CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Scared ..Welcome to Crazy Town ..I hope you hear good news soon .I think ovarian cysts are fairly common ..But waiting for results is so hard
Poppy ..In your pocket for your tests ..Last August I had to have a biopsy on my " other ' breast too ..I remember my heart sinking when they told me ..Mine turned out to be benign ..Sending prayers yours does too ..My hubby sounds exactly like yours ..He is a glass half full person , and never worries about anything until there's something real to worry about
Ducky ..Gorgeous , gorgeous photo of Beppy. 😘
Eggroll ..Welcome back ...! Yes we are all very sad about Beppy 😞
Molly ..How is Wyatt today. ?What a lucky boy he is to have you as his mum ..
Going to my daughter's for lunch today ...
Love to you all xx
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Molly, in your pocket for the biopsy today. You too, Scared, for benign results on the TVUS. (Those are no fun, regardless what they’re looking for).
Bob’s better, back at work, seeing a pulmonologist colleague (but dragging his feet on using the “Acappella" vibratory “exhaler" that is supposed to shake up the crud from his lungs so he can cough it up). Housekeeper doesn’t have pneumonia, and just left here after finishing her first day back at work. Me? Heading off to Walgreen's to get that Pneumovax booster. (Would get it from my PCP, but first he’d weigh me and read me the riot act).
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Thanks Poppy and Lucy and ChiSandy for the warm welcome...yes...I'm thinking that must be the reason (because of the holiday)...just wish the waiting could be easier!!
Poppy - I know the fear you have right now...it is very painful. I hope you can get past this soon with good news. Your DH sounds A LOT like might. It drives me nuts when he tells me not to worry! I'm glad you have some Ativan to help get you through this...as to me waiting on results after a breast cancer diagnosis is mental torture. I keep a bottle of Ativan in my purse...
ChiSandy - LOL about your PCP reading you the riot act!! I have gained 8 pounds since starting AI's about 7 weeks ago!!!
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With you Poppy. Keep the Ativan flowing until you get your results. Hugs and love.
Scared, welcome to our CrazyTown. Sorry you have to deal with waiting. We serve mocha latte with Ativan sprinkles on the front porch. Open 24/7 for hugs, laughs, kleenex, hand-holding, pocket parties and whatever anyone needs.
Ducky, thanks for posting Beppy's picture. Do you know if Bud has looked at all the messages and memories we posted after Beppy's passing? They were all so touching that I hope that some day, if not now, he would love to see just how much she was loved.
Molly, thinking of you and Wyatt.
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Thanks Jan69! Mocha latte served with Ativan sprinkles - sounds like the right combination to me!!
Btw...my condolences to the group over Beppy...I wish I could have known her...
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Happy New Year (have to keep saying that because I still can't wrap my head around a year without Beppy in it.
)Thanks for all the well wishes for Wyatt. He is doing better but not back to himself yet. We all have observed how hard this hit him and after him feeling really good on Christmas. I think that was our gift from above, to have him awake and happy on Christmas.
Poppy, I hope you feel me dancing in your pocket.
Ducky, thank you for the picture of Beppy. What a lovely photo!
Scared, welcome to CT. I hope your results come back soon!
Love to all of you!!!!!!!!!!!!!!!!!!!!
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Not sure what Bud has done with regard to this thread........maybe he needs to wait........after going through it to, I can say reading about her right now might be very painful......I am certain when he is ready he will.....he knows how much we all cared about her.....I think he needs more time.............It's a kick in the gu
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Welcome, Scared! Pull up a chair on the CT porch!
Poppy, in your pocket! Let us know how it went...Molly, sending hugs for Wyatt and for you.
Ducky, that pic is beautiful, thank you.
Love to all!
Octogirl
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Thanks for Molly and Octogirl for the warm welcomes!!!
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Welcome, Scared! I've heard those transvaginal ultrasounds are no fun. I'm hoping you have an ordinary cyst. Like Lucy said, those do seem to be very common.
Poppy, let us know how it went when you can.
Ducky, that's a great picture of Beppy!
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Poppy, thinking of you today, and all day yesterday too.
Ducky thanks for that picture of Beppy in her kitchen. The look on her face is priceless, like, "I don't want my picture taken, but I can't help but smile at you!!" I am having tears roll down my face and a lump in my throat as i write this. She was so good to me, and really made me feel included in a way I am not sure if I will ever feel again. We did not have nearly enough time together, either on the phone or in person, and I am really mad at myself for not seeing her sometimes when I could have. Two different gatherings that I can think of, and times I could have driven to see her, especially at the end. I am so lame, I just didn't know what to do, go there, or leave her family their privacy. I was so jazzed that day she rallied and called me out of the blue, and so happy that when my phone rang as I was getting ready to go into the store, that I actually dug through my purse to see who it was, because normally I wouldn't look, wouldn't talk in the store. So incredibly happy to hear her voice, I must've yelped loudly, because I do remember people glancing over! I just don't know if I have it in me to keep or start loving/liking anyone again. I have lost 3 close friends now in the last 6 years, and I am shipwrecked.
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Just want to let you know how it went yesterday. Thanks for all of the prayers and good thoughts, and being in my pocket. After an hour of squishing and prodding, the radiologist couldn't get good specimens because the locations of interest are too close to the skin. Ugh. They did a 3D mammo, then sent me home. The radiologist will get together with my MO and BS and come up with a plan. So I'm sore, but feeling okay.
Well, just got a call from my MO. She said that based on all of the evidence and the 3D mammogram, that the main area of concern is most likely fat necrosis, but without a biopsy we cannot be certain. She will see what my BS thinks. I feel much better knowing that it is most likely nothing, but don't know if I will sleep peacefully without definitive answers.
Thanks for all of the support. No one else understands what it's like.... and it keeps me from smacking my cheerful, optimistic husband up the side of the head.
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Pop, I have a HUGE are of so~called fat necrosis, and I have had it since my first after treatment mammo. They didn't biopsy it, ever, they just said that's what it was. Dead fat, ew. And they have never mentioned it again. Mine is re scheduled for the 25th of this month and I am so in trouble, probably, because of stopping the tamoxifen.
Up there I didn't mean to say I don't love anybody, its just that I am tired of my friends being mowed down, and you guys are all I have left.
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Tomboy, I so get it. Losing our friends, our tribe, is something we can never be prepared for or understand. There's always an empty spot in our lives. I lost another good friend just before Christmas and this loss also knocked the wind out of me. I also kick myself for not making more effort to see Beppy again. Let's circle the wagons and hug each other as we work through our grief.
Poppy, I hope you are able to relax a bit while you wait for a final determination. Hugs and love to you.
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Winding down from a crazy week. Had pre-op appointment on Tuesday with PS and routine appointment with MO yesterday.
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I will be in ct for a while it seems. Tomorrow I have a colonoscomy, monday I see my onco and Tues I need to see my cardiologist. Tummy is still not good and the CT scan of abdomen showed several suspicious areas. Crazy town.?...feeling creeped out at what it could be but hey, it took me 2 years to find a solution to my back issues, least I have a doctor and a great hospital to start.
Pocket party...?
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pocket party, Iris! You know it!!
Tomboy and Jan, I feel the same way.
Meanwhile, I have a new spot on my nose making me crazy....looks like a freckle, sort of, but I keep worrying it is cancer. Seems a small thing to worry about, but I am worried and it stares at me in the mirror each day. Have a routine apt with MO in two weeks so I will ask him about it then....
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Octo.....why not just go to a Derm.......with anyting skin cancer related that is what I do.........I have had quite a few removed.......was a sun worshiper..................
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Was thinking about Beppy with this picture - She is shining through all the fog and in our pockets. It just made me feel good.
I will be traveling through some rugged icy conditions today to take GD to her dad. Couldn't go yesterday. We were snowed in and the roads were a mess. Have to go today or her dad won't see her before she goes back to mom.
Iris, I'm in you pocket! but not bringing anymore sugar treats. I have a sugar hangover this morning
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Poppy - glad to know the area of concern is most likely fat necrosis!! But, I know what you mean about the lack of definitive answers...after getting a BC diagnosis - anxiety about test results will always be at stratospheric levels... I hope you get solid answers - soon - for peace of mind...
Tomboy and Jan - Sometimes cancer feels like a war...like an enemy that takes from us whoever it wants. I had a friend at work - who was rock climbed, followed a meticulously healthy diet and was the picture of health. He got an extremely rare and aggressive form of lymphoma...at age 35 and passed away a 3 years ago. I still remember him fondly and my heart hurts when I think of the times that I could have reached out to him...
Iris - in your pocket as well!! I hope you get more answers on your CT soon...waiting for medical folks to figure things out and get back to us is excruciating...
Octogirl - I am covered with freckles/moles... I know what you mean about finding a new one! So many times I've diagnosed myself with skin cancer - to find out it was nothing!! I agree with Ducky - maybe call and see if you can get in early with a Derm. - before your MO appointment - so you don't have to worry about it for two wks...
Thanks for the welcome Cubby123!!!
As for me - they posted my transvaginal u/s report without calling me first. And, I read it - then was immediately freaked out because although it stated my cyst remains relatively unchanged" (I've had this cyst - for the past 10 years) BUT it stated "can not r/o cyst-adenoma. Of course they posted this - after office hours. I called anyway - to ask for an MD to contact me because I felt as though I was about to have an anxiety attack over it. An MD called back and was not happy with me calling because she stated this was not an emergency. And, that she was dealing with patients who had real emergencies. I told her I already have BC and am very scared. She called back while I was in another room. I didn't hear my phone ring because I had inadvertently turned the ringer off!!! Anyway...she looked at my u/s and said it's a simple fluid filled cyst. I called my OBG's office just now - as I still feel I need clarification on what the heck cyst-adenoma means...
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Well here's another one for the books... I found black spots on my back, noticed it in the mirror, they had blue in them... immediately assumed I had skin cancer. Hubby agreed, it wasn't normal. Allergy nurse today agreed, I should get them checked out. Now I realize those must be the other two tattoos I can never find. Right? One in the small of the back, one up higher near the shoulder? Cancelled the doc appoint. I knew that blue color wasn't normal...
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Ladies.....every ache, pain, joint hurt, headache, cough, stomach ache.........what do we always think.........and now it's our moles, old tattoos, etc............and every test ordered becomes a "new cancer to us"...........we can't help it..................it's an ugly f/n disease and we don't want to deal with it anymore........but it haunts us just the same...........we try to be positive, happy, upbeat........not worry........bwhen someone finds out the way to do it............Let me know.........I haven't yet.............hugs.
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Exactly Ducky!! Life is forever changed for us...
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I am sorry I been off for a while....
Thank you all for your condolences and kind words for the loss of my Mom....been very hard, and I became very sick the night she died, (I wore a face mask when I came to visit, since I had the sniffles/coming down with a cold)
I saw my MOM just 10 hrs before she died. She was at my sister's house....she had told my sister just before I got to her house she wanted to be taken to the hospital and DIE.....an ambulance was called at 9pm that transported her to the hospital, which is only two houses away from my sister, she seemed fine when hubby & I got there, just in pain from broken ribs.
**Ducky-Love the picture of Beppy! I think of her often
**Pepper-I will be in your pocket on 1-11
**Eggroll-I feel your "Neighbor frustration"....We have it times TWO neighbors! ONE of them build a "cart Path" on OUR property, to get their GOLF CART to their waterfront! Mural suggestion.....a hand, with a GIANT middle finger extended.....pop art the rest in UGLY but BRIGHT colors.
**Iris-in your pocket for CT and other testing
**ChiSandy-missed your post...hope your vacay to NYC was great!
**Poppy-Welcome to the Necrosis club....I was told After ultra sound a couple years (?) ago I am a Member....my breast surgeon explained it, that when taking out breast tissue they want ALL of the breast tissue, but if other tissue is disturbed, and is left, it dies. My recent MRI (Nov !8) reminded me I have "fat necrosis/scar tissue, fairly symmetric".......my "beads of pearls" (my term) of varying sizes from breast bone down and almost under foobs on BOTH sides, I can see them on a pic of one view of my MRI.....my "My underwire
( unlike a bra) consist of NECROSIS...gag! only a few of my "pearls" actually hurt.
I became sick with a cold, nasal congestion, sore throat, cough, wheezing, lung pain, ear ache (had ear infection) feaver of 101.9 ......went to urgent care....to awaiting ROOM full of masked people....seems the the flu is epidemic here, according to local news, even though I had the SUPER senior flu shot in Sept...Was told it would be milder for those that had a flu shot....on the mend slowly with, FOUR Prescriptions, narcotic cough syrup, an inhaler, amoxicillian, Predisolone. Need a nap now...more later
**Scared...will be thinking of you
**Tomboy- I identify with losing our friends to cancer.....It hurts so damn much!!!! I lost my very best friend to brain cancer we were "besties" since I was 15 and lost her on her 51st birthday, another girlfriend to stomach cancer, another to lymphoma....makes me want to walk alone, without girlfriends. other than CRAZY TOWN, friends. my hubby is my BEST FRIEND, I love VERY MUCH.
Love & Hugs to ALL,
Di...on DRUGS
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Poppy, that sounds hopeful. Let us know what your BS says.
Tomboy, you were probably the closest to Beppy, so this must be hard on you indeed. In your pocket for the 25th. Does your MO not know that you stopped the Tamoxifen?
Iris, three docs in three days? That is quite the tour! We will be in your pocket also!
Octo, I definitely recommend the dermatologist for any freckle that worries you. One of my co-workers had a spot like that on her nose and it turned out to be.a seborrheic keratosis, which is benign and was easy to remove.
Gma, safe travels!
Scared, I think they put those "cannot rule out" notations on things pretty often, because they need to cover all their bases. Hopefully your ObGyn can give you some explanation soon.
Eggroll, your RO should know exactly where they put those tattoos, if there is any question. I'm glad mine are where they are easy to see and keep track of.
Di, I hope you feel better soon. The flu hasn't been too prevalent here, but plenty of people have miserable colds and we've had quite a bit of bronchitis going around.
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I hear that not just the flu, but strep throat and strep pneumonia are going around here like wildfire. Had a bacterial sinus infection & laryngitis in early Dec., had the sr. flu shot back in late Sept., and my 5-yr. Pneumovax 23 booster a couple of days ago (Prevnar 13 last yr).
Iris, huge pocket party. I’ll bring the wine—got plenty in the basement.
Octo, I’m sorta freaked by a couple of freckles just below & behind my L ear, but the derm inspected me all over in Nov., so not gonna panic. I have a followup in May.
NYC & VA/DC were great—except I got some food poisoning from something on the salad bar at Fogo de Chao in Midtown on Christmas night (Bob didn’t have the same salad bar stuff as I, nor did he have one of those cheese rolls). I was fine by morning. Bob came down with what he thought was a rotten cold on the 27th (the day after he flew home and I flew on from Midway to DC). Finally went to Urgent Care on Tues and got a chest X-ray—and it’s right lower lobar pneumonia. (Hence my scurrying to Walgreen’s to get my Pneumovax). He’s on Levaquin, Phenergan w/codeine syrup at bedtime and Mucinex DM during the day, and under orders to use an “Acappella” vibratory exhaler to shake the crud loose so he can cough it up & out when he needs to. He’s feeling much better. He took only New Year’s Day off—went back to work right after his Urgent Care appt., wearing mask & gloves when seeing his patients. At least he cancelled his next couple of office days. He thinks he got it on either the flight to or from NY, but I didn’t. I bet he caught it from a patient—or from our housekeeper, who started feeling ill even before her flight landed in Birmingham the day before we left for NY (she went to see her son and the grandkids for Christmas). She got strep, but in her ears, not her lungs. She was supposed to fly home the 26th, but her ears didn’t pop until New Year’s Eve. And she almost didn’t get on her flight home—at the last minute there was a tornado right near the airport and they had to wait 4 hrs before the all-clear.
And a cyst-adenoma? No worries. An adenoma (not the same thing as an “adenocarcinoma”) is a benign tumor—fibroids are “fibroadenomas.” When I was premenopausal, I had “adenomyosis:” fibroids growing inward into the uterine wall (bass-ackward). My OB-GYN, after confirming via TVUS and biopsy, told me that I could get a hysterectomy, or keep taking NSAIDs for my painful, frequent copious periods until menopause cured it. I opted for the latter solution, but at 54, a 6-week period was the last straw. A progesterone shot and a course of Provera pills finally ended it, and I had an extremely uneventful menopause.
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Hi all: Thanks for the replies; I know going to a derm probably makes sense, but I have a fear of doctors, especially new doctors, that makes it easier to start with MO. It's a long story...the abbreviated version....it really isn't the docs that scare me at all, it is that (as I may have mentioned here?) I have a serious phobia about having my blood pressure taken...and of course, what do new docs want to do? MO just shrugged and told me he wouldn't make it part of routine if it would keep me away (Bless him)....just so hard to go through it more than I have to.
I really am crazy. Which makes me think of Beppy: the first time we met I told her all about my weird phobia; she just nodded and smiled and said she understood and it was ok....she never judged....and I know you residents of CT get craziness as well....
Spent a lovely holiday with the grandkids, but caught a bad cold, either from them or from hubby, so I join the sniffles-are-misery club. Fortunately, it hasn't gone near my lungs. Di, hope you are better soon, and glad your hubby is doing better Sandy.
Hope you had safe travels G'ma!
We are bracing for a big storm out here on the west coast: all rain where I live, so likely will spend a very quiet weekend at home resting and recuperating...there is concern about flooding, including the Merced River flooding its banks in Yosemite: fortunately, I am not in a flood zone but will be keeping a close eye on my favorite National Park since I have plans to visit for my birthday in February.
Sending hugs to all! and Thinking of all of you, especially the quiet ones!
xoxoxo
Octogirl
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well hope from colonoscomy, dang glad that is done. No sleep last night so plan an a dandy nap. Doc said only one small polyp but biopsy takes a well.
Monday I still need to see my onco and Tues cardiologist. Oh well. Least the worst doc is done, little clean up needed as cleaning gal not due till next week.
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Iris, I am so glad that visit is done! Sounds like good news. I have been ducking my colonoscopy for a year. Now with this latest breast issue, I don't want to even think about starting in on something on that end of me!
Stay dry Octo! You know I love Yosemite, too! I hate the blood pressure cuff squeeze. It might be part of my claustrophobia. When I was going into one of my surgeries, I complained that the blood pressure cuff on my leg was hurting me. You know, when it's too tight and the rough Velcro cuts into your leg? I've come out of surgery black and blue from these python-like devices. Well, the male nurse gave me some grief about it "not hurting that much". I almost flew off the gurney to tell him to f off. (My surgeon had it adjusted.) I hate that they always want to take our blood pressure. I frequently tell the nurses that I'm under the care of my primary and that my blood pressure is fine... and was taken last week. They usually make a note, and move on.
Regarding my failed breast biopsy: I have no lumps or bumps. I thought fat necrosis usually results in lumps. What have you found from your experiences? I would much rather have dead fat in me than cancer. Still waiting for an appointment with the BS.
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poppy, i remember having a finding of fat necrosis on one biopsy, i sort of thought it was from all the procedures and scar tissue at the time. It freaked me out big time but surgeon assured me it was not to worry. I do not Remember that I had felt any lumps at the time but it was something on a mamo
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