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CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.

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  • duckyb1
    duckyb1 Member Posts: 9,646
    edited September 2016

    With his dad, my sonimage

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited September 2016

    His daughter was the flower girl........Yes, I said his daughter.....and my grandaughter walking her down the ......image

  • gmafoley
    gmafoley Member Posts: 5,978
    edited September 2016

    Awesome Ducky - I hope you are having a great time!

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited September 2016

    Bobby, and you all know Bobby..... ring bearer made it down 4 pews in his tux and ran like hell to the back of the church, never to be seen again........LOL

    The 4 guys are my grandsons......the one on the far right is the grooms brother......image

  • chisandy
    chisandy Member Posts: 11,408
    edited September 2016

    Gorgeous grands (and GGs), ducky!

    Well, we made it to the hospital in plenty of time. (Even 5 min. before the parking valet went on duty). But the whole time, my gut was telling me “don't do this, don't do this..." Every time someone came in to see me (take vitals, sign consents, pre-anesthesia talk, etc.) it seemed I was in the bathroom--dumping everything I'd eaten in the past 24 hrs. My thumb had stopped painfully triggering (except for the first minute after waking up, and not even that this morning) and pretty much stopped triggering at all two weeks ago; and something inside said to leave well-enough alone--especially the ordeal of starting an I.V. and the ever-present worry of my stage 0 lymphedema raising the risks of cellulitis from the anesthesia shots and the surgical wounds & sutures (not an LE attack, since there’s no tourniquet). If I was still hurting, that'd be one thing. The anesthesiologist and scrub nurse said not to do anything till I spoke to the surgeon, something I never got to do since scheduling the surgery--all my communications were phone and patient-portal messaging back-and-forth with his NP. Neither he nor she had seen my now-well-behaved thumb.

    He came in (1/2 hr. late--he's a new dad) and finally examined me, holding the base of the thumb while I flexed it. He said he didn't feel the nodule and said that either the cortisone had finally been absorbed & processed or that the triggering was self-limiting & may never come back. But he said he had no idea how long till the cortisone wears off. I asked him what happens, in his experience, in situations like this. He left the decision up to me, saying “It's a 'lifestyle' surgery, not just elective like your cataract surgery. I have patients I have to practically drag into the O.R. for a crucial operation, and you're not one of them." He said that any stiffness I'm feeling when not triggering is the mild-to-moderate arthritis he saw on the first X-ray, which this surgery wouldn't help; if it comes back to the extent I can no longer tolerate it, I could always reschedule or try another shot first and cut later. And he said I could refuse sedation, pop a Xanax first (if I wasn’t driving) and just have a regional & local--the only downside, he said, was that I’d be awake for the 10 minutes the surgery took and would remember it (just like I remember the L thumb surgery 7 yrs. later). I apologized to him (and especially to my housekeeper--whom I'd paid a bonus for this) and he said no problem, he had a full schedule of patients who would be glad to have their surgeries start on time after all. He also said, “Now you can go have breakfast at Walker Bros. Pancake House down the road.” Which is exactly what we did--sharing the baked cinnamon-apple pancake and bringing half of it home for Gordy.

    Got home about 9:30. I took the rest of my a.m. meds, told my housekeeper to take the rest of the day off and headed upstairs for a nap. Woke up 3 hrs. later and...ouch--triggering, sore enough to feel in my palm! But by the time I’d gotten to the bathroom to put in my second eye drops, it was gone. Think I will ride this out and maybe revisit it when I get back from Iowa, after my second cataract surgery Nov. 2.

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited September 2016

    Chi.........I had trigger thumb and several fingers........I did nothing, just tolerated the pain, and when the appendages would not straighten out on their own, I gave the a little push.................eventually it all stopped.

    I would really reconsider surgery..........give it a chance.........mine as bad and went away........of course anohter SE took over in anohter area......LOL, but the trigger thumb and fingers went away.

    Think about it...............I have been off for about a year, and will not go back to Letrozole or any other AI...........I still have aches and pains, but I don't care..........I take Coq10, and it helps a lot...........

  • chisandy
    chisandy Member Posts: 11,408
    edited September 2016

    My surgeon says that perhaps the CoQ10 and Celebrex I already take were partly responsible for the symptoms easing and may continue to keep it mostly at bay. He said that unlike OA of the thumb, which is steadily degenerative and eventually curable only by joint replacement--that’s been a “thing” for 10 yrs. now--trigger-thumb doesn’t progress and many people live with it if it doesn’t interfere with their jobs or hobbies.

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited September 2016

    Not gonna say my thumb doesn't hurt now and then, and sometimes it's like OUCH, but not enough to have surgery..........the fingers seem to be good, other then if I use one too long or too often I wi ll get a cramp in it where sometimes it won't bend...........but for the most part it is not a problem...........now if I could. only get. the knees to work without replacement I would be fine............plus lose about 45 lbs.........LO

  • chisandy
    chisandy Member Posts: 11,408
    edited September 2016

    Get those knees replaced--best medical decision I ever made. Not gonna say it’s a picnic--rehab is rough and painful--but I can do so much more now than I could when I was 10 yrs. younger!

  • tangandchris
    tangandchris Member Posts: 934
    edited September 2016

    Well these lipoma findings were back in June....can they really tell it is a lipoma w/o a biopsy? Radiologist said back then to follow up in 3 months, but BS nurse said she didnt see anything like that on the report. SO...I still feel a little crazy. Snooze

  • queenmomcat
    queenmomcat Member Posts: 2,020
    edited September 2016

    ChiSandy: (laughing and crying, both in sympathy, simultaneously) After all that! "You'll be fine, go enjoy breakfast."? A lovely and understanding thing for the surgeon to say, mind, and I'd have been there in a shot to share the pancake with you, even with NPO orders. Also lovely housekeeper; she's worth the bonus.

    TangandChris: Well, that's why we're all here in CrazyTown--that ghastly message from your subconscious that all your waking reassurances are LIES, all LIES and BALDERDASH, the cancer's back...


  • chisandy
    chisandy Member Posts: 11,408
    edited September 2016

    I paid my housekeeper an extra couple of weeks' salary for this and to help her get her car properly fixed and catch up on some bills. She's been with me since Gordy was three months old--she took over when her mother-in-law, an agency baby/senior-care LPN, had to move on to another client and after it soon became clear that my PPD was too severe for me to balance taking care of myself, the apt., Gordy & Bob--much less the specialty temp-agency of which I was part-owner. She started as Gordy's nanny, and eventually housekeeper, when we were still living in a 2-BR apt. She knows where everything in this house is, how everything works, how to pack Bob & Gordy for trips (I do my own), and keeps a master shopping list for me to use online or at the grocery.

    And those who have ever been to any branch of Walker Bros. Pancake House doubtless know how iconic (and massive) that apple pancake is. It’s been over 10 years since I’ve had it. The memories of this morning’s portion will sustain me for another 10.

  • Tomboy
    Tomboy Member Posts: 2,700
    edited September 2016

    Hi everybody. I have been in contact with Beppy's sister, who assures me that the doctors say that Beppy should be able to be more communicative soon, that she is healing from the after effects of (only!) 5 whole brain radiation treatments, and that she is thinking of us. Of course, we all KNEW that! As we are all thinking of her too. I know she is probably trying to heal with all of her might, and I am so grateful that she made such a great home for us, here, and that each and every one of us found our way here. Here is exactly what Peg said:

    "Hi there....I had to call and get permission to let you know what is going on. She had radiation and is now just at the peak of the side effects. She sleeps alot (normal) and doesn't really talk much. Dr. said it will take a few week before she will back to talking and interacting with people. Hang in there. She is a fighter and will be fine. She has very good care and will call you as soon as she can. I know it's hard not knowing. You can email me anytime. "

    And, since Beppy doesn't really share too many pictures of herself, I didn't think she'd mind if I shared this one with you all, since it was quite a while back! Here she is, with her high wattage smile she must have had for ever:

    image

    Take care every one

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited September 2016

    thanks Tomboy

  • gmafoley
    gmafoley Member Posts: 5,978
    edited September 2016

    What a relief! Thank you so much friend! Good to know.

  • proudtospin
    proudtospin Member Posts: 4,671
    edited September 2016

    gooh to know bebby is fighting on and look forward to her returne

    Great day tomorrow, only a Dermatology visit tomorrow


  • Lucy55
    Lucy55 Member Posts: 2,703
    edited September 2016

    Tomboy .thanks SO much for your update on Beppy !! I can't wait until she's back amongst her "flock " here at CT .

    Molly thing of you .

    Ducky ..I just love your beautiful photos ☺


  • JAN69
    JAN69 Member Posts: 731
    edited September 2016

    Tomboy, Thanks for sharing the information. I've been so worried, as we all have. Just wish she didn't have to go thru this really tough treatment. Looking forward to hearing directly from her when she is able. Jan

  • gmafoley
    gmafoley Member Posts: 5,978
    edited September 2016

    Ok last call for names - I'm going to make the name tags this weekend to add to Beppy's "In your pocket wallhanging" - The ones I have on the list that didn't make the first round are:

    Mommyof2, PoppyK, RobinLK, Icm123, Phoebe58

    Any more names to add?

  • Lucy55
    Lucy55 Member Posts: 2,703
    edited September 2016

    GMHA ..thanks for all the work you've gone to making Beppy 's special gift ..was I added originally ? I need to turn the actual computer on to read all the names ...if not could you please add me now ..

  • chisandy
    chisandy Member Posts: 11,408
    edited September 2016

    Glad to hear that Beppy may be turning the corner soon on brain rads SEs and looking forward to her rejoining us when she feels up to it.

  • Molly50
    Molly50 Member Posts: 3,008
    edited September 2016

    Tomboy, thank you so much for the update! I had a feeling the WBR was making her feel lousy/sleepy. It is good to know her sister is watching out for her. That picture of her is so adorable! I wanted to let you all know that Wyatt is doing much better today!! I am so thankful. I have a bad cold. That may have been one of the reasons my mood took a nose dive. My body was exhausted. You are all such a wonderful treasure!

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited September 2016

    Thank God for wyatt's recovery, and you take care of yourself Molly...........hugs to both of you

  • robinlk
    robinlk Member Posts: 363
    edited September 2016

    Thank you Tomboy!

    Thank you GMA!

    Great news Molly!

    Sandy-good for you! Glad your surgeon agreed and was understanding too

  • cubbie2015
    cubbie2015 Member Posts: 773
    edited September 2016

    That is definitely Beppy as a young girl in that Christmas photo. I hope she feels better soon. Gma, can you add me to the list, too?

    Can't seem to get a day's break from having to talk about cancer with someone. My dental hygenist's friend was diagnosed and just had a lumpectomy, so my hygenist had lots of questions for me. The one place I was hoping to talk about something else - cavities, gum recession, anything!

  • octogirl
    octogirl Member Posts: 2,434
    edited September 2016

    Thanks from me as well Tomboy!! Lifted my heart to read your post....

    Sending love to all

    Octogirl

  • gmafoley
    gmafoley Member Posts: 5,978
    edited September 2016

    Have to share this sunset with you all - from last night - it reminded me how awesome God is.

    image

  • m0mmyof3
    m0mmyof3 Member Posts: 9,873
    edited September 2016

    Getting in the Fall mood today and taking a break from CT. Hubby said we should get stuff to decorate the house for the Fall. I looked at him and told him we have a few things, but not enough. So I broke out my plastic canvas craft patterns for ideas and found a perfect project. It is a pumpkin with leaves at the bottom

  • proudtospin
    proudtospin Member Posts: 4,671
    edited September 2016

    yeap wore a jacket this am when I went out but totally unneeded

    Sun shining and a mighty fine day

  • m0mmyof3
    m0mmyof3 Member Posts: 9,873
    edited September 2016

    Got the leaves for my project cut and shaped and went to start on the pumpkin only to find out that I have to get the bigger sheets of plastic canvas!