CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
Comments
-
Hi Pop. The area where I have fat necrosis is right under/inside of where my breast was sliced open, under the fine scar. But it does feel like a rock in a sock to me. My problem that I am very worried about right now is a series of bumps at the bottom of my breast that I told my BS about 6 months ago, when they did not do a mammo, only an ultrasound, and they called it a probable cyst. they seem bigger and harder, and yeah, like a string of pearls. Freakin me out, but everything I have always felt since surgery, they have assured me is 'nothing'. So I am just waiting for my regularly scheduled mammo/us at the end of January, couple weeks won't make a difference, I think.
Iris, glad your colonoscopy is over, and can your cleaning lady come to my house?
I haven't told my MO or his bitch about stopping tamoxifen, but it is there, plain to see, on the written reports from seeing pain doc there. I was getting suicidal thoughts, deep depression, and pains were worsening, not to mention a liver that was becoming fatty, with cholesterol readings sky high, almost 1000! Yes, 1000. He had given me small breaks from the others, but I am a grown woman, right? My body, right? But yes I am so worried.
Di, my three best girlfriends including Beppy, all died from breast or lung cancer....I do have a couple of other women friends, but I hardly ever get to talk to or see them. But like you, I have a wonderful man. He is just the best!!! How did I manage to find and keep him?!?! After 17 years, I am STILL CRAZY about him!!!! He is a good man , loved by children and animals too. Right now, to offset some of the serious crap in the world, we are binge watching "Shaun the Sheep", and if any of you haven't seen them, go join Amazon Prime right now, and you can see them on Amazon streaming! There are so many of them, I never want them to run out!!! Claymation animation, and so clever and light hearted, they really cheer us up. so it's funny, because we have been bleating and gesturing and drawing simple diagrams, just like them, to convey our thoughts and intentions, till we are laughing! Too much fun! mAH~ahhh~AHH, mmMmmAH!!
0 -
Oh Tomboy! I love Shaun the Sheep. So sweet.
0 -
Iris-glad your colonoscopy is done....the prep is the PIA.....I have had as many as two in one year!
TomBoy- do I need to pay additional for amazon streaming....I have had Amazon prime for years for my shopping, as I was not able to really shop outside my home since I had severe sepsis....because of knee that was affected, which has been resolved lately, just not wanting to "overdo" and be "lame" again......baby steps....baby steps
I am in CRAZY TOWN.....waiting for my NEXT MRI.....saw my oncologist about my Nov 18 MRI and the .94 CM x .6CM INTERNAL enlarged mammary lymph node we agreed to get a biopsy, then he talked to the Radiologist....but now wants me to wait 4-6 month as it is in a very difficult spot and a biospy would be done during an MRI . Oncologist called "performing a biopsy could be challenging because of the location".......this unknown thing is BEHIND or ON my breast bone, by my heart/lungs and a few major arteries in the area.
CRAZY TOWN 2:
The my "dysfuctional function sisters" made out a new will.....I have the original will, but don't know what to do and have been too sick with this damn flu, cough, cold, sius infection, ear infection, sore throat....the attorney that executed the will for BOTH my parents, which created the will I have is now a Judge, I left my phone number and waiting....he went to the same law schools as CHISANDY about the same time...I think......I am not very smart with the law of the land, my mental sister, on ssi and inheritances. She never has known the word/phrase "share and share a like". She took away my college education from parents, as my parents had to have this out of control kid/druggie in a special locked down school, that was very expensive. I worked three jobs to get myself through community college.
I don't even know if this second will is even legal.
Does anyone see ANY reason I wake up in the middle of the night, coughing or getting up on time to take meds and my frickin' mind goes into overdrive on wills, crazy sister and gun, INTERNAL Mammary Lymph node and I then I can't sleep
DI....love you guys!0 -
Di, if you have Amazon prime there are tons of free movies on Amazon video available to you. Right now hubby and I are binge watching old 50s movies and shows. If you have Amazon fire tv or a roku or an internet tv, you can set up Amazon prime on any of those devices, or else watch things on your computer.
0 -
Di, Sorry you are having such a hard time. Between the sister issue and the troublesome node, I think anyone would be losing sleep. ((Hugs))
0 -
Well they finally determined that the lumps that are on the scar tissue is cysts.
0 -
Hugs crazies. M0mmy, great news. Di, I really get why you can't sleep. Tomboy, glad you have such a good man in your life. GF's are necessary but it's tough when you are a hermit which I fight against all the time. You have no idea how hard it was to find the courage to go to brunch with you ladies. I am so glad I did though! PoppyK, your are in my prayers. Sandy, glad Bob is doing better. Shaun the Sheep is wonderful. We saw the movie at the theater. Could not stop laughing. Iris, glad your colonoscopy is"behind" you. I dread my next one. I lost two days of my life for that test. Wyatt's doing better. This has been really rough. My heart aches all the time. I had such a upsetting conversation with our hospice case manager. I don't like to have to face things head on because only God knows when this young man will leave us and I prefer it that way. Anyway, so glad you are all here.
Hugs to the quiet crazies.
0 -
Mommy, that's fantastic news! Only we could be so excited to hear we have cysts!
Molly, I'm glad we've been able to meet, too. I'm sorry your heart is hurting. You have been through so much. I can only imagine how upsetting the conversation with the hospice case manager was. I'm sure he/she is just trying to prepare you for any contingency.... not fun, but worse if someone hasn't even considered the possibilities. Wyatt has such a beautiful smile; his spirit just shines through! I agree with you that only God knows what is ahead. ((hugs))
The first time I met anyone in person was when Beppy urged me to go to Oceanside to meet up with the ladies from the exercise thread. It was amazing to meet these women, and I'd like to encourage anyone who is debating meeting in real life, to do it! Everyone is exactly how they are on the board, so supportive and genuine.
Octo, Gma and Jan, I hope you are staying safe and dry with this crazy weather!
0 -
Didn't want you all to worry about me.. My sister called me on my way home from dropping GD off at dad's house. They had just put my mom on hospice in the nursing home. She had pneumonia and kidney failure issues. My sister told me she would keep me posted. By the time I got home (2.5 hours later) and got a call she was having more trouble breathing and had a real bad headache. I asked her if I could talk to mom. She put my mom on the phone and I told her I loved her. She said, "I'm glad someone does." I then told her that God would take care of her and I heard a mumble like, "Hurry Up". A half hour later I got a call telling me she graduated to heaven. I believe God listened to her and answered her prayer. She can now go be with Dad again - 42 years apart from him and now they are back together.
On top of that GD's flight was cancelled twice and can't get a flight until Monday when she is supposed to be in school. DS's Ex now says GD can't visit in the winter anymore. This weekend just gets better....
Got to stay positive. I had a great time with my granddaughter last week. It's not our fault the weather turned crazy.
I won't be posting much in the weeks ahead. Just dealing with a lot of stuff. Hugs to all.
0 -
G'ma, I am so sorry for your loss but I am glad you got a chance to talk with your Mom before she passed. Take care of yourself, we will be thinking of you.
Molly, ((hugs)). I know you are worried about Wyatt and what the future bring will bring. Di, (((hugs for you too))).
I also fight against being a hermit...I wonder if that tendency is what brings us all to Crazytown?
No heavy rain yet here, but in any case since I am recovering from a cold I made no plans for the weekend and am happy to stay inside and rest where all is cozy and dry...
Octogirl
0 -
It was a big relief to me too that they were cysts. I can deal with that
0 -
sounds like too many reasons to be in crazytownmtrule
I think your mom's passing is the hardest thing g in life, it sure seemed that to me and my sister
Cold in nj, i have been blessed with outstanding neighbors. They have all watched me when i was walking or limping with my cane and now see my improvements. But we had about 6 or so inches of snow and the rule in my development is they plow the roads but you need to dig out your own car. Well when I went out my front door to try to clean off my car........no less than 3 dif neighbors came and helped me. Wow,I cry thinking about it. What great neighbors
0 -
hi ladies! What a great thread! I'm going to go back and read some more stories but have had a huge grin on the few that I've read!
I have a pretty funny story... the day after my diagnosis I went in for my first MRI. It was an awful experience and I'm pretty sure it was the girls first time doing one alone. She was very nervous and went to start my IV for contrast but forgot to open all the packages first. So here she is trying to hold the needle in my vein with one hand and using her other hand down at her knees to try opening the packages with her knees! Well, that didn't work so she puts it up to her mouth and rips it open with her teeth. I honestly should have left right then and there but I need this MRI right? Later that night I reach over my left boob for something over my nightstand and holy cow I feel this very hard lump. I'm freaking out in no time because while I had a palpable lump this was different!! I pull my shirt up and what do I find? I find the almond she had taped to my boob about 6 hours prior. Apparently it's a somewhat common to place an almond over the lump since almonds show up bright white on scan. It was such an awful time I guess when they said I could get dressed I just so wanted out of there. I went to dinner with my sister and walked around for hours with an almond taped to my boob!
IT wasn't funny when I had to redo my MRI because it was the worst one the radiologist had ever seen nor when I had to fight them not to bill my insurance for it because insurance only pays for one. It certainly isn't funny that Friday I got a bill from that same facility that I have to deal with tomorrow but I believe they are sadly mistaken if they think they are getting a penny from me. It's really funny if they think that!
I had my lumpectomy on Friday and trying to stay out of Crazy Town but it's not easy. I'm told I should have path results tomorrow or Tuesday. Waiting is the worst...it's all these little steps with waiting and more waiting. I'm anxious to get my treatment plan and have somewhat of an idea what my life is going to look like in near future. Breast cancer is a very annoying process! I know you all understand too well.
I hope everyone has a wonderful Sunday
0 -
Gma, I am so very sorry about your mom. I am glad you spoke to her on the phone before she passed. I hope your ex-DIL calms down. I really don't understand women who use their children against their exes. Iris, Hooray for good neighbors! Welcome fightingirl, we know each other from the lumpectomy lounge. CT is my other home. What a horrible MRI experience!
Stay safe and warm everyone! It's in the mid 70's here today but we have a big storm headed here tomorrow.
Thanks for understanding about everything that I go through with Wyatt. I know hospice has to make sure we are on the same page but apparently he didn't see that Wyatt's had a dnr order since 2014. That's the part of the discussion that caused me to dive into the rabbit hole.
Love you all.
0 -
GmaFoley, we're so sorry to hear that you lost your mom.
Sending you and your family big hugs at this time
0 -
GMA, I'm sorry you lost your Mom.....just a week after I lost my Mom....it hurts so much, no matter how old we are. I can so identify with your feelings as you go through YOUR loss.
Hugs,
Di
0 -
Di, GMA, sorry for the loss of your moms. They led long and extraordinary lives. May their memories be for a blessing. Meanwhile, our younger Rabbi Emeritus (the older one is 100 and still occasionally preaching!) just lost his mom, who was 104.
Bob's much better, though still coughing (which'll go on for awhile). After we went out for a nice lunch yesterday (after his haircut & beard trim), I went to the factory outlets (indoors) near O'Hare and bought three new Coach purses for >60% off retail. Not to mention getting home from a vacation during which we “bought upward" from an older timeshare in Vegas to a nicer timeshare in midtown Manhattan, and spent a pretty penny on restaurants in both NYC and N. VA.
Of course what happens after major purchases? All together now: emergencies! (medical, mechanical, dental, automotive, veterinary, legal, etc.). This morning I awoke to a leaking toilet tank bolt, which caused water to leak down to the kitchen ceiling surrounding the fridge. Catching drips with containers on towels on trash bags in both rooms. Tried to shut off tank fill valve—knob broke off in my hand. Emergency plumber came, was able to do the shutoff, but the tank won't empty completely when flushed. So we're still dealing with the drip, drip, drip (though it's slowed, especially in the kitchen) till the full crew—which was out fixing people's burst frozen pipes all weekend—comes in the morning to determine why the tank is leaking out the bolt (which we couldn't remove—the emergency guy didn't have the tools and even if I did, nobody in this family has the strength) and repair or replace it. Then we have a fire/flood restoration crew suck the water out of the ceiling and give us an estimate about repairing or replacing it (and three other ancient water-damaged ceilings upstairs) and how long we might have to live in a hotel or temporary condo. There goes our planned spring trip to London (or maybe we'll have to take one to our timeshare and have our housekeeper supervise the repairmen).
And that’s in addition to the full front-room weatherstripping (and possibly new insulation), new front porch & steps, interior stair reinforcement, first floor window frame replacement and repainting that all needed to be done and were on the menu for spring 2017. We’re 12 years into our third roof (second replacement) in the nearly 30 yrs. we’ve lived here. Ah, the joys of living in a house built in 1908. Wonder how deeply we'll need to dig into our retirement savings. (At least we're old enough now to start doing that w/o penalty).
0 -
GmaFoley and Di2012, so sorry to hear about your losses.
My own poor mom is in Crazy Town, scheduled for a liver scan tomorrow to determine what her team will recommend for what is already confirmed to be pancreatic cancer. She's being treated at the same hospital/cancer center where I had my surgery and chemo and where my husband has just begun receiving treatment for stage 3C melanoma. We could all be carpooling. Add to that the fact that my MO wants a meeting between the people who read my bone scan and CAT scan to determine whether he wants to further examine a hot spot in my hip and we're a pretty crazy household.
As strange as it sounds, in some ways it's a bit comforting to be able to relate to what the others are going through. Driving hubby to the infusion center was like an old routine and I feel like I know what to say and how to act to help Mom through what is likely to be a short and fatal illness. I also feel like it's my turn to give back to these two who have both always been wonderful to me and who gave me a ton of love and support when I needed it most.
0 -
OMG, Lulu—by comparison I’m living on an island of sanity and serenity. In your and your family’s pockets, as we say here in CrazyTown.
0 -
Gma, I'm sorry to hear about your Mom. It sounds like you lost your father when you were pretty young?
Lulu, I'm sorry to hear about your Mom, too. I can't imagine what she and your family are going through.
Mommyof3, I'm glad to hear you only have cysts. Whew!
Iris, those are some great neighbors. In your pocket for your continuing appointments this week.
Fightinggirl, you definitely should not have to pay for a redo on an MRI when it was the facility's fault the first one was unusable. Getting the office and their computer system on board with that may be a challenge, even if the radiologist agrees with you. The wait for surgical pathology results seems forever, I remember that well.
I have a Dexa scan tomorrow to see how my bone density is doing on the AIs, and then blood work on Tuesday in advance of my MO checkup next week. Also, I think I'm starting to sleepwalk. I haven't done anything like that in at least 20 years. I don't know if it is the stress, or what. I'm going to call my GP in the morning and see what he says.
0 -
FightingGirl: (laughing and crying at the same time) Finding the lump was the almond the techs taped to your boob hours before? Pure CrazyTown. But I'm putting my vote in for DON'T pay for the second MRI. Opening the packets with her teeth? Sweet deity. That's not just unprofessional, that's, um, unsanitary, to put it euphemistically.
0 -
GMA ..So sorry to hear about your Mum ...I'm glad you got to speak to her again ..and glad you can think of her finally with your Dad .
Di ..Thinking of you too ..I know it's such a hard time .
Lulu ..So sorry to hear what you and your family are going through too ..(( hugs. )
Been so busy with the grandkids lately .. Luckily it's summer and they can be easily entertained in the pool !!!
0 -
Oh dear sandy, all those repairs sound overwhelming. My place is 30 years old but no repair crisis of late.....knock wood
We'll today is onco appt. Told my sister the latest but even though she is sympathetic, she really does not understand how a surgury to fix one thing can morph into a whole new bundle of junk
0 -
HI, everyone -
I have a mammogram coming up in one week and I am terrified! I'm almost 2.5 years out from diagnosis, so most of the time feeling more comfortable mentally, but I can't stand waiting for MRI and mammograms. I'm just going to be a mess all week. Any suggestions on dealing with the anxiety these tests cause?
0 -
Greetings Readytorock. Most of us try to keep ourselves busy with stuff to try not to think about it. Breathe. It will be ok and whatever happens, you will find a way to deal with it. I try doing things like sewing, photo shooting nature, and talking to friends. Also just being here with Crazy town helps get through it. Hope these ideas help.
0 -
Readytorock, anxiety over tests is not fun. Are you having a diagnostic mammogram? I was glad I could get preliminary results immediately from the radiologist, that helped ease my anxiety. Iris, in your pocket for your MO appointment
0 -
FightingGirl, Welcome! Your almond boob story is absolutely perfect for Crazy Town! It's amazing what becomes "normal" when you have to deal with cancer.
ReadytoRock, Welcome to you! There is something about these tests that just take us back to the worries and concerns. I write the appointment down on the calendar, then forget about it until the day before... or try to. I also try to find something to look forward to on the day of the appointment. Maybe meeting a friend for lunch after the appointment? Or have a fun friend go with you to the appointment. I know that sounds weird, but a supportive friend can talk with you and help you focus on something else. Gma has good suggestions for this next week to try to distract yourself. I like to cook... and eat, so I search for new recipes or things to cook. It always takes longer to cook new things. I read fun books (as opposed to more serious ones) when I need distracting. Play with my pets. Then there are my three boys. With this latest round of tests, I have resorted to an Ativan a couple of times. If you are too upset to function, contact your doctor and see if this is an option for you.
Lucy, Enjoy your summer times with the grandkids! It's finally raining here is SoCal! Until recently, I hadn't thought about summer Christmas time "down under".
ChiSandy, Water leaks are horrible. We've had major leaks in our grand fixer upper. I told my DH that if I ever met the plumber who initially installed our house's plumbing, I would strangle him. We stayed in the house through all of our repairs, but it wasn't pretty.
I received the report from the radiologist regarding my aborted stereotactic biopsy and following 3D mammogram. His recommendation is a 6 month repeat of the mammo. No BIRADS listed in the report. He wrote that the area is most likely benign. Still waiting for the BS.... but surgeons like to cut... so who knows what he will recommend.
0 -
ReadytoRock: If you didn't get a massive case of nerves right before your annual mammogram, I'd worry! Another Vote for "Do something both amusing and engaging." I don't know what that might be for you; for me, it'd be something like a day trip to Chicago, or a visit to a chocolate making factory, knitting shop for lessons in something I didn't know how to do, spa treatment, something like that. But your tastes will vary. Come back and let us know how it went, though we'll all be in your pocket for the tests.
0 -
I have always voted for spa treatments the day before my mamo in fact I once told my tech about the way I spent the day before and they loved the idea
yeah, keep busy
Back from onco visit, they have the cd of the tummy scan from other place so they will review and likely,do a biopsy so waiting game is on
Tomorrow is cardiologist to check junk seen, got a big glass of wine tonight
0 -
In your pocket (do bike shorts have pockets?), Iris for the review and possible gut biopsy.
I am back indoors, off the ledge. Toilet tank leak was due to deteriorated neoprene gaskets at both the bottom bolt and ring attaching it to the bowl, and the both incomplete draining and intermittent spontaneous fill noises to a warped rubber flapper—both phenomena courtesy of Chicago's hard chlorinated water. Plumber replaced all gaskets, new screw & packing for shutoff valve handle, and threw in the flapper for free. (All of these were proprietary to Toto toilets, so I couldn't have gone to the hardware store or Home Depot to get them). Ran to $500, which would have paid for a new toilet—but the installation labor would have tacked on another $500.
And the guy from Chicago Water & Fire Restoration eased my mind: yes, there's still water in the ceiling over the fridge but it's not going anywhere. And all my ceilings are plaster, not drywall—therefore, no mold because unlike drywall, plaster does not support mold growth (one reason to like old houses). I remember when I was a kid seeing those Plasterers' Union ad cards over the NYC subway seats promoting lath & plaster and dissing drywall, in particular one saying “With wallboard walls you can hear a pin drop…in someone else's apartment." They didn't really know about mold back then, but if they had, I'd bet more people would have opted to “kick it old-school" when it came to walls & ceilings.
The remediation team is coming tomorrow to sand down the bubbled paint in all four rooms (the other three have no water above them), and set up exhaust tubes & fans for the kitchen ceilings. The inspection and remediation's less than $2400. Then once the kitchen ceiling is all dried out (they guesstimate 72 hrs., so we will likely lose access to the fridge for awhile and keep the most-used stuff in the basement fridge), the restoration crew will come in to skim-coat the plaster spots and re-paint each ceiling. Except in the pass-through room upstairs (a de facto walk-thru closet), where the cracks extend the length of the ceiling, they won't have to skim coat anything beyond the affected areas. The whole shebang may come in at less than $6000. Although the kitchen ceiling damage is covered by insurance, we've opted not to file a claim—in IL, two claims in two years will result in cancellation of a policy; and with snow, ice-dams, lightning strikes, electrical fires, pipe-bursts, hail and storm/tornado claims increasing, it's nearly impossible to get insurance unless a lender requires it, and at a much higher premium at that. We have a $1K deductible and own free & clear, so the inspector today advised us to raise our deductible to $5K and not file for anything <$7500. The year is still young, and who knows what Nature will throw at us.
0
