CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Cubbie it wouldn't hurt to check out this information page - has about any question about LE answered. http://stepup-speakout.org/.
I have slight LE bilateral and torso - only Me and my therapist can see it. Docs never saw it. On the other hand though - I had reconstruction/ reduction done 2 years ago and have pain in my axillary scars all the time. No noticeable swelling.
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Cubbie, I have similar pain but assumed it was my TE's. I sleep on my side and keep alternating sides because it hurts after a while.
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Cubbie -
I've had similar problems on my surgery side. I have pain that comes and goes in my shoulder, breast, under my arm, etc. I also had that problem with sleeping or laying on that side, and have also woken up with more pain. I have some lymphedema in my back and breast, and a bit in my upper arm, but it's subtle. It might not hurt to go see an LE therapist just to get his/her opinion. The radiation apparently does a real number on muscle as well as skin, something I didn't understand either.
Also, be careful lifting! I made the mistake of lifting something while helping my daughter move in August, and it's still not healed! Things I used to do, and also take for granted - like lifting a heavy pan, for instance - I now try to do with my left arm.
Good luck!
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Cubbie have that happen, and still have it sometimes, although I'm another lumpectomy, but the surgeon took out 4" x 4" by 2" (no joke). First time I noticed weirdness I was riding my bike and lifted my arms over my head and felt a weird pulling and stiffness and thought what the heck. And I get stiffness (still) sometimes in the morning when I wake up. I've found gentle stretching, sticking my arm straight out and pumping my hand in a fist and doing circles with my hand helps. I have no lymphedema diagnosis and hope to never have one. Surgeon said plan on two years of healing.
It so helps to have this forum where other women discuss their issues, keeps me out of crazy town a lot.
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Thanks to everyone. I think the sentinel node biopsy is actually more disruptive to our bodies than the mastectomy. That's certainly the area that had the longest lingering effects after the surgery. I also think the radiation has more effect on our skin and muscles than they tell us about. It definitely changed my skin, you can see that just by the difference in my scars from one side to the other.
Italychick, that's interesting that your surgeon said two years. One of my relatives said that was her experience, too, that it took about two years. I like your surgeon being so forthright.
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Cubbie, I really appreciate her honesty, and her comments and observations keep me calm. I go see her whenever something bothers me, and she always has the right words to help me
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Cubbie , radiation definitely does damage to the tissue and changes the skin . My cancer side is shrunk around the TE and my skin is a weird shade . I have scar tissue where my alnd was done . This stuff is not fun .
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Shorfi.............thinking of you and praying for you every day......will call you but you have to tell me when it's ok......I don't want to bother you......love you honey........
I want to call Beppy, but th same Idea.....I know they are both dealing with effects of the treatments and I never am sure when is a good time.......but you know I love you both.......if you and Beppy don't mind sharing me, I can adopt anohter one of you....LOL.........
Bleary eyed, and really need a nap......up till 4am here in the Philly suburbs waiting to see if my state of Pa. was going to put Trump over the top.......we did.....now I am beat.............LOL..........
Hope the rest of my ladies are doing well too.............his to you all..............
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duckyb ! ! ! Missed you
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duckyb, glad to see you here again (but let’s agree to disagree on the aforementioned point).
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(wryly) I'm inclined to NOT mention politics on these boards, as a rule of thumb, because therein lies a direct line to CrazyTown.
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Morning
Home and trying to get better, had a pal from gym staying with me, i can tell the difference in thehic way my legs feel so figure surgery is doing its job
Got nasty staples in ,y tummy and head which will come out next week
See you later
Still tired as all heck
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Take care Iris and we will see you after you heal!
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Gma, while most of my friends and family on Facebook were slamming both the candidates, I pretty much stayed quiet about politics there and here. Didn't want to lose old friends and alienate family who supported me in the fight against the Cancer Monster
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I agree with the no politics. I adore all of you! Iris!! Heal well my friend.
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Glad everyone is doing well...
I think I was just commenting on being bleary eyed.and why I was........not sure at what point anyone thought I was trying to make it political.....I don't think I got political at all........not sure why it was taken that way....
Moving on.....Rest up Proud.........take care of yourself.
Molly.....miss you too, give Wyatt a hug for me...........hugs to everyone else
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ducky, I didn't take it political but I think it could have read that way. I will give Wyatt a hug from you. I miss Beppy
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I didn't take it as political Ducky.
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Ducky ..so good to have you back amongst us. !!! I've missed you !!
Iris ..glad you had a friend come and stay .It'll be good when you can get the staple s out .
Have a friend coming for morning tea today ..We always get together every second week , and I look forward to it .
Take care all ..
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Ducky, I didn't take your statements as political.
I am also thinking of Beppy, hugs and much love to her!
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Ducky: Nah, don't worry. I figured you were mentioning politics only to explain why you were bleary. I didn't take it as a contentious statement at all!
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Thanks everyone......and that is exactly what I was doing........explaining why I was bleary eyed......since Pa. was possibly going to be the one to put him over the line I thought........this is history......and I want to see it......So bleary eyed and all I stayed awake........now that is incentive to learn how to record programs, right.........Nah, ain't gonna happen......LOL.....can't afford to burn all those brain cells trying.....
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My bad, ducky—guess you’re just a fellow news junkie like me. I was up till 4 am too (5 am your time). Still trying to get my body clock back on schedule. God bless melatonin!
Rest up and continue to heal, Iris—looks like the surgery was a success!
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Been sleep deprived for a couple of days this week. Finally got a good nights rest last night. Maybe I finally exhausted myself by being outside yesterday for a good half hour doing leaf raking.
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I've been having trouble sleeping also. Heading up to Sonoma for the weekend to visit my father, (who is a Veteran as well as a former WWII POW, so thanks to him and all Veterans for their service and sacrifice!). Hoping a change of scenery will help with the insomnia. and I have a coffee date with Suladog! Yay for that!
Octogirl
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Very sad to hear about Leonard Cohen passing. This is for Tomboy, and for all of us:
The birds they sang
at the break of day
Start again
I heard them say
Don't dwell on what
has passed away
or what is yet to be.
Ah the wars they will
be fought again
The holy dove
She will be caught again
bought and sold
and bought again
the dove is never free.
Ring the bells that still can ring
Forget your perfect offering
There is a crack in everything
That's how the light gets in.
We asked for signs
the signs were sent:
the birth betrayed
the marriage spent
Yeah the widowhood
of every government --
signs for all to see.
I can't run no more
with that lawless crowd
while the killers in high places
say their prayers out loud.
But they've summoned, they've summoned up
a thundercloud
and they're going to hear from me.
Ring the bells that still can ring ...
You can add up the parts
but you won't have the sum
You can strike up the march,
there is no drum
Every heart, every heart
to love will come
but like a refugee.
Ring the bells that still can ring
Forget your perfect offering
There is a crack, a crack in everything
That's how the light gets in.
Ring the bells that still can ring
Forget your perfect offering
There is a crack, a crack in everything
That's how the light gets in.
That's how the light gets in.
That's how the light gets in.
Love to all of us.Octogirl
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wow, slept well last night, perco cept will do that to me
Course when it wore off pain at points of the staples so took tylonel and while not as strong, it seems to be helping
Figure I will take the percentage before bed
Pcd visit next Tues and staples at surgeon office on wed, will be glad for that
Most important I am walking better although still doing the wall walking thing
OK, nap time
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No bad Chi............yes, I am a news freak too......the entire thing blows my mind.....and I do not mean this to be political..........please believe me..........what in Gods name is it with these riots, and I can't call them anything else .....they are not protests......many years ago my son's school was on strike........we protested for the Board of Education to do somting about it....many athletic scholarships were in jeopardy, teams could not finish their senior year season for sports......graduation was in jeopardy ......brilliant students who were academically going for grants, etc were being harmed......sad state of affairs............
My point to this is......we jus sat in the school auditorium and listened to the higher ups tell us why they weren't able to do anything, and then calmly told them what was at stake for our children.......my son lost 2 months of school that year........and others of mine also lost it, but they lost school time.....the seniors lost much more...........
So that is a protest......and to be honest....it is happening in Philly, and I am ashamed to see it on the news, and in the newspapers.......
My last point.......a lot of this is being instigated on college campus's..............I wonder how the parent's of these kids feel after they have put their hard earned money into tuitions that are off the walls.......and see what they are getting for their money..........
So very sad for everyone........I am 81, and on my way out of this world..every day is a bonus......every morning another chance to thank God for what I have, even the not so great health..................these rioters have no clue.....I call them The Entitled Generation.................God help us all...........and God help our country.............THE WORLD IS WATCHING.........😢0 -
I agree Ducky. What is going on is really sad. The world is watching us and probably shaking their heads at this
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This is what I told my friends on fb - not the political part it's deleted:
Please Friends - "... Let's start thinking positive and spread loving, caring thoughts to all instead of throwing temper tantrums. What are we showing our kids when we act with hate and anger? I don't want my grandchildren to learn hate and anger. I want to show them how to care and nurture each other no matter what comes our way."
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