CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.

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  • gmafoley
    gmafoley Member Posts: 5,978
    edited December 2016

    Molly haven't heard a thing about Beppy. She hasn't answered any of my texts. I figured she had too many to see. Haven't heard from Tomboy either. I just keep praying for both of them and hope we hear something soon.

  • gmafoley
    gmafoley Member Posts: 5,978
    edited December 2016

    KB very nice to hear! Have a Merry Christmas!!

  • chisandy
    chisandy Member Posts: 11,408
    edited December 2016

    Back is just as bad, if not worse. One Flexeril at bedtime? One Celebrex twice a day, and nothing else, not even Tylenol? Might as well be on placebos. Gonna call my primary and get a more realistic script for Flexeril (3-4x/day) and Celebrex (2 BID till I heal), and maybe a stopgap prednisone script (one pill a day). I accept the “no Norco” ruling—doctors really need to practice “CYA” in this anti-opioid climate (doesn’t the DEA realize that cracking down on that is driving people to heroin instead?)—I hate feeling high anyway. I can barely move—and just read the sheet of exercises they gave me yesterday at the Immediate Care Center (first time I could reach my purse). Are they effin’ kidding me? Crunches? Bridges? Downward-dog? (and I TOLD them about my LE so I can’t prop up all 195 lbs. of me by my arms). How am I supposed to get down to & up off the floor? (Beds are too soft a surface). If I felt well enough to dress myself I’d Uber it to Athletico. Maybe I should spring for a week of in-patient rehab—the PTs would know how much I could safely handle.

    I have never been able to recover from a backache in under a week. And that was when I was younger & thinner.

  • m0mmyof3
    m0mmyof3 Member Posts: 9,772
    edited December 2016

    Would love to stay up and watch Vikings on History Channel tonight but think I am catching my hubby's cold so it will be an early night for me. Thank Goodness I set up to record on my dvr

  • gmafoley
    gmafoley Member Posts: 5,978
    edited December 2016

    Frustration happening today - my only safe place with my lymphedema to take blood is my left hand. That is the one I sprained. Going in to get labs for onc and not sure where she will draw... They don't do feet in my town. Think we all might need a picture to breathe and relax. Here is an experiment with my camera.

    image

  • kkuziel
    kkuziel Member Posts: 77
    edited December 2016

    Just entered Crazy Town. Went for my mammogram yesterday and they found an area of calcification that they want to biopsy. I know most are not cancerous, but then again neither are most breast lumps, so not that reassuring. To make things ever crazier I can't get an appointment unti January 5. Christmas slows everything down to a crawl, same thing happened to me when diagnosed. I'm hoping they just want to be sure, but I'm not feeling it.

  • gmafoley
    gmafoley Member Posts: 5,978
    edited December 2016

    Finding things around Christmas time is the worst KKuziel. Know that we all will be in your pocket. We love pocket parties. I'll bring the candy canes and we can eat ourselves silly until your appointment.

  • proudtospin
    proudtospin Member Posts: 4,671
    edited December 2016

    well it seems all the dang fiber I have been eating, has resulted in nasty case of diverticulitis

    Off to primary doc for confirmation and now on that mayo diet and antibiotics

    No Xmas punch for me for a while

  • gmafoley
    gmafoley Member Posts: 5,978
    edited December 2016

    Awe man... Hope you feel better soon Iris!

  • cubbie2015
    cubbie2015 Member Posts: 773
    edited December 2016

    Iris, hope the doc can get you back on track quick.

    Sandy, how's your back doing today?

    Kkuziel, welcome! Even for the holidays, that seems like a long wait. Here's to just having benign calcifications. I know once you've gotten a bad result, you can never look at these tests the same way again. And neither do your doctor's, they are more reluctant to watch and wait, which is good, but stressful. Pull up a chair on the CrazyTown front porch and join us!

    I dunno about my new anxiety drug. The pharmacist says to give it 10 days, and also that I'm taking the lowest dose, so it could be increased. My doctor says I can still take Xanax for those freak out moments in the meantime. These people are lucky I'm not in their waiting room every day, it takes all the self control I have sometimes.

  • proudtospin
    proudtospin Member Posts: 4,671
    edited December 2016

    cubbie, if doc says to give the new med time, we'll do try and keep in mind it sounds like it could be increased if need

    Home with antibiotic, this bland diet Stinks but will ponder through as i do not want tummy Pain again

  • octogirl
    octogirl Member Posts: 2,434
    edited December 2016

    welcome kkuziel! and hope you feel better Iris and Sandy, and that they get the draws right Gma....

    Yesterday and this morning were insanely busy at work. and then, all of a sudden most of the work got done. Then, at 4:30 or so, just when I can take a breath, the fire alarm goes off in our building (apparently a false alarm, but we were all asked to evacuate). You can bet I locked up, took my jacket and lunch bag, and that after walking down three flights of stairs I had NO intention of doing anything but heading home. I needed an early day home. It is raining and cold and I am curled in front of the fire while hubby cooks dinner. In other words, after a crazy week, all good here.

    Hugs to all;

    Octogirl

  • gmafoley
    gmafoley Member Posts: 5,978
    edited December 2016

    They couldn't get a blood draw tried 4 times. They (2 if the best techs) tried to do it with no tourniquet on my LE side. Vein blew.. Tried to get permission for a foot draw - no go unless I go over to the hospital that gave me grief last time. I will try again monday.

  • chisandy
    chisandy Member Posts: 11,408
    edited December 2016

    Oh, Gma, I'm so sorry about the failed blood draw. I have crummy veins on my “good" arm and I always dread blood draws or IV placements. (Only the blood bank's Dracula hits his mark every time…but I can't donate for at least another 9 yrs, till I'm 5-yrs-post-AIs). Hope you can find a really skilled phlebotomist for “take two.” Do they have an Accu-Vein lamp?

    Back is a bit better—can walk and not shuffle, without screaming, and am using my rollator to help carry stuff between front room & kitchen (can't do that if I'm using a cane or holding onto the walls or furniture). And the pain is localizing to the point where I can cut the Flector patches in half (good thing, they're expensive). Still had to cancel Sat. night's concert—no way I can drive, and there's a snowstorm that would probably reduce attendance significantly. The venue wants us as a duo (though Stephen could put on a great show solo). Silver lining is that by the next available date our new CD will be out, and the venue can make sure their soundperson & system would be available.

    My little black princess kitty Heidi has a kidney stone, poor thing. Surgery next week (the stone's too big for shockwave lithotripsy).

  • rainnyc
    rainnyc Member Posts: 801
    edited December 2016

    Molly, just wanted to say thanks for the beautiful picture of Wyatt.

    Love to all crazies....

  • m0mmyof3
    m0mmyof3 Member Posts: 9,772
    edited December 2016

    Morning all and Hugs to those who need one!!!!

  • cubbie2015
    cubbie2015 Member Posts: 773
    edited December 2016

    I got a CrazyTown classic for you. I went to rub an achy muscle and noticed a small lump along my incision line. I thought it might just be part of my scar (which is not pretty in spots). The funny thing is, I'm looking and feeling and I just can't find the thing. Put my clothes back on and there it is. What in the world? Turns out there is a bump in the padding of my sports bra.

  • Molly50
    Molly50 Member Posts: 3,008
    edited December 2016

    Thank you , rainny . Lol Cubbie you made my day .

  • queenmomcat
    queenmomcat Member Posts: 2,020
    edited December 2016

    Cubbie: (sympathetic moan of laughter) Totally CrazyTown.

  • Lulu22
    Lulu22 Member Posts: 61
    edited December 2016

    Love it Cubby! A classic CrazyTown, and one to which I think many of us can relate. Loopy

  • m0mmyof3
    m0mmyof3 Member Posts: 9,772
    edited December 2016

    lol. Cubbie, that is a totally Crazy Town moment

  • proudtospin
    proudtospin Member Posts: 4,671
    edited December 2016

    yeap that would be me as well.

    I at times look down at my slightly lopsided chest and just marvel at the past life.

    Wow, diet and meds have diverticulitis under control! Gee it must be a family thing as my sister jugst told me she gets it also and it really freaked her out first time,

    Success, went to gym today for first time since surgery, Yahoo as did better and felt stronger than before surgery.

    Goal now.is to do a spin class, wanna join me.?

  • tessu
    tessu Member Posts: 1,294
    edited December 2016

    Crap crap crap I hoped I was done with Crazy Town for awhile but no :( Waiting on skin biopsy results. Have been on anastrozole since the end of January, started developing a rash around my mastectomy scar a few weeks ago, rash has now spread almost everywhere except my face, hands, and feet. My oncologist assured me it doesn't look like any skin mets he's ever seen and thinks it's a "drug reaction". Waiting for path results, I of course have been googling -- and am very scared it is from the anastrozole (seriously doubt it could be from my thyroid med!).Don't want to be allergic to AIs, like I am to several other drugs, with this aggressive E+ bc :(:( Yes, I know, wait for the results first......

  • proudtospin
    proudtospin Member Posts: 4,671
    edited December 2016

    Tessu, sure do hope you figure out the drug reaction, been there. Time to be DickTracy, there are other al meds and maybe that would be the answer for You? Hope it turns out well

  • octogirl
    octogirl Member Posts: 2,434
    edited December 2016

    Tessu, in your pocket! Sending hugs!

    I've had some itching on my back shoulder and while I can't see or feel anything, it still took me a bit into CT.Nothing at all like you describe however. Try not to worry until you know more (yeah, I know, easy for us all to say..). I am thinking good thoughts for you,however!

    Octogirl

  • Jackbirdie
    Jackbirdie Member Posts: 1,617
    edited December 2016

    my dear sisters. I'm so devestated to tell you all of Beppy's passing early this morning. I received the following text, presumably from Bud or Robyn, from Beppy's phone. I had not heard anything since my phone call with her that I reported here weeks agoand I am so sad, so shocked. She was a hero, an includer, a huge beating heart. Words cannot suffice. The loss is tremendous. May she be in peace now.

    Here is what I received. It's all I know.

    "Katy, I'm sorry to say that Beppy passed away this morning at 1:00 am. I would appreciate it if you would let any of your mutual friends know. Thank you."

  • daisylover
    daisylover Member Posts: 173
    edited December 2016

    Tears are cascading down my face. I heard from Bud that Beppy passed away at 1:00am this morning. She is at peace? She is released from the struggle? My faith would support these sentiments. Why can I not suppresss the tears? I will pray for all of you today (I hope that I do not offend anyone.) This place called Crazy Town is a beautiful testament to a beautiful soul. Please continue to support and love one another here -- Beppy lives on in your love for each other.

    Katy, sorry -- posting at the same time. Take care.

  • PoppyK
    PoppyK Member Posts: 1,275
    edited December 2016

    I, too, received a text. I just got all of my boys off to school and came here to let everyone know.

    Beppy was an amazing woman and friend. She loved and cared for us all. Her family was her heart and her greatest treasure. She loved them deeply and was impatiently waiting for grandchildren. A few months ago, we met for lunch. We each made a wish and tossed a coin into a wishing well. I have the words "Wishes do come true" written on a card on my car visor to remind me of that day. My wish did not come true. I hope hers did. I loved her and will always keep her with me as I try to be a better, kinder person every day.

    Cancer sucks.

  • cubbie2015
    cubbie2015 Member Posts: 773
    edited December 2016

    I'm just speechless.

    Beppy was the first person to greet me here at BCO. She was a rock, and always thought of everyone.

    I can't imagine her gone. It's just not sinking in.

  • gmafoley
    gmafoley Member Posts: 5,978
    edited December 2016

    Cry cry cry - It's a stage of grief.. I am crying with you. Prayers go out to her family and friends. I only knew her and spoke with her for a short time. I love Slow. She was so caring and loving to all of us.

    image