CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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poppy, don't mind if I pass the idea of a dirt party on to my neighbors who have a 3 years old with a boat load of TRUCKS.
I am feeling positive today, beppy is still here is spirit and think she would want us all to continue the group and offer help to new residents.
I am feeling good today, my doc appt for my colonoscomy and to talk to my onco are not till Jan 9 but I have decided not to stress the way I was. Made the first full dinner last night in some time, felt stuffed after a pork cutlet plus a mountain of sautéed veggies.....small glass of some stale wine and even a small bowl of ice cream. Wow but think I needed it
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Gma- that is perfect! Thank you
Tomboy - Beppy created this wonderful town and how blessed are all of us who find our way here. She is the mayor in perpetuity...
per·pe·tu·i·ty
ˌpərpəˈt(y)o͞oədē/noun
- 1. a thing that lasts forever or for an indefinite period, in particular.
- 2. the state or quality of lasting forever."he did not believe in the perpetuity of military rule".
Molly - I hope you are able to find a tidbit of time for you. My love to Wyatt, I hope he is feeling a bit better today.
Lucy- I feel her here too. She showed us how to maintain this town. She is in each word of comfort we share.
Ducky- I love your postings. You keep us grounded. Believe me, we need you for that!
Cubbie, Shorfi, Sula, Sandy, Tessu, Jan...and I know I am missing so many names...love to all of you.
For all the pocket parties I may have missed, I am sorry. I have become a rabbit hole cartographer...hopefully my aptitude for getting lost down here will benefit the newly fallen.
I have been busy looking for a new home, going to PT/OT and adding more doctors once again. I am not tolerating the Arimidex and feel like I am back where I was in June. My therapists will not continue with me until my pain issues are resolved. Here comes that whole medication snowball again. If I stop two meds, there is no need for therapy. If I continue, I need a nutritionist, pain management, mind/body, acupuncture, massage, MFR, OT/PT, chiropractor, more meds etc...
I am tired.
Love all of you crazies.
0 - 1. a thing that lasts forever or for an indefinite period, in particular.
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Robin......I need you all as much too......I have been down the Femaa, Letrozole, Arimidex road...it is was an ugly, painful, depressing road for me, and I chose to take the curve in the path..........I went off it...........I could not stand another day...........it was a very tough decision.......since I was choosing QOL........over "LIFE"........I never did get rid of all the problems the AI's gave me, but at least I got some relief........
I went from someone who thoguht before taking something for a headache to...a walking pill bottle........I worked 20 years for Big Pharma, I know what those suckers can do so I think twice before filli'ng anything they give me.......
Every ache, every pain, always makes me think............Maybe I should have just dealt with the SE's always thinking ......hmm, could this be a recurrance .......living on the edge is not fun.........and maybe I made a poor choice, but it was my choice............
I have put it in Gods hands................hugs.0 -
Happy New Year Crazy Town dwellers. I wish you all a new year with fewer doctor appointments and more happy events with your families. I dream of the day we can all meet on the front porch and rock away in the rocking chairs Beppy gathered for us.
Poppy, thinking of you as you wait for results. What a rotten time to have this worry hanging over you. Love you.
Stay safe tonight, Jan
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Happy New Years eve crazies. I adore each and everyone of you. My Wyatt got very bad, very fast Thursday night into Friday morning. My morning caregiver is out of town so I was on my own after DH left for work Friday morning. My nurse comes at 9. Normally I can handle whatever our young man throws my way but this time he couldn't keep his oxygen saturation levels up above 82 no matter what I did. He was too sick to cough up the junk filling his lungs and wasn't moving any air on the right side. After 1.5 hours of trying on my own I made DH come home and woke up the two adult kids to help. DD 24 is a lvn. DS I just need for the muscle because Wyatt's gotten too big for me to move on my own. We got him stabilized enough but with 15 liters of O2! When the nurse arrived DH went back to work. We still struggled to keep his sats up for another 4 hours until the frequent morphine started to help. We use morphine for air hunger, works pretty well mostly. He's a tiny bit better, still on too much O2 but did manage to cough up a lot this morning. At least I got sleep last night. I only had 3 hours of interrupted sleep the two nights prior. He's on abx since Wednesday night so hopefully they kick in soon. Prayers are always welcome.
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Prayers for Wyatt, Molly, and all in your household.
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Thank you, Jan
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Sending prayers and healing thoughts your way, Mollie!
Octogirl
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oh molly so sorry about how bad Wyatt has gotten. I am sorry, I knew he was sick but no idea how bad he really was. Ca
Well, tummy is feeling better this afternoon, hoping this is because the constipation stuff seems past. But I am the only person looking forward to my colonoscomy next week
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Molly I am sorry to read about Wyatt...being sick, with a disability, makes everything (including a cold) a tenfold event....sending love and hugs to Wyatt and YOU and the rest your family.
I have a lot of crazy town stuff going on and I will share that later.....
but TODAY, about 2 am My Mom died..... I'm sad, very sad
she lived a very LONG life (98+ years) and she died on HER mother's birthday
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Di ..so very sorry to hear about your Mum ...sending love and hugs to you and your family ..
Molly ..I hope Wyatt is feeling better ...
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Hugs Crazy Town Friends.
Robin, So sorry you are in the rabbit hole. I love seeing your humor and personality in your posts.
Thanks, Jan! Love you, too!
Molly, I hope Wyatt is improving with the antibiotics. There is a nasty virus going around. Prayers.
Di, I am so sorry. 98 years is a long life.
Today is my mother-in-law's 80th birthday. She is staying with us for the next few days. We had a nice, home-cooked dinner of steak and lobster for her tonight.... her request. Tomorrow, the rest of the family will come over and we continue the celebration.
Last night, my oldest son had his friends over our house for their Christmas celebration. They exchanged gifts and cooked dinner for themselves. Of course, they cleaned up, too.
I haven't been able to sleep lately. I think it's due to the stress of all this birthday/holiday stuff and waiting for my biopsy... well really the results.
Hoping we all have a much, much better New Year!
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di, so sorry about your mom, loosing your mother at any age is tremendous my sympathy to you and your family
It is a beautiful sunshine filled day so I think I need to get out and get some good old vitamin d
To a healthy new year for all of us
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Robin ..Yes ..I love your idea of Beppy being the Mayor in Perpetuity. ...Sorry about not tolerating the Arimedex ...I have bad reaction to nearly every medication their is ..But the funny thing tamaxifen is the one pill that leaves me with no side effects ( that I know off yet ) at all...But I see on you signiture you have already tried it ..
Poppy ..Happy Birthday to your MIL..And thinking of you waiting your biopsy ..I know the wait is awful ..What day are you having it done. ?
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I agree with keeping Beepy as Mayor forever!
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Di, my heart breaks for you. I am so sorry for your loss of your mother. When my dad died three years ago he died on the 50th anniversary of his own dad's passing.
PoppyK, your always on my mind.
I think we're past the danger zone with Wyatt. I told DH we really need to prepare ourselves. I don't think we'll be able to save him next time. This one felt different, like he's tired and doesn't have the will to fight anymore.
Thinking of our dear Beppy. I miss her. Tomboy, I got your message. I will text you soon. I am exhausted from both physically and emotionally going through this.
Love you all.
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Molly, hugs and much love, you are such a special person. So sorry about Wyatt's recurring illnesses. You are in my thoughts.
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So I've been hit with not just BC...but a post diagnosis PET scan revealed a 6 cm mass in my right kidney. Which was then CT scanned and noted as a 95% chance for renal cell carcinoma. Biopsies for kidneys (particularly those in the center as mine is) are not routinely done for good reason- the needle during removal could spread the cancer elsewhere. Given the size of the mass, it was decided that removal was necessary. Since I had already begun chemo and MO placed BC as priority to treat, we decided to hold off on kidney removal until after chemo & mastectomy was done. My mastectomy was 12/09. Since it has been about 6 months since kidney mass discovery, urologist wanted a CT scan before surgery (which will take place 1/11) prior to surgery so he'd know how things looked before going in. Had CT scan on Friday morning. I've been assured kidney cancer is typically a slow growing beast but I can't help but worry as the 5 year survival rate for stage IV metastatic kidney cancer is 8%.
Urology office closed early today so no news on Friday. I have a pre-surgery appointment coming up with urologist on Tuesday and I'm just overcome with worry, anxiety. Not a good way to kick in the new year for sure.
I'm also dealing with possibly deciding against radiation for my breast and armpit on cancer side. I'm seriously leaning towards a no. I'd rather not do anything that would increase my risk for lymphedema (I've had 4 lymph nodes removed sentinel node mapping; 1 was positive but cancer was greatly reduced by chemo- they didn't catch the positive during surgery testing- caught it during final results for path report & my BS didn't think level of cancer remaining called for axillary lymph node dissection). I hate the fact that these painful tissue expanders would need to remain in place for another 6 months during radiation & a recovery period. I've been told it decreases risk for recurrence by 5% and that just doesn't seem worth it to me given potential side effects and everything else.
I'm going to talk with MO at length at our next appointment after kidney surgery regarding radiation. I trust her judgment.
I just wish I could have gotten a call about ct scan results on Friday. This weekend has been a whirlwind of anxiety.
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Pepper ..So sorry you have this double whammy going on ..Please know we are in your pocket waiting for your scan results ...Waiting is always the pits .. pull up a comfy chair with us in Crazy Town , and feel free to vent as much as you want ..We all understand what you are going through ..(( hugs ))
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((((Pepper))))
I can't imagine what you are going through. I had radiation after mastectomy. I am 12 months out from radiation and my exchange surgery is scheduled for March 20th. The TE's don't bother me much and the longer you wait the better your chances of successful implants. I will be in your pocket for your pre op appointment.
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Molly, I'm relieved to hear Wyatt has turned a corner. I can't imagine the level of stress you and your family have been under. And poor Wyatt, being that sick. It must be exhausting for him as well.
Pepper, I'm hoping you get some good news from your scan. I've often said there ought to be a one cancer limit for all of us! Can your doctor give you an estimate of what your risk of lymphedema would be, so you can compare that to the benefits? I had two lymph nodes removed and had radiation rather that have more lymph nodes removed, and I have not had any problems with lymphedema so far. I didn't have reconstruction, though, so that made the situation a little simpler.
Di, I'm sorry to hear about your mother. It sounds like she had a full life, but you'll still miss her.
Poppy, is your biopsy this week? I thought it might have been the 5th.
Robin, you and I can explore the entire rabbit hole network together. They've got me loaded up with three different anti anxiety medications, and I'm still a weepy anxious mess.
I was thinking about Beppy today as I took down the Christmas decorations. I miss her presence here so much.
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Di.....so sorry about your MOm....hugs
Mollie.....Put Wyatt on a Prayer Line........
Heard from Bud, Beppy's husband on NY's Day...beautiful post from him, with a lot said that I had to hear.........I felt his pain as I read it.....I lost my husband when I was 56.....he was 57.......so I know what he is going through, and my heart aches for him......he also sent me a lovely picture of her making her famous "sauce/gravy".......I will treasure it always.............hope you all had a happy new year.0 -
Prayers for Wyatt, Molly. And Di, may your mom’s memory be for a blessing.
The Chicago outpost of Cray-Ville has gotten crazier, at least in my ‘hood. Our housekeeper left for AL the day before our NYC vacation because even though she was just there for T’giving, her son who gets panic attacks (which mimic heart attacks and have to be taken seriously at 42) insisted she come back down for Christmas. She was supposed to be back at work last Tues. Just before landing in B’ham, she felt sick….and a few days later got the word that she has strep and an ear infection, and her chest hurts from coughing. She planned to fly back home today…no word from her yet.
Meanwhile, Bob flew home last Mon. while I went on to DC to visit my sis. Neither of my guys have ever lived alone—either the housekeeper or I have been around to pick up after them (and Bob went straight from his parents’ home to our wedding—and at work the nurses do all the heavy lifting). So neither have any housekeeping skills whatsoever. Gordy had been taking care of our cat Heidi after her kidney stone surgery, and the bathroom where he had to keep her sequestered from our other kitty….well, not even a broom & dustpan and a qt. of Febreze were a match for it. Fri. night I called Bob before boarding my flight home—he was staying at a hotel near his hospital so he could get a head start on work Sat. and make it to our dinner & party. He casually mentioned he had a “cold.” Not until he walked in the door Sat. night did he admit he’s been sick since Tues., with his chest hurting from coughing. Uh to the oh. Finally went to urgent care this morning—and he has walking pneumonia. He was supposed to be home 2 hrs. ago to take it easy (which for him means cancelling office hours). But no word from him yet—phone went to voicemail. I am getting very, very nervous. He is on Levaquin and codeine cough syrup, the latter he can take only at bedtime for obvious reasons. I hope hasn’t landed in “the wrong side of the ICU.” Could use a few prayers here as well.
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So I just heard from Bob: he has another hour of hospital rounds to make (!!!!!!). At least he’s wearing a mask & gloves. He says he’s feeling a bit better, fever is down, and has been taking an expectorant inhaler. So his “easy day of rest” means he’ll be home about 10 pm.
‘Scuse me while I switch from cappuccino to Pinot Noir.
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Whew, Sandy! Glad to hear he is just not done at work.
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Well, I managed to just now see that Beppy passed last month. Oh that just breaks my heart so much. I know her spirit is here on these boards, she always managed to make me see the humor in our various and sundry predicaments.
In her honor, a couple of updates:
Today, my psychotic (medical term here, kind of like schizophrenia, no fun) developmentally disabled brother managed to sidetrack his social security funds into a personal bank account he managed to set up. So I'll be on the phone with social security and a couple of banks tomorrow. Hope his rent check doesn't bounce that I already wrote out when I assumed the money would be coming into the account I manage. He did it because there was a $300 bonus for starting an account with automatic direct deposit. Oy vey!
AND, do you remember the crazy neighbor that built her bulkhead stairs onto our property and the storm washed them away? Well we went down to inspect the beach after this latest storm and either we had a 50 foot tsunami (no we didn't) or she somehow managed to schlepp a half of a styrofoam rowboat that had washed up on our beach a couple of weeks ago to our side of the bulkhead. So weird how people who have a fit if you step on their property will do something like that. We were waiting for the tide to wash it farther down the beach. I think I will drag that thing over to the property line now and use it as a planter...maybe I'll paint it a hideous orange color...
I'm already dreaming of what to do with the shed we just repaired. #1 paint it in blotches of whatever paint I can get from the recycle center? Or #2 hire my artist friend to paint a truly amazing mural on there that will make her green with envy? Or a compromise for my tight budget's purpose: TRY to paint a mural myself knowing it will be totally awful and will drive her nuts to have to look at it?
A Toast to our mayor in perpetuity, dear Beppy, who cared about each one of us and didn't want us to worry. God love her, she was terrific.
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A share..........thought you all might like to see this..........this is my Girlie......like all super Italian ladies, making the meatballs for her sauce/gravy............miss you Girlie.......love you
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Hi All - room for another? I had a transvaginal ultrasound done on Friday - last week. My gynecologist to follow-up on an ovarian cyst because I'm so high risk for mets....
I *thought* I would have heard back from them - by now on the results...but am too scared to call them.
It's hard living like this. I have to have a bone scan in June. Not because the last one showed mets but because my MO wants to watch me very carefully due to my dx of stage 3...grade 3...very large tumor...
I am constantly searching for information and am tired of being scared all the time.....
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Scared, Of course there's room for you in Crazy Town. Perhaps it's taking longer because of the holidays?
Molly, ((hugs)) So glad to hear Wyatt is doing better. It breaks my heart to read that you don't think he will make it through another episode like this recent one. 💔
Ducky, thanks for sharing the picture of Beppy. I'm glad you are there to help Bud. ❤️️
My biopsy is today... at 2:40. I'm still in my robe and in the verge of tears. I was so fearless before my diagnosis. I drove myself to and from my first biopsy. Now, my hands are shaking and I'm an emotional mess. I had to take Ativan last night so I could get some sleep. I'm planning on taking more when I leave the house to go to the appointment. My husband is in complete denial. I'm afraid of what this could be, but hopeful that it is nothing. However, my 17-year-old son couldn't locate some important paperwork this morning, my first thought is that I haven't finished raising my kids so they can function properly in this world. Our last holiday guest just left yesterday, so I think this is just hitting me really hard right now. Plus we haven't told any of our family and friends.
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