lunch with pals, so good for my head and stress levels
One pal asked if she would see me tomorrow.?...well think it a good idea
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cwp, gonna miss you but hope you can stay out of CrazyTown. Robin, can a friend or relative come over and stay with you for awhile to make sure you don’t get dizzily hypotensive again? (Sit up slowly from a supine position. Stay seated for a minute. Stand up slowly, with something to grab to keep you from falling). The neuropathy sounds spinal--osteoarthritis can affect the vertebrae, and a cervical bone spur can be irritating the radial or ulnar nerve. The only way letrozole can be implicated in this is that estrogen deprivation speeds up the aging process, part of which is...osteoarthritis. PT and home traction (with detailed supervised education on how to use the apparatus) can help, surgery is a last resort. Iris, seeing friends is some of the best medicine available.
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Sandy, we are transplants to AZ. My closest friend that could, lives in Lowell Indiana. Everyone else that I have met here lives at least an hour away or works and has young children. So, I really don't, unfortunately. The cardiologist called and said we can wait until my husband gets back from his time with his uncle.
My sister is her disabled husband's caretaker in Connecticut. My parents are in Connecticut, don't fly and are in their mid 70's, my brother has a difficult enough time taking care of himself and is also in Connecticut. My daughter left to return home to North Carolina on Monday, while I was at my appointments.
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Waiting for the results of the tests for my appointment with my Gynecologist yesterday. Was my yearly check-up with her.
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robin, i get it on having someone to call and that it is hard when you are a recent transplant
Do put it on your list of things to do in the coming weeks or, maybe get the thingie I did....life line if this will be long term
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Robin, is there a breast cancer nurse navigator at the hospital where you’re being treated? She might be able to find someone to hang out with you to make sure you’re okay after taking the beta blocker. There is an organization called Imerman Angels (imermanangels.corg) HQ’ed in Chicago but operating worldwide that provides support to cancer patients who request it. They try to match an Angel & Patient by age, gender and type of cancer (yes, all the Angels are survivors themselves). Though they can’t always be there with you in person, I bed they’d know someone who might. Worth a try.
One benefit of the beta blocker: it is used to combat crippling stage fright. So if you’ve always been afraid of public speaking, you might end up giving a TED talk.
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Sandy, I can see it now...lol
I don't mind waiting. I called the pharmacy and they are holding it for me. I will bring it with me on Tuesday. I will be at CTCA all day, so if anything happens I will be quickly assisted. All good.
I have been using the 21 Day Fix eating program, Shakeology, and PiYo exercise program, from Team BeachBody. I am losing weight at a rate of 1-2 pounds per week which is perfect for my fatty liver(thank you cancer). I started at the beginning of July and am down 24.4 pounds. Pretty much halfway. I put the exercise on hold, but I am continuing to meal prep and clean rating. My weakness and shortness of breath started a couple weeks ago and I was completing less and less of my exercises. So, I am just going to continue on my holding pattern until my husband gets back.
We recently rescued a stray that appeared on our street. He went through the process of animal control, but ended up on their euthanasia list. We adopted him. He is afraid of the crate, leashes, collars...but knew all his commands. He has separation anxiety and I returned home to quite a scene on Monday. He has done well on short excursions, but my tests took a bit longer than expected. He pulled the blanket that was on top of the crate, through the side window and front door. It was too tight to pull back out, and covered the door latch. I had to cut him out. Never a dull moment.
The point of the ramble, he is not predictable enough to foist on someone unfamiliar. This ramble, however, has been a perfect distraction. XOX
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Robin, from what I know about CTCA (from their ads) is that they treat the patient, not just the cancer. They offer all sorts of complementary therapies, including mind-body support, and I wouldn’t at all be surprised if they had a terrific volunteer network as well. I know that some CTCAs do provide on-site housing (not necessarily a traditional hospital room) for patients (and caregivers if they have them) from out-of-town undergoing multi-day treatments, so maybe they can keep you overnight under supervision just to make sure you don’t get too hypotensive from the beta blockers.
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Great news, Cwp! I cried throughout my stereotactic biopsy. Bad memories of that thing.
Tessu, I'll be praying for you and B9 results. A warm welcome to Crazy Town.
Robin, I never had a final check after my last Herceptin, either. I wonder if I should ask my MO when I go for my scans next month. He never seems to hear anything when he listens to my hear on my checkup. I mean, nothing besides my heartbeat, that is. I know about those "spots too small to do anything about". I'll be going to get those spots on my kidneys checked out again in November. Your pup is so cute. They can get into so much trouble. I am so glad you were able to adopt him. If I lived there, I would volunteer to take care of him. I love naughty dogs. I have to, we have three of them. Actually, I think the English Lab might be a horse. Oh, and great job on the weight loss. I'm trying on the low carb thing. Some days are easier than others. Your program sounds interesting.
Sandy, I wonder if that is similar to the group of ladies that came around the breast clinic when I was first diagnosed and gave me a bag of goodies, all in pink, like tissues, a bath pouf, a journal and stuff. I don't remember what they were called, only that they were all survivors.
Mommyof2, praying for good news for you.
Lisa
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I completely get the not hearing you. I told my former MO about so many different things that were all left unresolved. My tonsil cyst was the last straw. I threw away my meds, and found a new team. My former MO was incredible during active treatment, but after that, was just not the right fit anymore. Our other dog is a yellow lab. My heart tests were because of my symptoms, but I feel there should be follow-up after certain heart toxic chemo meds and Herceptin. Especially if there was a decrease in heart function while on the meds.
21 Day Fix is extremely simple. There are meal plans with grocery lists for meal prepping. It is portion control and clean eating. If it fits in the colored cup, it is the correct portion. I meal plan on Friday nights, grocery shop Saturday and meal prep on Sunday. Having everything I need ready to heat and eat keeps me from making poor choices.
Sandy, I live about 20 minutes from CTCA. They will hold me overnight if necessary, but right now I cannot leave the dogs unattended. I have appointments all day Tuesday, including acupuncture. I will also be meeting with my Naturopath.John will be back and able to attend some and then return to check on the dogs. 3 hours they can do, possibly even 5, but 8 was way too much for Buddy. Nugget did fine. She loves her crate.
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Robin,
have you tried a WIRE crate for your Buddy? I had one dog that hated the confinement in a regular crate and she HAD to have a wire crate.
The dogs I have now have plastic crates...stacked like "bunk beds"...since I have six dogs....use to show my Boston Terriers....now everyone is spayed and neutered. One dog hated the blanket over his "front door," and got 3 of his bottom teeth caught while trying to pull the blanket through his door....they had to be pulled because he did damage to his gums.
Di
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