CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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HUGS POPPY!!!
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Tomboy ! ! ! I want to cry I am so happy to know you spoke to Beppy and Poppy you too ! ! ! Give her my love if you talk again . Love you all . Eggroll I hope you hear back soon .
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So glad Beppy is able to talk again, however briefly and weakly—sounds like she will be getting stronger.
Iris, that surgery sounds miraculous—and I know that all of us in your pocket will sail you through it. Bermuda in Dec. sounds like a plan. (Beats Bermuda during hurricane season).
If I didn’t have a heart condition before tonight’s game, I’m well on the way to having one now. 7 games, the last with ten innings, a seesawing score, and a rain delay—a testament to the fact that neither team was ever willing to throw in the towel. My neighborhood is still noisy, but nowhere near as much so as Wrigleyville (which is still fairly peaceful—no rioting or vandalism). Meanwhile, I really feel for those poor sportscasters out there at Progressive Field—it’s a freaking monsoon out there.
Bob’s accident report is back from the police dept.—could there have been a more freakish auto accident, without serious injuries to boot? Sequence of events: he was driving NB on Lake Shore Dr., when a teenage driver lost control of his dad’s BMW, hit Bob’s Fusion’s rear quarter & bumper, went airborne over the center median and flipped over on its roof on to the SB lanes—hitting a Lexus. The BMW’s driver was fully insured, so GEICO will get back what it’s paying out on our collision/comprehensive policy. The kid was cited only for expired license plate stickers. But the Lexus’ driver was cited for driving w/o insurance (his car was totaled) and on a suspended license.
Had my left cataract done today. Doesn’t hurt nearly as much as the right one. Taking only Tylenol. Tomorrow they remove the dressing (the surgeon says I can take it off if my eyelashes are getting hung up on it, but leave the shield in place) and assess how well I’m starting to see. Farewell to my regular glasses—the distance correction in that left lens is almost certainly way too strong, and there’s no correction at all in the right one. So it’s drugstore readers (Whole Foods actually sells cute ones made from recycled plastic) and sunglasses for me. If my left eye is too bloodshot, I’ll wear my non-Rx Wayfarers to avoid scaring little kids). But I might take my existing frames and, once I get finally refracted in 3 weeks, get progressives that go from no correction on top to reading correction on the bottom. (Glasses are so much a part of my image that I don’t think I can give them up completely—they cover the circles & crows’ feet).
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So happy to hear that Beepy called you. I have been praying for her everyday and will continue to do so.
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such good news that bebby is feeling well enough to call, hoping she continues to feel better
We'll got my team of helpers for trip to hospital
Dang but I have some great neighbors and gym pals, now help me pass the time
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Iris, that is so great that you have such good people to help! I hope everything goes great, and you get better and better, strong again!
I am really so sorry, everyone, that I haven't been here more, I really have an awful problem in my family right now, it's been going on for months, just crazy. It's been taking up way too much of my time for way too long, and making everyone in my family of origin, just nuts. But I do read here almost every night, I just haven't posted. I do have a lot of 'splainin to do, in PMS also. I love all of you, and where is Ducky?
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(bursts into tears of relief) Thank you Tomboy and Poppy.
I'm so glad to hear something, anything, from/about Our Beloved Mayor. Not sure how to explain this, but something along the lines of "Great joy and friendship may contain the risk of great pain through loss.'" Gf course good friends don't mean to hurt one another--there's no cruelty in genuine friendship. Of course she doesn't want to hurt us by letting us know what's going on with her, but as several others have said more eloquently, not knowing is the worst.
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thank you all SO Much for the Bebby news and hugs about the family issues Tomboy....
I am dancing to hear that Beppy madesome calls...so want to hear her voice myself.. But the next few days I am working my tail off in Washington DC (it is part of my job)
Home Friday night. Cant wait
❤️❤️❤️❤️To all
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So so so glad to hear this news about Beppy!
And Iris, I'm very happy and relieved to hear that there may be a solution in store for you. In your battered pocket!
Go Cubs! AMAZING!!!
Hugs and ativan sprinkles to all!
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Tomboy , I am so sorry about your family issues . I hope it's all resolved soon .
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thanks Molly. You and I could maybe see each other before the holidays, i would really like that
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QMC, you said it so beautifully
Rainnyc, wasn't it just AMAZING! i was running around, inside and back out on the porch/deck, watching through my fingers! AND the lakers won! AND Beppy called! AND there was a new moon! I haven't felt so hopeful in a very long time.
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I'm so glad Beppy's back on the phone!
Iris, in your pocket for your surgery. It's been a long road, I hope this works well for you.
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Guess I will need to let docs know I have a party in my pocket, but think I will focus on my celebration after
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Iris - like always - I love pocket parties and will be in your pocket until surgery.
Went to the doc for a physical and ended up talking a lot about everything. Doc looked at my scars and suggested I go back to my onc - first for some closure being it is the '5 year kick you out on the curb" situation in this town - but to see if he would order the ultrasound or mri instead of mammogram. If he doesn't she said she would try to order the MRI.
She took one look at my wrist and said keep wearing the splint and call her next week if it isn't showing signs of improvement . Suggested another x-ray being some breaks don't show up right away.
She also told me to hide my scale and not get on it for a while. Thinking with all I been through the last few years my body has messed up my metabolism and just have to eat right and feel better. Another words I've been under too much stress.
This weekend I am in an Extra Life event to help our local children's hospital. I don't know how I'm gonna play the games with our guild one handed but gonna try. Here is a link to what it is all about. http://www.extra-life.org/index.cfm?fuseaction=don...
Just read about it and watch the video. I know it has a donate button but not asking you all for anything.
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Tomboy, YES YES YES! Let's get together. You have to nag me because I get caught up in everything at home and forget to leave the house except for work. Gma, I like your doc!
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I do the same thing, Mol. No worries!
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Had followup mammogram and full ultrasound yesterday, all results came back fine. I was surprised they did an ultrasound of both breasts and under armpit areas, so that was an unexpected bonus. So now I can enjoy my holidays!
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Italy ..Yay. !!! Great news. !!! I always have the ultrasound too. ..
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Ducky1,,,thanks so much for your kind message. Had my port put in Wednesday afternoon under conscious sedation and the doc said all I talked about was an Italian hoagie and hold the mayo. And that's what I had for dinner. I ate half of it and it was soooooo wonderful. Actually gained back 5 pounds and we were thrilled with the gain
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Had my first chemo treatment yesterday which was an all day party. I was exhausted. Didn't eat much of anything. Just staying hydrated is my job. I'm wearing afanny pack which dispenses chemo for the next day until I have it removed on Sunday T 1pm. Will get a neulasta shot on Sunday also. I'm sleeping a lot today. Had two saltine crackers and they seemed to bother me a few hours later.
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Have a few hours alone and it feels nice. MO said I would probably feel at my worse from yesterday until about Monday. Just wanted to give everyone an update.
Beppy...so happy you are progressing. Kekko and I are both waving st you. Love you so much.
Ducky.,,please keep in touch and know that I luv you 💖❤️💞
💤💤💤💤💤I'm taking another nap soo
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shorfi , I hope you feel us in your pocket for your treatment .
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Theresa , great news !
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Shorfi ..So good to hear from you. !!! Thinking of you every day. !!
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In your pocket Iris, Tomboy, Beppy and whomever else needs a pocket party - Breathe and know we are there with you all.
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Thinking of Iris today, too.
Shorfi, it's good to hear from you! I hope you are starting to feel better after your weekend treatment.
Gma, I didn't just hide my scale, I gave it away! I only get weighed at the doctor's office. I'm there enough, anyway, one doctor or another is weighing me every month.
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I had a question, and I'm not sure where to post it, so I thought I'd start here. Has anyone had muscle soreness/tenderness on the surgery/radiation side? A couple weekends ago I had a bad cold and was spent a whole weekend in bed. By the second day, I was getting some tenderness of areas that hurt after my surgery, particularly the back of the armpit. I'm a side sleeper, and it was happening when I was laying on the surgery side.
Since then I still have the tenderness behind the armpit, and my pec is a little sore, right by my shoulder, particularly when I get up in the morning.. It's not very painful, it just feels like a exercised a bit, except I didn't. I mentioned it to my MO's nurse, and she just nodded, and I mentioned it to my PCP's NP, and she said I need a massage. I dunno, could it be lymphedema? My MO felt my armpit nodes last week and everything was OK to him. I didn't mention the soreness/tenderness to him because I had bigger fish to fry that day and figured I hadn't given it enough time to go away.
My armpit/surgery area doesn't seem any more puffy that usual (there's an area below my armpit at the end of my mastectomy scar that's permanently puffy, and the doctors keep telling me it will go down, but yeah, right. We all know that isn't going to happen.)
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Cubbie:I get this also (though in my case it was LX and nipple removal, not MX). No visual signs of LE, and the MO does check for it at every appointment, so my guess in my case has been that it is just some type of relatively minor nerve damage. I have noticed that certain bras make it worse in my case (so I've given them up). I wonder if you did put some type of extra pressure on the muscles with how you slept?
However, it wouldn't hurt to have it checked out by a lymphedema therapist to be sure there isn't something there. Perhaps call your MO and ask for a referral?Shorfi: thinking of you! You too Iris!
xox to all;
Octogirl
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Octo, thanks for responding, it helps me get out of CrazyTown to know that somebody else has had this happen. I think laying on my left side too much (my favorite side to sleep on) may have started it. I've also noticed that I get sore/tender in this spot at the back/just behind the armpit when doing certain repetitive tasks, in particular taking 60 laptops in and out of charging carts in one day (I work in a school).
It's funny/aggravating, because I lifted weights (OK, not very heavy, but I did) during Livestrong and was fine, but I get this problem from lying in bed??? Seriously?
I think physical therapy would help me on several levels, but I was disappointed with the PT/OT people at our local hospital. I felt like I was the first mastectomy patient they'd ever seen, even though I obviously wasn't. They just didn't seem to know much. One of my co-workers went to an independent PT/OT clinic when she had her back surgery, and raves about them, I might see if I can get a referral there instead.
I wish there was a list or book or something about what to expect long term with these treatments, so we'd all have a better idea of what to expect, especially for those of us where this was our first major surgery. For instance, one of my co-workers also had a mastectomy a couple of years ago, and she and I like to joke about the phantom itching that still crops up once in a while. Or like the radiation fibrosis Sandy mentioned a week or so ago. Nobody tells you about that stuff. I think the docs figure it's too minor to mention, but this is all new ground for us patients.
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