CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Shorfi,
I also had my GB removed....easy laproscopic surgery....but on the way home from the hospital while stopped at a light, in my sister's teeny tiny old time Honda Civic, when a big giant car slammed into the back of us, and actually ended up under us...thank goodness for seat belts.....messed up my sister arm and ruptured a disc in my neck. (I has surgery a few months later on my neck!)
Thank you for the update Daisy.....we all are concerned about Beppy and send her our love,
Welcome Blinkie.......It is okay to stress about anything, need not worry YOU are in CRAZY TOWN......
I have PTSS from breast cancer and PTSS from Severe Sepsis which tried to kill me this year.
Molly, Wyatt is a cutie!
Octo havng fun in Hawaii?
ChiSandy, I know you mentioned you are Jewish, so I have a question for you, since my Dad found out ( when he was around 70) when he went into East Germany (was escorted through the WALL, told where to stay...in the very Eastern part of Germany near Poland)....but found his mother's birth record, and she was noted as Jew along with her twin brother....that would make my Dad 1/2 Jewish....does that make me 1/4Jewish?
Hugs to everyone having a tough time right now....
Di
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Iris, yes, it is similar. They said sometimes the first time MS presents is either with or like Transverse Myelitis. I hope your docs give you some definitive answers real soon.
Molly, sorry your son had a rough night. I hope he feels better soon. I know it's hard on you when he feels bad.
Mommy, can we see the end results of your craft project?
My sister, Kathy, was sounding stronger this evening. She should get test results tomorrow, and maybe moved to the bigger hospital for surgery.
I just discovered what those figures above where you make a comment are for, so I am going to 'try' to put some pictures on here.
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Di, there are two different standards as to who is Jewish and by how much: hereditary and “halachic,” or by religious law. By virtue of heredity, your dad is half-Jewish, which would make your ancestry 1/4 Jewish. But under Jewish religious law, status as a Jew is passed down on the mother’s side—makes sense because maternity is indisputable. So though your father had only one Jewish parent, because that parent was his mother he is fully Jewish under rabbinic law (and had he tried to marry a Jewish girl would not have had to convert). However, because your Jewish parent was your father, not your mother, you are not considered Jewish at all under Orthodox & Conservative rabbinic law. OTOH, were you to claim to be Jewish because one of your parents was Jewish, under Reform Jewish law you would be Jewish and if you wanted your kids to be considered Jewish neither you nor they would have to undergo conversion. Unfortunately, Israel follows only Orthodox Jewish law—should you ever wish to emigrate under the “law of return” (which grants any Jew automatic citizenship) you would have to undergo conversion by an approved Orthodox rabbi in order to claim citizenship.
Judaism is unique in that it is not just a religion but an ethnicity. Converts, though, are treated upon conversion as if they and their ancestors were always Jewish.
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Shorfi,
I have also had my gallbladder out. Since then I have to be really careful of spicy foods.
I will put up a picture of my project when it's done.
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thanks Lisa, guess I have a new disease to learn about, need to find a nuerologist to work with long term, got two guys set up next week
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I’m fine with spicy foods. But I call the ghost of my absent gallbladder my “dietary fat cop:” if I eat too greasy a meal, I can’t process the fat, and must spend too much quality time on the throne.
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sandy, sounds like me, i had mine out years ago and was one of the first in my area for the 4 tiny tasteful holes, but hot peppers and such are fine but fatty food, not good on my tummy
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I think I have finally found a forum for me. About five weeks ago I noticed a tiny blind spot in my vision in the left eye. I tried to ignore it hoping it wound just go away. Well it didn't so I went to the eye doctor last week. She dilated my eye and said she could see no problems with the retina. I have to go back on Friday for some other test, but I'm now sure I have mets to my brain. I hope not, but I'm so anxious now I'm making myself sick. I hate Crazy Town, but I'm sure I could be the most anxious, and crazy here. Guess I just have to wait it out. Thanks for letting me join the group
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Did you see an optometrist or an ophthalmologist? If the former, see the latter. If the latter, see a retinologist.
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Crazy here.....I'm fairly certain that I have skin cancer. This blister like thing in my side was noticed a couple months ago, at that time it was skin tone. Now it appears that it has changed color to reddish pink. Also this is the side that I had rads.thoughts?
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Looks like a cherry angioma. I have several that popped up on both mastectomy areas. Google images
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Could also be a seborrheic (or “senile”) keratosis. I just had one removed from my face (and biopsied to confirm it was benign), and my husband has had several on his face & legs. Even if it’s a basal or squamous cell carcinoma, excision is usually the beginning & end of treatment. Wrong color and too raised for a melanoma.
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Is this something MO can deal with or do I need to see a dermatologist? BTW I thought of the cherry angioma too, but my crazy ass assumes the worst. *sigh*
Is this worthy of me rushing on to a doctor over?
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You will need to see a dermatologist. Maybe for your sanity you can get a quick appointment.
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Agree you should see a derm—and also that it could also be a cherry hemangioma (completely harmless).
Going to bed soon—have to be up early to drive to the S. Side for a followup with my ophthalmologist (3-wks-post-cataract-surgery). Might get refracted, if he decides I still need any distance correction in that eye. But no point getting new glasses till after I get the other eye done and it’s healed. Contacts are out of the question, as my corneas & conjuntctiva are too sensitive. I worry a bit because the left eye is “wandering” due to my unintentionally favoring my newly “better” right eye (the right one is so clear and the left so cloudy). Will ask him about it tomorrow. Normally, they cover or blur the “better” eye to encourage using the worse one—but with the cataract, my left eye is so bad it’s no longer safe for me to rely on it alone.
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Hi guys I have been lurking but not commenting here... but I'm still here off and on. Glad the thread didn't die...I thought it might for a while! I've never heard of a cherry hemangioma. What a medically astute crowd we are!
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Hootowl, I see we lost the same number of healthy lymph nodes! In fact, we have an identical diagnosis! You are just a little after me timewise. I went to the doctor because I had blurry vision off and on, I was convinced I had macular degeneration like my dad. My eyes are fine they say... so it's just working on the computers all day, I get tired. So glad the thought of brain mets never crossed my mind...hmmm... it's trying to worm its little way in but I won't let it! The fact that you could so specifically identify a problem like that is amazing. Tell me, do you have trouble getting your doctors to even take you seriously because you have this "sleepy little cancer" and so much to be grateful for?! Oy! Please keep us posted, I can't think of anything to say that would ease your worries... that is just a really scary symptom. I mean what can you say, maybe it's only MS? ACCCCCK! I better stop now before I really get you freaked out. So please keep coming back and updating cuz now I'm worried for you...
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Hi Everyone, Just posting to let you know that I am reading all of the posts on the thread.
I love seeing Wyatt's beautiful face. He brings a smile to my face! I hope he is feeling better.
I have both cherry hemangiomas and a seborrheic keratosis (on my back-due to too much sun when young and stupid).
I saw the doc about my eyes. She stated high blood pressure can mess up your vision. Geez, another thing to worry about.
Hi Eggroll and Tang! I've seen you on other forums.
I want to share a view of tonight's sunset from the front of my house. After a crazy-busy day, it reminded me to slow down and enjoy the beauty around me.
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hootowl: I agree you should see a retinal specialist, but mostly wanted to say welcome and that I feel your pain and worry., but urge you not to assume the worst just because more tests are needed. I was diagnosed with a retinal injury that caused partial blindness in one eye about six months before my bc dx...it took literally several months of testing to find the problem, partly because I am one of only four or five percent of adults who don't have scar tissue (readily visible on a scan, the first test they usually do) from the type of injury I had. Just special that way, I guess. Anyway, since there was no evidence of injury (no scar tissue, no huge head trauma: I had fallen which probably caused the injury- but the fall was no big deal and I wasn't even aware I had hit my head, so retinal doc wasn't convinced that was the cause)...they did have to rule out a lot of nasty stuff, including cancer (though in my case they weren't looking for mets since this was pre-bc dx, rather, they wanted to rule out optic nerve cancer. And wanted to rule out MS, although I really am too old for MS onset...)
Bottom line, various tests, consultations with an optic nerve doc, and several months later, they finally figured it out. And then gave me the news that it was a permanent retinal injury and not treatable, although it would not get worse. At the time, I was depressed. To be honest however, now, after dealing with all the cancer s(%*t, it seems like a blip. I can still drive though I avoid driving at night, and honestly my life has not changed hardly at all from the retinal injury (wish I could say the same for the cancer.) Most of the tests were annoying but not painful or really invasive. I should point out that my retinal doc is one of the country's best, and it still took a lot of digging and tests to figure it out. It may not take you nearly as long. One thing I learned: ophthalmology has many sub-specialties, and the optic nerve guy, the retinal guy and the cataract guy (I also have small cataracts) really only really know their own area. It increased the amount of tests and back and forth discussion between different specialists.
So, just because you have to take one or even a bunch of tests, it could be a lot of things, not just mets. Hang in there, and feel free to PM me if you'd like more info or just someone to talk with about it.
Eggroll: Good to see you here.
And for all: Aloha from Hawaii, where I am hanging out on vacation and managing to get in some scuba. A much needed break. We've left the Volcano side and are in Kona where the diving is great. Last night we went out to see the manta rays, got up very close and personal (six inches or so) from a few. They are such graceful, beautiful creatures. No pics, but here is sunset from the dive boat on our way out...
Octogirl
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Hello Townies - I've been in Crazy Town while I wait for echocardiogram results. Today I heard that there were no changes since the last echo, and that means my heart is not causing the shortness of breath I'm experiencing. I'm sooo relieved. But I'm still short of breath. Back to the doctor on Friday for more sleuthing to find the cause.
I'm trying to just do whatever is in front of me to do, and not go off into negative fantasies about what bad thing will happen if I cannot tolerate the medication (anastrozole, which I think is causing the breathing problem.) I realize that even taking the medication is no guarantee. Sigh. Anyway, I'm grateful for all the info that people share about adjusting meds; there are some options for me if this med is intolerable.
PoppyK & octogirl - Thanks for the photos; I find them calming. Funny that the lines around the sun almost make an eyeball shape, given what the topic of this thread has been tonight.
Sending everyone comfort & handholding.
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Mentally preparing myself for my appointment with my MO on Tuesday. She can be so difficult to deal with at times. I know probably the only good thing that will come out of this appointment will be that she will order a routine CT Scan to keep an eye out to see if anything is rearing its ugly head
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Welcome Hoot owl! I'm sure QMC will be along shortly with your welcome basket. In the meantime pull up a rocking chair on the porch and have a hot c with Ativan sprinkles. Hopefully your vision problems are something simple. In the meantime glad you found us. 😘
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In your pocket on Tuesday, M0mmy
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I'd like to say thx and sorry at the same time. I'm so thankful for this site and thread, so thankful for a place to put my fears and express myself. But also sorry because I think I just have a tendency to post my first thoughts and maybe I should chill out and not be so reactive.
Anyway thanks for letting me share
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Blinkie, I had a horrible time on anastrozole including breathlessness. I am doing much better on exemestane. You can always try another medication.
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Waving hi to Eggroll, Poppy and Octogirl 👋👋
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Molly50 - Thanks so much for answering my question. The breathing problem started on the 18th day of taking anastrozole. It's been 11 days since I stopped taking it and it is still bothering me. Maybe very slightly better. Tomorrow I see my primary care clinician and if (when?) she can't find another reason I'll be talking with oncology again.
The pharmacist did something I really appreciated. The prescription was for 3 months worth. Before filling it, he asked if I had taken it before. When I said no, he suggested just filling it for one month. I assume this means he has experience and knows that some find it intolerable. I like a pharmacist who is paying attention.
tangandchris - Since this is Crazy Town, it seems like a good place to write first, think later! I'm sure everyone understands. Sometimes we just need a good 'listen' before we can think straight.
Ok. . . questions: 1. What does QMC mean? 2. What does "in your pocket" mean? 3. Does not knowing these things prove how old I am? haha
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Blinkie - QMC is another friend in Crazy Town, In your pocket means that we will think of you and be in your pocket (in thought and/or prayer) when you need us.
And no it doesn't mean anything. I think Ducky is the oldest here
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Welcome to those new to the thread!
Blinkie- I have been dealing with the exact same issue. I had recently started letrozole. After multiple tests, my MO is starting to agree it is the med. She feels the shortness of breath, muscle weakness, fatigue and neuropathy in my hands, all stem from edema brought on by the medication. So not directly the medication but the medication none-the-less.
I had a 2 week break from AI's and have started exemestane now. I had to wait an extra week to allow my body to adjust to the beta blocker for my "electrical issues."
In your pocket - term of support - we virtually travel in your shirt pocket, over the heart. Then when nervous, you can place your hand over your heart to feel us there supporting you....that is my take on it!
Tang- definitely the place to write first and figure it out later. We would "go crazy" if we had to hold it all in.
Mommy- I would also like to see your finished project!!
Molly- Wyatt beams! Hope he is doing a bit better today
Iris-ugh....what a frickin merry-go-round. I hope you get some relief soon.
Beppy- love you
Octo-how fun!!
Thank you for the update Daisy!
For all I missed....you are loved and I apologize for not mentioning you. I reached my new, longer memory limit. It is coming back👏🏻👏🏻
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Hoping to get to working more on my craft project later today. Been a bit busy this morning with working on a paper for My Adv. Comp. class and running a couple of errands.
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